View Full Version : Attn. those who have been diagnosed...

02-06-2005, 02:20 PM
Could you maybe help us all to understand what your symptoms were? Maybe this will help some of us who are wondering? What actually made you go to the doctor to get checked? Did you have the classic symptoms? HOw old were you?

I am 27 and was told not to worry about it, but how can I not worry!

Nassau one
02-06-2005, 02:35 PM
My husband was 65, had just started taking meds for high blood pressure and felt that it was those that were making him feel nauseous and go to the bathroom more than his customary once a day. It was six months later that he went for a colonoscopy and found he had Stage 111 rectal cancer. Had had no other symptoms before that. It just shows that it is best to get checked out. It happens to much younger people too as we see on these boards. When in doubt, check it out!

02-06-2005, 03:19 PM
I was 28 and starting bleeding rectally on and off. My internist said it was nothing too. She said it was Advil, hemmorhoids, or the stress that I was enduring. At 31, the bleeding got worse, and I starting passing mucous and clots, and referred to a GI doctor. He scoped me and found the tumor. PLEASE do yourself a favor and get a referral to a GI doctor-- don't walk... run! If I was referred when I should have been, who knows what I wouldn't have had to endure. If you think something is wrong, it probably is. Just Go TO A GI SPECIALIST!

BEst of Luck!

02-06-2005, 03:26 PM
CancerDad thats really good advice but where I live in the UK its really not that simple.
I have had problems and have been waiting months on the NHS, its great to have a free service but its very frustrating.

I wish I could run and see someone, sadly its more of a snails pace. :)

Nassau one
02-06-2005, 03:35 PM
Colomo, hopefully, Ktee, who also lives in the UK can advise though I know her husband too had to wait for some time before he was seen and as soon as he was diagnosed everything was panic stations! Is there any way you could be seen privately and then get back into the NHS if there is a problem? I think this is why so many Brits are now taking out medical insurance in spite of the NHS, which is too over burdened. This disease does not wait on health systems!

02-06-2005, 10:08 PM
I am male. My mother had colon cancer when she was about 62. I had a colonoscopy shortly thereafter, nothing there. I was to have one again in 3 years, instead, 5 years later when I was 45 I started having blood in my stool every bowel movement. Since it was Christmas and I knew I had hemmerhoids I slathered on the Prep H and thought nothing of it until late January when i realized that the Prep H was doing nothing. Still I figured I had split a hemmerhoid(it had happened before, about ten years prior to this) so when I made an appt with the Doctor I was sure that is what he would say. Instead he immediatly phoned the surgeon's office next door. As I was his last patient that day it was late in the day and the surgeon's office had closed. The next day I got a call from that office with an appt to see the surgeon, I was sched'ld for a colonoscopy and the mass was biopsied. Path report said precancerous but due to the low location of the tumour I was referred to a colo-rectal surgeon(the general surgeon did not feel she had the qualifications to work there). The c-r surgeon then sched me for a trans-anal excision of the tumour. He said it would be a 4 hour operation if they saw that they could get it all, a 2 hour operation if they determined that it had invaded the rectal wall too far. ..... I woke up and looked at the clock,,,,,2 hours had passed. Next operation was a complete rectal resection(rectum, anus and some muscle removed). I have a permanent colostomy.

Moral of the story, if something is strange go see a doc sooner rather than later. If you have a family history make arrangements to have a colonoscopy every 3 years after age 40 at least.(though Cancerdad proves that younger age is not a 100% get-out-of-cancer-free ticket)

02-07-2005, 01:02 AM
Well obviously in Oz (australia) they take us more seriously. I umm went in with possible (and was) haemoroids... the doc said, just to make sure, we will send you for a colonoscopy.. (I had to miss my first appnt which was within a month) and went the following month...(but druing this time my pain in my lower stomach and lower back was getting worse by the day) anyway I went for the colonoscopy... and they couldnt do it, coz of a blockage.. thats where I am up too.. They have found a mass on the sigmoid colon.. Tommorrow I find out what the score is!! keep tuned for more updates !!
(btw Im so so so really friggin scared tonight, even tho I know what the specialist might say, its scary to think that this is for real ) :(

02-07-2005, 11:46 AM

Husband was diag by his family doctor with piles in 2002 (think it was around feb/march). Age 43. He took meds for piles and for a while this seemed to make things better so there was no reason to believe it was anything other than piles.
By summer 2002 he had started to lose weight. But this coincided with him buying a new bicycle and going for long rides each night (10 miles a night) so of course, when he was told how trim he looked he puffed out his chest and felt great.
By about Nov 2002 he had continued to lose weight and pile symptoms came back along with stomach tenderness. Went back to doc who suggested it may be IBS as well as piles.
By New Year 2003, weight dropped significantly and his doc decided to refer him to colorectal consultant within the NHS. About March he got to see the consultant who suggested that it may be IBS but suspected he could feel a mass which needed scan and colonoscopy.
In April results came back and confirmed stage 4 rectal cancer. His weight had dropped from around 200lbs to 140lbs.
His treatment was:-
Bowel resection in May 2003
Chemo of Oxaliplatin/5fu/folonic acid for 3 months starting in June 2003
Liver resection in Sept 2003
Radiotherapy/chemo 5fu for 25 days starting mid December 2003 (merry christmas)
Chemo Oxaliplatin/5fu/folonic acide for 3 months starting in Feb 2004
Back to work June 2004.

As you can see, it took ages to get to the diagnosis stage but this was because there was a protocol that the GP went through, ie, ticking off the easily treatable probs first. By chosing that route, he added almost a year onto the date when he could have first been diagnosed had he had the right tests from when he first presented his symptoms to his GP. A year is a prescious long time because with bowel cancer your symptoms often do not start presenting until it is in later stages.

yes, in the UK it is v.difficult to get the tests done but the key is to talk to your GP about your symptoms. If he suspects at all that there is the risk of cancer then he has the power to put you on the cancer fast track. This means that you should see someone within 2 weeks of referal. Give your GP another chance but give him all the info on your symptoms and tell him if you want to go see a consultant.

Good luck