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satman
01-09-2003, 11:45 AM
[This message has been edited by satman (edited 02-16-2003).]

lazoo
01-09-2003, 04:22 PM
Welcome, please let us know more about you. What type of E and what meds, surgery, VNS?

Krazykcio
01-09-2003, 10:16 PM
Hi Dan
It really is a warm and fuzzy place to escape here. It's also a place to get info. Be well...and welcome, Kathy

satman
01-10-2003, 05:11 AM
Hello and thank you for the warm welcome. I have had siezures since I was 8 years old due to a tragic car accident that left me in a coma for nearly a month. I experience numerous types of siezures. GTC's which are about 90% controlled, simples which are about 75% controlled and absence which are also about 75% controlled. At present, I don't drive and don't intend to until we get these things back under control. I am on 1350mg of trileptal and 80mg of inderal. My short term memory is nonexistant, fortunately my 13 yr old boy follows close behind me to make certain I am caring for myself and take my meds when I am supposed to. Again thank you for the warm welcome.
God Bless....In His Service....Dan

lazoo
01-10-2003, 06:49 AM
Hi again! Just have a question. We are considering brain surgery for my daughter. She has a tumor on the left temporal lobe. One of the risks of surgery I've read is loss of short term memory. I just don't understand. If one doesn't have short-term memory - especially a child where not much is in long term memory yet - how can one learn anything that is taught to them? Thanks for any help. lazoo

satman
01-10-2003, 08:19 AM
Hello Lazoo:
I'm not much of an expert in this area, but I believe the loss of short term memory following surgery is temporary. Nonetheless, children are amazingly resilient, any neurological loss or damage, their brain, because it is still developing, will compensate and make a new path. My wife is an R.N., better equiped to answer that than I am. When she gets back home I will ask her for her input. How old is your daughter? I will be praying for her.
God Bless....In HIS Service....Dan

Krazykcio
01-10-2003, 10:54 AM
Hi Dan,
I suffer from partial seizures that have progressed to complex partials....then to grand mals. We may have the grand mals under control, but the jury is still out! I have a lesion of scar tissue on my brain that I'm told is from a prior, significant brain injury. My first seizure was about 16 months ago, at age 47. I don't drive, and haven't since the first seizure. Each time I get close to the six month date I have another seizure. My new (and MUCH improved) seizure specialist has said that his goal is total seizure control with no side effects. I love his goal, and hope we can achieve it! I take carbatrol, but am in the process of gradually introducing Lamictal. I have a history of statis epilepticus, but I am fortunate in that I have a few minute warning period before my seizures are debilating. Because of this I carry powdered Lorazepam in a vial on a chain around my neck. Lorazepam is the med they give you in the ER of a hospital. I take the lorazepam and a swig of water (also in a vial on the chain) and lie down. I also have Lifeline and just push a button to summon an ambulance that comes to make sure I've recovered if I'm home alone. This has all been real life changing. Hope all is well, Kathy

lazoo
01-10-2003, 12:53 PM
My daughter is 8 years old. Thanks again. lazoo

nicola76
01-10-2003, 12:57 PM
Hello Dan

Just wanted to drop you a line and say "Welcome to the Boards"! :D This forum is full of great people who offer support and friendship as well as excellent advice and info.

Take care and see ya around!

Nic :dancing: