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Oleander53
01-26-2009, 04:03 PM
Hello Everyone........Thank God for you guys....

Well here I have been worried about my Thyroid all this time...and there was something else lurking.

I found a lavender flat spot in my genital area about 2 months ago..it did not hurt or itch....just an odd colored spot. Well I had it off last Thursday and it came back Bowen's disease Carcinoma in situ....... Only I could get a skin cancer where the sun don't shine :jester:

I have cried all afternoon. I am grateful it is not Melanoma. My Dad and brother had Melanoma. But I am scared. It has a 30% metastisize rate.

Here is a bad Doctor story for you:

So I woke up today with swollen glands in my groin, armpit and neck and said that is not okay. So I called this Female Gyno that did my Biopsies ( she had not gotten the report back yet that I had cancer) I told her I thought my biopsy area had an infection. She completely blew me off. Did not even come to the phone. Had her nurse tell me it was " unrelated and to see my family Doctor". So I went to my Family Doctor and he was alarmed. He said I needed antibiotics and called for my Path report. We together read the results..........He told me I had cancer not the jerk who did my biopsies. I will never step foot back in her office...I am going to see how long it takes her to make that call to me....

Just say a prayer for me .......make sure when you get your female exams that they look at everything really good and check for skin cancers down there too.

Oleander

juner50
01-26-2009, 05:13 PM
Hi Oleander,
Sorry to hear that but glad you caught it. I had Bowen's removed from my finger years ago. It didn't at all look like skin cancer. It was an Endo I was seeing at the time that noticed it on my finger. I thought it was a wart or something....which was odd because I never had a wart before.

If I were you I would go find another Derm that specializes in MOHS Surgery and have them take a look and give you their opinion.
Take care hon.

Oleander53
01-26-2009, 07:36 PM
Thank you......I am reading up on it tonight Squamous Cell Carcinoma. Have you had anymore problems with it?

I am happy it is not melanoma and happy to have hopefully caught it early.

Thanks for sharing with me.. Oleander

Oleander53
01-26-2009, 08:16 PM
Interesting in my studies it says this Squamous Cell tumor can secrete a parathyroid hormone that can make you have an elevated calcitonin.......Very interesting.......O

midwest1
01-26-2009, 09:31 PM
Oleander,
I'm so sorry to hear this news. Sending you my most postive thoughts that it will turn out just fine for you.
mw1

DR37
01-26-2009, 11:07 PM
I'm echoing Midwest here and am sending positive thoughts your way. So sorry to hear that you had ANOTHER health issue to deal with. And hooray for you for not going back to that Gyn. Has she even CALLED you yet?! So lame...Anyway, best of luck dear. Let us know how it all turns out. :)

mkgb
01-27-2009, 07:32 AM
I am wishing you the best and have you in our prayers. You have been a great help to many here and hopefully this issue resolves quickly and efficiently despite the MD incompetence.

I second that you should go to a dermatologist and get it and your whole body checked over thoroughly. I have a dermatologist and they give me a full body yearly exam. I make my husband and six year old son do it as well. That Ob sounds like.. well not the best MD by any standard.

MG

juner50
01-27-2009, 01:10 PM
Hi Oleander,
I never had any problems with it since. As I said it was quite a few years ago. At the time the Derm actually didn't think it was anything worth removing because it didn't look suspicious but I insisted after my Endo told me to. Plus it was right on my knuckle which made bending my finger hurt. Boy was I glad I listened to the Endo!! The Derm was rather shocked AND apologetic after the results came back.

I'm really past due for another checkup. Your post just gave me the kick in the butt that I need to make an appt.

Sending good thoughts your way and make sure you follow up with another Derm.

kindspirit
01-27-2009, 02:16 PM
So sorry you're having to deal with another health issue, Oleander. Gee, the doctor crapola continues... Glad you are on top of this! Isn't it strange how people get c's in non sun areas. Sending you prayers and healing!!! cj:angel:

osteoblast
01-27-2009, 02:30 PM
Oleander-Best of luck to you . Hopefully you are now through the worst. . Odd that the dr. doing the biopsy wasn't responsive to you when you had concerns . Yes, that would get to me too and make me wonder about the level of involvement that she was willing to have. Trust your feelings on this . Let us know how it goes :)

keystone206
01-27-2009, 02:31 PM
Oleander,
Sorry you are going through this! Will keep you in my prayers!

alikat709
01-28-2009, 05:29 AM
can we all get some kind of movement going to get rid of all these lame doctors????? We all here have been left at the mercy of incompetant doctors Yet they still all have their medical licenses and are still practicing their VOODOO on many more helpless people out there. Is there not something that we can do ???????
kathy

accessn12
01-28-2009, 08:54 AM
Oleander, I can't tell you how sorry I am that you've had a scare such as this. I know how difficult it must be. Carcinoma in situ is a good thing to hear though. It means it's confined and almost always curable. My dad had an area of squamous cell carcinoma removed from his face many years ago and so did my brother-in-law. Both of them are totally fine. You will be too. You've got to be. I'm still saving that jug of moonshine for our party. :)

Oleander53
01-30-2009, 05:13 PM
Thank you all for all the great responses and information........As ususual you guys are all awesome!!!

I have been in an ice storm up here and no power or water for 4 days now...unable to answer. Pioneer woman I am not. I have a wood heat source and I always have a good water and food supply. Many people without power still......So sorry I am delayed in my response.

Nothing like sitting in the dark and cold pondering your skin cancer.:dizzy:
..Actually I am feeling better mentally and have an appt with an Onc Dermatologist on Feb 3rd my Family Doctor set up for me. My Family Doctor has been wonderful and very supportive of me.

I have NOT heard from the Gyno.....she has yet to call me. I am going to wait and see how long it takes for her to call me with my results.. I will probably have seen the Derm by then...

My lymphnodes are settled down since the antibiotics so I feel better about that.

Thanks you guys and I am in much better spirits.......I talked with my Endo too and he said he would help direct me if needed.

I will let you know what the Derm has to say... Only I could get a skin cancer on my choochie coo where the sun dont shine...........LOL

Thanks and love to all of you...........Oleander:wave:

DR37
01-30-2009, 10:12 PM
Oleander, I love how positive you are! Coochie coo, haha, you're too funny :)

SO glad you're lymphnodes are better and you're getting support from your OTHER Dr.'s. Let us know how your appt on the 3rd goes! And if you-know-who doesn't call you until after your Derm appt, you should write her a guilt-ridden nasty gram so she doesn't make the same mistake with other patients. :mad:

Ooh, I'm happy you're one of the lucky with power back! Sending warm fuzzies your way! :wave:

Oleander53
02-03-2009, 05:58 PM
Hey Planet Thyroid prepared me for Planet Skin Cancer.

You would have been proud how I questioned the Onc Derm as he cut away on me today......LOL Now I am searching for a good Gynecologist Oncologist in Arkansas but you know me and I will travel for a Good Doctor.
Here is an update and I hope it is okay I post this here. :wave:

By the way I have yet to hear from that female Gyne who did my initial biopsy....let's see that was on 1/22.......Glad I am not holding my breath. I am way ahead of her.

--------------------------------------------------------------------------------

Well I saw the Dermatologist today. He was very nice. He looked me over head to toe. Then between my legs Well he could see more cancer where the first Doctor missed it so he said it had to come out NOW. So he cleaned up the margins and sewed me up.

We had a long talk about genital skin cancers and how they are not talked about.

He is going to read my first slides and will send out for a 2nd opinion if needed. ( Yes path slides can be misread) :eek: He said if the margins are still not clear on this 2nd cut I will have to see a Oncologist Gynecologist for a more radical surgery. He was pretty direct with me. So I get the results next week. I can do my homework on finding a good Onc Gyne in case I need one. My gut tells me I may need one. He also said I would have to be checked every 3 months for a year.

He also told me that Bowen's Squamous Cell Non HPV cancer is usually from an envirormental arsenic exposure. Like pesticides and such. Sooooo I guess I need to research that. He asked me where I grew up. ( makes me wonder about my thyroid).

I was really happy he did not find anything else on me that he felt needed to come off right now. With my Family history of Melanoma that made me happy.

Thanks for listening......any thoughts or ideas? I will let you know what my results show when I go to get my stitches out.

I only cried once today.......welcome to Planet Skin Cancer

Oleander

DR37
02-03-2009, 10:13 PM
Wow, that is a LOT to digest. I'm SO glad, though, that this guy seems to be serious about kicking this cancer's butt! And you're right, NO ONE talks about genital cancer. I don't think I've ever heard about it! Thank goodness you've got some good resources to figure out what to do. And I'm REALLY glad there wasn't anything else, either. Melanoma can be scary, so that's a huge relief. Let us know what he says when the results come back and what the treatment plan will be. We are pulling for you! :)

Oleander53
03-04-2009, 06:04 AM
Wish me luck today. I see the Oncologist Gynecologist. I keep remembering how I had to travel through all my Endocrinologists and Doctors to find a good thyroid one. :(. I am dreading this.

I have a list of questions and many about any Hashi connection since I have met more than several women now that have Hashi's and a genital cancer. Autoimmune disease is listed by the American Cancer Assoc as a possible cause of Vulvar cancers.

So I will let you know what they say. I understand I will have a Colposcopy and PET scan maybe today.

Keep me in your thoughts.........Oleander

mkgb
03-04-2009, 06:19 AM
I am wishing you well and all the luck I have in storage that this is a GREAT MD.

MG

Reece
03-04-2009, 06:29 AM
I'm sure there's a much better chance of finding a sensitive cancer doctor than endocronologist-----just by the field of career choice---hopefully you find someone that reassures you and will help you beat this quickly too!

Wishing you a speedy and full recovery........

Oleander53
03-04-2009, 06:32 AM
Thank you Reece !!!!! Oleander

keystone206
03-04-2009, 01:51 PM
Hope things went well today, and that you get some answers soon! You are in my thoughts and prayers!
Lynda

Oleander53
03-04-2009, 11:21 PM
Thanks everyone for your support.

Oleander

jujubean7929
03-06-2009, 01:31 PM
I am so sorry you are going through this. I am normally a very mellow person but I have no tolerance when it comes to doctors that donít realize the importance of their job and how much a large majority of people trust them with their lifeísí. I vote when youíre doctor does call with your test results you should have someone eles answer the phone and tell her you are not there because you died of cancer and it was nice of her to finally let you know. I only suggest this in hopes this would be an eye opener for her. Anyways I had better stop before I go into a rant. Good Luck I hope all goes well.

Oleander53
03-06-2009, 03:19 PM
Hey thanks......I agree........ I could rant on and on about it !!! Oleander

JessicainCanada
03-06-2009, 05:05 PM
Just wanted to pop in Oleander and let you know that you are in my thoughts and prayers with your ordeal:D.

Hope the specialist is helpful with getting everything said and done also!. Come back and say hi on the cervical cancer board if you get time, miss you:wave:.

***Hugs***

Jess