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Dodie3736
02-05-2009, 08:55 AM
finally a place to be able to talk to someone with the same problems.. I got polio in 1938 at the age of 2...(go figure my age) haha... I had it from the neck down. This was before the Kenny treatment when polio was called "Infantile Paralysis" and children were isolated until they found that they were not contagious..There was a lot of experimenting in those days, so I had 8 surgeries on my legs which did nothing to fix them.. But with therapy and lots of prayers by family and friends, I did recover enough to get around with a profound limp and weakness in both legs... My arms took over and held me up all these years.. And I thank God for every one of those years.. I raised a family (a little slower than most).. but raise them I did with the help of a wonderful husband....About 20 yrs ago, weakness became more pronounced and I started falling at the least little movement.. The pain and twitchings were so uncomfortable, especially at night...So here I am back on crutches again... I found out about PPS through an article in Readers Digest many years ago...I had to explain it to the docs because at that time there was nothing known about it.. I also found a support group about a half an hour from me.. But, one by one these wonderful people had to drop out... and the group closed... I am still getting around with crutches... but my arms are very weakened because of them.. Each day, I can get up, I count as a blessing...Oh believe me there are days I feel sorry for myself.. I call those days my P M S days... Pity Me Sydrome... Thanks for listening to me...:D

crochetqueen
02-06-2009, 09:17 PM
Hi Dodie! Been on the board a long time but not lately. Love the new stories! I love the P>M>S> days. I have plenty of those. I had polio at ll months old in 48. I've had over 20 surgeries and I'm in a P.C. and wear a long leg brace and cruthes to get out of the house but like you feel blessed every day. It could always be worse. I too have depended on my upper arms for strength and boy they are quickly failing me. Good talking to you and hello to all my old buddies. Hope everyone is doing fine. Love ya

CherPPS
10-31-2009, 12:08 PM
Hi, I am new here too. I had polio in 1959. I do have a Doctor in MA that studied PPS. I use a canadian crutch, so that it doesn't cause a weakened condition in my under arms. You should look in to that. <edited>

Dodie3736
11-01-2009, 12:04 PM
Hi CherPPS... It's nice to hear from you... not too many people answer... I do use 2 canadian cruches... but my arms have gotten weaker from all the years of use.. lifting me up and setting me down..(and I ain't that skinny lol)...plus I have arthritus of both shoulders and a torn rotator cuff...Orthopedic surgeon can't do anything for me except have me do some exercise... I am way older than you are and thankful that I still get around..not too many docs know what to do for it so I take it 1 day at a time.... I used to go to a heated pool for exercise... but after a year, DUH, I realized it was making me more fatigued... so I had to give it up..
Tell me a little about yourself... I have 5 children... one as a matter of fact was born in 59... I did good for a long time with just a weakness in both legs.. by the time my youngest was 15... I started feeling the ... well you know all that... We live in PA now.. raised the kids in N.J. and I was born in Brooklyn, NY... we have 10 grandkids & 11 great grands... I am indeed blessed. keep in touch... God bless you... Dolores...

Dodie3736
11-01-2009, 12:10 PM
Hi Crochetqueen... how are you doing??? I don't get on here too often... I am doing okay... still have my P M S days... occasionally.... keep in touch... HUGS Dolores

rockman
11-05-2009, 12:02 AM
Hi, just found you on our message board. My name is teresa and i had polio in 1960 when i was 18 months old. Tell what problems you are having. Talk to you soon teresa

kanndogirl
11-05-2009, 02:59 PM
Greetings to you all. I am new to the site and in the process of doing research to what all is out there for 'the forgotten children' that survived polio. I contracted polio at age 3 halloween day in 1951. (what a trick!!) Never supposed to have walked again, but had two unbelievable parents and one super fantastic orthopedic doctor. I did walk again, and eventually without braces for a fair part of my life. Very grateful. October 1, 2008 was my last official day of work - finally gave up the ghost, accepted the facts and applied for disability - my timing was great and it went through the first time, thank goodness.

I've seen some questions on here that I had last year, and I can tell you one of the best things I did was educate myself. Found a book, The Polio Paradox by Richard Bruno - wow, what that book took me through. I whole heartedly believe that EVERY polio survivor should have this book and read it. It helped me to come face to face with myself, confront things long ago buried, see how I got to be the person I am, and provided a lot of medical information, not only that would be good for a physician, but things that I could understand too.

In visiting doctors, I learned to ask if the doctor was not familiar with PPS to ask them to read up on it BEFORE my visit - and when I found the one doctor that did know, I knew that he KNEW what he was talking about because of my research - he reiterated right back to me the things I had learned.

Dodie, the twitching is something that I have begun to notice in the last year, and wondered if it was PPS related, you answered that question for me. Thanks.

I've learned no magic pills, no treatment, no cure the only thing we can do is conserve our energy/strength in order to preserve it. If you exercise in the normal sense, don't, it will actually backfire on you, may seem to get better for awhile, but then it comes back, and it is worse. Learning to conserve and not push myself has been (and is) a really tough one for me.

So sorry this was so long, but it is great to touch base with other survivors.

CherPPS
11-15-2009, 10:49 AM
Hi Dolores,
It was nice to hear from you too.
I never had children and I always blamed the drugs used to cure the polio but now I see others have had kids. I do have 3 step kids and a grandaughter. I just started to work part time because my doctor wants me to work no more then 6 hrs a day, then go home and nap then exercise before I continue my evening. My work does not understand or cut me any slack at all. I about ready to look into disability. I live in Rhode Island. I am always in pain. The polio has weakened my legs and my back, but I go on and try no to complain.
God Bless you too
Cher

CherPPS
11-15-2009, 11:00 AM
Hi ,
My name is Cher. I had polio iin 1959 at the age of 4. Unlike you, my parents could tell me nothing about it. My Dad is deceased now and my Mom just tells me she could never remember anything! (??)
I am having a real hard time working and they just don't understand. I would like to go on disability. Could give you give me any advise as to how to get the claim approved the 1st time?

kanndogirl
11-16-2009, 01:21 PM
Hi Cher, and everyone else.

Mercy, had a lot of trouble getting back in to be able to post again:dizzy:
but i'm here now and username and password seem to be working well - yippee.

Dr Bruno's book "The Polio Paradox", for me, is a MUST for us survivors, sometimes you can get it used on some of the book sites, it is worth saving the pennies for!!

Cher, i would be delighted and honored to help in anyway i can with the application for disability. I did do it myself, online. I started out by making a list of my ADL's that i have trouble with. ADL's are activities of daily living, such as walking, standing, sitting, cooking, washing dishes, taking a bath or shower, shopping, cleaning, etc. The biggie for me was being honest with myself, i.e. 'of course i can sweep the floor' -- in truth, yes i know how to do it, but what happens when you do it, truthfully it is a chore to get the sweeper out, yes, i have to stop every 5 minutes to rest, yes i cheat and will sit in the chair or on the couch and sweep every where i can and then move -- truthfully, no - i can't sweep. I can't do it the way i used to.

I put a lot of it down at one time, but kept adding to it as i came across things and the 'oh there's another one' set in. Keep in mind, when they talk about activities of daily living, they are referring to how everyday normal people do them (and maybe how we used to), the tricks and shortcuts we use to accomplish things are only 'normal' to us :)

Once I had all the info together, i set up an appt with my primary care dr, and he filled out the paperwork for short term disability thru my work so i could take care of appts and whatever i needed to do to get this under way. He was not familiar with PPS, but he did do some reading on it per my request prior to the appt. He wanted me to see an ortho, which i did, and he came in the arms and legs crossed and i knew he did not believe, and he didn't, told me my issues had 'nothing to do with polio' - he was right, but he was wrong and i'll never see him again ;)

Then my family dr and i discussed neurologist and i asked him about a physiatrist, and i wasn't too keen on the neuro and he didn't know of a physiatrist so he referred me to Dr Lewis Seeder in Westerville, OH who's specialty is physical medicine and rehabilitation - he was the one who sat down and told me all the things that i had found in Dr Bruno's book, and Dr Seeder is the one I used as the specialist for disability and i believe he had that hugist impact on it going through the first time.

I had a sedentary job, so it was difficult for SSD to understand why i couldn't do it - but #1 you have to get to work first and be able to get back home (snow and ice caused huge issues) #2 if you run out of energy, work doesn't care, you can't stop and take a nap.

It took about the whole 6 months for the determination to go thru, and i was lucky that i had short term disability from work to help me financially through that time, and a brother who was able to help the last 3 months when my STD dropped to 50%. I qualified for long term disability thru work, but they require you to apply for SSD and when that is approved they subtracted the SSD from their amount and i'll get the difference from that until i'm 65.

OH, BIG thing is, you can not be working when you are in the application process.

Please, if you have questions, or anything, - i'm delighted to be here to help.

rockman
11-16-2009, 11:44 PM
HI DODIE, ARE YOU ON LINE NOW? WE CAN TALK ABOUT ANYTHING AND EVERYTHING. TERESA:wave:

Dodie3736
11-17-2009, 03:47 PM
yes I am Teresa... and usally can talk anyones ears off... lol

Dodie3736
11-17-2009, 03:49 PM
Hi Teresa... I guess you have signed off by now... the post don't give the time they were posted..Talk to you soon... Dolores (Dodie)..;)

Dodie3736
11-17-2009, 04:02 PM
Duh I just noticed the time at the top of the post... boy see what age does to you...How are you... Tell me a little about yourself... I think I'm old enough to be your mother, maybe grandmother... I've had polio since 1938 when they called it Infantile Paralasis (s).. I retired twice because of it... in 86 when my job of 13 yrs closed down... I was able to get on dissability automatically...(I feel so bad for you folks out there that are having a hard time getting dissability).. and went back to work in 90 doing the same type of work... by 95 my arms were getting weaker and I couldn't lift up the units I worked on...although they were not really heavy... I just couldn't move them from station to station...and of course, no one understood...I really went into a depression because of it... but decided it was not like me to be depressed... so I lifted myself up and dusted off and got back into life again..With a great husband and fabulous kids to help push me along... I'm doing okay....

rockman
11-18-2009, 09:14 PM
Dodie, how funny your e-mail was, i am sitting here now just smiling, which is a very good thing. Yes, i am 50 and i had polio in fall of 1960 at 18 months of age. Started having nerve and muscle pain in 1996 and can i tell everyone it sucked!!!!!! The one good thing that came from all of this is i found my love for dogs. I never ever would have and animal in my house if i was still working. I try to tell my sister they are missing out on something special. Tell me about you your thanksging plans. Talk to you later, teresa

rockman
11-18-2009, 09:24 PM
Hi, just found your post and noticed you live in tennessee, i live in maryville. You can read my post and get to know things about me. From one tn volunteer to another, have a great day. Teresa

Dodie3736
11-19-2009, 07:43 AM
Hi again, Teresa... aren't animals especially wonderful... they do make one's life complete... we tried 3 times to have a dog when my kids were young.. but you know how puppies can be... rambunktious...and they always tripped me... especially when I was holding a baby.. so we had to let them go...which broke the kids hearts... better that than me on the floor all the time...I got around okay but you could knock me over with a feather...hahaha...but we always gave them to good families...
When our youngest daughter, at that time 13yrs, old brought a kitten into the house without my knowing... I just notice that the cans of tuna were dissappearing faster than usual..and I was the only one that ate tuna because I'm always on a blinkity blank diet...I found the kitten after about 2 weeks when I went to put the girls clothes in their room.. which they usually did... I told them they would have to let her go... Well beg they did and I gave in... but told them.. If she trips me just once... out she goes... well believe it or not, we had Tanya for 14 yrs... and never once did she trip me... It was like she knew... and when the kids grew up and left home.. Tanya stayed with us until she got sick...Now you know the rest of the story.
We all have our storys... funny or sad.. and its good to share...It's nice talking to someone who is going thru the same thing I am going thru.. my friends really don't understand, even my doc doesn't understand.. so I tend to keep my pain to myself...This is a good site to talk... talk to you soon,
HUGS Dolores (Dodie);)

Dodie3736
11-19-2009, 07:58 AM
Hi again Teresa... You did ask me how I was doing for thanksgiving... I'd like to shoot the guy that came up with the idea of the phrase.. "The Golden Years".. yeah right... between all the aches and pains... there is also forgetfullness... Well we are having Thanksgiving at a friends house... and celebrating it on the Sunday after with our children in DE because they both work on Thanksgiving..
We only have 2 children near by..in DE which is about an hour &1/2 from us...
1 daughter in Colorado... and she is your age 50... and 1 in Kansas... age 47.. and youngest son in Fla... age 40... see I told you I was old enough to be your mother....Talk to you soon... HUGS Dolores (Dodie)

rockman
11-19-2009, 10:27 PM
Hi dolores, i have a hate and love relationship with thanksgiving, love to eat it, hate to cook it and clean up. Do you hate having your family not livclose to you? I lost my mother in 2003 and my father 14 months later. I miss them so much, i could never pay them back for all them did for me. I have 3 older sisters (who have really stepped up and help me out) and 1 younger brother (who really was a pain in the but growing up) we have a special bond because we were brought up together. I am so glad to have a family, i never had any children but do have a step son age 21. Are you still able to walk and drive and do you remember the pain you experienced when you first had polio? I will talk to you later, my 90 pound boxer and 12 pound malti-poo are both trying to get on my lap. Teresa

Dodie3736
11-21-2009, 07:54 AM
:wave:Hi Teresa.... I hate having my family so far away... but the girls call me at least once a week... and the grand kids keep in touch on line... as a matter of fact, my daughter (Kansas) and her daughter & family were here for a visit in June... I hadn't seen her since 06..when we took a car trip out west for a month to visit them,my daughter and grands in CO and my sister in MO and friend in AZ.. of course there's not much I can do anymore... my husband,(God Bless him) takes care of everything... and he is 83... but when the girls come over, they take over to give him a break... I kinda supervise..lol.....I walk w/crutches and use a scooter to get around stores... I still drive... w/hand controls..I got my first set of hand controls 34 yrs ago, when all the kids and their friends chipped in for them for our anniversary... and I won't give that up..as long as my hands & forearms work.. ... the doc told me to get into a wheelchair but I'm not ready to give up just yet....that's why they call us "survivors"...
I don't remember the pain at the beginning... just what my mother told me.. she said I was just shy of the iron lung... so I've come a long way, baby...lol
Thank goodness, I only have a cat... I don't think I could handle a 90pd
boxer on my lap.. now the malti-poo I can.... take care of yourself.. talk to you later... HUGS... Dolores

CherPPS
11-21-2009, 08:10 AM
Hi Nancy (kanndogirl),
Thank you so much for your wise words on the disability. I do have a great doctor that studied under Julie Silver MD who wrote the book Post Polio Syndrome for Survivors and their Familes. I just went from full time to part time at work but now that I heard from you I'll have them put me out to get the application thru. I will be back in touch with you but I want to Thank You so very much. It makes me so happy to have people like you to talk to. Someone who really understands and lives the same pain and problems as I do. It makes me cry!
I'll let you know how I make out. I'll probably work until the new year.
love and prayers,
Cher

rockman
11-22-2009, 07:39 PM
Hi delores, with all our technology you are able to stay in touch with your family.......would not your mother be amazed at what we are able to do. I hope you are going to have a wonderful thanksgiving......i will have my great niece with me(name brianna 11, going on 25). She will be a great help and i will use those young legs and arms. I use my scooter all the time and have pain and weakness in both arms, have swallowing problems. I hate to clear my voice all the time and i know it is not pleasant for family and friends to hear. I have very nice and polite family and friends, except for one sister.....name mary who has trouble hearing it......she is my cross to bare......they have to be one in the bunch.....talk to you later, teresa

Dodie3736
11-23-2009, 10:03 AM
Hi Teresa... see I've learned something new from you... the clearing of the throat... I didn't know it was related to Polio... I hate doing it... especially when I'm driving... usually grab a cough drop to quiet it... my friends & hubby just ignore it... which is a good thing... but it bothers me... Tell Mary to "go sit on it"...lol......I ordered the book...The Polio Paradox... a used one in good condition... I probably will learn alot more than I know now when I get it...When I found out about PPS, I figured nothing could be done about it so I looked no further and there seems to be so many things that come along with it, that I don't know of..... You have a wonderful Thanksgiving... I give thanks everyday for all the years that I had raising our children... so now I can handle whatever happens to me ... God Bless you... HUGS.. Dolores...:wave:

rockman
11-23-2009, 09:02 PM
Hi doroles, happy thanksgiving and i hope you will not gain an ounce of weight on turkey day. Talk to you later, teresa

ambadeavinash
11-28-2009, 10:05 AM
Hi Dodie,

God bless you...it takes lot of courage and determination to carry yourself through all these years..I am newbie to this msg board...

Good to be a part of a forum like this at the not a very early stage of life ..i am 28 years old man with polio been struck at a age of 1.5 years (I guess you would not like to check my age..now..:)

Had heard about stem cell therapy that could be a possible cure to polio cases like me

Dodie3736
11-30-2009, 11:15 AM
Hello ambadeavinash... How about a easier name to call you...My name is Dolores... Dodie is a nick name...
You say that you are a 28yr old man???... you are so young.. I guess the vaccine was not available to you...How bad do you have it... do you get around on crutches or are you in a wheel chair????...
I am 73 yrs old and have had it since 1938... and the only way to handle any problem that comes along with it, is to have a good outlook... and know that you can do anything...sometimes with a little bit help or sometimes a lot of help ... but you can have a good life...I think it is a little too late for me to even consider stem cell therapy... but if it will help you... go for it...
Keep in touch... It is so good to be able to talk to everyone out there who is going thru the same problems... only if you have gone thru something, do you understand it...Nice talking to you.. & God Bless you... Dolores

kanndogirl
12-03-2009, 09:54 AM
Hi Everyone - just checking in to see how everyone is doing. Don't know who all lives in the areas that has winter (haha)snow, ice and dampness - the weather changing days really take a toll on me, can ususally tell it's one of those damp, cold days before I even get out of bed :)

Cher, do you have your disability from work ready to go full time yet? I think you will find the stress relief very interesting - me, I knew I had stress, but didn't realize how much until I was home full time. Let me know how things are going.

Dodie, you are certainly an inspiration to all of us.

I recently got a free ******** of Julie Silvers book and have been reading in spurts. It is very good. I wonder if maybe someday we can read these things without all the tears:) It bugs my roommate when she hears me crying, and she makes me stop reading and gets me out of the house - at least it makes her feel better.

All of you take care.

Nancy N

CherPPS
12-04-2009, 09:04 AM
Hi Nancy,
I am out of work for 2 weeks right now because of stress. I am going to my polio doctor on Monday to start the Disability going. I'm hoping he will keep me out of work so the application can go thru. I have been on anxity pills along with all my other meds, but this week I haven't needed them. Thats what my crumby job does to me. Along with PPS I also have diabetes, high blood pressure, sleep apnea, thryriod disese and carpel tunnel. So I think I deserve a break fom work. I worked full time all my life but now the pain is taking over. Thanks for your support. I'll let you know of my progress.
love & prayers,
Cher

Dodie3736
12-05-2009, 12:04 PM
Hi Nancy... I sympathize with you and your weather...I feel it even before it starts.... it is snowing right now here.. and baby it's cold out side... and I'm cold too...the dampness goes right thru me even inside w/the heat up... so I wear heavy sweats... I cannot get out in the snow at all... all that slipping and sliding ... so Christmas shopping is put on hold for now..
I finally got the book "The Polio Paradox." and reading the coverlet, started me bawling...I started thinking of all of you young folk out there w/PPS and what you are all going thru...There were times I thought I was the only on going thru this and now I hear all of your stories and my heart goes out to every one of you....and I am so proud of you all for hanging in....

Cher... how is it going w/dissability???? I hope you get it soon... just hang in there...your break will come soon... I think of you often and pray that you can handle everything that comes along w/this dang PPS..take care of yourself..
God Bless you all... HUGS Dolores:wave:

rockman
12-06-2009, 12:21 AM
Hi everyone, hate cold weather, all i want to do is go to bed and turn on electric blanket. Heard on the news we are going to have a cold winter......i have an idea, lets all pool our money and buy a tropical island......i will be the first to donate $1.00. Keep warm
teresa

Dodie3736
12-07-2009, 12:21 PM
I'm with you Teresa... I even have a dollar left over from Christmas shopping...I thought it was warm in TN... I'm in PA and baby it's cold outside... but that's part PPS.. cold extremities... Thank God, my husband is an oven... even at this age we snuggle to keep me warm... wooo woo...lol... Hugs Dolores

rockman
12-08-2009, 12:32 AM
Hi, do you want to be called dodie or doroles? It was in the twenties here with wind chill added in, i was on defrost all weekend. We need to get more donations started and see if we can get a tropical island with a loan financed for about 50 or 60 years. Talk to you later. Teresa

CherPPS
12-08-2009, 08:50 AM
Nancy,
The doctor I go to, in MA, studied under Julie Silver, so my treatment is really just by that book. It is a must own book for me.
Cher :angel:

CherPPS
12-08-2009, 08:55 AM
Hi Teresa,
Count me in for the tropical island purchase. I live in New England. We have already had snow. BRRRRRRRRRRRrrrrrrrrrr It makes me hurt from my neck to my toes and every place in betweeen. :(
Stay warm,
love & prayers,
Cher

sue 5678
12-16-2009, 03:32 PM
Hello, everyone ! I have'nt been on for awhile but it's nice to know that there are quite a few of us out there! I do have pps. I am only 39. I got polio in 1970 at 2 mths old. I have managed to get around with a weakened right leg, that has caused a severe limp. Due to limping all my life, I have really uneven hips and messed up lower spine. Reading your messages lets me know, that with proper care, and plenty of rest, that i will be ok. I am already on dissablity, and it only took me one try. It wasn't an easy decision to come to, but I know that it was something that needed to be done.
Thanks
Sue:wave:

CherPPS
12-17-2009, 07:55 AM
Hi Sue,
My name is Cher. I had polio in 1959 at 4 years old. I have been suffering for about 25 years with doctors telling me there is nothing wrong with me, but I do have a good doctor now. I'm glad you at takling care of yourself so young. I say that because I don't think my pain would be so bad if I had known at a younger age. I have problems with my legs, hips and back also. I am out of work now. Just starting the disability process. I hoping I can get approved without having to pay a lawyer, but I am taking my time with the application.
Stay in touch
My prayers will be with you
Happy Holidays
Cher

Dodie3736
12-17-2009, 08:17 AM
Hi Sue & everyone.... Cher is right, Sue, it is good you are taking care of yourself now before you start to feel really bad... I think I am the grandmother - mother to all of you out there and if I can make it, you all can do well too....I guess you know when I got Polio..(1938) way way back when... lol..
You will get that dissability, Cher, just hang in there....
I want to wish all of my friends out in HealthBoards... and Very Merry Christmas and a Happy and Healthy and Blessed New Year.... Love & Hugs to you all... Dolores... (Dodie to you Teresa)... LUV...:wave:

rockman
12-18-2009, 01:14 AM
Oh DODIE, DODIE YOU MAKE ME SMILE AND ARE A VERY FUNNY SPECIAL LADY. TO CHER AND SUSAN, I WAS ABLE TO GET DISSABLITY ON MY FIRST TIME. FOUND A SPECIALIST IN GEORGIA, DR. PAUL PEACH. HE FILLED OUT ALL MY PAPER WORK AND WAS WONDERFUL. THE PAPER WORK WAS AWFUL AND WILL TAKE AWHILE TO COMPLETE. BEST OF LUCK AND WISHING EVERBODY A MERRY CHRISTMAS AND A HEALTHY NEW YEAR. LOVE TERESA

sue 5678
12-18-2009, 12:04 PM
Thank you for all your words of encouragement...!
I did get on dissability on my first try Cher,so I am sure you will not have any trouble. I did not need a lawyer, so just hang in there and don't get discouraged.
I hope everyone has a blessed holiday, enjoying family and friends. However, lets please pace ourselves and get plenty of rest! I am already feeling overwhelmed!
Take care!
Love Sue

kanndogirl
12-21-2009, 02:10 PM
Hi Everyone,
First off - EVERYONE - have a happy and peaceful holiday season. Plenty of rest = plenty of enjoyment. Enjoy family if they are around.

It sounds like all of us who are on disability had no problem getting it the first time out. From what everyone has said, the key factor is having an aware physician, prior diagnosis, and (I think) being honest about our activities of daily living (ADL's).

Cher, just do the forms in spurts, you need mental breaks from those things, and don't try to read too much into the question (that is something I do a lot, hehe)

Cheers to all!!
Nancy N:wave:

CherPPS
12-23-2009, 03:29 PM
Merry Christmas, to all my new friends!!
Happy New Year and take good care of yourselfs.
Love & Prayers,
Cher

rockman
12-25-2009, 01:57 AM
Merry christmas and i hope a safe one. Stay warm with a loved one and a electric blanket, with all need both. Love, teresa

gilboandco27
03-29-2010, 02:37 PM
Hi Dodie! I had polio in 1954 when I was 18 months old. I was very 'lucky I think' as It only affected my right leg at the time, so as I got older I could do almost anything apart from running for the bus ha! I now know that I have PPS, I know I shouldn't be bitter as there are people much worse off than any of us. It was the shock of being struck with It again after I thought I had liked It. I first noticed something was wrong when I started falling over. Now I also understand why I was getting chronic fatigue too. I'm In the UK and most doctors here don't know much about It. I've already given In to crutches and wonder what will be next? Thank God I've found a place to talk to other polio survivors. God bless. Jim in the UK.

Dodie3736
03-30-2010, 10:07 AM
Hi Jim from the UK... Isn't it great that we all have a place to go to vent... which I know we can do quite often.... I call it my PMS day... not for you I guess..... PITY ME SYNDROME... you can use it if you want to... I won't hold it against you... I think I am the old lady of the bunch... as you have probably read...I got polio in 1938 (at age 2yrs)... just shy of the iron lung... The better parts of my body took over quite well and I walked w/braces & crutches for quite awhile and they were not made as comfortable as todays' braces... "I" discarded them when I was a teenager and learned to walk without them..and did very well.. just a wobbley gait and heavy limp.. I even got married and had 5 children...and with the help of a fantastic hubby we raised them all... our oldest was born in '59 & youngest in '69...
I know all that you are going thru is hard to accept, and like you said, there are people worse off than we are....I've experienced all of the symthoms and have been noticing a few more lately... well I guess a lot comes with age... I can go on and on all day... my hubby says I talk to much (on the puter)... cause my voice give out when I talk to much normally... to his delight haha
The best thing to do is to conserve your strength and try to have a good outlook on life. Take it one day at a time.. It's gotten me this far and it will you too..God Bless.....Dolores (dodie) from PA:)

Dodie3736
03-30-2010, 10:11 AM
Hi Cher... how is it going with your dissability???? You haven't posted... I hope you are well and your dissability came thru......

Dodie3736
04-01-2010, 08:08 AM
To all my friends on this board... I hope this finds you doing as well as possible... Remember to take it one day at a time.. and rest when you are tired... I want to wish you all a Blessed & Happy Easter... :wave: and remember...hopping is for the Easter Bunny....so don't overdo...Love & Hugs
Dolores (dodie):jester:

CherPPS
04-03-2010, 06:04 AM
Hi Dodie,
I am doing OK. I have been busy with doctors apointments to get my S S Disability approved. I had to get a lawyer, because of my job. So I'm seeing my primary doc, polio doc, diabetes doc, therapist, going to Physical Therapy and the TDI doc. I got the good news Thursday I'v been APPROVED!!!!!!!!!!!!!!! I'm so glad because when I need to take a nap I can so now I can take better care of myself. How have you been doing?

I want to wish you a HAPPY EASTER!
Love & Prayers
Cher

Dodie3736
04-04-2010, 09:51 AM
I am so happy for you, Cher... getting that dissability will make it much easier for you...resting is the key to feeling good.. now I don't mean be lazy, just take it a little slower...
I am okay... just the normal PPS stuff... I give thanks again and again for the great hubby I have who takes care of me... he even pampers me...Happy Easter..God Bless You and take care of yourself... Dodie...

CherPPS
04-05-2010, 12:20 PM
I am so happy for you, Cher... getting that dissability will make it much easier for you...resting is the key to feeling good.. now I don't mean be lazy, just take it a little slower...
I am okay... just the normal PPS stuff... I give thanks again and again for the great hubby I have who takes care of me... he even pampers me...Happy Easter..God Bless You and take care of yourself... Dodie...

CherPPS
04-05-2010, 12:25 PM
Thank you!
I do try to take it easy and when I over do I pay for it the next.
I'm sure I'l get used to being home and I'll make a schedule so I don't try to do too many things in one day.
Thanks for your caring!
love & prayers
Cher

cathy wilson
05-24-2010, 06:32 PM
Hi Dodie,
I am doing OK. I have been busy with doctors apointments to get my S S Disability approved. I had to get a lawyer, because of my job. So I'm seeing my primary doc, polio doc, diabetes doc, therapist, going to Physical Therapy and the TDI doc. I got the good news Thursday I'v been APPROVED!!!!!!!!!!!!!!! I'm so glad because when I need to take a nap I can so now I can take better care of myself. How have you been doing?

I want to wish you a HAPPY EASTER!
Love & Prayers
Cher

How long did it take> My husband has post polio and will have to file soon.

CherPPS
05-25-2010, 08:06 AM
Hello,
It only took 3 months, but I have a great doctor in Boston that specializes in PPS. People from all over the world go to him so I think thats how I got approved so fast. My team of doctors all told me not to be upset if I don't get approved the 1st try, but I did! His name is Dr. Darren Rosenberg and he works at the Spaulding Hospital in MA. His specialty is Post Polio Syndrome. I found him on line. He studied under Dr. Julie K. Silver who wrote the book " Post-Polio Syndrome a guide for polio survivors & their familes". That book is me to a tee. I hope I helped. Good luck to you and your husband. If I can help in any other why feel free to ask.
Cher

Dodie3736
05-26-2010, 07:32 AM
How long did it take> My husband has post polio and will have to file soon.

Hi Cathy.. It all depends... like Cher, it took a long time.. but if you read some other post... some people got it after a short period... look into it before your hubby retires...get as much info before hand and I think that will make it easier to get it.. good luck... Dolores (Dodie):jester:

jv10021
06-02-2010, 07:45 AM
I too had polio at a very young age (1.5 yrs. old). I was highly functioning until 10 years ago when I started to develop weakness in my legs and advancement of what was minor (now major) scoliosis. What frustrates me is that there are no "live" support groups for all of us. Something like 50-70% of people who had polio have now developed PPS. I live in NYC and even here, the medical community, doesn't offer the resources it should (i.e. support groups through speciality orthopaedic hospitals, etc.). Getting PPS has come as a very unpleasant surprise. There's a part of me which feels like I'm getting polio all over again. I DID NOT anticipate spending this part of my life in such a physically limited capacity. Hate it!

sue5678
06-03-2010, 05:59 AM
I know how you feel. My name is sue, i got polio at 2mths old. It is tough living with a disability, our whole lives, then going through it all over again. Hang in there, you will adjust. If you don't mind my asking, what part of your body became weakened, after your first onset of polio? My right leg stayed weak, i have walked with a limp my whole life. Now my left leg is starting to weaken too. I just do the best i can ... Good luck to you

CherPPS
06-03-2010, 08:33 AM
Hi JV,
I feel the same as you. Like the rest of my life will be pills and PAIN...I had polio in my legs and my back. All I can do is exercise my arms and shoulders. I have to rest a Lot, but then I feel guilty that the house is a mess and I can't clean it. My husband understands but still feels that since I don't go to work anymore I should take over all the cooking, cleaning & laundry. My doctor says I should get a house cleaner but can't afford one right now. How is it fair that we have to live like this? I do pray for all my friends on this site. I wish you all as happy a life as you can have.
Cher

gilboandco27
06-04-2010, 05:46 AM
I too had polio at a very young age (1.5 yrs. old). I was highly functioning until 10 years ago when I started to develop weakness in my legs and advancement of what was minor (now major) scoliosis. What frustrates me is that there are no "live" support groups for all of us. Something like 50-70% of people who had polio have now developed PPS. I live in NYC and even here, the medical community, doesn't offer the resources it should (i.e. support groups through speciality orthopaedic hospitals, etc.). Getting PPS has come as a very unpleasant surprise. There's a part of me which feels like I'm getting polio all over again. I DID NOT anticipate spending this part of my life in such a physically limited capacity. Hate it!

Hi JV10021, I live in England, Hertfordshire, and it's the same here also mate, not much help about at all. I don't think the governments will ever spend much on helping us as we maybe the last generation of people to suffer from it God willing. I've been trying some other med's like Co Q10, and Niacin out of desperation but as yet I've noticed no difference. I'm also taking Statins for cholesterol but I am highly suspicious of this drug, as many people say it can effect muscle strength in some people.
I'm 58 now and my symptoms started slowly about 12 years ago. I thought I was going mad and so did my GP/Doctor. God bless you and make the most of your life with what you have. Most of all don't be afraid to ask for help from people around you. Jim.

gilboandco27
06-04-2010, 06:18 AM
I know how you feel. My name is sue, i got polio at 2mths old. It is tough living with a disability, our whole lives, then going through it all over again. Hang in there, you will adjust. If you don't mind my asking, what part of your body became weakened, after your first onset of polio? My right leg stayed weak, i have walked with a limp my whole life. Now my left leg is starting to weaken too. I just do the best i can ... Good luck to you

Hi Sue, Thanks for your reply mate, I'm the same as you Sue my right leg was the only problem when I was younger. It never really held me back at all apart from a slight limp. I was very successful in my work and businesses that I owned, like most polio victims they seem to do well at anything they do for some reason.
Then it started to hit me slowly. I noticed that I was getting really sleepy and week, Then my left leg started to give way under me and I had some bad falls. Now my arms are getting weaker too. What breaks my heart more than anything is when I can't help my wife with silly little things like carrying the shopping in from the car or when I can't go out to a function of some kind because I don't know If I will encounter stairs or high steps. I have to plan anything like that now before I commit to going anywhere. I can't believe my wife has stayed with me throughout all of this. I know I'm stupid but I don't like it when people have to help me, but I I've lost some of my pride now and have to give in sometimes. I wont give in to a wheelchair though while I can still get away with a walking stick or sometimes crutches. I thank God that I'm still standing. Anyway mate enough of all this doom and gloom. As you said Sue, we can all just do the best we can. Thanks again Sue and God bless you mate. Jim in the UK.

gilboandco27
06-04-2010, 06:42 AM
Hi JV,
I feel the same as you. Like the rest of my life will be pills and PAIN...I had polio in my legs and my back. All I can do is exercise my arms and shoulders. I have to rest a Lot, but then I feel guilty that the house is a mess and I can't clean it. My husband understands but still feels that since I don't go to work anymore I should take over all the cooking, cleaning & laundry. My doctor says I should get a house cleaner but can't afford one right now. How is it fair that we have to live like this? I do pray for all my friends on this site. I wish you all as happy a life as you can have.
Cher

Hi Cher, I'm very lucky in the sense that my wife understands what I'm/we are going through especially as she has 'ME' herself, I don't mean 'me' as a person ha! If I had your husbands legs (assuming that they are good) I wouldn't let you do anything if you didn't want to do it. It's hard for people to understand sometimes because a lot of PPS'ers look perfectly OK most of the time, but they can't feel what we are going through inside mate. God If only I had a chance to do that for my wife I'd jump to it ha! Thanks for the reply mate, and I mean no disrespect to your husband at all Cher, I'm sure he is a very hard working man and takes good care of you. God bless. Jim in the UK.

jv10021
06-05-2010, 06:00 AM
So good to hear from some people in the same boat. It's unbelievable that I live in Manhattan and can't find the emotional support groups that deal with PPS. I've even started looking for groups for "middle aged" people with chronic physical disabilities. Still a challenge. I like replying to posts, but really want to be in a room face to face with people. Anyway, I stay as active as I can, ***** and moan appropriately (being a New Yorker, this comes naturally) and take solace in the face that I'm not alone, even if my fellow sufferers are a distance away.

Dodie3736
06-05-2010, 09:09 AM
Hi all... It's nice to hear you all communicating... we are all in the same boat and like you Jim, I won't give in to the wheelchair... My arms have been getting weaker and weaker but the crutches still hold me up... I don't do much walking..because of the weakness... BUT I do have a scooter to go to the stores with, hand controls and a lift on the back of my car so I can still get out by myself... My husband (83) (God Bless him) is my rock... he is always there for me... altho sometimes I need some alone time... so out I go... and I know he is worrying until I get home...He took over the cooking and all big jobs around the house as well as the outside jobs... but I still do what I have to... AND THEN I REST a lot!!! lol....It's great when we have a soul mate who understands what we are going thru.....don't get discouraged Cher, just do what you can and your hubby will realize eventually that you need his help... Hey jv.. We are origionally from Brooklyn (Park Slope)... now living in PA.... Like I said before.. I think I am the oldest of the group... I got polio in 1938 at age 18 months, when it was called "Infantile Paralesis"... I was just shy of the iron lung... but the good parts took over and left me with a pronounced limp..but raise a family we did and when our youngest turned 14 I started to feel the PPS effects... our youngest is now 39.. so it's been awhile...my advice to you all is to take it one day at a time and rest when you need to and try (it's hard) to have a good outlook...I can go on & on.. ... but I'll let you all digest what I have written...take care of yourselves.... Dolores (Dodie):jester:

gilboandco27
06-09-2010, 11:59 AM
Thanks Dodie, your an inspiration to us all mate. God bless. Jim in the UK.

islander52
07-22-2010, 11:32 AM
Hi Dodie,

how are you doing today. I just realized that all of my problems for the past 15
years have probably been related to post-polio syndrome. I got it when i was
9 mos old in 1952. the doctors couldn't help me for another 9 months and then
the surgeries started every other year until i stopped growing at 16.

I've done well over the years - i used to be able to go out dancing until 2004.
my husband is very understanding, but he really doesn't understand if you know
what i mean.

i hope you are doing well

I live in Rhode Island. have a great day.
sincerely,
Linda

rockymanone
07-24-2010, 02:54 AM
Hi linda, i am 51 and wore a brace on left leg and now i am using a scooter. Do you have a brace or just having weakness? Listen to me, just having weakness, it is all a big deal. Take care, teresa

Dodie3736
07-24-2010, 07:40 AM
Hi Linda, nice to meet you.... I understand what you are going thru, I guess we all do... you are so young... I guess you read about me so I won't go into detail... It is hard for your man to understand what you are going thru especially when you did well for so many years.... my husband refused to let me use a cane... he would always hold my hand (which I didn't mind) so I wouldn't lose my balance... I took him to a PPS Support group many years ago and he saw and understood for the first time what I was going thru...I've been on crutches now for the past 22 yrs and I use a scooter when I know there will be a lot of walking to do..cause (baby) I just cayn't do it (lol).... give your hubby time and he will understand...In the mean time take it one day at a time and rest if possible and most of all have a good outlook on life... that will help you thru all the bad times that you are having...Good Luck... ( if you can't get to a support group...have your hubby read some of the posts) One good thing the PPS didn't affect is my gift of gab... talk to you soon.. Dolores..(Dodie):jester:

CherPPS
07-25-2010, 05:43 AM
HI Linda,
I live in RI too. I had polio in 1959 at age 4.
Oh and yes, Dolores is an a blessing to all of us.
with prayers,
Cher

CherPPS
10-22-2010, 09:40 AM
Hi Linda, (Islander 52
My name is Cher. I had polio in 1959 at 3years old. (I thought I was 4 but just found out I was 3) I also live in Rhode Island. I'd love to talk to you about it, but I tried to give you my email but the web master took it offline. I know sometimes you feel so much pain but I feel my husband doesn't want to hear about it everyday. We who have post polio are the only ones who really understand. My doctor does but I can't talk to him when I'm down. I have pain in my back, hips, legs all over and now feet. My family wants me to do all kinds of things for them, now that I'm not working. What they don't understand is that my body is not working either.
Good Luck to you
Cher

Dodie3736
03-19-2011, 11:45 AM
hi all.. it's been a long time..I hope this note finds you all well.. not so good for me.. it seems that every thing gave out all at once..so i'm basically confined to bed..and THEN to top it all off, i have carpel tunnal in both hands because of using the crutches for so many years...i cant feel anything ..so i'm pecking at this keyboard like a chicken pecking for corn..thank God for my hubby...he has been taking good care of me...but you know,I hate it.. i've been so independent for so many years,that it hurts to have someone do for me all the time..i never thought i could be so depressed..i have always been upbeat..no matter what.. i have been feeling helpless & useless and can't seem to get a grip on it.. i will be trying to get some help..but i think it's a loss cause..i feel as tho i'm totally giving up....MY INDEPENDANCE HAS BEEN TAKEN AWAY FROM ME (BEING ABLE TO DRIVE) I THINK I NEED SOME PEP TALKS..I know i'm old, but i'm still healthy and still have all my facalties..:mad::confused::( dodie

rockymanone
03-19-2011, 10:39 PM
Hey miz dodie, i will listen to you anytime. Giving up so much, everybody would be depressed. Oh, maybe to give you a laugh, my twitching has now moved into my right butt cheek, what can we do!!!







1

CherPPS
03-20-2011, 07:03 AM
Dolores, Rockymanone, Linda,
How are you all? Today is the day Spring begins and man am I ever ready. I live in New England and we have had a cold, snowy winter. The cold makes all my pain worse even with all my pain meds. (I take 22 meds a day) So I am looking forward to some warmer weather. Are you all OK? I haven't heard from anybody from this post polio board in a long time.
Love & Prayers
Cher

CherPPS
03-20-2011, 07:51 AM
Hi Dodie,
I just read your note and I cried. I've typed to you before. I'm 55 but I've had PPS pain and problems for at least 25 years. Working has caused me to go way down hill fast so I stopped working, last year. I also have carpel tunnel in both hands. I had surgery in my right hand 2 years ago but the wrist and hand are still not right. My left hand so bad because I use my crutch on my left side to support my right side, which is the bad side. Now both are bad sides because I've over used the good side for so long. You are usully so upbeat that you have been an inspiration to me. I want to give you a BIG HHHUUUGGGGG. Try not to be depressed. I know what you're going thru and I know thats easier said than done. There has to be some reason why God made us have to live this way. I tried to join a support group so I could talk to others that understand but the one that was in my area was run by a woman who is now deceased. I called her and talked to her husband. Boy did I ever feel bad when he said "she died and I thought I told the polio people that". Poor guy!. So this is the only place I know to find folks who understand. I will pray for you and think of you often. Try not to be depressed your husband seems to love you so much and that's something not everybody, even well people, has. When you feel well enough to type let me know how you're doing.
Love & Prayers and a Big Hug,
Cher

Dodie3736
03-21-2011, 11:20 AM
thanks for the hugs, rockyman & cher...i remember those twitches well..and
they ain't that funny...but it's a part of the process...we all seem to go thru somthing different..i'm sorry that you are going thru so much pain,Cher...mine wasn't so much pain as aches & hurting and when they would stop, the weakness would set in...this time when the hurting stopped...every thing gave out..i still have some function (pecking on keyboard - i used to type 60 words a minute) sliding on & off my scooter.w/help...i can't even take a shower without help..oh well blah blah blah...thanks for listening to me..it helps to talk w/you guys who are having some of the same problems..i don't feel so alone...
with you all out there, i know my spirits will be lifted...:wave:

Dodie3736
03-21-2011, 11:46 AM
:)cher...you have given me the boost i needed to lift my spirits..you have been going thru it for a long time and you are so young...thank you for your encouraging words..i'm feeling so much better..i hope & pray that everything gets better for you..and believe me, i am so gratful for my great hubby..returning a GREAT BIG HUUUUUUGGGGG TO YOU. LOVE & PRAYERS BEING SENT TO YOU :angel: TOO...DODIE

rockymanone
03-21-2011, 08:54 PM
/hi dodie and cher, do you have trouble swallowing? I get choked easily, and have to swallow often, feels like i have to clear mucus in throat and lungs. I have to clear my throat often and am hoarse. My arms hurt and have to use them for transfering and moving. Really have a lot of pain after putting weight on them. O.k., will quit complaing, will talk about my dogs. My 90 lbs, boxer named, buddy is laying up against me. My 9 lbs longhaired chihuahua, named chata, trys to eat him up as he is jumping up on the bed. He ignores her, so glad or all would be left of her, would be hair and teeth. Feel better and talk to you later. Teresa

CherPPS
03-22-2011, 08:26 AM
Hi Dodie,
I am so glad that I made you feel better!!
I'm also glad to have someone who knows what I go thru.
Because I don't and can't complain every time I'm hurting, people think I'm not and ask me for help. My Mom is 85 and is in a lot less pain then I am, but she thinks I can drive her around and carry her bags. After a day with her it takes me 3 days to move again.
See now I'm complaining. Oh Well. I wanted to tell you I just bought a shower chair with a back and it has really helped me take a shower without help.
Stay in touch, if I can ever help you again it will be my pleasure!
(HUG)
Love & Prayers
Cher

CherPPS
03-22-2011, 09:12 AM
Hi Teresa,
YES, I have a Lot of trouble swallowing. I went to a Speech Therapist who did a throat assessment throat and showed me what to do. I can only talk between swallowing, feet should be flat on the floor, avoid use of straws, small bites one at a time then swallow completely before another bite and be mindful of what and how you eat. It takes me a long time to eat and I still choke sometimes, but not as much as I used to. My PPS doctor told me PPS will not kill me but the choking could. :( This is all to do with PPS. It also causes me to stop breathing while I sleep so I had a sleep study. I have sleep apnea and have to sleep with a CPAP machine on my face. (very sexy, NOT)
So please be careful.
You have a huge dog, don't pick him up. To save the strength I have left in my arms I was told not to lift more then 10 pounds and not often.
I hope the info my doctors gave me will help you.
Good Luck, I will pray for you.
(Hug)
Cher

Dodie3736
03-22-2011, 10:58 AM
hi teresa yep i do have trouble w/swallowing..seems like everything gives out after awhile..like cher says slow down when you eat or drink..i even choke when i'm not eating..even when i talk too much...and clearng the throat is another problem and a general pain in the neck..i thought it was just a plain allergy so i took cough drops for it ..and they helped a bit BUUUUT i took the sugar free drops (i'm always on a diet) which are clearly labeled MAY HAVE A LAXITIVE EFFECT...needless to say, i stopped taking them.lol. i am so happy to have you & cher and all the rest of you there to vent to..i'm am starting to feel a little more like my old self again..no one quite understands what we are going thru..they feel empathy and sometimes pity..which i won't stand for..we are survivors and don't want pity..what we need is understanding and maybe a little helping hand once in awhile..MY LOVE & PRAYERS AND LOTS OF HUUUGGGS GO OUT TO EACH AND EVERY ONE OF YOU..DODIE:)

Dodie3736
03-22-2011, 11:00 AM
hi teresa yep i do have trouble w/swallowing..seems like everything gives out after awhile..like cher says slow down when you eat or drink..i even choke when i'm not eating..even when i talk too much...and clearng the throat is another problem and a general pain in the neck..i thought it was just a plain allergy so i took cough drops for it ..and they helped a bit BUUUUT i took the sugar free drops (i'm always on a diet) which are clearly labeled MAY HAVE A LAXITIVE EFFECT...needless to say, i stopped taking them.lol. i am so happy to have you & cher and all the rest of you there to vent to..i'm am starting to feel a little more like my old self again..no one quite understands what we are going thru..they feel empathy and sometimes pity..which i won't stand for..we are survivors and don't want pity..what we need is understanding and maybe a little helping hand once in awhile..MY LOVE & PRAYERS AND LOTS OF HUUUGGGS GO OUT TO EACH AND EVERY ONE OF YOU..DODIE:)CHER IF YOU FEEL LIKE COMPLAINING..GO RIGHT AHEAD..WE'RE HEAR FOR YOU

Dodie3736
09-13-2011, 12:04 PM
hi all i'mmmm baaackkkkk... and still pecking the keyboard... it's been a long hard pull..and i'm slowly making a comeback..the problem that caused all of the other problems was a serverly pinched nerve in the upper portion of my back..caused by the use of the crutches.. i had lost amost all of the feeling in both of my arms and a portion of my legs...which left me weakened and unable to take care of myself. i had a "laminectomy" in may which took the pressure off of the nerve...and slowly my strength is coming back...if it wasn't for my post polio doc, i would still be unable to move.. she insisted that much numbness is not a part of pps..she sent me for an mri and they found the culprit...been going thru a lot of therapy and i can finally get up again (w/the help of my crutches of course)..my arms are still weak but are getting stronger.. the hands are still numb, but the surgeon said they will come back in time... i hope ..THEN TO TOP IT ALL OFF, I HAVE TO HAVE A D AND C..I THOUGHT AT 75 ALL OF THSE FEMALE PROBLEMS ARE OVER..COULD-A HAD ME FOOLED...
enough about me... how are you all doing.. i don't see anyone posting... i hope you are doing as well as could be expected..i think of you often and you are all in my prayers...

rockymanone
09-14-2011, 03:01 AM
Hi dodie, i was afraid something had happened to you. I am so glad you are back. I am having trouble all over body. Trouble with my voice and swallowing. One of my biggest problem is my bladder. I take ditropan, and it helps, as long as i don't drink much. Got a news letter and it had an publication that dr. Bruno wrote. It was about a pps patient that went off ditropan, and started taking vesicare. She went into a coma. Vesicare slows down your stomach and intestines. She was given liquids and different medicines and finally came out of it. Unfortunately, she has to use the ventilator at night and sometimes through the day. That was such a scary story. Want to share with you, and anybody else that reads this. I am still keep on keeping on. Still have my dogs and they are my fur babies

CherPPS
09-14-2011, 06:13 AM
Hi Dodie,
It was nice to hear from you. OMG you're really had your share of pain. I'm glad to hear you're doing better. I use a canadian crutch, it stops at my forarm, just to avoid the problem you had. Keep us posted.
I pray for all of you and wish you all well. I'm happy to be able to talk to people with the same problems.
I'm doing ok, holding on.
Love & Prayers
Cher

CherPPS
09-14-2011, 06:23 AM
Hi Rockymanone,
That is a scary story. Swallowing & choking are just one of my many problems.
You mentioned your dogs, may I ask a question? Did you ever have children? I never did and no Specialist could ever find a reason why. I figured it was the drugs given to me when I had polio at 3 years old, but most people with PPS did have children later.
God did give me 3 step kids and 2 grandchildren , but I still wish I could have had my own. (I'm too old now, 55) If it's too peesonal a question you don't have to answer.
Love & Prayers
Cher

rockymanone
09-14-2011, 11:24 PM
Hi, no, i never did have children. I never wanted any, do have one stepson and he is twenty-three and he still comes and spends the weekend with us. He is very close to his dad. I wish now, that i had tried to have children. Hindsight!!!! I have wondered, if i could, have gotten pregnant. It is too late for me. I am 52 and went through menopause early. What kind of crutch do you use? Remind me, do you wear a brace? I have one full leg brace and have been fitted for a full brace on the other leg. Cannot walk very much, use my scooter all the time. Thank god for them

CherPPS
09-16-2011, 06:15 AM
Thanks for the answer. I took a lot of ricks in my youth (blushing) and paid thousands of dollars as a married adult, but no doctor ever found any reason why I couldn't get pregnant. Anyway I use a canadian crutch, my forearm goes thru it, that way it won't ruin the nerves and muscles under my arm. I may need to from one crutch to two. :(
I wear two foot ups, to prevent me fron falling. I also wear a back brace. My back and hips are a big pain problem for me. I use scooters in big stores like Wal-mart.
Yes, thank God for them.

Dodie3736
09-17-2011, 09:55 AM
hi Cher... I do use canadian cutches...but because I used them to pick myself up, pinched the nerve in my back... can you imagine picking up 200 lbs with crutches...ouch.
picture this for a genetic hoax..my mom weighed in at 225 and my dad at 275 when they got married and here I am..well I did lose 57lbs in 2005 and have kept it off since..tain't no easy task..I got around many years without crutches, my arms always picked me up..
I had 5 children...they range in ages 52 the oldest down to 42, our baby..it is sad that you couldn't have any children,, but the Lord works in mysterious ways...you were meant to be a great step mom, both you & rocky.. what are your real names??? maybe you told me already but i'm old and i forget LOL...my name is Dolores...hugs..

CherPPS
09-18-2011, 08:36 AM
Well Hello Delores,
I think about you and pray for you all the time.
Yes, I was given 3 great step kids. Two are grown, 30 and 34 and with my second marrage I have a 15 year old girl. Boy she keeps me up yo date with the young generation. My real name is Cheryl but my family and freinds call me Cher.
((hug)) back to you

rockymanone
09-18-2011, 08:44 PM
Hi dodie, my name is teresa and i am 52, live in the great state of tennessee, have 1 husband, 1 stepson, and 4 dogs. Post polio since i was 36 and use my scooter all the time. Can't walk very much, have arm and back pain. Use lyrica, keppra for nerve pain. They work really well. Have 4 older sisters and 1 pain in the ***, younger brother. I will tell him i wrote that. We are always giving each other a hard time. He just shakes his head and says, teresa, your killing me, your killing me. Can you imagine, i love him. I hope you had a good weekend. My husband took me out saturday and we had a really good time. Just did a few things around the house today. I turned over on my scooter outside wednesday. Not the first time. Hurt my weaker arm. Did not do anything for two days, except sleep and lay around. Feels better now. Post polio sucks. Talk to you later, teresa