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tyler1234
07-21-2013, 06:07 AM
in 2011 I tried a Toupet fundoplication which may have been done wrong or I couldn't handle it with a hernia fix and it provided hell on earth results for me so in 2012 I had wrap undone and another hernia fixed which in a perfect world I shouldn't have needed if Toupet was doing its job and i'd just had one fixed yr. prior; well I went onto a much more normal life eating some and still living on shakes/puddings but went back to my single mothering role and we had some fun living again and even travelled to Disney and the grand canyon; well true to form with hernias, my hernia has returned with intolerable nausea, queasy, gag, choke, cough, hoarse, very irregular, can't eat or drink but sip Ensure again, acid and my tummy keeps moving all over; i'm in central new York state looking for direction and the right docs and surgeon for me; any advice is greatly appreciated cause being back homebound with no life quality just doesn't work for my son or I; thx.

solofelix
07-21-2013, 08:58 AM
Hi tyler,

You need to see a Gastrologist. This Dr deals with all manner of stomach issues.
You may need to go on PPIs ( Nexium) or something like this.
You seem to have a lot going on with your stomach issues. Have you been tested for H.Pylori as that can cause all manner of stomach problems.
I have a H.H. I think it is more like Gerd that you are suffering with.
What medication are you on at the moment?...

Solofelix.

tyler1234
07-22-2013, 07:08 PM
I take Protonix and carafate and zofran and tums. No I don't have h pylori. I've been to 2 gi docs and they say take meds but they don't work. My hernia is big again and very symptomatic. Way worse than my gerd of over a decade ever was. Either my wrap was done wrong or I can't handle them but I really gotta find the right docs for me.



Hi tyler,

You need to see a Gastrologist. This Dr deals with all manner of stomach issues.
You may need to go on PPIs ( Nexium) or something like this.
You seem to have a lot going on with your stomach issues. Have you been tested for H.Pylori as that can cause all manner of stomach problems.
I have a H.H. I think it is more like Gerd that you are suffering with.
What medication are you on at the moment?...

Solofelix.

MountainReader
07-22-2013, 09:48 PM
What testing have you had to confirm that your digestive issues are actually caused by a recurrent hiatal hernia? EGD? Esophagram? Barium Swallow? Manometry? pH testing?

I think having the proper testing to confirm your issue is the first step to finding a good surgeon if that is what you indeed need. You've been through an awful lot in the last year already.

I know GI docs often go straight for the meds. I knew I had GERD years ago, but it wasn't until I finally saw a Pulmonologist who had me do some extended testing that I realized how horribly the acid was actually impacting my breathing and influencing my chronic cough. The GI docs have been much more aggressive with me since, but I ask questions and push more as a patient than I used to.

What did they do to fix your hiatal hernia last year? Can you re-visit the surgeon who did your work then?

tyler1234
07-23-2013, 03:59 AM
tomorrow i'm seeing a gi, np I saw 2 yrs. ago when this began for another opinion and aug. 7, I c the surgeon who undid my wrap; i'm not sure what doors I need to be knocking on, surgical, pt, chiro, more gi's, cardio thoracic, etc. but one doc said and another agreed that I gotta not be lifting, stop my belly fat and obesity, stop my constipation and cough and there r many parts of this I think. On Friday, I had another endoscopy and it showed the recurrent hiatal hernia, my 3rd in 2 yrs. and i'm feeling like I was when I started getting my back ones having one surgery at l5 s1 and then getting 4 more but obviously not always choosing surgery; the hiatals r worse and different and my nausea is the worst.

when I had the wrap, I did a good manometry and it showed normal with a bolus trap in between my les and wrap but otherwise normal; I can't do the ph study cause as soon as anything is in my throat, I gaging and heave nonstop and panic. I had a barium when I had a wrap and it showed no reflux(thank u Protonix) and showed the wrap with whatever they use to hold it and everything shows i'm always constipated, but when food won't go down and gets stuck with and without a wrap and when i'm close to puking daily, I have no appetite and live on Ensure and puddings which give me protein but bind me up awful.

U sound very intelligent and a go getter and I can be those as well but after over 2 yrs. of hell, i'm lost; i'm not sure where out west u r from but this year when I felt better, my son and I when I was feeling better went out and saw the Grand Canyon, Zion, Meteor Crater, Sunset Volcano Mtn and all I can say is WOW!; breathtaking. I'm very glad u got to the bottom of your issues.




What testing have you had to confirm that your digestive issues are actually caused by a recurrent hiatal hernia? EGD? Esophagram? Barium Swallow? Manometry? pH testing?

I think having the proper testing to confirm your issue is the first step to finding a good surgeon if that is what you indeed need. You've been through an awful lot in the last year already.

I know GI docs often go straight for the meds. I knew I had GERD years ago, but it wasn't until I finally saw a Pulmonologist who had me do some extended testing that I realized how horribly the acid was actually impacting my breathing and influencing my chronic cough. The GI docs have been much more aggressive with me since, but I ask questions and push more as a patient than I used to.

What did they do to fix your hiatal hernia last year? Can you re-visit the surgeon who did your work then?

MountainReader
07-23-2013, 07:35 PM
I'm in Utah. I live in the northern mountain area, but was down 'south' recently. It really is pretty incredible to see. I'm glad you had a good trip.

I had a full wrap nissen fundoplication in 2008. I was miserable before that and my problem had literally become life threatening because the acid was irritating my lungs so badly causing major breathing issues. I had problems with a chronic cough that also really impacted my quality of life. I had been on all PPI's, but they only worked to a point. My LES just wasn't functioning well. I did have a sliding hiatal hernia prior to the surgery. Fortunately, my wrap is holding well. I've had Barium testing and 2 EGD's since surgery.

While I consider my surgery a success with major improvement in my symptoms, I still struggle with the gaseous acid coming up at times. I never even went off of my Dexilant post-surgery. I tend to supplement with it at times and still watch what I eat. It seems to me that I cycle in a 2 year pattern based upon how frequently I end up having EGD's and pH tests. I had an appointment with my GI doc a week ago and may be going for an EGD again in the not too distant future. I had one a year ago that was good.

Ironically, I'd gotten my weight down when my symptoms got worse. I ended up on Prednisone for the breathing issues so many times and became so inactive that the weight crept back up.

If you think you may warrant pH testing, there is an upper probe test with a special probe by ResTech. It measures gaseous acid coming up. The probe does go down the nose, but only goes about as far as your uvula, well above your throat so there is no gagging involved. It is very short. I've had that one done by my ENT.

Honestly, sometimes it is hard to know which specialist to go to. My primary reflux symptoms are a nasty harsh chronic cough and trouble breathing. I have the same exact symptoms when it is reflux as when it is asthma. Even my docs don't always know the trigger. Now, they just pile on more treatment for both problems at the same time. Thankfully, I have good docs around me now who monitor me. My Pulmonologist actually has me coming in every 3 months now to monitor even when I'm good. He was my biggest reflux advocate too.

Keep us posted on how you do at your appointments. I think it really does help others to learn through our experiences as much as it helps us.

I developed IBS (alternating) as a side effect from Nexium. One week on the medicine and I still have problems. Are you treating the constipation? My GI doc has me taking Miralax when I have flares. I just double up on dosages when things are bad.