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View Full Version : Please Help Me Understand My Symptoms


lovelove77
11-24-2013, 06:53 PM
Hello everyone. I have seen alot of posts from people out there experiencing virtually the same symptoms as me, so I thought I would give this a try to help me feel somewhat better and possibly get some answers. So here is my story. Back around the first to middle part of August I begain experiencing a dizzy lightheaded and/or heavyheaded feeling constantly, it came on suddenly one day and just never left me. I went to the ER like 2 weeks after it began and was dismissed as having a virus after some bloodword with elevated white blood cell count. So it continued on then about a month later I went to a general dr, and was given antibiotics for 2 weeks and a steroid predisone for 5 days. Well neither took away the symtoms but the steroid made me wake in the night with the blood vessels in my eyes pulsating horribly with an awful headache so I stopped taking that. Next on to the ENT where I had a hearing test and was examined hearing perfect had a CT scan of sinuses and I DEMANDED one of my head with contrast. Both came back fine. During this time my symptoms got way worse as did my anxiety of thinking I had a Brain tumor. The dizzy odd feeling is always there, but the anxiety of thinking I had a tumor and acually preparing myself in my head for death had caused me to clench my jaw so tight that I was actually causing myself tension headaches the ENT had one useful bit of advice, to keep my jaw loose which I did and it has helped with the headache part. But now I am all hypersensitive to everything about my body some days its just the weird feeling some days my neck feels all stiff and almost like the blood vessels in my neck are constricted causing limited blood flow to my brain. My heart pounds when I stand up and other times for no reason I have had some chest pains and this odd cold feeling in my chest at times. When it first started I had different parts of my face go numb but I am unsure which symptoms are the anxiety and which are the actual. Its all so frustrating the only REAL TRUE symptom that never goes away is this feeling in my head like a brainfog dizzy odd lightheaded/heavyheadedness just not normal me. I cant enjoy anything anymore I dread things I used to love. Im only 26 I just want to be a good mom and wife and this is ruining my life. Ive been to the neurologist and he did bloodwork for lupus, lyme, b12 definincy, west nile encepilitis, and a few other things all negative. I have an appointment with the cardiologist this week, so we will see where that leads. I have asked the Neuro where we should go next with this but still have not received a phone call back yet. Its all messed up its like I have to figure it out on my own and tell them where to go next ya know? I have heard that Lymes usually doesnt show up on bloodwork. I dont know I just want to wake from this nightmare and be me again, I constantly spaz out thinking I am going to die. I also have a horrible sensitivity to light as in floresent lighting I cant even barely go into a store and can hardly tolerate the drs appointments. This makes things hard as well. My husband now has to do all the shopping on top of working a 60 hour a week job. I have 2 little kids one is 6 and one is 2 and I can hardly stand to be around them because they are loud and move alot and it makes my head spin when all I want is just to play with them and be normal. Please if anyone is feeling similar symptoms lets talk about it I really need a support system of people feeling like I feel. I feel alone and the anxiety is hard to place on the back burner not knowing what is wrong with me.