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Kara619 07-16-2015 01:39 PM

26 years old and just diagnosed with Lupus. Help
I was just diagnosed with lupus and I'm 26 years old. I'm looking for advise from anyone especially young adults with this condition. My dr. Was rude and short with me and I didn't get much information. I'm in constant pain. And I'm so frustrated. Please give any advice you can! - Kara

Moldova 09-19-2015 07:38 AM

Re: 26 years old and just diagnosed with Lupus. Help
I am very sorry my dear, at such young age when life just starting, you having pain.
One thing before I share something: switch your Dr. Like my Internist say: patient sick enough, he doesn't have to feel fear seeing his Dr. You pay him money, he has to be there for you, answer all your questions and have at least a little bed site manners.
If he rushes you, makes you uncomfortable - time to do your homework and find a great specialist. Many of us here changed many drs before find a GOOD one.

Lupus isn't an easy one, but not a life sentence: what you need is a good control of your condition. Did he suggest any treatment for you? Beside pain, what are your other symptoms? Did blood work showed Lupus?
I was diagnosed with JRA at 13, later with Lupus. And have to tell you, sweet heart, your best help should be a team of RA, PM, Internist Drs. Good Doctors, who will work with each other to watch your improvement, to help you to get better.
My team of Drs communicate with each other; once my Internist disagreed on a treatment b/c could make my heart condition worse so RA Dr suggested something else.

I hope this helps a little.
Don't panic, stress is your enemy. Give a few month for treatment to kick in and hopefully your pain gets better.


ladybud 09-19-2015 08:32 AM

Re: 26 years old and just diagnosed with Lupus. Help
Kara, welcome to the boards. I am not young but I did develop lupus at age 31, so have had it a long time. I agree with Moldova that another Dr. with more understanding and compassion is needed. A diagnosis like this sends people reeling, and you need all the support you can get. At first it is typical to go through a "grief process" reaction, and it takes quite awhile to process the information and emotions that go with it. A rheumatologist should be your primary Dr for treating the lupus, and with treatment, the pain should get better. I would also look for a support group of people who know about this illness and have learned to cope in positive ways. There are good books on lupus to help you learn, but remember that not everyone gets every symptom. There are national and state foundations that provide information and support as well. Try to explore all these resources for help. Knowledge is power, when it comes to your health and advocating for yourself. We are here to help too, so post whenever you need or have questions. You are not alone, by any means!

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