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  • RA Titer

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    Old 05-14-2019, 06:17 PM   #1
    Bunge
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    RA Titer

    Got diagnosed with RA today.

    Titer number was 1:4

    Very hard finding info on this number that makes sense.

    Is 1:4 worse than 1:80 (for example) or the reverse.

    Can anyone please help me understand?

    Dr. wants me to start prednisone then plaquenil (for life???)

    Should I get second opinion?

    Thx

     
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    Old 05-15-2019, 07:18 AM   #2
    JohnR41
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    Re: RA Titer

    There's no medical cure for Rheumatoid Arthritis. It may be that prednisone and plaquenil will help with the pain and delay deterioration. The point of this treatment is to manage your decline because it doesn't get to the root cause. The reason: RA is a lifestyle (autoimmune) disease.

     
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    Old 05-15-2019, 09:55 AM   #3
    Bunge
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    Re: RA Titer

    Quote:
    Originally Posted by JohnR41 View Post
    There's no medical cure for Rheumatoid Arthritis. It may be that prednisone and plaquenil will help with the pain and delay deterioration. The point of this treatment is to manage your decline because it doesn't get to the root cause. The reason: RA is a lifestyle (autoimmune) disease.
    Thank you.

    Trying to decide whether a 1:4 Titer result warrants risks associated with plaquenil at this stage.

    "A titer is a measure of how much the blood sample can be diluted before RF can no longer be detected. A titer of 1 to 20 (1:20) means that RF can be detected when 1 part of the blood sample is diluted by up to 20 parts of a salt solution (saline). A larger second number means there is more RF in the blood. So a titer of 1 to 80 shows more RF in the blood than a titer of 1 to 20."

     
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    Old 05-15-2019, 10:50 AM   #4
    quincy
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    Re: RA Titer

    RA is definitely an autoimmune disease, and it will be in your DNA structure. It's not caused by anything you have done.

    Do you have any other AI diseases?

    I have a friend with RA, and she uses LDN...low dose naltrexone by rx with good success.

    Worth seeking the info and presenting it to your doctor for a good trial run.

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    Old 05-16-2019, 02:52 AM   #5
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    Re: RA Titer

    Hi there. My mom has RA and I have a different autoimmune disease- but the drugs you mentioned are very standard and a second opinion is probably not needed.
    Prendisone is going to be used when you have a major flare up- it is a steroid which helps take down the inflammation. I know my mom hates being on it because it can cause you to gain weight- but I take it for my autoimmune disease (MS) and do not gain weight...

    You will only be on it when the flare up is bad...

    As of now, Plaquenil for life is probably your best bet, but keep in mind that new drugs come out all the time and its quite possible that your doctor will change your meds if something better comes along. I am also on meds for life.

    As long as you like your doctor, who I assume is a Rheumatologist; you should be in good hands; but this is a life long disease, so make sure you are comfortable with your specialist as you will have a long relationship with him/ her.

    Good luck and welcome to the world of the unknown. Each day can bring something different- eventually you learn to live with it.
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    Old 05-16-2019, 08:30 AM   #6
    Bunge
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    Re: RA Titer

    Thank you for the replies everyone.

    Seems the 1:4 ratio (although hard to find info) is pretty beginning stages.

    Hopefully this means it will be nipped in the bud.

    I live in the Bahamas and there is no rheumatologist on the Island so I am relying on my GP.

    He’s a really smart guy though.

    I am taking precautions and going to Florida to do the eye tests before starting the plaquenil. Want to make sure it’s done right and results are safely stored in “civilization”.

    Still, so much stress in life. This doesn’t help.

    Hopefully, on the meds, I won’t feel like I’ve been hit by a truck every morning I get up, and will be able to resume working out.

     
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    Old 05-16-2019, 08:50 AM   #7
    JohnR41
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    Re: RA Titer

    Quote:
    Originally Posted by Bunge View Post
    Thank you.

    Trying to decide whether a 1:4 Titer result warrants risks associated with plaquenil at this stage.

    "A titer is a measure of how much the blood sample can be diluted before RF can no longer be detected. A titer of 1 to 20 (1:20) means that RF can be detected when 1 part of the blood sample is diluted by up to 20 parts of a salt solution (saline). A larger second number means there is more RF in the blood. So a titer of 1 to 80 shows more RF in the blood than a titer of 1 to 20."
    Sorry, I'm not familiar with that aspect of it and didn't have time to elaborate on what the root cause might be. This is the result of a relatively new discovery and is difficult to research. It seems the internet has not been updated very well; I learned about this from other sources.

    The common term of causation is "leaky gut" which refers to hyperpermeability of the small intestine. If you ask your doctor, it's likely he or she won't know about it. The small intestine has a super thin lining that is especially designed to absorb nutrients but keep out bacteria and undigested proteins. If this lining is damaged and small molecules of undigested protein are allowed to pass through, this is what is thought to lead to autoimmune disease. That's because your immune system will see the undigested protein molecules as invaders and send an attack force. If the protein resembles protein that exists as part of your body, then your immune system may get confused and attack you.

    The next step involves what you would have to do to avoid this problem. In short, it involves a special dietary regimen that will be of benefit to your microbiota or microbiome. Those are the names given for a community of beneficial microorganisms that live in your lower digestive system.

     
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