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Rhuematoligist wants me on Methatrexate after being on Prednisone for 15 yrs.


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Old 04-16-2005, 09:59 AM   #1
Diane15218
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Question Rhuematoligist wants me on Methatrexate after being on Prednisone for 15 yrs.

I have had arthritis for 15 years. Been on every NSAID and dread the Pred. Also I had a spout of ITP during the arthritis. So, mainly I have been on Prednisone, off and on since I was 15. I am 30 now. My medical experiance with all my problems has interested me into doing personal research on medications and holistic therapy treatments. Currently, my Rhuematologist wants me to be on Methatrexate. I look at these side effects and it makes me sick to my stomach. I want people who have been on it, what side effects they had/have. I am extremely aprehensive about this drug.


Anyway I am new to this board.

Last edited by Diane15218; 04-16-2005 at 01:33 PM.

 
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Old 04-16-2005, 02:19 PM   #2
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Re: Rhuematoligist wants me on Methatrexate after being on Prednisone for 15 yrs.

Hello Diane,

I have taken steroids for over 30 years every day. Approximately 8 years ago I started to take methotrexate too.

I personally have no bad affects to report. I take 15mg per week at present and the only time I had a problem was in fact when I tried to reduce the dosage down, which didn't work for me so I am still on that dosage.

My primary illness is SLE. I have lots of other things going on but this is my starting point for any type of medication.

The methotrexate for me is fine. There is such a lot of information to be found about this drug. As with any medication there are the 3 stages of side effects, and not all of them affect all patients who take any of the drugs.

1) Could happen - might but unlikely though

2) Rarely happens - very unlikely to happen

3) Very rarely happens - so very rare that not many cases are reported

I am not being glib, this is the way it is cited.

I am sure you will receive a lot of replies to your post.

Take care

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Last edited by goldenwings; 04-16-2005 at 02:22 PM.

 
Old 04-16-2005, 04:52 PM   #3
Diane15218
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Re: Rhuematoligist wants me on Methatrexate after being on Prednisone for 15 yrs.

I am mostly aprehensive about the nausea and vomiting side effects. When I would get the stomach bug I would be admitted to the hospital for a week b/c I could not hold anything down. I would get extremely dehydrated and weak.

 
Old 04-16-2005, 05:00 PM   #4
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Re: Rhuematoligist wants me on Methatrexate after being on Prednisone for 15 yrs.

I started MTX in July of last year. My rheumatologist started me on 10 mg a week. The pills made me sick enough to want to quit the drug all together. My doctor encouraged me to switch to the injections and the only side effect I had after that was feeling tired the next day. When I was on the pills, I was nauseous and yucky feeling for 4 of the 7 days each week. On the shots, I dont' get any of that. He increased the dose to 15 mg and the side effects did not increase. I use a 32 gauge syringe with a 5/16 ultrafine needle.

As for all the scary stuff you find when you read not just about MTX, but all the DMARDS, you just have to be more afraid of the disease than the drug. I have RA and the MTX has made such a good difference in my life. I started Remicade in February and am hoping to decrease the MTX soon.

 
Old 04-16-2005, 05:08 PM   #5
Diane15218
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Unhappy Re: Rhuematoligist wants me on Methatrexate after being on Prednisone for 15 yrs.

I do not think this medicine is for me. I really don't think I am going to start taking it.

 
Old 04-17-2005, 11:17 AM   #6
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Re: Rhuematoligist wants me on Methatrexate after being on Prednisone for 15 yrs.

If you start with the injections, you won't have any of the stomach issues. It really does help with the joint pain. I take my shot on Friday night at bedtime and just need a nap during the weekend afternoons.

 
Old 04-17-2005, 06:09 PM   #7
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Re: Rhuematoligist wants me on Methatrexate after being on Prednisone for 15 yrs.

I just started MTX last week. 7.5 mg for this week and next week and then doc will bump me up to 15 mg a week. I did not have any side effects the first week and I had psyched myself up (or out?) to have many--I think the idea of it is worse than actually doing it in some cases. I am also still on the "dread pred" as you put it, but I want to be off of that for good if possible. We are trying to wean me off now, we'll see.

One idea might be to tell your doc how worried you are about the nausea and your reactions, pick the form with the least side effects and try it--if it does not work, you can always change your mind. But, it might work really well for you with no side effects....

I have also been avidly reading about this drug and am fairly freaked out by taking it....but....if it can work, great. At least it is cheap and has been around a long time! I am worried about having to go on treatments that my insurance won't pay for...but one day at a time, right?

Hang in there, I will be thinking of you and hope things work out how you want them to.

 
Old 04-18-2005, 06:08 AM   #8
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Re: Rhuematoligist wants me on Methatrexate after being on Prednisone for 15 yrs.

Hello,

Just another thing to add. This is something I have discussed on other boards here. Please be very careful when taking methotrexate (and indeed other meds) that any OTC medicines, or vitamins that you tell them about the methotrexate. Absolutely anything in like this must be discussed in depth with the pharmacy or health food shop. You would be surprised at the affect some of the simplest things can cause.

Alcohol consumption is out too. I know in a lot of cases this will not apply, but I am just pointing out the danger of drinking alcohol whilst taking methotrexate.

Hope you are all doing ok today.

goldenwings
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Last edited by goldenwings; 04-22-2005 at 01:15 PM.

 
Old 04-21-2005, 03:57 PM   #9
Diane15218
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Unhappy Re: Rhuematoligist wants me on Methatrexate after being on Prednisone for 15 yrs.

I haven't started it yet. I am too scared. My psych meds do not help the situation of the thought of going on MTX.

 
Old 04-21-2005, 04:29 PM   #10
nooyawker
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Re: Rhuematoligist wants me on Methatrexate after being on Prednisone for 15 yrs.

I dont think you should worry that much. Mtx has been around a long time and side effects are well known. If it doesnt agree with you, you can just stop taking it. I took it for almost 2 yrs with no side effects at all. The first time I took the pills I was so freaked out the doc had to talk me thru it on the phone. I thought for sure something horrible would happen but nothing did. I take enbrel injections now and I can have alcohol if I want. You cant have any alcohol with mtx.

 
Old 04-21-2005, 05:16 PM   #11
Diane15218
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Wink Re: Rhuematoligist wants me on Methatrexate after being on Prednisone for 15 yrs.

Quote:
Originally Posted by nooyawker
I dont think you should worry that much. Mtx has been around a long time and side effects are well known. If it doesnt agree with you, you can just stop taking it. I took it for almost 2 yrs with no side effects at all. The first time I took the pills I was so freaked out the doc had to talk me thru it on the phone. I thought for sure something horrible would happen but nothing did. I take enbrel injections now and I can have alcohol if I want. You cant have any alcohol with mtx.



I don't drink alcohol anyways. Recovered alcoholic and on too many other meds. Psych meds + alcohol = puke

 
Old 04-21-2005, 10:14 PM   #12
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Re: Rhuematoligist wants me on Methatrexate after being on Prednisone for 15 yrs.

I'm a 28 year old male with rumy,diagnosed when i was 17.I was one of the first to try metho for treatment of the body attacker.THe thing about metho as best i can remember and to set the record straight ,I quit all meds after metho(metotrexate)and that has been 9 years-metho will seep into your body and make you fill dirty,it messes with your inner thoughts and makes you feel worst mentally than you would have originally.First ,my hair still has not grown back ,its a killer of cells by definition.I have a 3 year old daughter now after 7 years and a failed marriage because of being infertile.predinesone,stero8ids along tha way if tried them all,please someone help me.Ive had a hip replacement 4 spine surgeries 2 shoulder scopes and countless docs with big question marks on there faces.They dont know anymore than you do about your condition than you ,tell them every thing ,hey pot works for me better than demeral or oxy,so witch is more inefective in acase trial?I cannot or have not benn able to touch below my knees since i was 19 but I hang some the most expensive wallpaper in my city.So I say unto you go forth and do what you can to be the one that people look to when there times are hard and they say to you how do you do it!!!

 
Old 04-25-2005, 10:59 AM   #13
wigs
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Re: Rhuematoligist wants me on Methatrexate after being on Prednisone for 15 yrs.

Hi
I am on methotrexate and have been for nearly six months. I really didn't want to but agreed in the end as no other solution seemed available. Anyway i have had no side effects as yet apart from feeling a bit sick in the night (only once) but not for long, may not have been connected.

I went to a nutritionist and got folic acid drops to have - does anyone else take it? if so how much and how often?

 
Old 04-25-2005, 11:13 AM   #14
Susanbrennan80
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Re: Rhuematoligist wants me on Methatrexate after being on Prednisone for 15 yrs.

Quote:
Originally Posted by Diane15218
I have had arthritis for 15 years. Been on every NSAID and dread the Pred. Also I had a spout of ITP during the arthritis. So, mainly I have been on Prednisone, off and on since I was 15. I am 30 now. My medical experiance with all my problems has interested me into doing personal research on medications and holistic therapy treatments. Currently, my Rhuematologist wants me to be on Methatrexate. I look at these side effects and it makes me sick to my stomach. I want people who have been on it, what side effects they had/have. I am extremely aprehensive about this drug.


Anyway I am new to this board.

 
Old 09-05-2005, 08:55 PM   #15
smaslow
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Re: Rhuematoligist wants me on Methatrexate after being on Prednisone for 15 yrs.

hi, i just started methotrexate 3wks ago still waiting for it to kick in also on 5mg prednisone daily i have been in extreme pain since starting these meds so i now have stopped the daily pred and am on my 3rd. dose pak of pred. i always feel like amillion bucks after couple days on the pak but as i ween down from it pain starts it's just a vicious circle i'm hoping the meth will kick in soon i here it is the best med for ra once you get the right dosage going. good luck to you keep in touch... shirl

 
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