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Miranda's Mom 11-09-2005 12:07 PM

Please help...5 year old with major knee pains
Please, please, please...I need help. I have a five year old with knee pains. We've been to a sports medicine doctor, pediatricians, and now a rheumatologist with absolutely NO relief. We are now also dealing with hypertension (as high as 147/107 and today of 110/80) which they are associating with the knee pain. Noone seems too concerned but then again, they aren't the ones dealing with the thrashing and screaming several times a night for about 15 minutes per episode. His knee pains are always at night and first thing in the morning. He's stiff in the morning and it generally takes him about an hour and a half to loosen up. At night, he is in excruciating pain. When front come through whether it is rain or the cold, he is in agony. I've been giving tylenol and motrin 3 times a day. We've had the RF test done and it came back negative. His SED rate was 19 (where my Mother who does have arthritis but no symptoms was 3). His ANA was elevated but not overwhelmingly concerning. I just don't know what to do. They are now telling me that when the episode occur that I need to get him to the ER. Here's the problem...the closest pediatric hospital is 45 minutes away.

Does anyone have any suggestions and/or recommendations? I'm open to everything. They are trying to tell me it's growing pains; however, growing pains aren't affected by climate. He runs a fever every couple of days at night but since I haven't taken it by mouth (under the arm instead) the Rheumatologist said that he wasn't concerned. If I get it documented by an oral taking, then he'll be really concerned. I'm at the end of the rope. I cannot endure another night of knowing that I cannot help my son and relieve his pain. I have yet to ever be wrong that there is something wrong with my children. I don't take my children to the doctors for a runny nose or a fever. I only take them when I know they are sick with a sinus infection. I'm not a Mom that is going to sit by the sides and let them drag their feet and noone knows what is wrong.

Any assistance that anyone can give is greatly appreciated and I am extremely grateful.

Zack's Mom

Lady Olivia 11-11-2005 01:42 PM

Re: Please help...5 year old with major knee pains
Hi Zacks Mom,

My son too had terrible knee and leg pains for most of his young life. He would scream in pain and cry and I would never know what to do for him. I to took him to the dr's and specialists but in the end they said the same thing it was growing pains. For my son they were right. He was growing faster than his body could keep up with him. Where most children would grow a little bit he would grow an inch. He was 6ft by the time he was 13 and is now 6'4 at 16. I would massage his legs and I would i put him in the spa bath and give him panadol until a physiotherapist suggest that before going to bed and starting his day he do stretches to get his ligaments and tendons to grow with his bones. He would simply put a thick book on the floor put the tips of his toes on the top of the book then push down with his heels to the floor. This did help him immensely but the pain was still there at times. The temperature is due to pain and when in pain your BP goes up naturally. Also watch what he eats. Limit his starch intake try no white breads etc. The blood test results are a good sign that there isnt anything too serious wrong with him but if you are concerned still keep demanding blood tests or a bone scan.
I am sure Zack will be ok.
Take care
Olivia :)

misskoty13 05-04-2010 12:15 AM

Re: Please help...5 year old with major knee pains
Have you looked up Juvenile Rheumatoid Arthritis? It seems to talk about some of the symptoms you spoke of. Fevers are common along with terrible knee pains. Has there ever been an injury, swelling, or a rash? The information I read noted that it would usually start that way. It can last anywhere from a few days to a lifetime. Here's a paragraph I snatched from a site about different kinds of JRA:

Oligoarticular JRA, which affects four or fewer joints. Symptoms include pain, stiffness, or swelling in the joints. The knee and wrist joints are the most commonly affected. An inflammation of the iris (the colored area of the eye) may occur with or without active joint symptoms. This inflammation, called iridocyclitis, iritis, or uveitis, can be detected early by an ophthalmologist.

Systemic JRA, which affects the whole body. Symptoms include high fevers that often increase in the evenings and then may suddenly drop to normal. During the onset of fever, the child may feel very ill, appear pale, or develop a rash. The rash may suddenly disappear and then quickly appear again. The spleen and lymph nodes may also become enlarged. Eventually many of the body's joints are affected by swelling, pain, and stiffness.


To diagnose JRA, the doctor will take a detailed medical history and conduct a thorough physical examination. The doctor may order X-rays or blood tests to exclude other conditions that can produce similar symptoms.

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