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    Old 06-23-2006, 09:34 PM   #1
    mcjonval
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    psoriatic arthritis: Help!

    Hello. I am new at this so please bear with me. My husband was diagnosed with Psoriatic Arthritis and suffers greatly. He is in constant pain. The Dr's are just now starting him on mtx. He feels like there are not enough words to explain well enough how bad he feels. He is in terrible need of encouragement from those who were bad, but have gotten better with all the symptoms. I think he would feel so much better just knowing that he can at some point get back to a normal life. He plays guitar too and loves to, but can't because his fingers swell up. He still has MANY symptoms. If there is anyone recently getting better or who can share this horrible thing with him through this post, he would be so glad to hear from you. Thank You so much. GBY. mcjonval

     
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    Old 06-25-2006, 11:25 AM   #2
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    Re: psoriatic arthritis: Help!

    Hi mcj,

    I posted on the other thread about this same illness. So, just to talk a little more and ask a few questions... Did your husbands rheumy dr. not give him anything else, besides methotrexate? Like creme or ointment to rub on??? Or another med, until the methorexate starts to work??? I assure that is what yall mean by MTX.

    Let me hear, if you are still using this board.

    Take care and I know how the itching can drive you crazy and how your fingers and hands can hurt so bad!

    Wannabe

     
    Old 06-25-2006, 11:37 AM   #3
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    Re: psoriatic arthritis: Help!

    Hi. This is the husband who has PA. You are correct on the name of Med. Also, I did not get anything else to rub on or otherwise for pain. I have no itching from the scaly patches however the pain in my hands, wrists, elbolws back and shoulders is very bad at times. The weather and humidity can be quite bad at times. I have not taken the methotrexate yet but will beging to take it this week. I am not sure what side effects there are and I don't know how effective this treatment will be in the long run. I am living on IB profen advil and this is not helping really anymore. My joints become swollen and I have difficulty doing jobs and this causes alot of fatigue. Do you know of any success storys from recovery from Psoriatic arthritis? mcjonval

     
    Old 06-25-2006, 10:02 PM   #4
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    Re: psoriatic arthritis: Help!

    Hi Mcjonval,

    I am taking methtrexate. But, a few years ago, when I first was referred to my rheumatologist, I was Rxd as osteo arthritis. Was treated with mostly muscle relaxers and light pain meds. I cannot take anti-inflammatories, because of a bad stomach.

    Then I slowly got worse, (my family dr. thought that I had fibro) and my rheumy dr. added a nother med. here and there. I think that is the way a lot of them do and she did a great job, trying to find the right fix for me. It just takes a lot of time.

    I just think that you should take or be given something else, when you do start the methotrexate, as that medicine (works really well, when it starts working) takes 6 - 9 months to fully work. So, I am, was taking Prednisone, a steriod and ballooned up 20 lb. So, now that my metho is starting to work (hopefully after my upcoming surgery, when I can take it again), my rheumy dr. is lowering my extra drug (prednisone) to 1/2 pill per day and then after a few months, even less or no???

    I am not a very good authority on psoriatic arthritis. Just thought I might have that also, along with my RA. I do have patchy, dark, scaly elbows, tho. The rest are just sores that will not heel, I guess. There are just so many kinds of arthritis and some of them run together! :>

    I would imagine along with your hands, wrists, elbows, shoulders and back, that your whole arms and parts of your legs hurt sometimes too. And yes, the weather is really bad on arthritis, of just about any kind. My dr. said that they get twice as many calls when a front rolls in and in the winter. Some people can come in and get a prednisone shot or some other kind. That worked for a while with me, but no longer. So, it is the pills or nothing or something else (hope! Hope!! :>).

    I do hope that you get your illnessess all figured out and the correct meds for your condition. If you are really hurting bad, and cannot wait til your next appt. ( mine are 2 - 3 mo. apart), call your rheumatologist. Tell the nurse all that hurts and how bad and they may be able to give you a stop gap med, til your appt. time?!

    Take care and feel better (I know easier said than done).

    Wananbe

     
    Old 06-26-2006, 01:52 PM   #5
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    Re: psoriatic arthritis: Help!

    Hi. From what I can remember, the scaley elbows and knees etc....comes with psoriatic Arthritis and not the RA but you can read up on that, and if its wrong let me know. So good to hear from you again. Its so nice when people show that they care. Thank You. Do you have psoriesis(sp)? If so is it anywhere besides your elbows? Mine is bad on my head too. Are you able to work still? What can you do? Also, what quality of life do you have? I am not able to do much right now. The quality of life as far as everyday things is poor, but I read alot. My wife is going through alot also with Diabetes and Kidney desease...so we both comfort eachother as well as listening to others and their sufferrings. Hope you are doing a little better today. mcjonval

     
    Old 06-29-2006, 04:44 AM   #6
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    Re: psoriatic arthritis: Help!

    Hello there, I'm new here, I'm 24 and I have had psoriatic arthritis for 7 years, but its only been diagnosed for 6 months. I'm on Methotrexate and I'm trying to be positive but it's really hard and nobody understands. If anyone wants a chat I'd love to discuss anything about this illness, as it would be nice to chat to people who understand.

     
    Old 06-29-2006, 07:50 AM   #7
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    Re: psoriatic arthritis: Help!

    Hi Mcjonval,

    I have had psoriatic arthritis for seven years, but they didnt diagnose it until this year. I was practially crippled, my feet were swollen and I couldnt wear shoes or put pressure on them. My shoulders and back were so tight and sore, I couldn't sleep. Then my hands started to swell and it was unbearable. When they told me about Methotrexate I was so scared, I cried for days and I was petrified to even take one dose. Six months on, I've tolerated the MTX, although I did have a break a few months in because of some nausea and headaches. When I came off them I realised how much good they were doing, becuase it was agony again, and I hadnt even noticed how much easier things had been on the MTX. They keep upping my dose and I have to look after my health. The best advice I can give you starting out on MTX is eat healthily and start gentle exercise. Do as much exercise as your body can tolerate and slowly the MTX will allow you to do more and combining them will give you a much better quality of life. The more muscle you have the better support for your joints It's a hard thing to have and the emotional side of it is just as hard as the physical side of it. Unfortunately there is no cure, but you can have quality of life again. Having support and love from family and friends is the best way to keep you going, but it is hard when people don't understand that you can't go the distance like they can. Hope that your first dose went okay.

     
    Old 06-29-2006, 04:55 PM   #8
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    Re: psoriatic arthritis: Help!

    Hello. Thanks for the info. It seems like you understand what is going on. I have suffered greatly also with this psoriatic arthritis. I have had pretty much the same as you. As of yet I have not started the MTX. i am going through what you said...about taking it. I'm not looking foward to the side affects and what you can go through taking it. I have heard that others have taken a combination of drugs like injectables as well as MTX. I was wondering if there was any natural health remedies for this problem? HOPE TO HEAR YOUR REPLY(OR ANY OTHERS WHO MIGHT KNOW)SOON. Thank You, again. mcjonval

     
    Old 07-03-2006, 09:18 AM   #9
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    Re: psoriatic arthritis: Help!

    Hi again,

    I tried a whole host of natural remedies for psoriatic arthritis, but nothing really worked. I wanted them to, and I treid acupuncture, homeopathy, etc etc. Maybe they work for some people but they didn't work for me. The only thing that worked for me, was getting my body to the best shape it could be. The more muscle mass the better. But it's almost impossible to do this without pain relief and drugs. The best thing I can say to you is that the side effects aren't as bad as you think they're going to be. Like I said, I was petrified but once I started them it was nothing like I expected. I take them on a sunday, with my evening meal. I always make sure I treat myself to whatever I like for my sunday meal, and I always have a yummy dessert. It makes me feel better about taking the MTX. I generally don't feel any different, apart from it's a little more difficult to get up the next morning (bu i am lazy anyway!), and I sometimes feel a little bit sicky, but nothing that a bit of fresh air and lots of water doesn't sort out and it doesnt last longer than until midday monday. Obviously everyone is different though. I can honestly say that I havent noticed any more of a rise in illnesses, which was a worry. I was scared I'd catch anything and everything but I havent. The doc prescribed folic acid to take with the MTX as it sometimes helps with nausea, but I dont take them as I havent needed to.

    Ive heard that some people take other types of injections, like 'gold' and 'enbrel', but the doc was adament that it was going to be MTX first before any of that. I think that the injections mess with your organs more, even though they work faster.

    Taking your first dose is really scary, but honestly, it works. Slowly but surely it works. Eat healthily, exercise as much as your body allows (swimming and walking are good) and slowly you'll be able to exercise more which will make it even better.

    It's difficult to come to terms with a life of routine and hospital appointments and even now sometimes I get scared and feel separated from other people my age, but for the most part i have quality of life back and I'm glad. Hopefully one day there will be further advances in medicine to help with this horrible illness, but for now all I can do is try and make you not worry so much. It's scary and never be afraid to admit that it scares you, but it will get easier and the MTX is nothing like I imagined.

    Oh and for the psoriasis, betamethasone is the best thing going. And less worrying helps as well.

    Please don;t be afraid to ask anything else or just to have a moan. I find that saying 'its not fair!!!!' helps a lot, cause let's face it, it isn't is it?!! Acknowledging that it aint fair somehow helps you to eventually comes to terms with it
    Sending you my very best wishes and I hope to hear from you soon.
    Tina
    xx

     
    Old 07-10-2006, 05:20 AM   #10
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    Re: psoriatic arthritis: Help!

    Hi I am new and live in New Zealand. I have posted on the above thread on Psoriatic athritis so pls read. It would be great to know the different treatments from other coutries. Unfortunately for me I could not tolerate MXT or Salazopyrin as both attacked my liver, but my son has no problem with MXT.
    Could others please tell me how the were diagnosed with P A as I was told over here in NZ that this is the only athritis that does not show up in blood test. They test us for the other R A etc. to elimiate them first, but P A does show up in xrays. Cheers to all and keep well.

     
    Old 07-10-2006, 05:30 AM   #11
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    Re: psoriatic arthritis: Help!

    removed
    Hi inata, noticed you say you don't take the folic acid. When I was on MXT I had to take the folic acid the next day after taking MXT. My rumie told me the folic acid is taken to ativate the MXT. Please double check with your doc / rumie. Keep well.

    Last edited by HBMod07; 07-10-2006 at 03:51 PM. Reason: Please only quote the actual portion of the message you are replying and not the entire message.

     
    Old 07-12-2006, 05:21 AM   #12
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    Re: psoriatic arthritis: Help!

    Hi Katmel!
    I was diagnosed after 7 years by a specialist. I had years of bloodtests in which nothing showed up. It doesn't even show up as raised inflammation levels. Eventually he looked at my left hand which is huge and swollen, and diagnosed me immediately. No x rays though, so i dont know how they can tell how bad it is. The mtx is working but not very quickly and I'm still disabled in my hands with it.

    No, youre right, I dont take folic acid. I was told that it was unnecessary unless I wasn't tolerating the MTX, and that in fact nothing is proven about whether it even helps with the nausea at all. Apparently MTX depletes Folic acid in the body, so replacing it artificially make stop you feeling sickly. But they never said anything about it working in conjunction with. Wierd what different docs say isnt it!? Will speak to him.

    So if you didnt tolerate the MTX what are you on now? Gold? Enbrel?

    How is your son? How old is he and is he coping with it? I never knew it was hereditary, is it possible that i could pass it on then. Yikes.

    Take care.
    Tina
    x

     
    Old 07-12-2006, 08:58 PM   #13
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    Smile Re: psoriatic arthritis: Help!

    Hi Katmell. I wrote to you on you post. "psoriatic Arthritis". Write back soon. mcjonval. Hi Inata. How are you doing?

     
    Old 07-14-2006, 03:43 AM   #14
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    Re: psoriatic arthritis: Help!

    Hi inata, I am afraid yes it is genetic. We believe my grandmother and an aunty who have both past now had this condition (but weren't diagnosed with PA) My cousin has also just been told she has this and we are sure her brother does also. He has been under a rumie for athritis and his rumie told him he definately has athritis but nothing showing up in his blood test so I told him to mention that we have PA so will find out his outcome when he goes for his next visit. My son is 36 and he got his 1st major attack 2 1/2 yrs ago. He got it so bad in his right knee and spine. He lives in Australia. He went back to work after 8 mths off and returned on light duties but is doing fine at the moment. He tells me he has the odd bad day, but it is pretty much dormant at the moment. He also said it took about 9 mths before MXT worked well for him. As for me I am only taking I-Profen Ibuprofen for pain & inflammation at the moment. I was having hydra corticosteroids every 3 mths for the last 2 yrs. I am improving alot at the moment also. So I guess I am going dormant again until the next attack too. Yeh I will querry re: folic acid again also. Until later may you feel better soon Kathy.

     
    Old 07-14-2006, 03:47 AM   #15
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    Re: psoriatic arthritis: Help!

    Hi mcjonval I read your reply and it does help, well it has for me any way. I am also finding it very interesting hearing from others from different countries. Wishing you all the very best Kathy.

    Last edited by katmell; 07-14-2006 at 03:50 AM. Reason: spelling

     
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