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  • Arthritis or not Arthritis. Feel like giving up

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    Old 03-10-2010, 05:37 PM   #1
    lemonorange
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    Arthritis or not Arthritis. Feel like giving up

    Hello everyone,

    I don't know where to start and feel like giving up. I live in Canada so all my doctors, specials and surgeries are free but that is no help when the doctors and specialists don't give a damn about their patients.

    I year and 2 months ago I got the flu. It was then I started with severe leg/knee pain. I was told it was reactive arthritis. I am allergic to aspirin was had to live with the pain. It did not go away so I saw a doctor. I had to beg for xrays. After a few visits he told me he could not help me and told me not to come back.

    Went to my family doctor in a different location. I had moved to a new town and my family doctor was hard to see. I was ref. to a specialist. She hardly spoke two words and was useless.

    Pain did not go away and it has taken over my life. I had an mri, bone scan and xrays.

    2nd specialist looked at my mri and told me I do not have arthritis and the knee has no damage and the cartliage is in good condition. He sent me to a rheumatoid specialst. That specialist looked at me sitting down and said because the other specialist said I did not need surgery then it had to be arthritis. I asked him how could he tell without talking to me or examining me. Too much to type about this idiot man.

    Because I started to get upset and louder out of shear frustration he said he would order detailed blood tests. Obviously there are other visits I have not typed about but I would not put you thriough that boring stuff lol

    So my results came back. They called me over the phone and I wrote down what they said but I don't have all the details until I get a copy in my hand.

    Here are my sypmtoms over the past year and then the results.

    As I got the flu these sypmtoms started:
    Severe pain above, esp down the sides, in and below my knees
    Calf pain
    Lots of fluid build up around the knees
    Fluid build up all down my legs
    No energy at all
    Can hardly walk, can't even walk upright up my stairs.
    Out of breath easily
    My arms feel heavy, hard to hold a hairdryer etc for long time
    Weather makes no difference

    Last November I had the H1N1 flu shot and the pain in my legs/knees got worse.

    Last blood test results:

    High white blood cell count in urine. I don't feel like I have an infection but each time I have a test it says high white blood cell count.

    High hemoglobin levels in blood

    High platelet count in blood

    Vitamin B12 deficiency. 130 count. I used to have shots for this, non for years

    Vitamin B6 deficiency

    Vitamin D deficiency

    All blood tests I have had say I do not have arthritis.

    The last specialist I saw told me he knows what happened, he is telling me I went to bed one night and woke up with advanced arthritis.

    I don't know who to believe. Do I have arthritis or something else?

    I am allergic to aspirin so right now I am on no pain relief medications at all. The only thing that ever worked well was prednisone and you can't take that on a regular basis.

    Does this sound like arthritis? I just feel like giving up.

    Thanks for any help you can offer.

     
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    Old 03-10-2010, 07:24 PM   #2
    hopalong_too
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    Re: Arthritis or not Arthritis. Feel like giving up

    Wow! Please be sure to post your results when you manage to get hold of them! (I know that can be difficult in Canada. I have been there, done that!)

    Your B12 needs to be brought up. I also have lower B12 but my level is a whopping 320 and I know it is causing issues. You do not need to wait for injections. You can take sublingual B12. I take Jarrows Sublingual 5mg (not a typo......it is 83,000% of the RDA!). It helped to raise my level to just over 500 and I stopped but am starting again as the level fell again.

    There are many types of arthritis that are inflammatory but are sero negative. Do you know which tests you had done? ANA? CRP? ESR (Sed Rate)? Do you know what the xrays and/or bone scan showed?

    Vitamin D deficiency can also cause a lot of bone pain. I currently take 10,000IU sublingual D3 which is available without prescription.

    I am not sure about the high hemoglobin levels but the high platelet level (how high?) may SOMETIMES have something to do with inflammation as in rheumatoid arthritis or SOMETIMES iron deficiency.

    Quote:
    High white cell count in urine
    Leukocytosis (a white count increased to over 10,000/uL) is seen in bacterial infections, inflammation, leukemia, trauma, and stress.

    What about thyroid testing? TSH, FT4, FT3, TPO and Tg antibodies. Thyroid problems can mimic alot of the problems you are experiencing. Thyroid issues are also closely connected to low Vitamin D, low Vitamin B12 and low ferritin.

    You say you cannot take aspirin. Neither can I. What about NSAIDS. There are non prescription (Ibuprofen) and prescription (Celebrex, Etodolac, Diclofenac Sodium etc.) that could possibly help to alleviate symptoms. They are also anti inflammatories which will help your knee.

    I guess we have to wait until you get some results. Try to get written results for your xrays, MRI and bone scan. It is possible even though they may make you pay a nominal amount and, believe me, in the long run it will be worth the effort! I learned the hard way and now get copies of every result!! I DO KNOW FOR A FACT that you CAN get copies of your results in Canada......do not let anyone tell you otherwise.

    I am not sure what part of Canada you live in but I used to live there and now live in the US. Doctors here can be just as insensitive and they can have preconceived ideas before you even open your mouth. I had a bone scan (ordered by a GP who I know listens to me and is frustrated because she cannot supply answers) and the result came back saying, "Mild degenerative changes are identified within the cervical spine. Mild to moderate degenerative changes are identified within the lower lumbar spine. Mild to moderate osteoarthritis, ARTHRITIS or prior trauma is identified within the BILATERAL SHOULDERS, BILATERAL ELBOWS, BILATERAL WRISTS, BILATERAL HIPS, BILATERAL KNEES, BILATERAL ANKLES, LEFT FIRST MTP JOINT AND LEFT SECOND MTP JOINT". My GP sent me to a Rheumatologist who looked at me, told me I look too good to be sick and I do NOT have arthritis but simply tendinitis in my hip!!! I was just beside myself. I am STILL searching for an answer. The reason I write this is to show you that you are NOT alone and it is not the country that is the issue.....I hope we BOTH get answers soon!

    Last edited by hopalong_too; 03-10-2010 at 07:47 PM.

     
    Old 03-11-2010, 04:22 PM   #3
    Thomasinaa
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    Re: Arthritis or not Arthritis. Feel like giving up

    Hello there,
    Wow, you sure have been through alot. I'm not sure what part of Canada you live in, but I live in BC and we have to pay BC Med, which is around $100 a month for a couple and is mandatory. Specialist are difficult to see, with really long wait lists.

    I too find that Dr's don't really listen. I'd been complaining of soreness in my legs, mostly inner legs for over a year and the Dr. told me flat out.. there is nothing wrong with your hips.. well, I managed to get an XRay and now am waiting... another long wait to see the Ortho specialist as I need a hip replacement!

    I ask for copies of my xrays, test results etc. and have no problem getting them...

    I understand your frustration... I have fibromyalgia also and it sounds a bit like what you have... it came on after a really bad bought with the flu around 20 years ago and never did go away...

    So, keep trying to find out... you know what's what with your own body and don't let those insensitive Dr.'s make you think it's all in your head.

    Take Care,
    Thomasinaa

     
    Old 07-23-2010, 06:01 AM   #4
    artieH
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    Re: Arthritis or not Arthritis. Feel like giving up

    As for your frustration with healthcare in Canada, last year
    I was able to spend $10,000 I couldn't afford to spend in deductibles,
    on top of the $6000 I already had spent on health insurance in the USA.
    The result? The same as yours. Doctors who wanted to screen me
    for their specialty and who took a bell curve approach to all medical matters.
    No one who needed to rack up a big income was interested in spending
    extra time on my specific case. It's ironic that people frustrated in
    systems where they also don't have to go bankrupt think that SOMEHOW the
    absence of a huge profit motive is the problem behind doctors not getting
    to the bottom of complex medical problems. For me, I have arthritis, in the chest, back, hips, though I'm not entirely disabled from it at all. I also have neurological issues. All specialists other that the neurologist I visited thought my problem was neurological. Feelings of tingling, numbness, warmth in affected areas. After the neurologist took $1000 apx of my funds (all within my big deductible so it came out of my pocket), and after I paid $1000 for a negative brain scan, the neurologist told me he couldn't help me! I'd far prefer to have paid nothing on top of my taxes to the government, as the blessed Canadian citizen, in order to get this information. At least I helped the neurologist and other doctors earn their millions ! I still remain undiagnosed on the tingling, etc., after almost two years of seeking a diagnosis. The tingling and numbness and other symptoms have indeed at times made me unable to work, with with no diagnosis, essentially, comes no disability tag.

     
    Old 07-23-2010, 06:04 AM   #5
    artieH
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    Re: Arthritis or not Arthritis. Feel like giving up

    As for your frustration with healthcare in Canada, last year
    I was able to spend $10,000 I couldn't afford to spend in deductibles,
    on top of the $6000 I already had spent on health insurance in the USA.
    The result? The same as yours. Doctors who wanted to screen me
    for their specialty and who took a bell curve approach to all medical matters.
    No one who needed to rack up a big income was interested in spending
    extra time on my specific case. It's ironic that people frustrated in
    systems where they also don't have to go bankrupt think that SOMEHOW the
    absence of a huge profit motive is the problem behind doctors not getting
    to the bottom of complex medical problems. For me, I have arthritis, in the chest, back, hips, though I'm not entirely disabled from it at all. I also have neurological issues. All specialists other than the neurologist I visited thought my problem was neurological. Feelings of tingling, numbness, warmth in affected areas. After the neurologist took $1000 apx of my funds (all within my big deductible so it came out of my pocket), and after I paid another $1000 for a negative brain scan, the neurologist told me he couldn't help me! I'd far prefer to have paid nothing on top of my taxes to the government, as the blessed Canadian citizen, in order to get this information. At least I helped the neurologist and other doctors earn their millions ! I still remain undiagnosed on the tingling, etc., after almost two years of seeking a diagnosis. The tingling and numbness and other symptoms have indeed at times made me unable to work, but with with no diagnosis, essentially, comes no disability tag.

     
    Old 07-23-2010, 02:57 PM   #6
    jinxm29
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    Re: Arthritis or not Arthritis. Feel like giving up

    Quote:
    Originally Posted by lemonorange View Post
    Hello everyone,

    I don't know where to start and feel like giving up. I live in Canada so all my doctors, specials and surgeries are free but that is no help when the doctors and specialists don't give a damn about their patients.

    I year and 2 months ago I got the flu. It was then I started with severe leg/knee pain. I was told it was reactive arthritis. I am allergic to aspirin was had to live with the pain. It did not go away so I saw a doctor. I had to beg for xrays. After a few visits he told me he could not help me and told me not to come back.

    Went to my family doctor in a different location. I had moved to a new town and my family doctor was hard to see. I was ref. to a specialist. She hardly spoke two words and was useless.

    Pain did not go away and it has taken over my life. I had an mri, bone scan and xrays.

    2nd specialist looked at my mri and told me I do not have arthritis and the knee has no damage and the cartliage is in good condition. He sent me to a rheumatoid specialst. That specialist looked at me sitting down and said because the other specialist said I did not need surgery then it had to be arthritis. I asked him how could he tell without talking to me or examining me. Too much to type about this idiot man.

    Because I started to get upset and louder out of shear frustration he said he would order detailed blood tests. Obviously there are other visits I have not typed about but I would not put you thriough that boring stuff lol

    So my results came back. They called me over the phone and I wrote down what they said but I don't have all the details until I get a copy in my hand.

    Here are my sypmtoms over the past year and then the results.

    As I got the flu these sypmtoms started:
    Severe pain above, esp down the sides, in and below my knees
    Calf pain
    Lots of fluid build up around the knees
    Fluid build up all down my legs
    No energy at all
    Can hardly walk, can't even walk upright up my stairs.
    Out of breath easily
    My arms feel heavy, hard to hold a hairdryer etc for long time
    Weather makes no difference

    Last November I had the H1N1 flu shot and the pain in my legs/knees got worse.

    Last blood test results:

    High white blood cell count in urine. I don't feel like I have an infection but each time I have a test it says high white blood cell count.

    High hemoglobin levels in blood

    High platelet count in blood

    Vitamin B12 deficiency. 130 count. I used to have shots for this, non for years

    Vitamin B6 deficiency

    Vitamin D deficiency

    All blood tests I have had say I do not have arthritis.

    The last specialist I saw told me he knows what happened, he is telling me I went to bed one night and woke up with advanced arthritis.

    I don't know who to believe. Do I have arthritis or something else?

    I am allergic to aspirin so right now I am on no pain relief medications at all. The only thing that ever worked well was prednisone and you can't take that on a regular basis.

    Does this sound like arthritis? I just feel like giving up.

    Thanks for any help you can offer.
    Hi

    My grandma takes this enzyme supplement for her arthritis and it helps her. Its called Neprinol, you can google it if your interested there is lots of info on it. However, your symptoms are so odd, have you ever been tested for Valley Fever? I know it can cause some of the same symptoms, you might look into it. Good Luck!

     
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