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Newly diagnoised aspergers

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Old 03-10-2006, 11:11 AM   #1
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Join Date: Dec 2004
Posts: 39
JenBer HB User
Newly diagnoised aspergers

Hi, I took my son to be evaluated yesterday and the psychologist says he is 99.9% sure he has aspergers from just talking to him and watching his actions. He said he would like my son to be more comfortable with him before doing any test. It was very hard to talk with my son running around and taking off his shoes and socks, and the fact I didn't want to talk in front of him, but I was just wondering what kind of tests they do. The psychologist wants me to start making pictures for my son as he feels it will be easier for my son to relate. He made him a chart from 0-10, he seems to understand this, but so far only points to 0 or 10. We went out and got him a little trampoline on Wednesday, which suprisingly has helped vent some of his anger. Does anyone else use graphs and charts and does this help? Thank you any advice I could get would be appreciated.

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Old 03-10-2006, 12:27 PM   #2
Join Date: Mar 2006
Posts: 6
aquarius1813 HB User
Re: Newly diagnoised aspergers

My 9 year old son has AS and lives by charts! He has a chart for everything - he needs the stability of routine and needs to know EXACTLY what he is going to be doing at what time. We do however have slots during the day that are blank for us both to fill in with what we 'feel' like doing.
Storyboards are an excellent tool for a child with AS. They are like social stories which help teach them the social skills that they struggle to understand/develop and are on paper, using pictures - almost like a mini comic book story of their life.
I live in the UK so the tests that they do here may differ from overseas -
My son met with various medical professionals over several weeks:

Occupational Therapist - ensuring motor movement etc
Educational Psychologist - looking at learning ability/disabilities/iq/school level
Social Worker - whether you need help from the home
Speech Therapist - if there is a speech disability
Opthalmologist - eyes - many autistic children have something called 'Irlens disease which is corrected with coloured tinted lenses
Audiologist - hearing difficulties
Consultant specialising in Autism - assesses your child in the hospital whilst your child plays. This visit was particularly entertaining for all concerned as my son is fascinated with foreign accents and as his consultant is from India my son was answering all her questions in an Indian accent which the consultant said was amazingly accurate!

These people did various 'tests' on my son which were oriented towards AS as the consultant who saw him initially was like your dr - 99.9% sure that he had AS.

I had to fill in around 30 different 'forms' asking questions like
Has your child ever licked an inanimate object?
Does your child have obsessions about certain things?
Does your child find it difficult to interact?
Does your child play with or alongside other children?
Does your child have problems looking you in the eye when talking to you?
Does your child have problems/obsessions with food?

The list is endless! However they are obviously asking questions that are quite apparently autism based and as the parent they ask that you answer them as honestly as possible.

There have been that many tests that I am sure I have forgotten someone, however I believe the more people you see the better the opportunity for a swift firm diagnosis which will then entitle you to lots of help and support from a variety of sources.

Good luck and remember you are most certainly NOT on your own!

Old 03-11-2006, 02:23 PM   #3
Join Date: Feb 2006
Location: GTA, canada
Posts: 65
threenorns HB User
Re: Newly diagnoised aspergers

my daughter is almost 20 and her doctor (new one she and her husband just started seeing) is pretty much convinced she and her hubbie are both asperger's - wouldn't be surprised, as "aspies" tend to hang together.

from reading up on it, it would seem that i'm asperger's, too; not sure how i feel about it, but i guess it doesn't really change anything except give me ammunition to tell my family to get off my back about my terrible fashion sense and computer obsession, lol.

anyway, the thing with asperger's is it can be very vague - ie, "fails to maintain eye contact": how long is "normal" eye contact? if your family is of asian origin, maintaining eye contact isn't done anyway - it's rude.

get your son diagnosed, then get a second opinion. if the second one is different, go with the one that will get your son the treatment he needs.

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