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    Old 12-14-2016, 03:58 PM   #1
    GreatOutdoors61
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    Advice for persistent asthma not responding to meds

    Hello all,
    I'm a 40 y/o male that has had mild asthma since grade school. In the past 20+ years, the only med I've needed was my rescue inhaler on the occasion that exercise or cold air would trigger a mild flare up.

    Over the last year or two, I've had more and more problems, going on prednisone a couple times and getting some breathing (nebulizer) treatments at my local urgent care. This year I started consulting with an allergist, as I was still using rescue inhaler several times a week.

    Started with Qvar and within a week, I felt totally normal again -- for a couple months. Then it seemed to stop working. Allergist added Singulair with no change. Then since October, I have gotten worse, with a heavy chested slightly labored breathing -- no cough or chest pain, but when I breath in and especially out, there's a heavy breathy wheeze. (I did have a chest xray and no sign of pneumonia -- and no cough or sinus issues). I have this everyday, and rescue inhaler only provides some brief relief. Tried a steroid injection (Celestone) with no improvement. Now I started oral prednisone again, which seems like the last option (?), starting with 20mgs/day, but after a week, no change. Prednisone with my rescue inhaler had worked in the past. Not sure why all this trouble since October.

    Does anyone have advice as to when I should see a different type of doctor, and if so what type? Have any of you had persistent asthma -- symptoms everyday -- and doesn't seem to respond to anything? Could it be something else? Thanks for taking the time to read this.

    Last edited by GreatOutdoors61; 12-14-2016 at 04:37 PM.

     
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    Old 12-15-2016, 03:59 AM   #2
    Titchou
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    Re: Advice for persistent asthma not responding to meds

    You should see a pulmonologist. They treat lung issues. They will do testing and get you on the correct meds.

     
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    Old 12-15-2016, 07:16 AM   #3
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    Re: Advice for persistent asthma not responding to meds

    I agree I would see an asthma specialist or pulmonogist. You may just need to change from QVar. I tried it once and it didn't help me. I have read even though some meds a the same types they still respond to people differently.

     
    Old 12-15-2016, 06:27 PM   #4
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    Re: Advice for persistent asthma not responding to meds

    Hi..

    Were you never on a steroid inhaler such as pulmicort?

    Have you been checked for reflux disease?

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    Last edited by Administrator; 03-01-2017 at 02:04 PM.

     
    Old 12-17-2016, 11:44 AM   #5
    GreatOutdoors61
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    Re: Advice for persistent asthma not responding to meds

    Hi Quincy,
    No I've never been on Pulmicort, but I was on Qvar (80) for several months. It seemed to work for the first couple months, but then stopped. Allergist just switched me to Dulera yesterday, so I'm trying that along with my Prednisone -- which I'm halfway done with and doesn't seem to be working.

    Allergist did suspect I had "silent reflux" earlier this year, and put me on Zantac and Protonix. But that didn't help asthma, so he sent me to have a laryngoscopy, and my layrnx looked fine and no signs of reflux so reflux meds were stopped this past summer.

    Then my asthma got even more persistent in October, and diagnosis was "moderate persistent asthma." Nothing in my environment changed in October so I'm at a loss. The only different thing I can think of is I went to dermatologist in October for some mild scalp itchiness and breakouts and I was prescribed "Ovace Plus" shampoo which is a sulfa-based antibiotic shampoo I believe. I read somewhere that it might cause breathing difficulties, and when I mentioned to allergist he said he didn't think that would be the cause of my issues, but wasn't sure. I'm only using shampoo every other day and I can't imagine something on my head for 90 seconds would affect my asthma?? I stopped it for a week to see if it would help and didn't seem to. Maybe it takes longer??

    My worry is if I am continuing to need my rescue inhaler several times a day to simply knock back my wheezing for a few hours, how long before long term damage? Maybe I need to go straight to a pulmonologist? I dont feel like I'm on the verge of a full-blown asthma attack, but for some reason I just can't shake this bout.

    Last edited by GreatOutdoors61; 12-17-2016 at 11:51 AM. Reason: added some things

     
    Old 12-17-2016, 11:57 AM   #6
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    Re: Advice for persistent asthma not responding to meds

    Thanks, StacyCj. Did the Qvar simply not work for you, or did it make you worse? I'm thinking the Qvar made me worse, but I can't find any information that it's possible or a potential side effect.

     
    Old 12-17-2016, 01:50 PM   #7
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    Re: Advice for persistent asthma not responding to meds

    It can take a long time to sort it out and get on the right meds. It may be that the QVar worked temporarily and isn't what you need. At any rate, you need to see a pro and that's a pulmo.

     
    Old 01-02-2017, 01:32 PM   #8
    GreatOutdoors61
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    Re: Advice for persistent asthma not responding to meds

    Quote:
    Originally Posted by Titchou View Post
    It can take a long time to sort it out and get on the right meds. It may be that the QVar worked temporarily and isn't what you need. At any rate, you need to see a pro and that's a pulmo.
    Hi Titchou,

    Just a quick follow up. I asked my primary doctor to refer me to a pulmo, but since I haven't had a physical in 3 years, he wants to see me in two weeks for a full physical first.

    Meanwhile, about 3 weeks ago, I told my allergist I wasn't any better. So he had me stop QVar, and start Dulera. After 3 weeks on Dulera, not even a tiny bit better. Do you have any suggestions of what I should do in the next two weeks? Should I try to continue working with this same allergist? (Been working with him since October, with no success -- in fact, I haven't had a normal day since the first of October and using rescue inhaler between 2-4 times a day for the last 3+ months).

    I'm so scared that since nothing has worked (prednisone, Singulair, QVar, Dulera) I'm starting to think I'm not going to get better and a pulmonologist won't have any meds to try that the allergist doesn't have access to? Any advice you have is greatly appreciated - thanks so much for your time.

     
    Old 01-02-2017, 04:03 PM   #9
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    Re: Advice for persistent asthma not responding to meds

    Unless your allergist is actually an immunologist, I wouldn't be relying on him for this. If you have allergies impacting your asthma, then he needs to address the allergies and leave the asthma to the pulmo or immunologist. I see an immunologist so he covers both. An allergist doesn't unless your asthma is strictly allergy related. Hope this makes sense.

     
    Old 01-02-2017, 05:40 PM   #10
    GreatOutdoors61
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    Re: Advice for persistent asthma not responding to meds

    Ok thanks. I'm not sure if he's an immunologist -- he's an MD, with special interest in asthma, allergy, and immunology. But I don't see the actual title of "Immunologist" but I don't see that he's called an "Allergist" either.

     
    Old 01-03-2017, 03:36 AM   #11
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    Re: Advice for persistent asthma not responding to meds

    Well,they are all MDs! If he has those specialties, he's probably OK. Have you had allergy testing? I still think you should see a pulmo - who is also an MD naturally but has a specialty in pulmonology.

     
    Old 01-03-2017, 08:30 AM   #12
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    Re: Advice for persistent asthma not responding to meds

    It's good you're going to be having a full physical. Get your heart checked and ask about a possible hernia and reflux. An ENT can also help with insight via scope.

    I suggest to get copies of all tests results for your records....they will be invaluable.
    Make a list of questions and requests for your doctor.

    Please keep us updated....

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    Last edited by quincy; 01-03-2017 at 08:32 AM.

     
    Old 01-28-2017, 02:19 PM   #13
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    Re: Advice for persistent asthma not responding to meds

    Quote:
    Originally Posted by GreatOutdoors61 View Post
    Hello all,
    I'm a 40 y/o male that has had mild asthma since grade school. In the past 20+ years, the only med I've needed was my rescue inhaler on the occasion that exercise or cold air would trigger a mild flare up.

    Over the last year or two, I've had more and more problems, going on prednisone a couple times and getting some breathing (nebulizer) treatments at my local urgent care. This year I started consulting with an allergist, as I was still using rescue inhaler several times a week.

    Started with Qvar and within a week, I felt totally normal again -- for a couple months. Then it seemed to stop working. Allergist added Singulair with no change. Then since October, I have gotten worse, with a heavy chested slightly labored breathing -- no cough or chest pain, but when I breath in and especially out, there's a heavy breathy wheeze. (I did have a chest xray and no sign of pneumonia -- and no cough or sinus issues). I have this everyday, and rescue inhaler only provides some brief relief. Tried a steroid injection (Celestone) with no improvement. Now I started oral prednisone again, which seems like the last option (?), starting with 20mgs/day, but after a week, no change. Prednisone with my rescue inhaler had worked in the past. Not sure why all this trouble since October.

    Does anyone have advice as to when I should see a different type of doctor, and if so what type? Have any of you had persistent asthma -- symptoms everyday -- and doesn't seem to respond to anything? Could it be something else? Thanks for taking the time to read this.

     
    Old 01-28-2017, 02:25 PM   #14
    Brendoz
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    Re: Advice for persistent asthma not responding to meds

    Asthmatics are allergic to gluten. If you stop eating gluten for only 1 week you will feel much better. Bread is the worst food for asthmatics, but so is all foods with gluten in it. I cured my asthma by being gluten free.

     
    Old 01-28-2017, 11:37 PM   #15
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    Re: Advice for persistent asthma not responding to meds

    I had pretty severe adult onset asthma. I have bad allergies and environmental triggers that I always attributed the asthma problems to. However, as one point, I couldn't get the asthma under control despite tons of asthma meds and a strict asthma action plan. My Pulmonologist sent me for a Barium Swallow and modified Esophagram. I watched on a live video x-ray as I aspirated 'gaseous' acid into my lungs and as it hit my throat. It was severe 'silent' reflux. I then had a series of 24 hr pH tests and manometries. After surgery for reflux (because my acid reflux was a result of a physical problem), my asthma not only got better, but my chronic sinus infections went away.

    I did still stay aggressive to treat the allergies though and try to avoid environmental triggers as much as possible.

    I had no idea acid reflux could impact asthma so badly. Certainly worth looking into if other strategies aren't working for you.

    Also, you say you were getting nebulizer treatments at the clinic. Did you ask for one at home too?
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