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  • Asthma Frustrations ...

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    Old 10-05-2017, 01:36 AM   #1
    carmi99
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    Asthma Frustrations ...

    So this all starts a year and a half ago when I was "diagnosed" with asthma via experimenting with inhaled steroids to see if it "cured" a chronic cough and wheezing. My asthma got worse and worse and now finally became bad enough my doctor suggested seeing a pulmonary specialist. Today I did the breathing tests for him so I can see the specialist in the near future. However, my tests were all perfect even though I did not inhalers in the morning like requested. Now I'm scared I won't find any answers or will perhaps be told I really don't have asthma... when my medications all do help alot, just not enough. I tried going off them a couple times and trust me that was awful... Do you think perhaps I still had to much medications in my system to give a true test? I'm on Advair 250, Atrovent, and of course Ventolin, as well as singulair and just finished a 3 week Prednisone taper. TIA for any answers/help I get!

     
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    Old 10-05-2017, 10:58 AM   #2
    quincy
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    Re: Asthma Frustrations ...

    What other tests did the pulmonologist put you through?

    Have you seen a gastro doc for extreme reflux?

    Have you seen a cardiac specialist?

    q
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    Old 10-05-2017, 11:09 AM   #3
    carmi99
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    Re: Asthma Frustrations ...

    I haven't seen either... perhaps it is, but inhalers wouldn't help then, right? Inhalers help alot, just not enough... And neither of them would explain repeat bronchitis and pneumonia, right?

     
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    Old 10-06-2017, 10:53 AM   #4
    quincy
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    Re: Asthma Frustrations ...

    You need further testing......have you had chest x-rays? A chronic infection can definitely exacerbate asthma.

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    Last edited by quincy; 10-06-2017 at 10:54 AM.

     
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    Old 10-06-2017, 12:15 PM   #5
    carmi99
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    Re: Asthma Frustrations ...

    I guess I should... I feel like such a burden to my Dr! I had a couple bouts of pneumonia thus summer and should probably do a follow-up xray.

     
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    Old 10-06-2017, 05:47 PM   #6
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    Re: Asthma Frustrations ...

    anyone who has asthma should be seeing a pulmonologist or an immunologist for sure. You may just need your meds adjusted. But please push for that referral.

     
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    Old 10-08-2017, 09:31 AM   #7
    yayagirl
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    Re: Asthma Frustrations ...

    Dear carmifaye,

    You aren't being a burden. That is his/her job.

    However you cannot get a true diagnosis if you interfere with the process, self-medicate before getting tested, etc. You need to be truthful and tell the doctor what you tried, what you took before the test, etc.

    If you have done things that may skew the test results, then the doctor cannot help you. You can make a list of what you took before the last test, what you have been trying, dates and times, etc. to the best of your knowledge. We should always share that info when seeing a doctor. It helps to write down dates, doses, med names, etc as you take them.
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    Last edited by Administrator; 10-08-2017 at 08:16 PM.

     
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    Old 10-08-2017, 12:10 PM   #8
    carmi99
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    Re: Asthma Frustrations ...

    well I didn't take any inhalers the morning of the test... I hope I get something figured out as it seems to be more cough variant type.

     
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    Old 10-09-2017, 12:03 PM   #9
    quincy
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    Re: Asthma Frustrations ...

    I have cough variant asthma....any cold or worse exacerbates it bigtime.

    You need a full scale assessment. Did the pulmonologist not order x-rays considering bronchitis and pneumonia you had?

    q
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    Old 10-09-2017, 03:33 PM   #10
    carmi99
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    Re: Asthma Frustrations ...

    do you find breathing tests pretty normal or do they actually show you have bad lungs? what meds/treatments do you take, may I ask? I know it's something with my lungs or else inhalers wouldn't work. if I forget inhalers I truly have coughing fit after fit. I haven't gotten xrays since I got sick with pneumonia and got antibiotics.

     
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    Old 10-09-2017, 03:35 PM   #11
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    Re: Asthma Frustrations ...

    whoops! double posted that...

    Last edited by carmi99; 10-09-2017 at 03:37 PM.

     
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    Old 10-10-2017, 08:52 AM   #12
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    Re: Asthma Frustrations ...

    Hi..i was diagnosed in 1983 at age 28. My brother has it and runs strongly on my mom's side of the family. The initial treatment was TheoDur (with Beclovent for periods of time and ventolin as needed)...for 8 years.

    Then I saw another specialist and was taken off TheoDur, put on Pulmicort, Rhinacort, ventolin. With that doc, my breathing tests showed decreased capacity from scarred lungs because my previous doc never dealt with lung infections via antibiotics and didnt want me to use the Beclovent during those times.
    The new specialist set me up with antibiotics for nasal polys, antibiotics when i had chest infection and for me to double my pulmicort when i had a cold. My lung output didnt really improve, but it didn't get worse.

    I have had pulmonary testing done and one tech said...on, you don't improve on ventolin, so I doubt you have asthma. My doc laughed at that. The issue is that my lungs are scarred, so that affects my output I guess.

    During colds, I increase the Pulmicort, but i was still feeling the need to use the rescue (I now use Airomir). My asthma doc left the clinic and my GP took over. She put me Oxeze during colds uf I needed, and it worked amazingly.

    I saw another pulmonologist a few years ago for testing, and he put me on Combivent....my breathing did well, and I never had a cold during that 6 months. I felt Ok, except agitated from the oxeze as the long lasting dilator. He took me off it because it didnt improve my output after that time, and he said to just continue my med regimen.

    Just this past Spring, with a recent cold and the feeling I needed to increase the Pulmicort, my GP had me try Breo. I like it, and will stay on it for now. So, I use it and Airomir as needed. I cannot double this one during a cold, so I have a 2 week sample of Breo with double steroid but not double long lasting dilator.

    You do need x-rays at the very least......and another specialist. Maybe an allergist that specialises in asthma who can see you from a different perspective and do more indepth testing.

    q
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    Old 10-10-2017, 03:01 PM   #13
    sue430
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    Re: Asthma Frustrations ...

    If this was the first time you did the testing, they are comparing your results against a "normal" person, but it may be that you are higher than normal and your results are really low for you, but they don't know that because there's nothing to measure against. Also with Cough Variant (which I have) many times breathing tests do come back normal, even when your asthma is bad. Hopefully the pulmo will help you. You might need some oral steroids to get rid of your symptoms, and then maybe the inhalers will do the entire trick. It took me probably 2 years to get my asthma under fairly good control, it was so out of control when I was first diagnosed. What might help is to start recording your symptoms in great detail before the pulmo visit: keep a log each time you have a symptom, date, time, what happened, how long it lasted, what you were doing/where you were when it started, or just before it started. That is something that I think if I had done before I went, I would have been diagnosed more quickly. Also if it's the case, include things like:coughing was so hard I vomited, or wet my pants, or had to pull over when driving. All of this can give the dr a clearer picture.

     
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    Old 10-10-2017, 11:49 PM   #14
    carmi99
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    Re: Asthma Frustrations ...

    wow those last two replies REALLY gave me hope! I do definitely think my lungs were better than average before I was diagnosed. I just finished a 3 week Prednisone taper a week ago and went right back to feeling awful after... hate Prednisone but boy it sure made me feel kinda human again. I'm not sure I said this... I'm on 2 Advair 2x daily, 2 atrovent 3x daily, ventolin as needed, singulair and benadryl every night. I can tell everything helps, but... I still drag myself around. I'm supposed to be a young adult and be enjoying life, not huffing and puffing for breath everytime I walk around. :/ HOPEFULLY I get some answers... I'm trying to decide if I should try and get on to a pulmo in the big city 3 hours from us... have no idea of her wait list (thanks Canada :P) but any reports I read online are nothing but 100% positive!

    edit... just booked an appointment with my family Dr in regards to PFT results so evidently there's something to talk about!

    Last edited by carmi99; 10-11-2017 at 05:06 PM. Reason: update

     
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