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  • SCARED-please help, 3 year old asthma out of control?

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    Old 05-19-2005, 12:10 PM   #31
    BYHOPE1113
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    Re: SCARED-please help, 3 year old asthma out of control?

    Considering you like the pediatrician I'd start there. That's who ordered our first one.

     
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    Old 05-19-2005, 12:13 PM   #32
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    Re: SCARED-please help, 3 year old asthma out of control?

    Maybe you could tell him/her that you've been talking to some other parents that have children with asthma and also have problems with chronic sinusitis that was discovered by a CT Scan and you're just wondering if that could be something that might explain what is happening to your daughter. If he/she say well maybe then suggest the CT get done just to be on the safe side.

    If you do the CT scan and everything is okay then you haven't lost anything. If you do the CT scan and find she's clogged up then you've accomplished something.

     
    Old 05-19-2005, 12:30 PM   #33
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    Re: SCARED-please help, 3 year old asthma out of control?

    Hey Shelly, you could start with your ped. I'd just say that you think she may have sinusitis since she has been having this problem for so long. There is no reason the pediatrician wouldn't be willing to order it (at least none that I can fathom). Honestly, any doc can order the CT, so you can just go down the line until someone agrees. I would also ask this from any doc who turns down your request "why not?", who knows, maybe there is a valid reason (though I can't see one). Good luck!

     
    Old 05-20-2005, 01:31 PM   #34
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    Re: SCARED-please help, 3 year old asthma out of control?

    thank you guys.

    We actually have another appt next wed with the ped. Her labs came back and her pneumococcal is low in her blood. Not sure what this means

    I am going to ask them when I go. They are pretty easy going and I think they will do it.

    If she has sinusitis what will come next?? The asthma specialist already feels she had it and put her on nasonex, but she is still stuffed with tonns of drainage.

    hugs
    thanks so much

    Last edited by babiespalace; 02-21-2006 at 07:58 PM.

     
    Old 05-20-2005, 02:12 PM   #35
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    Re: SCARED-please help, 3 year old asthma out of control?

    Well, sinus surgery has been suggested to us but her dad and I have decided we don't want that, so we've told the doctors' no on that one.

    Sinus surgery will usually have to be repeated in a few years and the doctors couldn't gaurantee me that there wouldn't be damage caused from the surgery which could effect how her sinus' work for the rest of her life. Apparently the sinus cavities continue to form until about age 20. Therefore our doctor says the older she gets, the bigger her sinus' get and the flow of mucous should improve. I would hate to do surgery now and something get damaged and my child have 2 year old sinus cavities for the rest of her life.

    There is a website for immune deficiencies that I went to but I can't for the life of me remember what it was. I asked the doctors if this was a possibility but they said no because K responded well the the Pnemovax Vaccine that they gave her.

    Here's a thought: Check her shot record and see if she has had Prevnar shot. Then check and see if she has had a Pnemovax Shot. Prevnar is a routine shot for a young child but the Pnemovax is not. K got it because her immune levels were low. After the Pnemovax vaccine they came up and stayed up to my knowledge. If she hasn't got the Pnemovax then ask your doctor about it.

     
    Old 05-20-2005, 02:19 PM   #36
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    Re: SCARED-please help, 3 year old asthma out of control?

    If she has sinusitis then your looking at an everyday regiment to keep the mucous under control. Sudafed is your best friend. Trust me I use it three times a day. It really does help. Doesn't stop it all together, but it helps. We use Rhinocort twice a day and then the thing I hate!!! Sinus Washing!

    We have actually gone to using regular saline nose spray, then having her blow her nose. It's Much Easier!!! The doctor says it's not as effective but that it will help. But then the doctor isn't at my house every night holding her and making her let you squirt water up her nose and then suction it out.

    I know I shouldn't be so negative about the sinus washing but it's not fun.
    That being said I do think it helps.

     
    Old 05-21-2005, 05:01 AM   #37
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    Re: SCARED-please help, 3 year old asthma out of control?

    thank you so much. I am not sure I could do the sinus washing either. As far as the pneumonia shots she has had both, but was never rechecked last year from her last asthma doctor.

    I left a message with the new asthma doc and faxed her lab resulys to him. (they were ordered from her last doc). Anyways he called he right away. He said he is gone from the office and won't be able to get the results until tues. He said he would look them over and call me back. He also said she would need the vaccine again and we will definitly need to recheck her levels 4 weeks after. If they do not come back up then she may have to do IG theragy. I am not sure what all the involves, but I know it is to help her immune system.

    I found an article while doing research on what the doc said and I found one. It is sounded exactly like my daughter. Her IGG level is normal but on the low side. Her IGG pneumo levels are way below, and she gets repeated infection. She has from birth. Anyways mostly all people took to the booster pnumo vaccine and a few percentage responded well to immune therapy. None of them had this immune problem anyymore after treatment.

    I think this is not the only thing wrong with her though. I do have to say I started giving the prevacid before dinner and she hasn't had a lot of problems at night, except for occ. wheezing, The snoring has stopped and her lungs are more quiter. I don't know if that means anything. But they may switch her or double the dose.

    But this asthma doc feels she has sinusitis, allergies and acid reflux, and now possibly this immune thing.

    He want to check me also for the immune disorder. When I was 23 I had to get the levels checked in my blood for antibodies to the vaccines I got from childhood. I had none of them. Although I was not as sick as melanie he said I should get checked out. Maybe that is why I always feel so tired. I don't know-or it's a lack of sleep-lol. But he want to check the rest of her vaccines as well.

    thanks so much

    hugs
    shelly

     
    Old 05-23-2005, 09:07 AM   #38
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    Re: SCARED-please help, 3 year old asthma out of control?

    Hello, my 3yr old daughter and my 7 months old son has this too. He just got over Broncitis, they are both on neb only when needed and albutero. How much are they giveing her, it might not be enough. And you can give it to her more the 4-to 6 hr if she need's it, have you took her to the er yet? My daugher was put in there back in dec cause of this, cause that would be the best place for her to be if she can't stop cause she would need to be put on oxegon. There has been she aposoide's where we have almost lost her and my son. Don't mean to scare you, if it's not working take her to the hosp... or a different doctor that will care for her

     
    Old 05-23-2005, 09:42 AM   #39
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    Re: SCARED-please help, 3 year old asthma out of control?

    I find it interesting that several people have more than one child with the same problem. I have a 4 1/2 yr and a 2 1/2 yr old and they both have asthma and chronic sinusitis. My youngest is much worse. She's been hospitalized 8 times where my oldest one has never been that bad.

    Babygirl66:
    By the way, the Albuterol can make children hyper and jittery. If you find your kids having trouble with it, ask about Xopenex. It's basically Albuterol with out the bad side effects, it's been great for us. Especially when you have to give it every four hours. Xopenex doesn't raise the heart rate like Albuterol does.

    Last edited by BYHOPE1113; 05-23-2005 at 09:42 AM.

     
    Old 05-24-2005, 07:24 PM   #40
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    Re: SCARED-please help, 3 year old asthma out of control?

    This is the first month my daught hasn't went to the ER. She was going about every 2-4 weeks. She had two hospital admissions also. Once for severe asthma and the second this year for her uncontrolled asthma and pnumonia.

    I have been waiting for the new asthma specialist to call back. I called him yesterday, but he hasn't called. My daughter is starting to get worse again, and I ask him on voice mail what I should do if I should try something else for her acid reflux, decongestant?? I have no clue. I really had faith in this doctor but now I am not so sure. He was supposed to call today about her lab work that came back. So, of couse like always I don't know what to do. I don't have any asthma action plan-no one ever made one for me. All I know the Xopenex he said no more than three times a day!! And he told me not to give it unless it is an emergency. Well I consider every night an emergency-because her lungs wheeze almost every night. The other last night-she was wheezing pretty bad and had a lot of crackles in her lungs. She cleared a little. Now you can hear all the congestion in her lungs.

    She sees her ped tomorrow so i'll see what they say. Her surgery is thursday-so hopefully she will be stable enough to go through it. I am really scared and feel really bad she has to go through this. I just hope we aren't doing this for nothing.

     
    Old 05-25-2005, 08:17 AM   #41
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    Re: SCARED-please help, 3 year old asthma out of control?

    I'm in shock!!! The doctor actually told you not to use Xopenex more than three times a day? K gets Xopenex twice a day no matter what because it helps keep her under control but when she's having trouble she can get every two hours that's 12 times a day. You really need that Pulmonary Specialist, I think you'll start to see an improvement if you can find a doctor that will give you the medicine's you need to help your daughter.

    I'm sorry but Xopenex only three times a day is baloney. I know better and my daughter is 2 1/2 so they can't tell you it's because of her age!!! From what you've described on the board here my daughter 1 1/2 years ago sounded just like yours. It does get better, I promise but you've got to find a doctor willing to help you get there. A good pulmonary specialist will definately help.

    Since meeting the other parents online with children that have asthma and knowing first hand how hard it is to get doctors to take you serious and actually help, I have seriously thought about going back to school to be a Respiratory Therapist so I can help educate other parents and learn more for my own two children that have asthma.

    Shelly, I'm here for you if I can help with anything. God Bless You!!!

    Kim

     
    Old 05-25-2005, 01:51 PM   #42
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    Re: SCARED-please help, 3 year old asthma out of control?

    Thank you so much. Last night she actually had a good night. Tomorrow is her surgery. I am so scared about it. I called the new asthma specialist 3 days in a row with no answer. I feel like this is helpless. And I liked this doctor. I am almost out of the nasonex and I called him because the one night Melanie got so bad she was wheezing and crackles and I asked him what I should do. Should I give the xopenex or what. I asked if this could be from her acid reflux? And he was supposed to call and tell me what we need to do with her lab results. That was on friday he told me he would call on tues. Now it is wed. and I have no answers and no help from the doctors. I feel like I am at the old asthma specialist again. No one ever calling back-no asthma action plan, nothing.

     
    Old 05-25-2005, 02:01 PM   #43
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    Re: SCARED-please help, 3 year old asthma out of control?

    I doubt that the acid reflux is causing all of these problems. It is probably not helping but probably not the main cause. That's just my guess, I have know way of knowing that. I can only go by my experience and with K the acid reflux was contributing to the problem but not the major factor. Our major factor was sinus infections/ear infections and a couple of times I'm pretty sure her attacks were allergy related.

    Good Luck with the surgery tomorrow and let us know how it goes. Remember nothing to eat or drink after a certain time, for us it was midnight but I'm sure the doctor told you all that. That was hard to because K wanted a drink every time she woke up and I couldn't give it to her. I'll be thinking about you guys tomorrow.

    Kim

     
    Old 05-25-2005, 02:03 PM   #44
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    Re: SCARED-please help, 3 year old asthma out of control?

    By the way, if I didn't say so before I think the surgery will help. K has had three sets of tubes so far and we are planning on getting another set because the last ones have fallen out. They really help. She had her adenoids removed too and everything went fine.

    PS. - Make sure they give her a breathing treatment before the surgery. That's what my Pulmonary doctors highly recommended before K's surgeries.

     
    Old 05-26-2005, 08:55 PM   #45
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    Re: SCARED-please help, 3 year old asthma out of control?

    the surgery went well. Melanie has had a pretty rough day. She was complaining of pain and nauseated all day. I think the Tylenol with codeine made her throw up. She barely had anything in her stomach. She was up all day and crying most of the day. I hope this helps. She is clear right now and I still need to give her the pulmicort. A lot of people are telling me to get her to a pulmonologist. I guess that is where we will be going next. The surgeon said everything went well. Her throat and voice box looks good. He doesn’t feel her problems are from acid reflux, and can not guarantee the surgery will help her asthma. But he did say I should see an improvement. The fluid in her ears were very thick and hardly moving and her sinuses were draining pretty bad. He said with this surgery it should start moving better. Well see-hopefully this is all she needs.

    By the way I did give her all her treatments prior. How long did her tubes stay in and how do you know when they are out. I really thought it was acid reflux causing her problems, but maybe it is sinuses and allergies. They did a bunch of allergies and they came back negative. The asthma doctor said he was going to do some skin testing in a couple of weeks.

    They said she has allegies. They can tell from her nose and her eyes, but what to I have no clue. Can allegies make sinus problems?

    Thank you so much for helping me
    god bless you

     
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