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Miserable


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Old 02-23-2015, 07:56 AM   #1
Lissaleigh88
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Miserable

A little over a year ago at the age of 25 I was diagnosed with asthma and allergies. I'm desperate for help here. I am on a rescue inhaler, symbicort, singular, and on and off prednisone. I just got off of the steriods after having to have two doses and it was for over a month. Just like always as soon as the steriods run out I get another head cold and my wheezing starts back up. Not to mention being on steriods so much had made me gain a significant amount of weight. I am also currently getting allergy shots because I was tested and allergic to so many things. Cats, dogs, dust mites, mold, pollen, grass, trees, mugwort, cockroaches.... You get the picture. When I am not on steriods my wheezing gets so bad. To the point I can't walk or talk or sleep at night. It's destroying my life and my marriage and makes it extremely difficult to take care of my toddler. I need the steriods again but my doctors don't want to put me on a third dose. I'm at a loss here and becoming extremely dispersed seeing as it's been like I'm sick for over a year. I've done all the things I'm supposed to to decrease allergens in my house. I got the covers for my bedding, we have an air purifier, vacuum and dust daily, (while wearing a dust mask). I've tried the buteyko method of breathing a bit too

I wish I knew there was going to be a light at the end of the tunnel. If anyone has anything at all that I could do or try that I haven't I am willing for just about anything. Thank you.

 
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Old 02-23-2015, 12:16 PM   #2
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Re: Miserable

Hi Lissaleigh88!

I am sorry that you are in so much misery with your asthma. I thought that I would provide some feedback based on my own personal experiences.

I would assume that, if you are in constant asthma misery then you are in constant contact with allergic and/or non-allergic asthma triggers, in your foods, drinks, clothes, personal oils and lotions and home.

Trying to find and remove ALL of the Asthma/Allergy triggers in one's environment is complex and maddening! The reason why many allergy/Asthma sufferers go for YEARS before being cured is because allergies are both combinational and cumulative.

That means that it frequently takes more than one trigger to set off one's Asthma/Allergies. Each trigger "adds" to the overall Asthmatic/Allergic misery. The longer that one is exposed to their triggers, the longer and more severe the reaction.

So.... one day, you only come into contact with ONE trigger, like the cleaner, but no other triggers. That day, your Asthma reaction is either mild or not enough to bother you. The next day, you come into contact with the cleaner again (causing a cumulative effect) and also some dust and the pollen levels outside are high. The combination of the dust and the cleaner and the high pollen levels, plus the cumulative effect of two days of cleaner, and WHAM....... tight chest, difficult breathing, tiredness, malaise, woozy, feeling warm and flushed, palpitations.... etc.

I actually solved many of my triggers by taking my blood pressure 32,000 times over 12 years, believe it or not. I learned that my blood pressure, and heart rate, frequently went higher after contact with various allergens/triggers, (but not all the time ).

So...... Based on my blood pressure readings, and my notes, I started removing common ordinary things from my home, my lifestyle and my diet. Sometimes I was wrong and I guessed incorrectly as to what had caused the higher blood pressure/Asthma reaction. Buts..... after many bad guesses, over many years, I slowly removed almost ALL offending triggers. After DECADES of misery, both my sinus problems and my Asthma are almost totally gone.

Sadly, with so many chemicals, pollutants in water - food - air, allergens, pollens, etc., it is almost impossible to avoid ALL triggers.
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Last edited by Machaon; 02-23-2015 at 01:56 PM.

 
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Old 02-23-2015, 06:47 PM   #3
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Re: Miserable

Have you always been on symbicort or have you tried other daily maintenance inhalers?

 
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Old 02-23-2015, 09:17 PM   #4
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Re: Miserable

How long have you been receiving immunotherapy shots? Other than the Singulair, are you on any allergy medications? If the allergies are triggering your asthma, you may need to be on some additional allergy meds.

In my case, until I got things well under control, I was on Singulair, Allegra, Flonase (nasal spray) and Astelin (nasal spray). The combination helped me get the allergies under control as I was addressing the asthma too. After several years on the shots, I was able to start weaning back on the meds.

Do you have a nebulizer for your Albuterol? I usually use a puffer, but when I'm really bad, I choose the nebulizer when I can because it can help aid the medication in getting deeper into the lungs. If I was working that day, I would use it before work, after work, and before bed, with a puffer dose during the day. If I needed the puffer dose twice during work, I would do the morning and bedtime nebulized doses.

Have you seen a Pulmonologist yet? If you are suffering this much, it may be time to see a specialist. It was my Pulmonologist who discovered that in addition to the environmental asthma and allergies, I had severe 'silent' reflux triggering my asthma problems....which were literally life threatening. While I knew I had some reflux problems, I had no idea how it could impact my breathing. There may be something else influencing your symptoms that a specialist may pick up on that a general doc hasn't.

Wishing you well.
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Old 02-25-2015, 07:03 AM   #5
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Re: Miserable

Thank you for your reply. I do have a nebulizer for my Albuterol however it only works well when I'm not having a severe asthma attack. Which usually when I have them it is severe. Monday when I went to get my allergy shot I ended up in the emergency room that night having an attack. This is my second month of the shots. They finally did refer me to see a pulmonologist. I also am seeing my allergy doctor next week because they want me to stop the shots for now and see what is next, whatever that may be. I just feel like this is a never ending cycle with no solution. Very over whelming

 
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Old 02-25-2015, 09:10 AM   #6
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Re: Miserable

So the on med you are taking for the allergies is the Singulair? Very odd. Why aren't you on zyrtec or xyzal? And you really should be taking one the day of your injections. I question your choice of doctors as well.

 
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Old 03-11-2015, 01:14 PM   #7
Lissaleigh88
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Re: Miserable

Actually I've seen several different doctors who all say the same thing. I do use Flonase as well. My allergies have been pretty much under control. My asthma is not. I am on steriods again for the 3rd time in 3 months. I started ipratropium in my nebulizer today as well.

 
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