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nickel55 01-07-2017 10:26 AM

Asperger's Syndrome
I was born different. It's called Asperger's Syndrome. But, It wasn't officially diagnosed until two days ago. I have a forty year old son diagnosed as ADD when he was 7. Probably misdiagnosed. My entire life has been shaped and twisted one way or another by something no one even knew existed when I was a child. And, I'm beginning to see why my behavior was so uncommon, why I was ignored and pushed aside and why I have so few friends. Does anyone wish to discuss my newly discovered condition with me? I'll try to let you finish before I interrupt you. lol

Dragonfly Wings 01-07-2017 11:08 AM

Re: Asperger's Syndrome
Hello nickel55, welcome to the forum and also to the autism spectrum.

My son has also just had this diagnosis (we get the official papers next month once ALL the specialists sign off on it), and they also want me tested as they think I am the same too - my son is 12yrs old and it has taken me at least 10yrs of fighting for someone to listen to me and assess him properly, I am 34yrs old.

Here in Australia they don't tend to use the term Aspergers any more, but call it "High Functioning Autism" the specialist told me at our last appointment (a few days prior to Christmas). So we are pretty much in a similar boat to you, with the new diagnosis any how and always willing to have a chat :D

I hope you're coping ok with the diagnosis, sometimes while we don't "need" labels, it really does help to understand life a little better doesn't it? I went through a grieving process when all the specialists started working with us back in Oct/Nov and I realised my gut was correct all along etc. I am much more at peace with everything now though, I guess it is all a lot to take in.


nickel55 01-08-2017 10:07 PM

Re: Asperger's Syndrome
Thanks for your reply, Dragonfly Wings. Your son is fortunate to have an involved mother. That will mean a lot to him.

My pursuit to explain why things were happening to me led me to AS and the Spectrum about the time your son was being born, twelve years ago. I had been searching for a long time. When I finally discovered that I was probably AS, relief rushed through me and tears of thankfulness flowed down my cheeks. Many of my past mistakes and failures now had an explanation. My interpersonal failures and lack of friends can be explained. I felt vindicated! I'm excused. Wow! What a feeling. I'm 74 and finally diagnosed. I am so relieved.

Thanks again.

Dragonfly Wings 02-13-2017 12:33 PM

Re: Asperger's Syndrome
Hello, how are you going nickel55?

My apologies for not replying sooner, I managed to have missed your reply. I am glad you are feeling relieved! Sometimes it's like a huge weight has been lifted when we find that validation we didn't know we were searching for.

We have my son's appointment on the 24th of this month to get all the reports and things organised for my son's schooling and I am guessing we will learn a lot more then too. It's going to be a big learning curve for us all, but one I am happily facing head on for my son to have the very best chances and opportunities to learn and engage in life at it's fullest :)

I hope you're going well! I would love to hear from you!

nickel55 02-13-2017 05:20 PM

Re: Asperger's Syndrome
I've tried to come up with a solution to my poor school grades. One thing I think that would have been worthwhile is for me to have developed a desire to achieve and achieve highly. Being competitive with someone would have made a difference. I needed a reason to focus. I feel that would have been a major breakthrough.

nickel55 02-14-2017 10:07 AM

Re: Asperger's Syndrome
May I refer to you as Dragon? They're not really the same, but it makes it a little easier to type your name.

Your doctor is going to attempt to diagnose you? I had great difficulty getting my diagnosis. Once we get beyond adolescence, it'll require a very good diagnostician.

Many years ago I was in an Autism chat room and one of the people I met had a screen name with Dragonfly in it. Is there any connection between the word and our condition?

I've spent a lot of time examining ASD related conditions, and it doesn't surprise me that there is a correlation between parent and child. I think, at one time, the experts suggested that Autism just pops up. That never did seem correct to me.

I'm having some interesting challenges with a couple of providers here in Nevada. One diagnosed me and the other is hesitant to accept the other's diagnosis. It'll be all right, though. The reluctant one is a social worker who wants to apply her understanding to my condition. She thinks that somehow I developed an avoidant personality disorder on my own. She is wrong. But, the text book doesn't reflect that avoidance may be developed from ASD. It's so obvious to me, I'm enjoying the interaction between the three of us. It should be okay.

I felt like writing something and you're it. Thanks for reading this. Take care, Nickel55.

Dragonfly Wings 02-14-2017 10:27 AM

Re: Asperger's Syndrome
I've been called worse ;) Just kidding, Dragon is more than fine :) I am unsure if dragonfly has any significant meaning to the ASD world or not, but I just feel at one with the dragonfly. Such beautiful majestic creatures <3 Their spiritual meaning is that of transformation though, so you could be on to something!

I believe ASD certainly wouldn't have helped your grades! I know with my boy he is so very intelligent, but he needs to be taught in a way that he best understands to keep his focus. This lead to an incorrect ADHD diagnosis a couple years ago that I have also been fighting. Hopefully now we can get the correct measures in place for him to use that brain of his to it's full extent :)

As for me, it's up to me if I want to pursue it and at the moment I'm content enough in her perceptions. I am currently undergoing treatment for Addison's Disease and a bunch of other smaller issues that really need my spare energy at the minute. But I guess it too is just confirmation of some assumptions I had of myself.

It is a pain that everyone wants to analyse everything into a mental health condition, it irks me really badly! I studied mental health (certificate 3 & 4 and not quite finished my Diploma due to poor health - I am in Australia so not too sure if we have the same schooling systems or not), but there are huge discrepancies that need to be ironed out anyway. I myself was a victim of everything being blamed on MH issues to the point of many hospitalisations, including 23 rounds of unnecessary ECT for something I told them was not MH all along. I guess we live and learn hey?

Be sure to stand your ground nickel55! You have come this far, don't be bullied out of the assistance you seek because people are time poor to understand :)

Take care!

nickel55 02-14-2017 11:49 AM

Re: Asperger's Syndrome
Wow! ECT? Is that Electro Convulsive Therapy? When were you last treated with this method? My mother had this treatment. I lost track of it. It is still used in Australia? Probably still here, too.

I am so sorry you had to endure such treatment unnecessarily. When I was much younger, my penalty was incarceration for my infractions. I'm not sure I'd want yours in place of mine, though. The first time was 2 1/2 years, the second for 3.

That's history. I have much better control now.

(I'm leading toward question.) We did some ancestral research with our mother's maiden name and discovered that the name is not English, as we thought, but German! I was very surprised. Jesus! We fought them twice!

Have you explored your Australian roots? I mean, your country was colonized with convicts. You may have a really good understanding of incarceration. lol

This system is acting up so I'll get this to you.

Dragonfly Wings 02-14-2017 11:57 AM

Re: Asperger's Syndrome
Thank you :) Yes, that's the ECT. I was asleep during it, but it has had a huge impact on my thinking and headaches that's for sure! My last treatment was January 2015 when I ceased treatment and signed myself out of there. My life has been a great deal better since then. I really took a stand and took my health by the horns and paved my path to now being properly diagnosed etc with my illness. There's still more to go, but baby steps is the key! I don't think I'd like to be incarcerated though, that would be terrible! My Father spent quite a bit of time incarcerated when I was a child and I wouldn't wish that on anyone. I am glad you came through it ok though :)

As for your Mother having ECT, I hope it wasn't the terrible torturous type where they made you stay awake during it. I would hate to think of what she endured :( Did she speak of it with you?

My history, we did start to do some digging but I'm not too sure we came up with much. We also have German heritage :)

I hope your system starts working again for you!

nickel55 02-14-2017 02:07 PM

Re: Asperger's Syndrome
I believe there are a lot of people incarcerated that are on the Spectrum.

Dragonfly Wings 03-24-2017 01:16 PM

Re: Asperger's Syndrome
Hello Nickle,

How are you travelling along now? It has been a little while since I have heard from you, I hope all is going well in your world! We are going ok here, taking things one day at a time. I have just joined the Walk for Autism which will be great for awareness :D

I am beginning the process of collecting information on having myself assessed also. This journey surely is a long and overwhelming one isn't it?

I do hope you're well and look forward to hearing from you!

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