It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Autism Spectrum Message Board

  • Looking for other parents

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 04-06-2001, 07:26 AM   #16
    eweejoe
    Inactive
     
    Join Date: Mar 2001
    Location: Tennessee
    Posts: 12
    eweejoe HB User
    Post

    I too am glad to know I am not alone! And I also agree that your step-son is very lucky to have both of you as parents. That is AWESOME that he is in a regular classroom with an aide, Keith goes to a regular school, but is in a classroom with all special needs kids. Six kids, one teacher and two aides. This is how I feel about it, if these little guys are smart enough to 'sniff' out paper from the deepest, darkest places then they can learn to potty train, communicate, etc. Learning is learning. The key, I believe, is to figure out how they learn it and teach them 'their' way. I am totally pushing for the ABA therapy for Keith, just isn't readily available here. Even if it's just an hour a day, I've heard that will benefit them greatly as long as the person doing it knows what they are doing. We also were told that if we could eliminate the spinning - Keith could be an olympic gold medalist at spinning a square block! - that it would draw him out of his 'own little world' and essentially force him to re-act more, therefore learning more. I'm also going to try, once again, to eliminate paper from his world. Constant battle. Keith likes Barney and the discovery channel The only advice I can give you is to love them and take it one day at a time and always follow your heart when it comes to their care. I have found great support here and tremendous comfort in knowing that I am not alone. Very glad to have met all of you! Keep us updated! Take Care!

     
    Sponsors Lightbulb
       
    Old 04-06-2001, 07:58 AM   #17
    jtsmom
    Member
     
    jtsmom's Avatar
     
    Join Date: Mar 2001
    Location: Baltimore, MD USA
    Posts: 62
    jtsmom HB User
    Post

    Well I am glad to see eweejoe you are in a better frame of mind today. You are absolutely right, if they can learn one thing the possibility to learn many things is there. I found a website for Kennedy Kreiger Institute for you it is at [url="http://www.kennedykreiger.org"]www.kennedykreiger.org[/url] The name of the therapist who work with my son's teacher is Lynn Medley. She is wonderful and I am positive that if she can help you find an ABA therapist in Tennessee she will. I hope you can find someone, it would be good for both you and Keith. Take care and I'll talk to you soon.

     
    Old 04-07-2001, 08:55 PM   #18
    4kidz
    Newbie
     
    4kidz's Avatar
     
    Join Date: Apr 2001
    Posts: 5
    4kidz HB User
    Smile

    Hello! Thanks for the responses! Jake does play with my other children, but like you said.. not always appropriately.. He loves to watch them run around, and will line up my younger son's cars while he is playing. He loves to go for walks, watch the kids play sports, and play on the playground with them. Today he was at my sister's house and took out all of the videos and lined them up on the floor. Normally she would just pick them up, but she has learned that he will listen if told what to do. He did pick them up, but grunted while doing it (as if to say"great now you know I can do it too") At school his aide has him using a "communicator box" I guess he pushes a button that says "hello" or "goodbye" and he is using it appropriately! She has been awesome with him this year. She has him call me every day. She points to each # and says it as she dials. Then she hands him the phone. I know it is him if I hear heavy breathing between 9 and 10 am! I say hi, ask him how school is, tell him I love him,, etc. then she gets on the phone, tells me anything important about his morning or day yesterday, and gives it back to him to say goodbye and for him to hangup! Its so wonderful to have such a caring aide. There are about 20 other kids in his class who she has interact with him. They take turns getting in line with him to go to gym, lunch, etc. He has even been invited to a birthday party! A couple of kids mom's tell me that their sons have said that Jake is their best friend. It's so nice! At the beginning of the year I brought in a book and read it about autism. I also printed out a letter that told all about autism for the parents. That way when the kids said "there is a kid in our class who makes a lot of noises, but doesnt talk, sometimes hits his head when he is frustrated..." that they wouldn't freak out! Jake is also good with directions when we are on the road. If we turn down a road that leads to my parents house he will start wiggling his knees and making a puckering sound. But if we turn the road towards my other daughters school, he starts grunting and slamming back onto the seat. (he doesn't like the fact that we just go into the building to pick her up from girlscouts.. then leave} Each day I am more and more amazed at what he does know. One day he took the numbers puzzle that we have and lined the numbers up on the floor from 9 to 1.. the only trouble he had was with the 9 and the 6 he kept turning them around trying to figure out which number they were! Do any of your boys like power lines? Jake loves it when we drive near them, he starts wiggling and puckering and strains his neck to look at them ! Luckily the house we are moving into in a couple of weeks has them as you turn on the road.. now he won't get mad when we go home after a day out and about! We live on a main road right now and decided that before Jake gets too big to handle, we would move onto a road that we wouldn't have to worry about quite as much. It is in the same town, we would never want to leave such a good school system now! I like the idea of ABA, I have been reading up on it. Also thanks for the idea about using the toys he likes for the drills, I hope to start that when we get into the new house. Well, time for bed for me! (my turn to sleep in tomorrow so I get to stay up late!) hehe Have a great day! ~Jlene

     
    Old 04-09-2001, 10:29 AM   #19
    jtsmom
    Member
     
    jtsmom's Avatar
     
    Join Date: Mar 2001
    Location: Baltimore, MD USA
    Posts: 62
    jtsmom HB User
    Post

    You know when I sit here and read so many of these posts, it amazes me how smart these kids really are. I know from experience that alot of times, my son doesn't get the credit he deserves because he doesn't talk. How wonderful for Jake that his classmates have embraced him and want to be his friend. My son has made friends with another little boy at his school, who always tells everyone the same thing "Jt is my best friend". I know how comforting that is to me. I wish all children could be that kind to him, for that matter I wish adults could be too. He is such a sweet little guy, it breaks my heart when people are mean to him or give him those looks. Anyway I am at work and have to go. Take care and keep in touch.

     
    Old 04-09-2001, 08:10 PM   #20
    4kidz
    Newbie
     
    4kidz's Avatar
     
    Join Date: Apr 2001
    Posts: 5
    4kidz HB User
    Post

    Hello again! Today Jake's aide told us that she would not be his aide next year. She said "truthfully I am sick of changing diapers." I can understand how she feels, my kids were out of diapers long before Jake came into our lives. But, she is a wonderful aide.She took Jake after being an aide for another boy for 4 years who was also not potty trained. I wish he could get out of diapers too, maybe this summer we will have better luck.. We are trying to decide whether or not to keep him back at the school he goes to, since he has progressed so much this year, or to send him on to third grade which is at another school, 3rd thru 5th.. My older daughter is at this school now, and my younger son will be at the school Jake is at this year. So, either way he will be with one of the kids. I just am scared of another transition for him.. and to a bigger school with older kids.. But I know he will have to move on sometime, he is 8, going to be 9 this summer. And is tall for his age.. AAAAAAAh its so hard when all you are trying to do is do the best for your child, but being unsure of what that is can be sooo frustrating! Thanks for letting me vent! Have a good one!

     
    Old 04-10-2001, 08:14 AM   #21
    eweejoe
    Inactive
     
    Join Date: Mar 2001
    Location: Tennessee
    Posts: 12
    eweejoe HB User
    Post

    I understand your struggle to make a decision concerning your child. Seems like we have to make HARD decisions concerning them constantly. With a new school year coming, change always seems inevitable. For me, if I could keep Keith in familiar surroundings that he is progressing well in, that would be what I would do. Just my opinion. Hate to hear about his aide. I have Keith's IEP meeting next Monday to discuss his placement next year. I'm also nervous and anxious to see what they are going to suggest and how they are going to react to my wanting ABA therapy for him. We all know it will be a fight. I would be anxious to know how you got your school system to provide an aide for your son. I know that by law, if I wanted Keith in his age appropriate grade with an aide, they would have to provide it, but I also worry about how the other kids would treat him. I would like an aide for him in his current classroom that could do the ABA therapy with him at least a couple of hours a day.

    jtsmom, Thank you for the information you provided me and the name of your son's therapist. Keith is on spring break this week so of course my telephone time is limited. Thank goodness the weather has been pretty and we've gotten outside. He's having a really good week so far-Knock wood! But, I will try to get in touch with them next week sometime and see what I can find out.

    4kidz hang in there. I know how hard changes are on us mommies and daddies. I am much more resistant to it than Keith is, he's fine with whatever. Whatever you decide, he'll be fine.

    I just wanted to say once again that it is so nice to have met people here who have children very similar to mine. On the other autism boards I feel like I am alone in the situation because my son is much older and is not on any special diet. He also doesn't talk and isn't potty trained. Don't get me wrong, I am not knocking the diets and supplements. I just didn't feel at home here until I met you two great ladies and your great little fellas. Just seems like fate that they are all so close in age and have SO MUCH in common. Hugs and kisses to them all!! Take care!!

    Sherri.

    [This message has been edited by eweejoe (edited 04-10-2001).]

     
    Old 04-10-2001, 09:22 PM   #22
    4kidz
    Newbie
     
    4kidz's Avatar
     
    Join Date: Apr 2001
    Posts: 5
    4kidz HB User
    Post

    Hello! It is so amazing how alike our situations are! Already you all have helped me! Jake had an aide in a special ed classroom at his other school before he moved here with me and my kids, but in our school all the children are mainstreamed. There is almost an aide in each classroom! I will definately ask about ABA therapy at Jakes IEP.. just to see what they say. From what I hear, from my mom who is a first grade teacher, Whatever the parent wants for their child,, they can get. She said "It's the law." She said that some parents meet every week with the whole group of specialists to make sure that their child is getting EXACTLY what they want him to have. This seems a bit extreme to me, but I do know that even with the best of schools, they will only do what is minimally necessary, unless we speak up! As for Jake I too was worried at how he would "fit in" in a regular classroom, but the kids really love to help out with him and take pride in doing stuff with him to help him learn! I was worried that kids would be mean or exclude him because of his differences, but the total opposite has happened. The other kids feel good about themselves because they can help him learn, and they love to see how much he knows! If you say at the IEP that you want an one on one aide for your child in a regular classroom, they HAVE to provide it. An aide can give the child the support they need as the child sees the "normal" behavior of other kids, yet distract them when they are overwhelmed. I have been able to see Jake in both environments, in a special needs classroom, and also in a mainstreamed classroom, and I can't even begin to tell you about the change in him! He really has improved, not as much head slapping, and his attention span has improved too! I am glad that we didn't even have to suggest an aide to the school system, but that they provided it knowing that he would benefit from mainstreaming! Good luck at the IEP. Stand your ground! (I have a hard time trying to do this, but am working on it! )

     
    Old 04-11-2001, 05:25 AM   #23
    jtsmom
    Member
     
    jtsmom's Avatar
     
    Join Date: Mar 2001
    Location: Baltimore, MD USA
    Posts: 62
    jtsmom HB User
    Post

    Wow I was only gone a day and look at what I have missed! Eweejoe is your name Sherri? The reason I asked is because I seen it at the end of one of these post and was just curious. You won't believe this but my name is Sherry, yet another coincidence. I am like the both of you, I am so happy to have both of you to talk to. Until I got on here I felt like the only person I could really chat with was Jt's teacher. Thank both of you for taking the time to write and share your thoughts with me. 4kidz, I know exactly how you feel about transitions. Since both of you are going to your IEP meetings, this is what I would suggest, first ask for everything!!!!! They might act like they aren't going to do it, but be persistant. My son got his aide about 4 years ago. They were not going to give him one because they didn't think his behavior warranted one. I just kept right on asking util they gave him one. Same about the school he is in now. I told them this is where I want him and no one argued or tried to stop me. I agree with both of you that these meetings and the transitions are harder on us mommies and daddies than the kids. Hopefully we will all survive. I will talk with both of you later.
    Let me know how your meetings go.

     
    Old 04-11-2001, 06:22 PM   #24
    eweejoe
    Inactive
     
    Join Date: Mar 2001
    Location: Tennessee
    Posts: 12
    eweejoe HB User
    Post

    Yes! My name is Sherri. Isn't that wild?? Just had a minute, wanted to let you know that. I'll let you guys know how Keith's IEP goes Monday. The idea of him having an aide of his own, whether in special ed or not is starting to really appeal to me since your sons have had such success with them. I truly think they need very intense one-on-one training to achieve their greatest potential.

    4kidz, if you tell us your name is Sherri, I'll definately flip out.

    Hope you guys are doing well! I'll update you soon and you guys keep me updated.

     
    Old 04-12-2001, 05:52 AM   #25
    jtsmom
    Member
     
    jtsmom's Avatar
     
    Join Date: Mar 2001
    Location: Baltimore, MD USA
    Posts: 62
    jtsmom HB User
    Post

    I am like you if 4kidz name is Sherri, I probably will fall down. I think you should try to get an aide for Keith, Jt has really benefited from his. His aide keeps him on track and focused. I am so happy I got on this board. I am really enjoying talking to the both of you. Have a great day! Talk to you soon.

     
    Old 04-16-2001, 04:55 PM   #26
    jtsmom
    Member
     
    jtsmom's Avatar
     
    Join Date: Mar 2001
    Location: Baltimore, MD USA
    Posts: 62
    jtsmom HB User
    Talking

    Just wanted to drop you a quick line Sherri and see how Keith's IEP meeting went. Jt goes back to school tomorrow and I don't know who is happier him or my mom! Ha!Ha! How was your Easter? Jt had a great time, I was really proud of him, he played so great with my nieces and nephew and even hunted for Easter eggs. He has been a live wire tonight so I am going to go for now and hopefully I will hear from you soon. Hope everything is going well for you and your family. Talk to you soon.

     
    Old 04-16-2001, 07:21 PM   #27
    eweejoe
    Inactive
     
    Join Date: Mar 2001
    Location: Tennessee
    Posts: 12
    eweejoe HB User
    Post

    Hi! Keith's IEP went great today. Because of his age, he will be sent to another school next year. Which I am not exactly thrilled about, but they are phasing out the transitional CDC class in his current school and spreading the 6 kids out into their home based schools. So he'll be closer to home which is better, but it still is that 'change is hard for mommy' thing. The good news is that he will have an aide. Well, his current teacher and principal AND his future teacher and principal said that they will push for a full-time aide for him and of course I have to push for one too. Going to call the director of special ed tomorrow. I am also going to request she do some research on ABA therapy, or I'll send her what I have, and tell her that I want to implement it into Keith's school day. He will still be in a special ed class but it is higher functioning. The kids have desks and will do math, reading, etc. I am very scared for him and how he will fit in, but I need to take the chance. It seems you and Jake's mom have had much success with the aide. The mainstreaming part I am a little afraid of. I really like the teacher and the principal at his prospective school. Trying to fight back the fears of him moving schools and fitting in and hope that I am making the right choice. He started back to school today from spring break and was pooped. He went to bed at 9:00. He usually lasts until 9:30 or so. I meant to ask you, does JT have the sleeping problems that some of the mothers on here talk about? Thank God that Keith has always been a good sleeper. He is up by 7:30 or 8:00 on the weekends, but he sleeps all night and goes to bed just fine. Just tuck him in and he doesn't get up. I honestly do thank the good Lord that he does sleep after reading some of the problems other mothers with autistic children have. Anyway, speaking of sleep, I am going to go get some myself. I hope things are going great with you and your little guy. So glad to hear he had a good Easter. That is so heart warming, I know. Keith didn't hunt eggs, just ate turkey and green beans like a little piggy. If you have anymore suggestions before I talk to the director, please let me know. I have learned SOOO much from you guys here and I want to thank you so much for that. You take care and I will talk to you soon!! Sherri.

     
    Old 04-17-2001, 01:55 PM   #28
    whatstheodds
    Junior Member
     
    whatstheodds's Avatar
     
    Join Date: Feb 2001
    Location: nottingham u.k.
    Posts: 15
    whatstheodds HB User
    Post

    hi,
    i don't vist this board very often but it was very nice to see such a long thread, where people are able to get lots of support
    i have noticed on this board people don't always answer new topics, my names not sherry
    before you ask, its jo, i can't remember who said it but i know what you you mean about the different diets and treatment i just end up lost and confused, i guess as i'm from the
    u.k things are different here, thats possibily why i find it confusing, i have
    three kids , abbey & bethan twins 7yrs both
    have asd and learning disabilities, and then theres elliot hes 4 on monday and he has asd
    they are all very different, the girls are
    out of nappies, it only took six years!!!!
    elliot is still in nappies, we will keep trying, i hope you guys don't mind me joining
    your thread it looked so friendly and inviting. jo.

    ------------------

     
    Old 04-17-2001, 02:11 PM   #29
    jtsmom
    Member
     
    jtsmom's Avatar
     
    Join Date: Mar 2001
    Location: Baltimore, MD USA
    Posts: 62
    jtsmom HB User
    Post

    Hi Sherri and Jo! I am so happy to hear that your meeting went so well Sherri. Keep after them and they will get Keith an aide, that's what I did with Jt and they finally did it. Jo of course you are welcomed. Like I have said before it is so nice to talk to people who truly know what it is like. Thought I would give you an update on JT's potty training. He is beginning to go #1 really well now but is fighting me with #2. He went back to school today and I am hoping he had a great day. It has been a rough week for him and my mom. They love each other so much but my mom doesn't have the patience for Jt sometimes. I was curious Jo if you have any one to help you out with all those precious kids. I know how hard it is for me and I only have Jt.

    I was curious Sherri if you had a chance to check out the kennedy kreiger site. I noticed that they had alot of resources that I thought would be of benefit to Keith. Jt was diagnosed there and unfortunately, my insurance will not cover treatment from them, but his school consults them. I also saw a site that dealt directly with ABA, that sold videos to teach therapists how to use it. I can't remember the address, but I know that when I searched for it I had put ABA therapy in and autism schools. Hope you can use that info. Jo, you are right it is so confusing with all the diets and supplements and so forth. I get lost trying to figure it all out sometimes. Anyway please keep writing Jo, and Sherri hopefully I will talk with you soon. I have to work late tonite and I am typing you from work. Give Keith lots of hugs and kisses from JT and I. Jo please do the same for your 4. Talk to all of you soon.

     
    Old 04-17-2001, 02:30 PM   #30
    whatstheodds
    Junior Member
     
    whatstheodds's Avatar
     
    Join Date: Feb 2001
    Location: nottingham u.k.
    Posts: 15
    whatstheodds HB User
    Post

    hey that was a quick response thanx for the welcome, i get help mainly from hubby, hes
    my rock, i've also set up a local group with another parent, which is great, i nearly died when you said i had 4 kids, three is definitly enough, we're only half way through the school holidays, and its hard work, do you find that your son?? can hold onto his wee for a long time, i know the girls didn't like not having a nappy on and would hold on for up tp 8 hours!!! they had to go sometime!! we still have problems with bethan & no 2s shes on a reward chart at the
    moment, we had seven pairs of soiled pants in
    one day from her, it is so difficult toilet
    training has been the biggest battle for us
    and still is!!!! jo.

    ------------------

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    I am looking for an adult support group in IL Lhuspen Cystic Fibrosis 0 03-22-2004 09:10 PM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 01:00 AM.





    © 2022 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!