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New Here- Some Questions

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Old 09-24-2009, 02:09 PM   #1
Join Date: Sep 2009
Posts: 2
ceeann HB User
New Here- Some Questions

This is going to be a long message.
I am new here, too much going on in our lives. At 15 months we took our daughter to the pediatrician since she was still not talking/ walking/ not pointing, no pretend play. No waving etc. but she had decent amount of eye contact. she liked family and friends and was social, used to play with visitors and family alike.
Over the months she learned a few things like walking but did not make much progress in other areas and kind of digressed and she is still not talking, not pointing/ waving. for last few weeks she doesnt even like it if there are other people around. she wants to be alone with us.
so we took her for her 18 month appt a few days ago and she was referred to a Behavioral-developmental pediatrician for further evaluation of her devpal delays.
Now one, we are extremely disappointed and disheartened.
Two we are not sure where does she stand? How bad is it? where should we start?
can we help her in any ways?
can she get better with therapy?

Appt with the specialist pediatrician is not available till late nov. Isnt it too late? will it not help her if she was given help immediately?
where can I get her the required help?
does the situation deteriorate severely as the kids grow old? Is there no stopping it we prvide early intervention?

Where can I go to get her help NOW?
the pediatrician thinks that one or two months dont make much difference. Do you think he is saying that because he saw something big that we did not see, is it because he thinks its a lost case?
does early intervention not provide any help at all?
Can someone please help me at all?
I have taken her off milk.
Lately she has been having BIG, really BIG and very smelly bowel movements and she is very upset and its Extremely difficult to clean her. Its next to impossible to do it alone and not have her kick the dirty diaper.
I know the signs are not very encouraging, but can someone tell me how bad is it? PLEASE HELP!!!

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Old 09-24-2009, 09:38 PM   #2
Senior Member
Join Date: Dec 2008
Location: USA
Posts: 228
Mira11 HB User
Re: New Here- Some Questions

NO, your daughter is not at all a "lost cause". Please do not think this. You have caught her problems at a very early age and there is LOTS and LOTS of interventions that can be done to help her.

ABA (applied behavioral analysis) therapy could probably be very helpful for her. I have seen and heard of great strides that kids have made with this therapy. The developmental ped would probably be the one to give you the referrals for this. In the meantime, call your local school district and ask to talk with the special education director and tell him/her about the provisional diagnosis and ask what she would be eligible through the school district.

Also, call your local county office of developmental disabilities and ask to talk with a case worker and explain your situation and see what early intervention services (speech therapy, etc.) are available for her.

Some people start private speech therapy with a private speech therapist. You could get a referral for this from the developmental peds office - the staff should be able to give you some names of s.t.'s that specialize in working with children with autism.

As I said earlier, ABA is a very popular and proven therapy for children with autism. My son is older so we did the traditional speech therapy as it wasn't available or well known as it is now.

What you don't realize now is that your daughter is very young which puts her at a great advantage for being able to have therapies that will have an impact. Get started now to make the calls and get things rolling. Also call the devel. peds office and put yourself on a list for an earlier appt. in case there is a cancellation.

Once you get your daughter started in therapies, believe me, you will begin to feel better and I know that you'll see many changes. Keep us posted. Oh, regarding diet, I have heard of some parents who find success with the gluten free/casein free diet (we never did this but some say it has made a difference). Check it out on the internet. Taking her off milk may or may not be the answer. Is there a DAN (defeat autism now) Dr. in your area - they usually have the resources and information about diet management, just as an FYI. But I think you could also discuss diet issues with the developmental ped.

Last edited by Mira11; 09-24-2009 at 09:43 PM. Reason: adding information

Old 09-25-2009, 10:19 AM   #3
Join Date: Sep 2009
Posts: 2
ceeann HB User
Re: New Here- Some Questions

Hi Mira, Thanks a lot for responding to my email. Can you tell me how long does it usually take in Ca for the therapy to start? I have got an appt with the specialist after two months, does it take 1.5 months after appt to start therapy too, or does the therapy start as soon as the diagnosis has been done?

Old 09-25-2009, 11:39 AM   #4
Join Date: Nov 2006
Posts: 98
Cathy01 HB User
Re: New Here- Some Questions

Wait times I've heard can be longer to get in to see specialist. Two months doesn't sound unreasonable for a full evaluation on possible autism spectrum disorder. It took about 6 months for my son to get his appointment at a clinic in my area that are staffed with specialist in the are of autism and other learning disorders.We went to Minneapolis, Mn, Alexander clinic, for the initial evaluations, about 3 days of tests in 2 hour increments.It was a team evaluation and all specialists were in one clinic, really great set up rather than running to all different offices.

Last edited by Cathy01; 09-25-2009 at 09:46 PM.

Old 09-25-2009, 08:31 PM   #5
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Join Date: Dec 2008
Location: USA
Posts: 228
Mira11 HB User
Re: New Here- Some Questions

hi - i don't know how long it takes to begin therapy after diagnosis. when my son was younger (he's a young adult now), i simply called a speech therapy clinic that i knew about and told intake that my son was language delayed and i'd like a consultation with a speech therapist. i got an appointment right away, she did an evaluation and we began speech therapy right away.

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