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Reactivated EBV


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Old 04-24-2017, 01:48 PM   #1
birchtree
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Join Date: Dec 2006
Location: PLAISTOW
Posts: 379
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Reactivated EBV

Am currently fighting reactiviated EBV with 1000 mg L-Lysine and a low Arginine diet. Among a number of symptoms I have vestibular disturbance and extreme weakness. Can't drive, and there are days I can barely walk.

Anyone else dealing with reactivated EBV - ?

Latest EBV test results:

EBV ab VCA IgM: 54.10 (Positive >43.9
EBV Early Antigen Ab, IgG: <9.0 (Positive is >10.9)
EBV Ab VCA IgG: >600.0 (Positive is >21.9)
EBV Nuclear Antigen Ab, IgG >600.0 (Positive is >21.9)

Because I test negative for EBV Early Antigen Ab, I am ignored by the CDC (or so I'm told). The other tests are ridiculously high (come on, 600 is impressive, right?), and I am lucky my doctor is a DO and willing to work on an EBV diagnosis. I did have mono when I was 18, I'm 51 now. Also had lyme disease about 10 years ago (Rocky Mtn Spotted); I keep testing negative but I'm probably still fighting it.

Can anyone offer advise to get me on the right track? May be I should visit the vertigo board as well?

Many thanks,
Birch

 
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Old 08-17-2017, 05:05 PM   #2
Marie2017
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Join Date: Aug 2017
Posts: 2
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Re: Reactivated EBV

Quote:
Originally Posted by birchtree View Post
Am currently fighting reactiviated EBV with 1000 mg L-Lysine and a low Arginine diet. Among a number of symptoms I have vestibular disturbance and extreme weakness. Can't drive, and there are days I can barely walk.

Anyone else dealing with reactivated EBV - ?

I have had similar symptoms for the past 3 weeks my IGG is >700 have you found anything that helps? How are you feeling now?

Latest EBV test results:

EBV ab VCA IgM: 54.10 (Positive >43.9
EBV Early Antigen Ab, IgG: <9.0 (Positive is >10.9)
EBV Ab VCA IgG: >600.0 (Positive is >21.9)
EBV Nuclear Antigen Ab, IgG >600.0 (Positive is >21.9)

Because I test negative for EBV Early Antigen Ab, I am ignored by the CDC (or so I'm told). The other tests are ridiculously high (come on, 600 is impressive, right?), and I am lucky my doctor is a DO and willing to work on an EBV diagnosis. I did have mono when I was 18, I'm 51 now. Also had lyme disease about 10 years ago (Rocky Mtn Spotted); I keep testing negative but I'm probably still fighting it.

Can anyone offer advise to get me on the right track? May be I should visit the vertigo board as well?

Many thanks,
Birch

 
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