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  • Crippling feet neuropathy?

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    Old 09-19-2018, 01:34 PM   #1
    On27
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    Crippling feet neuropathy?

    Hi there
    I am a 37 y/o female who was recently (Aug 2018), diagnosed with neuropathy, rhuematoid arthritis, spondylitis, and vasculitis.
    Before this , I was feeling healthy. Each time I go to the ER , I would get admitted because the pain is unbearable. In the past month I was hospitalized 5 times. I am working with a rhuematologist and also a neurologist, both were assigned to me by the hospital.
    Fast forward to today. I am currently on a whole lot of meds like lyrica, predinisone, and methotrexate. Also tramadol for pain.
    Well, I have not seen any improvement in both my feet, and every night I would cry because of the burning, crawling and stabbing pain. I had to sleep on the livingroom couch so I don't wake up my husband and kids.

    I am off from work on FMLA which will run out soon. I am lost and I don't know what to do.

    I am very scared. I am sorry this is such a long post. Please any advice, or experiences is very much appreciated.

    On27

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    Old 09-20-2018, 07:45 AM   #2
    JohnR41
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    Re: Crippling feet neuropathy?

    Have you told your doctors this? Perhaps you should ask them if it might be due to the wrong combination of drugs.

    It seems to me that all of the above diseases involve inflammation which may be caused by Vasculitis. Vasculitis is an inflammatory autoimmune disease that can strike anywhere in the body. So it might be best if they just treat you for Vasculitis. Ask them if that's what they are doing. Above all, be sure to tell them as soon as possible that the current medications are not working and that you feel worse than you did to begin with.

    Anti-inflammatory Diet: In the mean time, you might try doing some research on anti-inflammatory diets. It's not a cure, as far as I know, but may be helpful in relieving some of the pain. I haven't thought about this for a while but I remember that sugar and white flour products are the worst inflammatory culprits.

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    Old 09-20-2018, 10:14 AM   #3
    MSNik
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    Re: Crippling feet neuropathy?

    What has the Neurologist tested you for? Have you had MRIs? I have the very same problems in my feet (and my hands) randomly...not every day of my life, but off and on...in fact, it was in my hands which took me to the ER after weeks of pain 15 years ago. I was diagnosed with Multiple Sclerosis...the brain is sending wacky signals to my feet and hands due to my autoimmune disease.

    I also tried Lyrica, which did absolutely nothing for me... I was on so many different drugs, none of which helped, all because this is neurological and due to damage on different parts of my brain- not because it was vascular.

    Have you had talks with the neuro to ask what he has ruled out? I would start there.
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    Old 09-20-2018, 01:20 PM   #4
    On27
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    Re: Crippling feet neuropathy?

    Quote:
    Originally Posted by JohnR41 View Post
    Have you told your doctors this? Perhaps you should ask them if it might be due to the wrong combination of drugs.

    It seems to me that all of the above diseases involve inflammation which may be caused by Vasculitis. Vasculitis is an inflammatory autoimmune disease that can strike anywhere in the body. So it might be best if they just treat you for Vasculitis. Ask them if that's what they are doing. Above all, be sure to tell them as soon as possible that the current medications are not working and that you feel worse than you did to begin with.

    Anti-inflammatory Diet: In the mean time, you might try doing some research on anti-inflammatory diets. It's not a cure, as far as I know, but may be helpful in relieving some of the pain. I haven't thought about this for a while but I remember that sugar and white flour products are the worst inflammatory culprits.
    Hi JohnR41
    Yes my rheumatologist and primary doctors know all of my symptoms. I also had a lot of lab work done and RH was high, absolute esinophil too. Also positive ANCA . I do believe its the medications. I have appointment with primary tomorrow. Today was a lot better. I woke up with only the burning pains instead of all of the symptoms at once. I am taking tramadol and Advil but my feet continue to feel full and seems like worms are crawling everywhere especially inside if my ankles.

     
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