High ggt, positive ana 1:80 homogeneous pattern, raised esr, positive anti ccp, positive rheumatoid factor. Any ideas?
Sponsors
08-25-2020, 09:35 AM
#2
quincy
Senior Veteran
(female)
Join Date: Apr 2003
Location: Winnipeg, Canada
Posts: 5,708
Re: Any ideas?
Definitely autoimmune disease...possibilities could be sjogrens, lupus, RA, liver disease, and maybe infection etc. When are you getting results, and are you seeing a rheumatologist?
q
08-25-2020, 10:01 AM
#3
zipster
Senior Veteran
(female)
Join Date: Apr 2008
Location: uk
Posts: 505
Re: Any ideas?
I saw a rheumatologist and he said rheumatoid arthritis and I've just been on prednisolone and hydroxychloroquine. I felt great on 15mg of prednisolone but since tapering off them I feel worse than ever.
08-25-2020, 10:22 PM
#4
quincy
Senior Veteran
(female)
Join Date: Apr 2003
Location: Winnipeg, Canada
Posts: 5,708
Re: Any ideas?
How long since tapered off the pred?
Look into LDN...low dose naltrexone. I have a friend using it for her RA.
q
08-26-2020, 12:17 PM
#5
zipster
Senior Veteran
(female)
Join Date: Apr 2008
Location: uk
Posts: 505
Re: Any ideas?
Quote:
Originally Posted by quincy
How long since tapered off the pred?
Look into LDN...low dose naltrexone. I have a friend using it for her RA.
q
I've just finished it this week.
08-26-2020, 12:34 PM
#6
quincy
Senior Veteran
(female)
Join Date: Apr 2003
Location: Winnipeg, Canada
Posts: 5,708
Re: Any ideas?
And your doc hasn't given you a plan? At what dosage did you start to feel crappy, and how fast did you taper at what dosages?
q
08-26-2020, 12:55 PM
#7
zipster
Senior Veteran
(female)
Join Date: Apr 2008
Location: uk
Posts: 505
Re: Any ideas?
I started on 15mg for 2 weeks, then 10mg for 2 weeks, 7.5mg for 2 weeks, 5mg for 2 weeks, 2.5 mg for 2 weeks. I felt great on 15 and 10. I started feeling less energy etc when l went under 7.5mg.
08-27-2020, 12:33 AM
#8
quincy
Senior Veteran
(female)
Join Date: Apr 2003
Location: Winnipeg, Canada
Posts: 5,708
Re: Any ideas?
It could be you tapered too quickly...especially once you tapered at to and you started to feel unwell or in more pain.
Contact your doctor...ask if you can go back to 10 and taper more slowly.