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  • good and bad news regarding infectious disease specialist

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    Old 01-13-2004, 08:07 PM   #1
    Michele0789
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    Arrow good and bad news regarding infectious disease specialist

    Hi, its Michele from the "being referred to infectious disease specialist...lots of questions)....thought I would start a new subject since the other was getting long. I hope that is okay.

    I see the specialist Thursday....but, I did see my gynocologist yesterday. She thinks she possibly found the source of the infection. It is two long words that I can't pronounce but if anyone would like me to try to read her writing and type it I can. What she explained to me is that I have a chronic staph infection. (I hope this isn't too much information)...The infection is inside my upper inner thighs. She said it is not known what causes the infection...I had forgotten about it...but she did notice it for the first time last year and gave me a round of antibiotics and explained to me that sometimes it will go away and sometimes it will get worse and require surgery. At the time I was about to have another ankle surgery and was overwhelmed so I think I was overwhelmed and blocked out the mention of surgery. It all came back to me yesterday when she discussed it with me. Please tell me if anyone has information and can lead me to a web site with information about this surgery. She told me that if the specialist determines this is a major source of infection that a surgeon will remove all of the infected skin and the infection underneath it then use skin from my stomach or back to graft that area. I can't imagine having a skin graft in that area. Does anyone know what this type of recovery would consist of? In a way it was good to find what might be causing the infection....the bad news is what is required to correct the problem. Please give me any information anyone has regarding this.

    Thank all of you for all of your continued help!

     
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    Old 01-14-2004, 05:56 PM   #2
    Bruce
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    Re: good and bad news regarding infectious disease specialist

    Michelle, this still looks a little strange to me. It would seem that a staph infection would not be difficulat to diagnose much sooner. Staph usually forms boils which i have had also.

    The likely possibility is the surgeon would cut out the infected area and you should recover right away. It's a minor surgery and shouldn't take long.

    What does the infected area look like?

    Don't worry.

    Last edited by Administrator; 03-23-2015 at 10:21 PM.

     
    Old 01-16-2004, 11:01 PM   #3
    Michele0789
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    Re: good and bad news regarding infectious disease specialist

    Quote:
    Originally Posted by Bruce
    Michelle, this still looks a little strange to me. It would seem that a staph infection would not be difficulat to diagnose much sooner. Staph usually forms boils which i have had also.

    The likely possibility is the surgeon would cut out the infected area and you should recover right away. It's a minor surgery and shouldn't take long.

    What does the infected area look like?
    Hidradenitis Suppurativa, is what the ob/gyn diagnosed me with. Do you know anything about this?

    The area is fairly large and the skin has become real dark. There are a lot of scars from old boils and a lot of small bumps. That is the only way I know how to describe it.

    I am concerned about surgery. My ob/gyn did refer me today to a plastic surgeon. I have an appointment at the end of the month. My main concern is the fact that I have had 5 surgeries in the past 2 1/2 - 3 years. Another big concern is the actual surgery. It is a fairly large area of skin that will have to be removed from each thigh....and my understanding is they will use skin from my stomach or back to graft those areas. What kind of recovery will that be? And what will happen if I don't have the surgery. I have a lot of questions to ask before I put my body through another surgery.....who would be the better person to ask...ob/gyn? or plastic surgeon.

     
    Old 01-17-2004, 12:32 AM   #4
    tryingtofeelgood
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    Re: good and bad news regarding infectious disease specialist

    Hi, Don't know much about it. I know someone who had it in her groin and underarms. both recurred. you may want to see a dermatologist. How did they diagnose you? Also,do you have a Staph infection? I would ask your questions to each doctor, but I would suspect a skin doctor and an infectious disease doctor are your best sources. Currently there is no cure for this. However, some people don't have it so badly. Good luck and keep us updated

    Last edited by Administrator; 03-23-2015 at 10:21 PM.

     
    Old 01-17-2004, 06:29 AM   #5
    Bruce
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    Re: good and bad news regarding infectious disease specialist

    This is a deep chronic infection and you should have it done. If you don't, one possible complication is osteomyilitis (bone infection). I now understand what your symptoms mean if the diagnosis is correct. It really doesn't look like a complicated surgery, and you could get worse if you don't have the surgery.

    Perhaps the surgeon could explain it to you and make you feel better.

    Here is the definition of hidradenitis suppurativa:


    General Discussion

    Hidradenitis suppurativa is a chronic, pus-producing (suppurative), scarring (cicatricial) disease process that occurs due to obstruction of hair follicles and secondary infection and inflammation of certain sweat glands (apocrine glands), particularly those under the arms (axillae) or within the anal/genital (anogenital) region. The disease is characterized by the development of recurrent, boil-like nodular lesions and deep pus-containing pockets of infection (abscesses) that may eventually rupture through the skin. Healing of affected areas is typically associated with progressive scarring (fibrosis). The specific underlying cause of hidradenitis suppurativa is unknown.

    Last edited by Administrator; 03-23-2015 at 10:22 PM.

     
    Old 01-21-2004, 01:46 AM   #6
    Michele0789
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    Re: good and bad news regarding infectious disease specialist

    My OB/GYN diagnosed me. I have been seeing her about 5 years. She first diagnosed it last year....explaining that if the area grew and the infection didn't respond to antibiotics that surgery may eventually be needed. She told me that in a year the area has grown significantly and she feels now is the time to do surgery. Part of her explaination to me was that it is a chronic staph infection. The ID specialist did not pay much attention to this...he was more focused on medications.

    I don't know...I am sorry....I am just confused.

    Last edited by Administrator; 03-23-2015 at 10:22 PM.

     
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