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  • Hidradenitis Suppurativa-I'm sick of it!

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    Old 02-26-2008, 07:48 AM   #1
    jayriss2155's Avatar
    Join Date: Feb 2008
    Location: Kingston, NY
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    jayriss2155 HB User
    Hidradenitis Suppurativa-I'm sick of it!

    Anyone suffering from HS (Hidradenitis Suppurativa) Needs to post messages about they're suffering, embarrassment, pain, depression and loneliness associated with this disease. People are so quick to judge and say ewww gross rather than maybe taking care of it. I am currently suffering with what I believe to be HS. I don't know for sure because i can't get a doctor that cares enough to look into a little harder. They perscribe immue crippling antibiotics that don't do anything, and send us on our way. It's not embarrassing, contagious, or gross. It's a genetic or hormonal disease that needs a cure. It's painful and depressing. And the people (like me) that can't walk from it can't not work and can't go to the disability office and say I have boils and can't work. That would never fly. Please speak your mind. You don't have to show us what it looks like. Just speak your pain and frustrastion. Raise awareness. If this thing can be called something maybe it can be recognized and maybe even treated or cured. I am also suffering from HPV. Everyone knows about that now. I'm sure you've heard of gardasil. I had HPV since the 90's. I didnt even know about it until i founf out i had it in 2005!!!!!! That's crazy! Let's get the commericals going on the T.V something. Anything. Help raise awareness, tell someone about your pain and suffering. Thank You.

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    Old 02-26-2008, 05:52 PM   #2
    Join Date: Oct 2004
    Posts: 50
    krlsgrl HB User
    Re: Hidradenitis Suppurativa-I'm sick of it!

    Was reading on internet the other day --someone said that zinc helps HS.

    Old 08-06-2011, 01:11 AM   #3
    Alliann's Avatar
    Join Date: Aug 2011
    Location: germantown, ohio USA
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    Alliann HB User
    Re: Hidradenitis Suppurativa-I'm sick of it!

    I know exactly how you feel, I have had Hidradenitis Suppurativa since I was 18 and got them in the arm pit areas and than started getting them in other places too like theighs, under breasts, and groin area and never knew what they were until 3 years ago I was diagnosed by my dermatologist. I was put on doxycycline for it and it does help a lot! Not saying I don't ever get them but if I do they are not as painful as if I wasn't taking the antibiotics. I had them so bad I would have to call off work it was horrible! I know your embarressment too. I hate to talk to my husband about it or let him see certian parts of my body cause of the scaring. I would like to raise awareness too!!! There needs to be a cure!!!

    Old 11-02-2011, 08:24 PM   #4
    tuckerj's Avatar
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    Location: Houston
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    Re: Hidradenitis Suppurativa-I'm sick of it!

    I was diagnosed with HS just this week. I had been seeing my general practioner for what was once, a few bumps in my butt and groin region that progressed into more over the period of 2 months. I saw my general practioner 3 times and each time he said I had folliculitis. Finally, I decided to see my gynecologist since it was primarily in my private area and he diagnosed me with HS. I just started doxycycline this week and I can't really say that it's helping yet.

    I'm honestly fearful because of it not being curable and the scarring. I'm currently 24 and I have heard about it being debilitating for some people and them ending up disability because they are unable to move.

    I'm pretty scared and I'm trying not to stress out about it because I read that it causes more bumps.

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