It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Autoimmune Disorders Message Board

immune system cocktail

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 11-04-2011, 04:14 PM   #1
Join Date: Nov 2011
Location: USA
Posts: 2
stilledlife HB User
immune system cocktail

I keep looking at this and I was told not to bother by my last doctor becasue I would not find an answer- but even finding another person with something similar to what I am going through might help put my mind at ease. I went to the Allergy specialist and reviewed my medical history.

1 type one diabetes (autoimmune disorder)

ventricular tachycardia (heart wall cell cluster) ablation corrected.

And unknown Immune system disorder- this one is a little more chaotic then the 1st two and causing me problems.

I was sent to the allergy specialist becasue I kept showing signs of allergic reactions including anaphylaxic shock. The list of things that cause this are pretty big including walnuts, shellfish, milk, latex metals. So I get my skin test and we are shocked to see that I am not allergic to a damn thing. Not a single histamine response. But the doctor does keep me around for about an hour and watches my skin and does get to see one of my mystery rashes that appears and disappears in a matter of 10-45 minutes. He basically diagnoses me with hyper-sensitivity and and in his word "unknown auto/immune system disorder" and tells me I'll be going down the wrong track if I hunt for answers. He said it would be just management and probably psychiatric drugs to keep me from getting anxious from the biological immune system response and making the physical reaction worse and to keep the immune systems reaction from from making me (mental) worse. O boy.

This disorder has been expensive and curious- From causing me to have to have my false tooth replaced with all ceramic becasue my gums started to recede and destroy themselves to get away from the metal tooth- what was left of my tooth rotted quickly and had to be treated quickly. No healing will occur when adhesives, iodine, silver nitrates, or stitches are used. My body will form a liquid and scab barrier to block open wounds from any contact and not heel until the artificial item, such as silver nitrate, is removed. The local surface temperature will also rise to extraordinary temperatures below the item (tape, latex.)

Other problems that can appear system wide include lymphatic swelling behind the knees, arthritis, fatigue, rashes and general swelling in my hands and face, vomiting, and muscle stiffness, early spontaneous miscarriages, the fear that if I eat something that it may cause me pain for the next 24 hours. bouts of myositis. To confusion or anxiety that will set in for short bursts. I have been able to control quite a few symptoms with strict food watching but it does not stop everything. Basically I was thrilled when the allergy specialist told me that I was not crazy- that obviously my immune system is out of wack but that he could not do anything about it- that really no one can- there are no immunologists. So now I am left with the very real reality that I'm really stuck fighting this alone.

So I guess i just want some direction or ideas on dealing with my cocktail.

Sponsors Lightbulb
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Undiagnosed auto-immune LeaBeans Autoimmune Disorders 31 02-08-2013 08:19 AM
Inflammation w/biopsies but bloodwork comes back negative for inflammatory markers! catluv Autoimmune Disorders 15 02-04-2013 06:30 PM
Autoimmune but which autoimmune disease/syndrome? Difficult case... SeptemberTwin Autoimmune Disorders 6 09-17-2011 06:57 AM
Mixed Connective Tissue Disease (MCTD) Sweety2002 Autoimmune Disorders 16 08-17-2011 11:20 PM
auto immune problem? thegame12 Autoimmune Disorders 0 08-12-2011 05:21 PM
Please help me...i don't understand my labs!!! loveflorida Autoimmune Disorders 0 07-14-2011 04:31 PM
Diagnosed with an Auto Immune Disease mimi56 Autoimmune Disorders 1 06-30-2011 01:48 PM
Overactive Sympathetic Nervous System? Coq10FTW Autoimmune Disorders 2 04-16-2011 08:54 AM
Auto immune? Test results curiouslee Autoimmune Disorders 4 02-24-2011 04:07 PM
Immune System/Hypothyroid/Anemia Daisy Sunshine Autoimmune Disorders 6 12-28-2010 02:23 AM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 05:04 AM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!