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Can anyone help?!

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Old 01-18-2012, 04:49 PM   #1
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Can anyone help?!

I am new to this site but my problem is far from new.
I am a 44 year old woman. For the last 23 years (!!!!) I have had muscle and joint aches, weakness, headaches etc.. Every test under the sun seems to have been done, and the only one that is consistently elevated is my sed rate. My sed rate has never dropped below 41 in all those years and generally hovers between 45 and 60. At one point it went up to 98. I also have anemia that is attributed to an iron deficiency.
I have gone to a rheum. doc who suggested i lose some way, perhaps do a Jane Fonda tape. He diagnosed me with fibromylagia which i dont really believe since that doesnt affect the sed rate. i don't believe he took me very seriously.
for years now, my internist and i have just chalked the sed rate up to just the way i am since nothing major has happened by now.
however, i am starting to worry again. i recently had surgery to repair a torn meniscus and the surgeon asked me a couple of times after surgery if i had a history of rheum arthritis. he said there was unusual inflammation in the joint and mentioned a congestion of blood vessels. he did a synovial biopsy, and, like everything else, it was negative.
a few days later i went to the eye doctor for a check up. i have had dry eyes for years. i have been trying a variety of contact lenses for people with dry eyes and mentioned to her that when wearing contacts the right eye is irritated more than the left. she looked more closely at it and said there are corneal changes in the right eye and, she mentioned an abundance of blood vessels in the area.
i told the eye doc about my high sed rate for years etc and she got me worried. said you shouldn't mess around with that. inflammation is bad for the body, esp. long term. as i said, because my internist has become blase about it, so too have i. now i am worry again. dont know where to turn or what to do.

any insight would be really appreciated!

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Old 01-19-2012, 06:23 AM   #2
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Re: Can anyone help?!

Have you had your thyroid and other glands checked? If so, those tests would be the TSH, T3 and T4, and some antibodies. Also, have they ruled out diabetes?

Old 01-19-2012, 09:34 AM   #3
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Re: Can anyone help?!

Yes, thank you. I have been tested numerous times for everything...lyme, diabetes, RA etc.....Nothing, except the high sed rate and the symptoms.

Old 01-19-2012, 10:03 AM   #4
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Re: Can anyone help?!

Thyroid tests are open to interpretation, but most MDs don't even speak the language. It's even likely you haven't had the right ones, or enough of them to say that there's nothing wrong with your thyroid. A high level of inflammation is hallmark of an autoimmune disease such as Hashimoto's thyroiditis.

I only accidently found this post on this board. I hang out daily at the Thyroid Disorders forum here ~

I strongly suggest you get a hard copy of your latest thyroid labs. If you care to post them publicly, we on the Thyroid Board can help you interpret them to see whether your MD is missing something.

Old 01-19-2012, 01:29 PM   #5
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Re: Can anyone help?!

a SED rate does indeed usually mean that there is inflammation going on. If I were you, I might go back to my internist and ask about a plan to bring it down in light of what your surgeon and eye Dr have said. Or at the very least, I might like to find out why my joints are inflamed. Is it osteoarthritis or something else? and especially what can I do about it to prevent it from getting worse. Things along those lines. Practical and proactive, and go from there. I do believe that extra weight or obesity can elevate one's sed rate, without a disease cause as well. Not sayin' that YOU are, just throwing out general info, LOL.

Last edited by luca689; 01-19-2012 at 01:31 PM.

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