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Doctors don't believe me

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Old 11-04-2012, 04:49 PM   #1
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Unhappy Doctors don't believe me

I am a 23 year old mother of 3. I have had blood tests that came back I have HLA-B27. My sister also has this and struggles with Rheumatoid arthritis. I go to the doctors in pain for the last 4 years and no help. My symptoms are:

. Chronic fatigue
. Blurred vision
. Struggle concentration
. Inflamed skin on my back that burns
. Patchy dry tongue
. Wrists, elbows, ankles, knees, hips and tops of neck are very painful constantly (both sides of the body)
. I hear a slight click in my joints when I move them
. I can no longer open the gate to our vege garden
. When I hold a cup my fingers 'lock' into place
. When I lie on my back it locks into place
. I have degenerated discs in my lower back and a herniated disc
. I have lost the fluid in the discs on the side of each hip and am always in pain to walk
. I struggle walking up or down hills and stairs with my knees as it is so painful

They have tested me for arthritis and it came back negative. I query this as a lot of my bloods come back negative when they are actually positive like my gall stones that never showed up in bloods.

The doctor told me it was all in my head when I know it isn't!! I just want them to tell me what is wrong. I am young and I know I should not feel this way. I feel like I am very old and fragile. I eat very well and drink lots of water, I don't understand

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Old 11-09-2012, 01:27 PM   #2
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Re: Doctors don't believe me

Hi, a lot of us have been there I am sure, I know I have. I first began having problems in my early thirties, I had three little kids and was just tired all the time too. You have to be your own advocate, if you do not get answers with one doctor it never hurts to seek out another opinion. I always say, we know our bodies and when something is wrong we can sense that. I wish you the best, hopefully you can find someone who will listen to you.

Old 11-09-2012, 08:02 PM   #3
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Re: Doctors don't believe me

Thank you. I have been to a few and one even told me it was all in my head! I was thinking of seeing a specialist

Old 11-12-2012, 12:52 AM   #4
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Re: Doctors don't believe me

Go to a rheumatologist. I, too, was told I needed a psychiatrist for my "emotional problems" after I broke down in tears from 4 months of chronic pain and no explanations.
After that, I got in with a very thorough rheumatologist who ran every blood test possible until we ruled out everything else. When I say everything I mean, thyroid disorder, lupus, diabetes, lyme disease, and every possible culprit of the pain. 30% of RA patients do not show up on the sed-rate test, so it doesn't mean you don't have it, even if you're negative.

My first symptoms were that I would wake up crying every day because my hands hurt so badly. I was fatigued, had a mouthful of canker sores,(an indication of my immune system being off), and had unbearable pain in the base of my neck and my hands and wrists. I had zero strength when trying to pull an object, and couldn't even pull my comforter over me without crying. I couldn't reach my arms over my head, or rotate my shoulder in certain positions without very serious pain. I was exhausted from dealing with it, and the difference was made by switching to a different specialist. The first indication that he was an excellent doctor, was that my first visit took 2 hours and 45 minutes of asking me to describe my pain and discomfort, and to give him a very deep and detailed family health history. Other doctors had rushed me, cut me off when I was taking too long to describe things, and prescribed meds that made me throw up randomly. Good luck with this, and DO NOT let them tell you you're fine when you know you are not. Advice, like medication, only works if you take it. Good Luck!

Old 11-12-2012, 01:23 AM   #5
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BubblBoy HB User
Re: Doctors don't believe me

Thanks for that !!! My GP said he will test me again in 5 years. But to be honest, every month I get worse so I am worried. I will def look into seeing a specialist!

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arthritis, autoimmune dieases, hla-b27

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