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where to go from here?

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Old 11-16-2012, 06:30 AM   #1
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flyaway12 HB User
where to go from here?

I'm not really sure where to go from here - whether I need to have my primary doctor run tests or see a specialist - any advice would be much appreciated.

The past year, I've been very sick, but I think it started much earlier. The past 10 years I've gotten probably 4 infections a year - usually several colds and then something major (bronchitis, sinus infection, mono, etc).

Around the time that started, I developed a lot of GI symptoms - heartburn, frequent diarrhea, stomach cramping. My doctor seemed to be playing a guessing game - first, it was gastritis and then GERD. I saw a gastroenterologist (ironically, the same doctor who diagnosed my mom's colon cancer), and he diagnosed me with IBS. He didn't do a colonoscopy, but he said I had the classic symptoms so he just gave me meds for it (which helped).

Over the next few years: I was diagnosed with rosacea (not sure if this is accurate or not as it went away for several years and then came back), mono, genital hsv1, anemia, raynaud's phen

I was actually in great health the last few years and was taking any medication, but then after I had my son 13 months ago, my body kind of freaked out on me.

IBS came back, as did rosacea. I developed a problem with depression and anxiety. I started getting infections every 3-4 weeks for the last year (colds, sinus infections, tonisilitis, etc). I had my tonsils taken out in September, but the frequent infections haven't slowed down. I also am having a back-to-hack hsv infection. I haven't had one in 11 years prior to this.

other symptoms:
joint pain
facial flushing
frequent swollen lymph nodes
red/itchy/swollen eyes (had pink eye 3x this year, but I still have these problems with my eyes)
chronic throat pain

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Old 11-16-2012, 09:57 AM   #2
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Re: where to go from here?

Flyaway, hello & welcome! I'm sorry for your problems, frustrating and nervous-making, too, I know!

Have you taken a look at the lupus board, both the user threads & the "sticky posts" at the top? Some of the things you cite come up there often. This isn't to say I think you have lupus, as only a specialist (like a rhemuatologist) could say. But because it can feature some of these things---it can feature a whole LOT of things, actually---it could be a good "broad" place to find more specific info. Anemia, Raynaud's, a rash that may be rosacea, swollen lymph nodes, etc.---I think all those topics could ring some bells.

Anyway, I do hope you post again, and soon---either here, there, or somewhere else on the Boards. Sending my warm wishes to you, sincerely, Vee

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