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    Old 03-20-2004, 01:31 PM   #1
    papillonisback
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    Unhappy Back Pain Stopping Life & Spoiling Relationship - HELP ANYONE??

    Hi there...........I'm hoping someone can help me with some advice as I can't spend another night up alone in tears otherwise I'm gonna give up all hope.

    Briefly, I'm 28 (F) with DDD - worn disc's 4 & 5.
    Had to give up work 2 yrs ago and life is becomming pointless (nothing to get up for, no use to society anymore)
    The pain is so cruel, just when I think it is getting better and it alows me to do things, it then comes back x2 as bad.
    I often think Happiness=Pain.
    Today I have done nothing cos the pain will not ease no matter what I do or try......................i cant go on like this.
    If I dont have kids in next 3 yrs its too late.[SIZE=3]undefined[/SIZE][COLOR=DarkRed]undefined[/COLOR]
    At moment no pain killers or my Transtec patch is working.
    The pain is consuming me and I just CANT cope anymore.
    Tried so many painkillers, TENS helps to ease it when "it" agrees!
    Met the love of my life 3years ago and he is seeing me get steadily worse.
    He has to help me more and the strain and pressure is increasing on him - he feels 'trapped' to go out incase I need him and so frustrated at not being able to help my pain.
    He is getting stressed and grumpy and me back, we are arguing like we have never done before.
    He can do stuff I cant, and I have quickly lost my independance for going out etc - always have to ask him to take me etc.

    Anyone out there - How do you cope? One:- with pain when its so bad?

    Two:- How do you support your partner and keep him going when you are giving up and depressed and in constant pain.

    I cant loose him otherwise "thats it" - nothing more matters.
    I'm living to be with him.

    HELP..................?
    PLEASE.........?

     
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    Old 03-20-2004, 01:59 PM   #2
    Racharina
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    Re: Back Pain Stopping Life & Spoiling Relationship - HELP ANYONE??

    papillonisback:

    Hi there, i hear your pain.
    I have been with my husband 10 years, and I started with back problems almost 3 years ago. I had back surgery 7/16/03. It has only helped about 50%. I am still in a lot of pain. Well, I should say good days and bad days. However, the bad days make me feel very depressed and helpless. The good days I feel are so little that I thank God so much for those. Then, wang!! the bad days. I am just going through a bad week.

    Hubby has been really supportive. He has been with me at all times and has gone with me to every single appointment with the specialists. When I went into surgery, I remember seeing him just before I went to sleep... and when I woke up after operation, he was just right there with his big smile and beautiful blue eyes. I often think I have put him through so much with my misery, but he is right there for me. He says we married for good and for the bads. He always says it is going to get better (which I really wonder that). I feel this is it for us that have chronic back pain/herniated disc.

    Hubby wants us to have a child (we don't have any), and because of my back problems we haven't been able. I feel really bad for this and gets me really down. I thought surgery would do the job, but I don't think it has.

    I hope your boyfriend understands that you haven't asked to have back problems. I think if he loves you he will stay. There will always be pressure one way or another one in a relationship.

    Have you gone to the doctor and check to see if they can help? Some people have had good results with surgery. I can't say that for myself but there many out there with different experiences.

    good luck,
    -R

     
    Old 03-20-2004, 03:27 PM   #3
    papillonisback
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    Re: Back Pain Stopping Life & Spoiling Relationship - HELP ANYONE??

    Hi...........Thanks sooooooooooooooo much for your reply 'Racharina'

    Incredible to know that our lives are so similar........do you mind me asking how old you are?

    I know just what you mean every word of it.

    My boyfriend/Partner is wonderful he also comes to every appointment, as has even come in to some tests for the UC with me as I was so scared. He has been so good to me and helped me thr hard times - but I am hard for him, phyically and emotionaly I know.

    I go back to see back specialist on April 2nd - I know though that the only thing left is Injections - either Idet or Sacro iliac inj - I AM SO SCARED!

    NOTHING IN THE WORLD SCARES ME MORE.

    I had a very bad experience 7 yrs ago with my only back injection (steroid) and it went wrong and I made my partner promise to Shoot me b4 I agreed to another, no matter how bad the pain got.
    He says it may help but not sure...........the steriod inj never helped only made far worse.........I CANT risk getting any worse than I am now.

    I just wish there was something else -tried Accupunture/chiro/phsio/chinese medicine etc etc.

    I've gotta get right for him so we can have A life........it is slowely grinding to a halt.

    He says I need a hobby...........but what can I do........can't sit long, stand long..............cant drive my car now for a while (thinking of getting an automatic)

    i'm so FED UP................

    he gets so upset when I cry cos he says it only makes me worse by making me tense etc...........sometimes though I just cant help it and that it doesn't get.

    I want a life back.............if I have to stay like this forever more then......this isnt a life........its just an existance to breathe each day.

     
    Old 03-20-2004, 04:45 PM   #4
    carol632
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    Re: Back Pain Stopping Life & Spoiling Relationship - HELP ANYONE??

    I hear the frustration and fear in your post and I am so sorry. Could you tell us a bit more about your diagnosis and the pain you are having? Where it is and what kind of pain? You cannot give up...there is always hope. How many doctors have you seen and what kind? What are the recommendations? I have had numerous injections of different kinds; I got some relief from all the epi's (epidural steroid injection) although not always a lot and not always for a long time. Has surgery been talked about? In this day and age, with so many options, there is no reason for you to have to suffer like this. What meds have you taken and what are you on right now? Have you taken any of the long acting meds such as oxycontin or morphine? There are a lot of well informed people here....please help us help you ... fill in some of the blanks for us so we can make solid suggestions. I will watch closely for your next post...
    Carol
    __________________
    2 lami's, 3 fusions
    bone spur removal
    cerv. fusion, 1 level
    morphine pump

     
    Old 03-20-2004, 06:22 PM   #5
    singer1
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    Re: Back Pain Stopping Life & Spoiling Relationship - HELP ANYONE??

    [QUOTE=papillonisback]Hi there...........I'm hoping someone can help me with some advice as I can't spend another night up alone in tears otherwise I'm gonna give up all hope.

    Briefly, I'm 28 (F) with DDD - worn disc's 4 & 5.
    Had to give up work 2 yrs ago and life is becomming pointless (nothing to get up for, no use to society anymore)
    The pain is so cruel, just when I think it is getting better and it alows me to do things, it then comes back x2 as bad.
    I often think Happiness=Pain.
    Today I have done nothing cos the pain will not ease no matter what I do or try......................i cant go on like this.
    If I dont have kids in next 3 yrs its too late.[SIZE=3]undefined[/SIZE][COLOR=DarkRed]undefined[/COLOR]
    At moment no pain killers or my Transtec patch is working.
    The pain is consuming me and I just CANT cope anymore.
    Tried so many painkillers, TENS helps to ease it when "it" agrees!
    Met the love of my life 3years ago and he is seeing me get steadily worse.
    He has to help me more and the strain and pressure is increasing on him - he feels 'trapped' to go out incase I need him and so frustrated at not being able to help my pain.
    He is getting stressed and grumpy and me back, we are arguing like we have never done before.
    He can do stuff I cant, and I have quickly lost my independance for going out etc - always have to ask him to take me etc.

    Anyone out there - How do you cope? One:- with pain when its so bad?

    Two:- How do you support your partner and keep him going when you are giving up and depressed and in constant pain.

    I cant loose him otherwise "thats it" - nothing more matters.
    I'm living to be with him.

    HELP..................?
    PLEASE.........?
    [/QUOTE]


    Boy can I relate! I am 40 and I am not anything like I used to be! My back seems to control me one way or another. The Key is to find a GREAT chiropractor who is really willing to work with you. I had one but he got so expensive (100.00/an office visit) that I couldn't afford to keep going but when I did go, I walked out of there feeling SOOOOO good! What also may help that these doctors do is to put a Tins (sp) unit on you. THAT makes a big difference too! Please try and do something because as I have found out, the longer you go on with your back jammed up, the worse it will be on you especially as you get older. Let us know how you are doing. We are here for you!

     
    Old 03-21-2004, 12:56 AM   #6
    Racharina
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    Re: Back Pain Stopping Life & Spoiling Relationship - HELP ANYONE??

    hello papillonisback ,
    YES, always ask away. I am 37, so is hubby. He is only 21 days older than me....and yes, even though our partners are there for us, it gets tough on them as well. Just think about it, they would love to see us well, unfortunately, it is not something for us to decide.

    I have had 4 nerve block injections prior to surgery. They helped a couple of months, each lasting less every time I took it. I said no [i]more[/i] and I had my back surgery. I never had a bad experience when they injected me. However, prior to surgery the Dr had me have a [i]"Mylogram"[/i] (can't spell) and I had a bad experience. I did get [i]"Spinal Headache"[/i]. I thought my head was going to burst!! Thank God I survived.

    Yes, all these injections can give you spinal headache. But it is 1% only.

    Well, surgery came. No problem. The surgery ended up being easy. The recovery is what is hard.

    I am going next week (on the 23) to get a [i]"Joint Facet"[/i] injection. They said it will help with the pain while it keep healing. The Joint Facet is the same procedure than the Nerve Block. To tell you the truth, these injections are only a temporally remedy.

    I tried everything you said, acupuncture, chiropractor (which got me worse every time I went in there), back massage, back exercises, .. absolutely nothing helped.

    I understand when you said what can you do (as hobby) if you are in pain. I was like that before surgery. Even though I still have pain, surgery got me so much better. About 50% improvement. I still have to say I feel miserable, more often that I would like to, but I can now work out when I feel good (perhaps not too hard as I used to), and go shopping all day .

    So hang in there, see what the doctor recommends. Do you have a herniated disc?

    Like [b]Carol[/b] says, don't give up.

    -R

     
    Old 03-22-2004, 08:47 PM   #7
    wtbass
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    Re: Back Pain Stopping Life & Spoiling Relationship - HELP ANYONE??

    I have had sacral proablems for years .......injections, painkillers...ect..what helped me was this little device called the sacro wedgy. seems so simple but yet worked wonders......[COLOR=Navy]{commercial website removed}[/COLOR]

    Last edited by hbguide1; 03-23-2004 at 05:50 AM.

     
    Old 03-22-2004, 11:07 PM   #8
    texjoann
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    Re: Back Pain Stopping Life & Spoiling Relationship - HELP ANYONE??

    Hi pappilonisback

    I am on this road, too. I have to deal with my back pain myself, my husband was sympathetic at first, but not anymore. I think becaue he gets backaches and they go away. He seems to think I am being weak. I have always been a very strong person, and I think he himself cannot accept that I am not that strong any moe.

    I was depressed for a while and I am 48 years old and I feel a lot of the time that my active life is over, and I feel like I am too young for sure. I used ot be a weight lifter and power walker. I could bend over and put my head through my legs, and could put my legs behind my head. I was very limber. I never realized that being that limber was different until I saw a program about contorionists. My brothers and I and some cousins and Uncles could all do these contortionists type things, but didn't know that's what they were. We just did them. When I was a kid it was tricks, we could do, to amuse people. It was, hey you guys do your tricks. We would see who could do the best.

    So now to have a bad back, and before I got this I NEVER in my life had a backache, makes it een more sad.

    But you know what? I go to a surgeon April 9th to see about surgery. The first thing i intend to ask him is if I will lose range of motion. If so I will have to ask more questions. I am competitive with my brothers still and don't want to be the only one who can't do the tricks.

    So I also read just recently an article about an exercise program for bad backs and I'm taking the article to my appointment.

    Try to see something positive about your life. At least your boyfriend is supportive. Let him help as much as he can, and have patience wiht him when he seems to be out of patience. I had an Uncle who got injured and had several surgeries and never got over his bad back, and we all used to get frustrated with him. It is hard for those who aren't going through the pain to knwo how to react. I think they feel helpless tha they cannot releive us of the pain. It is hard to watch somone in pain and not be able to help.

    See your Dr about some good pain pills and ask for an antidepressant. It not only helps with the depresssion (which is a natural reaction to a life change like this) but it also helps with the pain. On thing I was told is that when you're in pain you don't sleep well and when you don't sleep well you get depressed, so all this rolls into one big problem that takes over your life.

    Welcome here and keep talking to us. I have found that this place here helps with frustration levels, too, just by being able to vent.

     
    Old 03-23-2004, 12:07 AM   #9
    GP883
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    Re: Back Pain Stopping Life & Spoiling Relationship - HELP ANYONE??

    papillonisback:


    Hello,

    I think alot of us here know what you feel like. I just went through a horrible flare up. I think it was due to a steroid injection gone bad. I was stuck on the couch for about a week. I couldn't be up on my feet for over 15 min otherwise my pain level shot up so high and it took hours to get a little relief. I tired everything to get atleast the edge off. Percocet/TENS cranked all the way/heat/hot showers. I tried everything.. nothing seemed to work.... I was severly depressed. I am still having alot of pain but it is nothing like it was. I go back to the Dr. Wed. I am hoping i'm feeling good enough to go back to work, at least on light duty or something, sitting at home all the time is depressing enough!

    While I was stuck on the couch I found some things to do when I got the edge off and wasn't balling my eyes out.

    *Wrote in a journal about my feelings/pain/daily life. It seemed to help with the depression some, getting my feelings out.

    * Kept a log of my pain levels and what times I took my meds(I kept forgetting what time I took my meds) Also a log of what I did to help get rid of the pain.

    *Went shopping on ebay. Won some auctions )

    *Sent my b/f to the movie store to buy and rent some movies to watch.

    *Went through pictures and put together a couple of picture albums.

    * Had a friend come over to talk... If you have a friend that listens thats great! Thats what friends are for.... to be there for each other during hard times. Iv'e been there for mine many of times and them returning the favor is great!

    * Watched the birds at the window eating out of the bird feeder.

    *Made my computer chair as comfortable as I could with pillows so I could look up info about my back problems and browsed the internet.

    I had a talk with my boyfriend and told him that I am sorry I am in so much pain but I can not help it. I tried not to get grouchy with him. I seem to get really grouchy when I am in pain. I tried as hard as i could to control it. I let him go out and have fun. I told him to, so that he would not feel guilty going out, with me at home in pain. I did not expect him to stay at home with me 24 hours a day.... that would probably just make him grouchy being all cooped up. He did do alot for me and I let him know how much I appreciated it.

    I hope you get feeling better soon! Just remember you are not alone! Just come here and vent when you need to... there are alot of nice people on these boards that will listen to you! I am new and I found that out the first day I posted here

    Take care of your self,
    Lisa

     
    Old 03-24-2004, 07:59 AM   #10
    Searching Eagle
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    Re: Back Pain Stopping Life & Spoiling Relationship - HELP ANYONE??

    Hello,
    I also feel your pain. I have had my back injury for 10 yrs. It has slowly become worse. I was a person that loved to work, two jobs, and I was quite active in other ways. You asked how to cope, I can only tell you what I have done and maybe it can help you. I am a native american and even though I am a woman I am considered a warrior among my people. I say this only because if you know the native american heratige it is known that warriors don't show pain. It is considered a weekness. For the last 10 yrs. I have hid all pain from people. Imagine trying to tell a doctor how you feel with this drummed into your head for most of your life. Talk about misdiagnoses. I use to cope with the pain through meditation. I found a way through this method to eleveate the muscles. The one thing I have found is you and you alone knows your body. Because I know my body I can stop a asthma attack through relaxation tecniquecs. I also can relax muscles from within. It may sound wierd to you or even like bull**** but it is true. I was walking the path you have walked. Drugs were my best friends. so much so I had become addicted. I now control my life and the amount of drugs I will put in my body. I have a upper body injury. My thorasic and neck muscles constantly spasm. I have two bulging discs in my neck and knumbing in hands, neck and mid-back about bra line. When I go to the therapysts I would ask what they were doing and pay attention to how they did it. Anything that relieves the pain in therapy I would do at home. For instance there is a muscle that runs from your diaphram down to your hips, I forget the name of it but it starts with a S, when that muscle was released I could begin to walk better. After a while that therapyst had me dancing. Even though I am no longer seeing that therapyst I still work that muscle and am still able to walk. I have learned so much through therapyst that I relieve my girlfriend's muscles when her syatic acts up. My point is never give in to your pain. Yes I go through my bouts of depression but with meditation and telling myself I am worth more I pull myself out. My girlfriend also has never seen me in a depression. The only way I can explain that is "acting". We all hold secrets inside us and noone knows so I extend it to also relate to depression, since I know it is not a cemical problem, I know it is because I am not the strong brick wall I use to be. I am now learning what I can do and focussing on that. Sorry if I rambled, I just hope at least some of what I said helps.
    Searching Eagle

     
    Old 03-27-2004, 05:11 AM   #11
    Carmaanne
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    Re: Back Pain Stopping Life & Spoiling Relationship - HELP ANYONE??

    Hi
    I can relate but from the other end. My husband is the one with the bad back. Living with him is becoming unbearable.

    He is moody, short tempered and is not patient with anything. I know that he is in a lot of pain but I can't take the mood swings, and things flying through the house when he looses his temper because he fell or something.

    I try and be patient and understanding but he needs to get it in control. just my opinion. I live in constant pain and am disabled and I keep my temper. Why can't he??

    Carmaanne

     
    Old 03-27-2004, 08:18 PM   #12
    Searching Eagle
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    Exclamation Re: Back Pain Stopping Life & Spoiling Relationship - HELP ANYONE??

    [QUOTE=Carmaanne]Hi
    I can relate but from the other end. My husband is the one with the bad back. Living with him is becoming unbearable.

    He is moody, short tempered and is not patient with anything. I know that he is in a lot of pain but I can't take the mood swings, and things flying through the house when he looses his temper because he fell or something.

    I try and be patient and understanding but he needs to get it in control. just my opinion. I live in constant pain and am disabled and I keep my temper. Why can't he??

    Carmaanne[/QUOTE]

    Hello Carmaanne,
    Something I have learned since I am told many times is that I have more testosterone than most women. By this I can see both sides of the specrom. The problem I have found in my life is that women think and do things very differently than men. Men are taught to be strong and that they should show no weekness. They are also taught that they are the protectors. What I did was go to someone that could help me deal with my emotional difficulties. Granted you my not be able to suggest to him that he needs help emotionally. He needs to think he is the one making that decision. The hard part for him will be to find the right person the first time. I was lucky. I found through my lawyer a women that knew the native american ways and that being a women warrior is tougher than being a women or a man, since I have to prove myself on both levels. It sounds like yorur husband is trying to deal with his own weeknesses and the only way he can release his rage at himself is through distruction since he already feels his life is destroyed. What might help him is having a male friend eather talk with him about his problem nonshalantly or having that friend discuss with him seeing someone. The friend, he would truely have to trust (basically with his life) and not sound like your husband is week in any way. Before I went I had many of the warriors come to me and talk with me, letting me know that my injury is only a small part of who I am and that I give more to my people through my mind than I could ever give through my strength. Good luck!

     
    Old 03-29-2004, 02:36 PM   #13
    papillonisback
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    Unhappy Re: Back Pain Stopping Life & Spoiling Relationship - HELP ANYONE??

    [CENTER][B]HI EVERYONE...........SORRY IT TOOK ME SO LONG TO GET BACK ON COMP!![/B][/CENTER]

    [I][B]THANKS SO MUCH FOR YOUR REPLIES - IT REALLY HELPS TO KNOW YOUR NOT ALONE AND SOMEONE "REALLY" UNDERSTANDS !!!!![/B][/I]


    ME..........

    Good news & Bad news.

    Pain has eased a bit all by itself (as it usually does........it comes in a bad flare up when IT wants, then clams a bit when IT wants)

    Bad news is my Specialist Appointment is THIS FRIDAY !!!!!!
    I am in UK so dont pay and have allways seen same Orthopedic Doctor from the start.
    I can't explain how scared I am......already having disturbed sleep and stressful dayd thinking about what to do/ say.

    If only there was another option except Injections?
    I dont think I can go through with it and if I try to expalin this to him. he'll probably laugh and say "wont be that bad".
    I'm sure he wont understand how scared I am.

    Last time I was in hosp for a Sigmoidoscopy for my Colitis.....they had to turn the heart monitor off as it was distracting him as my heart was going so fast and it was so noisy! and I WAS sedated then!
    I wonder if fear makes the sedation not work as good????????

    PLEASE SOMEONE TELL ME WHAT I SHOULD DO..............................?

    I have tried evry painkiller Dr has.
    Have a TENS machine thats works very well 80% of the time.
    Am on Morphine (Transtec) patches at the moment (have been for 4 years now and are losing their affectiveness no - but if I stop them I'm hanging on ceiling with more pain.
    Tried Voltrol, Arthrotec,Tramadol,Temgesic etc etc
    Tried Osteopath, Chiropracter, Accupunture.

    He said when all failed injections were the last hope for me.
    He wont opperate as he says it can do more good than harm and he says I'm too young........maybe when I'm older!

    Lets say I do agree to an INJECTION - I WONT have another Steroid Epidural as last one went wrong PLUS he later told me that they have discovered that they really DONT work unless you have pain going down legs - which I dont have!

    He will either want to do Facet Joint or Idet or Discogram.
    Discogram ......I will always refuse.........know too many people who have gone through it and would go thro birth 3 more times on the trot rather than have another Discogram.

    Idet................Sounds almost as painful as Discog..........and trouble is they cant put me to sleep during that one either I dont think?

    Facet Joint INJ..........Only one I could get through if they knocked me out 1st.
    Cant bear to be awake...........will panic and make things worse by tightening all my muscles so much that it will hurt more.
    The actual precedure may even be easier for me than the days of no sleep, worry, stress and tears leading up to the Inj day.

    WHAT DO I DO.........

    When its OK, I think its not worth risking it........but then when I'm intears and cant stand it.........I know I must do something.

    I have to tell him something this Friday...........and I dont know what?

    [U][I](Details one of you requested about my condition/pain.................I have two worn discs 4 & 5 and a "tear" whatever that means.
    I have severe pain at the point of these discs and they are painful to touch . lay on.
    Also bad pain on the boney bits either side of spine a bit lower on my bottom which radiates and hurts round the side towards my hip joints.
    Severe terrible muscle spasm which is either side of spine going up back...........can sometimes get hold of it.....feels like two tight belts going up my back.
    Pain feels like someone is screwing a screwdriver into my disc and also a bit like someone pressing on a really sore bit for ever & ever and just not easing off it at all........constant "pushing" pain.

    In last year also shoulder, recurrent tennis elbow and knee stiffness - also, Ulcerative Colitis and Psorisis patches.)[/I][/U]

    Hope this helps you, to help me a bit more.


    PLEASE HELP ME - WHAT SOULD I DO???????????

    ANYONES IDEA'S......PLEASE........I FEEL SO ALONE

    Papillon

     
    Old 03-29-2004, 03:03 PM   #14
    injured betty
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    Re: Back Pain Stopping Life & Spoiling Relationship - HELP ANYONE??

    Your post was so long that it was hard to use it as a quote but here goes:

    [COLOR=SeaGreen]undefined[/COLOR]
    If only there was another option except Injections?
    I dont think I can go through with it and if I try to expalin this to him. he'll probably laugh and say "wont be that bad".
    I'm sure he wont understand how scared I am.
    [COLOR=SeaGreen]undefined[/COLOR]


    There has to be something else as these destroy tissue and you have already gone that route. There is a post on the back site today in regards to those shots. They are NOT good. DO NOT GET INJECTIONS~ that is only my opinion.

    There are other alternatives. I had my husband out right refuse them. They gave him Predisone and told him to take them and no more treatment until he did. They are just as bad. He did manage to get an EMG though, as I demanded it.

    [COLOR=SeaGreen]undefined[/COLOR]
    I have tried evry painkiller Dr has.
    Have a TENS machine thats works very well 80% of the time.
    Am on Morphine (Transtec) patches at the moment (have been for 4 years now and are losing their affectiveness no - but if I stop them I'm hanging on ceiling with more pain.
    Tried Voltrol, Arthrotec,Tramadol,Temgesic etc etc
    Tried Osteopath, Chiropracter, Accupunture.
    [COLOR=SeaGreen]undefined[/COLOR]

    Sounds like you have tried almost everything. I am doing Prolotherapy. Not for everyone and not for people who can't stand needles. It is the only thing that worked for me. Also, Neurontin. Ask about it and the ramping up methods. No one knows why it works, but it has been working for me.

    [COLOR=SeaGreen]undefined[/COLOR]
    He will either want to do Facet Joint or Idet or Discogram.
    Discogram ......I will always refuse.........know too many people who have gone through it and would go thro birth 3 more times on the trot rather than have another Discogram.
    [COLOR=SeaGreen]undefined[/COLOR]

    No matter how much it hurts, I would do the discogram. It won't hurt forever and can't hurt more than the cortizone shot that they put in my shoulder and moved the needle around for about five minutes while it was in there. If have to go through some pain to get a diagnosis. Everyone has a different pain threshold. A discogram can be a very good thing.

    [COLOR=SeaGreen](Details one of you requested about my condition/pain.................I have two worn discs 4 & 5 and a "tear" whatever that means.
    I have severe pain at the point of these discs and they are painful to touch . lay on.
    Also bad pain on the boney bits either side of spine a bit lower on my bottom which radiates and hurts round the side towards my hip joints.
    Severe terrible muscle spasm which is either side of spine going up back...........can sometimes get hold of it.....feels like two tight belts going up my back.
    Pain feels like someone is screwing a screwdriver into my disc and also a bit like someone pressing on a really sore bit for ever & ever and just not easing off it at all........constant "pushing" pain[/COLOR].

    Look up disk tear on a search engine and it can explain it to you
    Severe pain probley involves a nerve.
    You have a nerve in there where you are indicating.

    Sounds like you have nerve pain and need to get the inflammation down. That is what the doctor is referring to when he wants to give you shots, get that inflammation down so that he can access the damage to the root. The discogram will let him know if the disks are causing this.

    Don't settle for pain management. Make then give you answers. Do the discogram. It only hurts for awhile. It is better to know, than a lifetime of pain.

    You can have him give you muscle relaxers for the spasms.

    Look up Prolotherapy. I am not sure if they do it where you are. It won't help with an inflammed nerve but if your ligaments are causing this, and most doctors don't address this issue, it works. At least it is working for me.

    You need to do something right away as nerve damage is a serious issue but find some way to stop stressing over it as that makes it WAY worse.


     
    Old 03-30-2004, 05:54 AM   #15
    Mistina
    Senior Veteran
    (female)
     
    Join Date: Nov 2003
    Posts: 589
    Mistina HB User
    Re: Back Pain Stopping Life & Spoiling Relationship - HELP ANYONE??

    Papillonbutterfly!!
    You are back. Wondered what happened to you! I figured that you must have gotton better. I lurk around here every now and again. It's ChristinaD by the way!
    I can't believe that you are still not getting any help at all. You say you are still seeing the same doctor, is this true. Maybe you should seek another opinion. I don't know about him saying that you are too young for surgery. Young yes but your life already 'seems' like it's never gonna get better and your never too young for surgery. That is a bunch of crap, if you need it you need it. Does that mean that children with disease are too young to have diseases so they really are healthy? That is just a bunch of crap.
    You have been dealing with this quite some time. You have tried everything but surgery and in most cases surgery is the best option when you have battled with this for so long.
    Let me tell ya, I was doctoring with those stupid doctors at the University of Pittsburgh (they are suppose to be good) and was getting no where. I insisted that there was something "else" going on in my back that was causing me the pain, discomfort and limitations other than my torn/herniated discs. I INSISTED! They didn't listen. Just kept telling me to get on with life that my discs are bad. Finally after 2 years, I went to a different doctor in a small town, thought I'd go see what he said. I told him "Look, you've got to listen to me, There is something really wrong and this is not the disc pain that I have dealt with in the past".
    He did another MRI, bone scans, x-rays and all that and found nothing but the disc herniations. Well, I said then go in and see what the heck is going on. He agreed to do a discectomy and trim away the disc that was herniated and see what else was going on. Well, get this, he said that he opening me up and thought right away to himself how right I was. There was major spurring and bone growth trapping my nerves and wrapping around them. I knew all along this was going on, I knew it! He shaved my facet joints best that he could and cut away the spurring as much as he could without making me unstable.
    It has been 6 months since my surgery and I'm still recovering, not knowing if I will fully recover or not. It was quite a long time I couldn't stand to move at all so my muscles and ligaments and such were deteriorating. I'm getting better but still have spurring in there I think, I say that cause I think I can feel it. Maybe someday I will need my fusion extended but this is a start. I can atleast walk over a mile a day and do some PT, couldn't before.
    But, I don't mean to ramble I just want to say, find yourself a doctor that will listen and insist on some good treatment. I know you have been going through this for quite some time and think that you deserve to feel better and live life again. You are WAY too young but that doesn't mean your too young for surgery.
    I wish you all the luck and I'll be haning around!
    Christina

     
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