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    Old 09-11-2003, 11:33 AM   #16
    Raiza
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    Hello Tomorrow:
    I just wanted to check and see how you are doing.
    Hope things are lighting up for you.

    lemmie know.
    I want to hear all positive things.
    Raiza
    __________________
    -Raiza
    -Surgery (07/16/03)
    -Laminectomy, Lumbard L5-S1 herniated disc.
    -Started with back problems on 08/27/01.
    -Had 3 epidurals. First they missed, Second worked, however, pain was right back to square one by the fourth month. Third one didn't help much.
    -Went to chiropractor for 4 months, I was worse after each session.
    -Went to acupuncture for 3 months, Dr. told me I needed to go to a specialist that he could not help me.
    -Body massage, would relief pain for a couple of hours.
    -Did exercises/stretches, no help.
    -Changed insurance. Kaiser was just sending me home by saying: "It will get better" ...never did !!
    -Went to see a new NS with a different insurance, in w/in a week he was doing surgery on me.
    -2 first weeks post/op was feeling better (too drugged).
    -The next four weeks It became worse than before surgery. Dr. told me it was normal.
    -I am in my Third and half month post/op and it feels so much better.
    -I am glad I went through surgery. Life is better now.

     
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    Old 09-11-2003, 03:12 PM   #17
    MarianJ
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    Hello Raiza,

    Sorry but I really don't have anything positive to say at this point. I am just waiting on test results and I have one more test tomorrow.

    I hope things are looking up for you. How are you feeling?

     
    Old 09-11-2003, 03:21 PM   #18
    daubie
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    Hi Tomarrow! How are you? Good luck with your echo tomarrow. When I had mine, the tech told me it looked like I had some ventricular ??? I just asked her "everything look ok?" and she told me that and don't worry about it and the doc will explain it to me. So, maybe she will tell you if she sees something (fyi, whatever it was, it wasn't serious and didn't require treatment). I'm doing low carb, lost 7 lbs since last Sat. Woohoo! I've lost 50 plus so far this year. I swear by low carb diets! Well, good luck and let us know your results! ~daubie

    ------------------
    Car Accident 2/2/02
    Herniated disc L5/S1
    Epidurals x3, PT 4 mos, some relief, but constant foot pain and numbness continued
    Microdiscectomy 6/6/03
    9/5/03 still have foot pain and numbness but recovered fine from surgery
    __________________
    Car Accident 2/2/02
    Herniated disc L5/S1
    Epidurals x3, PT 4 mos, some relief, but constant foot pain and numbness continued
    Microdiscectomy 6/6/03
    9/5/03 still have foot pain and numbness but recovered fine from surgery
    1/19/04 I am 7 mos post op. I still have the same foot pain as before surgery. Doc agrees it is probably permanent nerve damage. Started neurontin this week. Still glad I had the surgery though!

     
    Old 09-11-2003, 04:06 PM   #19
    MarianJ
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    Hello Daubie,

    I am very happy to hear that they did not find anything serious with your echo cardiogram. If the tech, or doctor tell me anything I will be right on my computer researching it. I rely on the web for so many things.

    These boards have become my family. With so many understanding and caring people such as yourself. I never thought that I could be so open with complete strangers, and I feel so grateful. I also try and give back what has been giving to me.

    Maybe, after all my test results are in and things start getting better you can fill me in about the low card diet. I just need to get strength back, but I also need to shed some pounds. You really deserve a pat on the back for your great accomplishment. Fifty pounds is great, and I am sure you worked very hard on sticking to the diet. Gosh, if I lost fifty pounds my husband would not let me out the door. He has these really bad jealous issues. He is not to worried these days with me in a brace, legs that look diseased and walking with a quad cane....lol

    I will post again tomorrow, and let you all know if they tell me anything after the test.

    Have a great night....

     
    Old 09-11-2003, 04:08 PM   #20
    StillWater
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    Tomorrow, are you taking any NSAIDS? They make me retain a LOT of water, and make my feet, ankles and legs swell. Also, some calcium channel blockers make me retain water. One day I went to see my family doctor for a sinus infection or something not related to anything else, and when he walked in, he said "you're swollen all over". I was so glad I had gone to a doctor who had known me for years and that he recognized the edema. He changed the calcium channel blocker I was taking, and it helped tremendously. That as about 10 years ago. He has since retired. I wish I could still see him.

    just a thought.

    StillWater

     
    Old 09-11-2003, 04:37 PM   #21
    MarianJ
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    Hello STillwater,

    Thank God you had gone to your doctor for your infection. I'm surprised you didn't notice that you were swollen. The more swollen I got it seemed the more stiffness I felt. I can hardly bend my legs.

    Sorry to hear that your doctor retired. It seems the older (wiser) docs really seem to get to know their patients. They almost remember everything about the patient without even reading the patient's chart. My children's pediatrician just retired this year, and I finally let my 18 year old daughter start going to my doctor.

    I haven't been taking any anti-inflammatories since my fusion surgery. But thank you for the information on them as I was not aware that they can make you retain water.

    So how have you been feeling? Have you gotten any pain relief? Have you decided on your surgery? I really felt so bad after making a post, that may have talked you out of surgery. I am happy that you found this thread and after reading all of it you may see that some of my painful recovery man not be from my surgery. Only God Knows....

    I really do wish you the best......


     
    Old 09-12-2003, 06:06 PM   #22
    MarianJ
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    Hello Everyone,

    I just wanted to let you all know that I had my echo cardiogram today. The tech that performed explained to me in the beginning that she was not allowed to tell me if she found anything wrong but she could tell me if all looked well. At the end she said that it looked great.. I really didn't think they would find anything. Unfortunately, my primary doctor's nurse called me again today. She explained that my b/w from Tuesday came back with my iron really low. She said the normal range for this test is 30-175 I was 15. They also did a test called TIBC and the normal would be 250-400, I was 519. Still not sure what all that means. Anyway besides getting an endoscopy, I also have to get an colonoscopy and a complete anemia testing at gastrologist. I have to pick up script tomorrow for iron pills and a low fat diet. They said I will now need blood work every 2 weeks.

    OK, I have had this thought in the back of my mind for about a week but I was afraid to post it. I tried researching it but came up with zilch.
    So here it goes, is their a possibility of a body rejecting rebmp-2 (recombinant human bone morphogenetic protein )? The primary doctor's are not finding the cause of my swollen feet and legs. My legs are swollen almost up to my thighs. This could be far fetched but I am trying to think off all possible causes. Also my surgery was not FDA approved because I did not have the cages. I really don't want to scare anyone out of BMP that is why I was afraid to post this. But my situation may be different as I really have this omen hanging over me for years. Anything that can go wrong around me always does....
    All reply's will be greatly appreciated, even if you tell me that I am over reacting. Please tell me that I am over reacting......


     
    Old 09-12-2003, 07:03 PM   #23
    StillWater
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    Oh, I was very aware that my feet, ankles, & legs were very swollen. And, yes, my legs were stiff, clear up to my hips. My rheumatologist hadn't been that concerned about it. I was so relieved to have this dr recognize it, not only in my legs, but in my trunk, too. I guess that was what amazed me most -- that he looked at me and recognized it ALL OVER, not only in feet and legs which are commonly swollen, but in my abdomen, arms, and face, too. I was already taking diuretics, but didn't lose all the water weight until he changed the calcium channel blocker and, if I remember right, changed to a different diuretic. I still sometimes have very swollen legs and feet, and my weight varies as much as 7 pounds from day to day due to edema. Part of that is from lupus.

    No, I haven't decided to go ahead with surgery. Don't blame yourself. It's a choice I am responsible for.

    [quote]Originally posted by Tomorrow:
    [b]Hello STillwater,

    Thank God you had gone to your doctor for your infection. I'm surprised you didn't notice that you were swollen. The more swollen I got it seemed the more stiffness I felt. I can hardly bend my legs.

    [/b][/quote]


     
    Old 09-13-2003, 05:07 AM   #24
    daubie
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    Good Morning Tomarrow! So glad your echo was OK. I'm sorry I know nothing of what you're talking about. Maybe you could call your surgeon and ask him if your body rejected it, could swelling be a symptom of that as well as the high wbc count. And, maybe you could do a search for organ rejection to see what you find on symptoms of rejection (I know it's not the same thing, but maybe symptoms are the same)? If I have time this morning after catching up on the boards, I'll take a look and see if I can learn anything. My prayers are with you that you find an answer (soon!) and that your pain decreases. Have you found any relief since your surgery? Don't forget about that guy I told you about that said he found NO relief until about 5 months post op, and he looked healthy as a horse! Well, take care and I'll post back later if I find anything. ~Daubie

    ------------------
    Car Accident 2/2/02
    Herniated disc L5/S1
    Epidurals x3, PT 4 mos, some relief, but constant foot pain and numbness continued
    Microdiscectomy 6/6/03
    9/5/03 still have foot pain and numbness but recovered fine from surgery
    __________________
    Car Accident 2/2/02
    Herniated disc L5/S1
    Epidurals x3, PT 4 mos, some relief, but constant foot pain and numbness continued
    Microdiscectomy 6/6/03
    9/5/03 still have foot pain and numbness but recovered fine from surgery
    1/19/04 I am 7 mos post op. I still have the same foot pain as before surgery. Doc agrees it is probably permanent nerve damage. Started neurontin this week. Still glad I had the surgery though!

     
    Old 09-13-2003, 01:53 PM   #25
    MarianJ
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    Hello Stillwater,

    Since you said that you weight varied from water, I really hope that is why I put on 10 pounds since surgery. I know how bad it is to put on any weight after fusion surgery.
    I am really sorry to hear that you suffer from lupus. I was unaware that lupus could cause edema. It seems as if you also suffer from other medical problems and then also have to live with your daily pain. I was also checked for lupus last year but what they found was EBV (epstein bar virus) and CFS (chronic fatigue syndrome). I have been lucky for it to go dormid this year.

    I really wish you some pain free days.

     
    Old 09-13-2003, 02:03 PM   #26
    MarianJ
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    Hello Daubie,

    I had completely forgotten about that guy you talked with at physical therapy. Gosh and I even forgot that it was you who told me. I thinks these meds are really starting to effect me. Thank You for reminding me as I remember that post gave me hope. I still have no pain relief, and I am really getting sick of it. I do see my neuro on Tuesday and maybe he can shed some light on my situation.

    Thanks for the info on how to start my search as I probably would have never thought to search organ rejection. I just never suffered with this swollen anything before and think it may have something to do with surgery as other possibilities have been ruled out.

    And don't you go searching today as you have celebrating to do, I read your other post first..

    Take Care.

     
    Old 09-16-2003, 07:57 PM   #27
    MarianJ
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    Hello Everyone,

    I went to my neuro surgeon today. He said that my swollen feet and legs are not caused by the spine. He said that it is imperative that my primary doctor find the cause. I nearly fell of my chair when he said that, as I was really hoping to find the cause. He also told me to stay off my feet and elevate them. I explained all my back, leg and foot pain to him. He did an exam and checked my incision. He was actually very kind today and spent a lot of time with me. I think today he really saw my pain. He told me that he wants me to have a cat scan to check the hardware. I am dreading that one as I still can't lie in my bed. I think I will have to take more pain meds for this one and bring my husband to help me get on and off that table. He changed my meds and doubled my neurontin to 600mg 3x a day. He also prescribed a muscle relaxant with a sleeping agent in it. I already dropped off the script so I don't remember the name. Upon checking my back he told me that I have a lot of inflammation. Unfortunately, I cannot take anti inflammatories with fusion recovery. He said the inflammation could be causing a lot of my pain. He also thinks that it is nerve and muscle pain. I did not dare bring up anything about BMP as he already told me that the spine does not cause feet and legs to swell. Guess I have to wait for the next test and results. In the meantime what do I do. I am getting tired of researching the web to find out what is wrong with me. I guess I have to schedule appointment with primary again.... Soon the weather will change and my feet will be to cold to wear my daughter's flip flops as that is all that will fit.

    I really hope that we all stay clear of this hurricane. I haven't even stocked up on anything in case of power failure. I hope that you all have a good night.

    Take Care.

     
    Old 09-17-2003, 09:33 AM   #28
    daubie
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    Hi Tomarrow! Is the swelling still as bad as it was? Regarding your inflammation in your back, are you using ice? Since you can't take anti inflammatories, ice should help, right? Boy, I sure hope you get to the bottom of this soon, it must be very discouraging and frustrating. Glad your neuro appt went well. Hopefully you'll get some answers from the ct scan. Sorry it's so painful for you. Well, take care and post soon! ~Daubie

    ------------------
    Car Accident 2/2/02
    Herniated disc L5/S1
    Epidurals x3, PT 4 mos, some relief, but constant foot pain and numbness continued
    Microdiscectomy 6/6/03
    9/5/03 still have foot pain and numbness but recovered fine from surgery
    __________________
    Car Accident 2/2/02
    Herniated disc L5/S1
    Epidurals x3, PT 4 mos, some relief, but constant foot pain and numbness continued
    Microdiscectomy 6/6/03
    9/5/03 still have foot pain and numbness but recovered fine from surgery
    1/19/04 I am 7 mos post op. I still have the same foot pain as before surgery. Doc agrees it is probably permanent nerve damage. Started neurontin this week. Still glad I had the surgery though!

     
    Old 09-17-2003, 11:25 AM   #29
    TexMich
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    Hi Tomorrow!

    Sorry about your swelling problem - especially while you're just trying to recover!

    Question - & certainly the docs you've been seeing have addressed this - but just don't want to leave any stone unturned in getting you better asap! I read that a side effect from Neurontin can be swelling. Not to take away your pain relief if that drug works for you - (I personally didn't like it & used it for just 1 wk)) - but perhaps they shld substitute a different pain killer (one that hopefully doesn't have swelling listed as a side effect!). Also, surely they are very much aware of ALL drugs you take & made sure none re-act adversely w/the other. But I'd ask & be sure. Also,
    are you also taking any anti-depressants or anything else that might be the culprit? Altho you might have taken a specific drug/medication in the past w/o problems/side effects - when combined w/other drugs- new side effects can happen. Also, people's chemistries can change & a drug they took last yr can now cause allergic reactions. Happened to me w/Celebrex when I started having sciatica - I'd taken sulfazadine for several months 5 yrs ago & never again - then took ONE Celebrex (has sulfa) -and broke out all over in hives.

    One last personal thought- I'd call my PCP & get an answer to any by itself or combination of the above meds possibly being a cause of your swelling - but also- for your peace of mind-& just in case it's a possible lead- also ask your doc if this could possibly be your body's reaction to the BMP. Pls don't be embarassed to ask. You have every right to ask & receive answers to any of your concerns - esp since none of these docs have come up with the cause yet - ALL possible causes need exploring.

    Best of luck to you in finding answers very very soon!

    Laura

    ------------------
    Mar 2003:Micro-Discectomy w/Hemilaminectomy L5-S1
    Prior to that 4 mos of Sciatic pain; left side
    Herniated Disc L5/S1
    Bulging Disc L4/L5
    08/20/03: At 5 mos post-op: Doing well - requested PT - into 5th wk now - finding the strengthening/stretching exercises are helping back tightness - but only temporarily. Back & abs are getting stronger to support spine. I Recommend PT after 3 mos post op. Started mine @ 5 mos, has not removed constant extreme feeling of tightness,pressure,
    pulling & am currently concerned it is scar tissue adhering. Looking for approp. Doctor to help me confirm this & appropriate treatment for it.
    __________________
    10/02:Per MRI: Hern.Disc L5/S1 * Bulg.Disc L4/L5
    03/03:Micro-Discectomy w/Hemilaminectomy L5-S1 (left sd)
    08/03:PT @ 5 mos post-op for 6 wks: Results: Back & abdominal strength MUCH better - stretching exercises help only temporarily. Heavy feeling of pressure, restriction thru-out incision area post op. ~scar tissue adhering?
    To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts.

    11/03:Working with "Rolfing" expert to release scar tissue - Jury's still out on this procedure

     
    Old 09-17-2003, 01:24 PM   #30
    MarianJ
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    Hello Daubie,

    The swelling has gotten worse. That is why I am so concerned as I don't want them to stay this way and really want an answer. As for the back I have tried ice but probably not as much as I should. Gosh if I would put in on my back as often as I eat it, It would be an ice cube....lol

    How have you been feeling? I hope that you were able to celebrate your winnings over the weekend. Sometimes good news brings our spirits up so I hope that you had a good time.

    Take Care.



     
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