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Dural Ectasia?

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Old 01-19-2005, 04:11 PM   #1
Lynn Dell
Join Date: May 2001
Posts: 5
Lynn Dell HB User
Dural Ectasia?

Fifteen years severe chronic lower back, hip and pelvic pain pursuant to traumatic childbirth. Many diagnoses, for the past several years going on the premise that I suffered an SI joint injury during the delivery along with the documented 4th degree tear and that the scar tissue from the latter has interfered with recovery from the former. Two years of prolotherapy injections should have nailed down the SI joint and no one can figure out why it remains hypermobile.

Just saw a new physiatrist, who commented on my loose joints. In researching hypermobility, I came across the connection to Marfan's, Ehler-Danos, and other connective tissue syndromes. While I am 5'8" and generally slim rather than heavy, and yes, a little double-jointed, no one has ever suggested Marfan's to me. However, I do know that I have a dural ectasia, because multiple sacral (Tarlov) cysts were observed on my most recent MRI. I went to see a specialist about these cysts, who told me mine are "too small" to account for my symptoms and that more likely the biomechanical causes were the issue. He never mentioned that dural ectasia can be caused by trauma and can create problems in and of itself.

My continuing joint instability and the seemingly progressive nature of my condition -- I can no longer lift anything and have great difficulty with stairs -- makes me wonder if that specialist was maybe not so special.

Any thoughts?
10 years chronic pelvic pain from traumatic childbirth...still searching for the real diagnosis...

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