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New here and I have tons of ???'s

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Old 03-18-2005, 07:47 PM   #1
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schooldriver HB User
Smile New here and I have tons of ???'s

But I'll only ask 1 for now. Its just something I've been really curious about for awhile now.1st just a little info.Lower back pain that radiates to left hip down left leg and into toes(numbness tingling).OK now the question. I was Rx'ed neurontin for nerve pain .ok still with me (lol) But the doctors(pcp, neuro)tell me that there isnt any nerve root compression, EMG was normal, so why the neurontin? I just dont get it Thank you for any and all replys Barb

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Old 03-18-2005, 08:23 PM   #2
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Re: New here and I have tons of ???'s

ok the ? was kinda stupid i know but i guess what im wondering about is if they gave me neurontin and even though i have the symptoms of a pinched nerve why would theyrx it to me when there isnt anything to warrant it according to the docs? hope this makes more sense. thanks Barb

Old 03-18-2005, 08:34 PM   #3
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Quietcook HB UserQuietcook HB User
Re: New here and I have tons of ???'s

Beats me, but if you have numbness and diagnosis of no nerve compression, you may wish to seek a second opinion. Is the neuro a surgeon? The neuro that wanted to treat me with neurontin wasn't a neurosurgeon but felt he could help make things more livable. He didn't say anything about needing frequent liver testing while on neurontin (but my primary did), but did admit that it would not "cure" the problem.

One word of caution since you have numbness and tingling. I wasn't aware then, that when a nerve is compressed enough to cause the pain, numbness, etc., if the pressure is relieved by 6 months yu have pretty much a chance for full return to feeling and relief of pain, but it drops to about 75 percent at 9 months of pressure and to about a 50 percent chance at a year or more. Wish I had known, as the toes on one foot have been numb for several years and I'll never get that feeling back. Hope you will seek out some other opinions perhaps with ortho and/or neuro spine specialists. If you do, sign out your films and get a copy of the reports to take with you.

Best wishes for relief soon.

Old 03-18-2005, 08:49 PM   #4
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sandollar HB User
Re: New here and I have tons of ???'s

Not to worry, NO question here is stupid, it makes perfect sense. I know if it was me, I would call the Doctor who gave it too you and ask why the meds if there isn't a problem. I would also have another Doc check it out as well.
The weird thing is, I was posting on here not too long ago with the same symptoms, I thought for sure it had to be from the surgery and a nerve was compressed. But my Surgeon took 5 Xrays (I went in after I couldn't walk anymore) and he told me I had Bursitis in my left hip and gave me an injection of Novocaine and some kind of steriod mixture directly into the hip.
I got home and online, I didn't have one single symptom of Bursitis, but I did find the symptoms were for a compressed nerve.
24 hours later I had no pain at all and a large area of water came to the surface, so I guess he knew more than I did.
Have you had an MRI done? If that one says it's not a nerve, you might want to ask him about the muscle and joint in the hip.
My pain began in my lower back and over to my left hip and down my leg as well.
Good Luck to You, I Pray it's not a compressed Nerve, but if it is, He does the right test to find it.

Old 03-18-2005, 09:56 PM   #5
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Re: New here and I have tons of ???'s

Thank you I'm glad I decided to join this board.I've been reading the posts. Very informative and friendly. I've had this pain for almost 1.5years started out of nowhere 2 mris,2 emg's, 1 facet inj.(made it worse) 2 ESI's 1 SI inj.0 relief. I also have work that I actually enjoy, but have a very hard time doing.(School Bus Driver special needs).I'm sure you can imagine !!! Sorry couldn't resist.but anyway I'm scheduled for nerve blocks but thats not til May.I can call 2 see if their are cancels. Mri and Emg's came back neg.Mild degen changes l4/5 l5/s1.and hypertrophy facets(mild)and other stuff about t-spine. No pain there.Well I could go on and on but my body wont let me its late and I'm getting tired.thanks for taking the time out and reading. Btw its a neurologist. Was referred by the neurosurgeon my pcp referred me to. sometimes i wonder Barb

Old 03-18-2005, 10:12 PM   #6
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taape HB Usertaape HB User
Re: New here and I have tons of ???'s

I have numbness and tingling in my feet and nerve pain. I was told that no nerves were being compressed but I still have the pain. I asked why and was told that possibly disc material from DDD was leaking and irritating the nerve in my feet. I was given Neurontin which can I guess work on the pain whether the nerve is compressed or is being irriatated by something else. Does that make sense?

Old 03-19-2005, 07:51 AM   #7
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Re: New here and I have tons of ???'s

I think what tappe said is it, I was on neurontin for some time before I ever got my diagonis because of the symptoms you are having schooldriver, it is believed to work on nerve pain for whatever the reason.
Nuerontin is an anti-seizure medication and is used in pain management for nerve pain, they have no idea how or why it works just does.
I never got any relief from it and I would talk to your dr about it more if I was you as the side effects from this can be bad and it ususally takes a pretty high dose to be effective.
If your name is an indication of your occupation this may not be a good med for you anyway as with myself and many this med can cause confusion, forgetfulness and plain brain fog.....To mention a few...
So ck it out and good luck, mine ended up being S1 nerve damage and it took an EMG to find out and is now permenat..

Good luck.Linda

Last edited by jdlfmc; 03-19-2005 at 07:52 AM.

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