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25/female with Sciatica, Spinal Stenosis and other."Sorely" need advice on treatment

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Old 04-27-2005, 12:37 PM   #1
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Abrie25 HB User
Angry 25/female with Sciatica, Spinal Stenosis and other."Sorely" need advice on treatment

Hello, thanks for taking the time to read this people.(This is about 5 paragraphs long, just to let you know) Its more than some doctors would do and i really appreciate it.
I am a 25/F and I have had MRI's and xrays done on my back. I was diagnosed with severe sciatica, spinal stenosis and other things I do not remember the technical names of. That was in the summer of 2003 and I have been suffering from pain since i was 13. It has gradually gotten worse and by teh time I was 18 I was having spasms from hell. The kind that woudl arise out of nowhere and keep me from moving a muscle. When i get these I have literally had to drag myself everywhere. A coupel times i was floor ridden for 2 weeks before it subsided enough for me to move. Its the most excruciating electrical pain I have ever felt in my life and i never know when it will come on. I have held in my urine bc i was deathly frightened of teh pain i would endure on the toilet, just sitting down!

So i talked to a neurologist a couple of years ago, teh one who sent me for xrays, and mri's and he basically todl me i had a severe condition and teh only thing he can think to do is give me cortisone shot and or surgery if needed. I am 25 ! Holy F***. Well, i was with a place called vocation rehab at the time which promised they would pay for a cortisone shot or surgery as i cannot afford it and i have no insurance, and then the lovely people backed out on me.

I was 23 then , i am now going to be 26 and i experience back pain like you wouldnt beleive which radiates all the way down my legs to my toes. It really makes it hard to live with and i can barely sit or stand for 15 min. I have to keep resituating myself or stand up , i just do intervals of both and i look like im antsy and cant sit still. But what else can i do ?? So, Its gotten to the point where i am actually becoming accustomed to this pain but it has ripped thorugh me emotionally and I think it may have spread through my whole body bc every part of it aches now and cracks . I bet i have arthritis as well, Its not common in people my age but it does happen, i mean its not rare.
Another doctor I went to recently was an ortheopedic and he took a look at my xrays and told me that he was surprised i wasnt in a car accident bc i had what looked like injuries more than conditions. I also had the xrays of an old person. Thats comforting to know. You know what he suggested when i asked him if i could get a cortisone shot? ( I got a new counselour at voc rehab, and she said she would help me get the cortisone shot through another doctor) This doctor said that he didnt reccomend it and that iw as too young and he wouldnt do t to his own daughter. He told me to build up my muscles , my abs to strenghten my back and do swimming exercisies. I am in tears as i type this bc that is something i cant do. I hurt too much to even do that, all over my body.

So my question is, who can i go to get the help i need, Where can i turn? Can i possibly get SSI for this. I am not to the point where i cant walk but its very difficult to do everyday things. I just want to feel better and normal at this age and i cant. I wake up in the morning feeling like someone has beat me to a bloody pulp, liek teh way you feel when you have teh flu , but worse. Sore all over my body , every inch. It hurts to even move my arms and i crack a lot. My neck is the worst. Its very stiff and everything is just always cracking or crackling. I think that is a sure sign of arthritis . I cant afford a chiro so thats out of teh question until i get a fulltime job with benefits. Im not even in a job right now, i just go to school(finishing up my medical secretarial certificate) but i am looking for work and im so scared i wont be able to function and they will fire me b/c of my condition. What can i do for myself? Massages? Physical therapy? Shoudl i demand treatment from this place that supposedly helps with dissabilities. If i was accepted for this condition, its obviously a dissability right? Any help would be greatly appreciated beyond comprehension. Thank you for listening.

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Old 04-27-2005, 01:13 PM   #2
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Join Date: Apr 2005
Posts: 38
victorsch HB User
Re: 25/female with Sciatica, Spinal Stenosis and other."Sorely" need advice on treatment

Sorry to hear of your excruciating pain.

It sounds like your symptoms do need immediate attention. Perhaps someone out there who knows what region of the country you are in can pull some strings to get you the help you need.

You do need intervention, however, and sooner than later.


Old 04-27-2005, 02:10 PM   #3
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Join Date: Nov 2003
Location: Missouri
Posts: 2,128
carol632 HB User
Re: 25/female with Sciatica, Spinal Stenosis and other."Sorely" need advice on treatment

I think you are going to have to go doctor shopping. In other words, see one doctor after another until you find one who is: willing to help, compassionate, and knowledgeable. Your best bet is an orthopedic spine specialist. With stenosis, there is no exercise that is going to help...period. If you are not a candidate for surgery then you need to find a pain management doctor who does not rely on injections only. The problem with the injections, at any age, is that they can cause bone thinning and other serious problems if you get too many of them. That's why he made the comment about you being too young for them. However, if they are kept to 3 a year, there is no reason not to try them. The bigger trick is finding the right doctor....something most of us have had plenty of experience at doing. It isn't always easy, but if you want any quality of life, it is something you must do.

Good luck...I hope you get lucky and find a really good specialist very soon.

2 lami's, 3 fusions
bone spur removal
cerv. fusion, 1 level
morphine pump

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