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injured betty-shed some light

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Old 05-27-2005, 06:56 PM   #1
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iearnmom HB User
injured betty-shed some light

I need help finding a doctor. I already saw a neuro surgeon, chiro and a pain clinic.The neuro said I should quit trying to find the cause of my pain and get on with my life. The chiro has done 1 1/2 years of therapy on me and he admits he still don't know for sure where the pain is coming from. The pain clinic has given me about 10 shots total in different areas. I've had a discogram, facet blocks, and injections. I've had an MRI that only shows 3 slightly bulged discs. None of these dr's know for sure what is wrong. They only tell me what ISN'T wrong. I know you've had a few years of SI joint problems. Tell me the symptoms you had. Mine are low right side back pain. NO pain down any leg. Can't sit for any lenght of time. Bending is painful. Pain is almost 24-7. What other doctor can I try? I am an ironworker and I am almost to the point where I cannot work anymore. I have a super physical job that demands awkward body positioning and very heavy lifting and bending. Please help. What else can this pain be? Thanks....

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Old 05-28-2005, 10:25 AM   #2
injured betty
Join Date: Feb 2004
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injured betty HB User
Re: injured betty-shed some light

Where to start?

I tore a ligament two years ago. They call it a sprain. It was my SI ligament. I had never heard of that before. I couldn't sit, stand, lay, or ride in a car. My job, at the time, involved lifting, twisting and bending and heavy labor, which I loved. I was in so much pain.

The Chiro told me to walk. Yeah, right. I could walk fine, and still can, and it never hurts as long as I am walking and not stopping, even at lights.

Another Chiro told me that it was a disk problem and put me on some new fangled McKenzie table and whacked my disk and I could not walk for a couple of weeks. I was literally crawling.

The original MD sent me to a DO who diagnosed SI dysfunction. I had MRI's, CT scans, X-rays, pain meds (none worked, not one, they tried them all), anti-inflammatory meds, ice, moist heat, stretches, accupunture, white noise therapy, hypnosis, PT, and an ESI. None of it worked. The only time that I felt relief was when I was sleeping or walking. One night we walked for twelve hours straight, no stopping, in down town New Orleans. I had blisters on my feet. I just wanted to be pain free.

I had the straight leg test, manipulations, and it all proved loose/ torn ligament.

I have pain running from the dimple in my buttocks, around my hip, to my groin. When I walk, I can feel that my leg is out of kilter.

So, the DO sent me to a spine specialist. He does Prolotherapy. I had it done a few times and it tightened up the joint. I was no longer loose and I went on with my life. But, the pain returned. I don't know if it was because I am manic and don't feel pain during periods of mania or if I re-injured myself.

I went back in, saw the spine specialist again, and am set up for more Prolotherapy. This time I am going to do it one more session than is necessary. Insurance won't pay for it. You have to have cash. I would take out a loan if I did not have cash.

You have to search out Prolotherapists, they don't advertise. Also, check out their back ground, completely. Make sure that they have been doing it for at least ten to twenty years. The guy down the street who started just last week, is not going to be a good thing.

I have run the gamut of specialists. I have had every test. I have tried all of the meds. Prolotherapy was my last hope.

The doctor that I see is board certified. He is a keeper.

I hope that this answered your questions.

Old 05-29-2005, 04:34 PM   #3
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iearnmom HB User
Re: injured betty-shed some light


What is a DO? Your kind of symptoms sound almost identical to mine. I love walking also. It is when you stop to do anything else that it hurts. What state do you live in? I found a listing of doctors in my state and I am going to check them out per your advice. You would think that there would be a way to tighten that joint up again that would be more permanent. I am going to do some more investigating. I will keep you informed. If I find some relief of any kind, I will let you know so it may help you too. Thanks a lot....

Old 05-29-2005, 08:56 PM   #4
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Quietcook HB UserQuietcook HB User
Re: injured betty-shed some light


Last edited by Quietcook; 07-20-2005 at 11:39 AM.

Old 05-30-2005, 10:00 PM   #5
injured betty
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injured betty HB User
Re: injured betty-shed some light


I had a bad day. Can't sit, too sore to walk and it is too hot to do much of anything else.

I just re-read your post. As to the physical part of your job, that might be over. I was told that bending and twisting were no longer part of my life.

Even if they tighten up the ligament, which they did before, I have to be careful. No more hip swishing dancing. No more bending backwards. No more hula hoops. No more twisting at the waist while trying to get something in the back seat while I am in the front seat of the car.

Quiet cook is right about a DO. They are loyal to their patients. My grandmother had one her whole life. She lived to be 100. She just passed away two weeks ago.

I would go to see a physiatrist if you can afford it. Make sure that it is one that can do manipulations. Call first. I made the mistake of thinking that all of them did them and hit a bum steer or two along the way of finding one.

That doctor will have no stake in whether or not you have surgery. That doctor can tell you if it is SI dysfunction just by a leg raise test and feeling your joint. SI dysfunction seems to be a new buzz word and catch all lately when they can't figure out what is wrong and you feel loose in the joint. I was looking back in my husband's file and it is in his file also. He must have magically disappeared because he is not complaining. His pain was in his neck.

Did you have some sort of accident that caused your SI to go out on you?

A simple test is to lay a level on your hip bones when you lay down. That will tell you if you are level or not. When your SI is messed up, your pelvis is twisted and you won't be level. If you look at pictures of the pelvis, you will see that your pelvis is kinda like a square. If you are out of kilter, like I am, then they can put you back, it is just a matter of staying that way.

Have you tried an SI belt? Taping? Corset?

There has to be a reason for your pain. Try trigger point injections, accupunture, something alternative.

Good luck,

Old 06-03-2005, 07:59 PM   #6
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iearnmom HB User
Re: injured betty-shed some light

Betty and Quietcook,

I have been busy signing the medical release forms for all my doctors. I want the records sent to me so I can take it to a DO or a spine specialist once I find one. I am trying to do my homework before I get taken again! I see my neuro doctor on Tuesday. Yeah, the one that says I should get over trying to fiqure out the problem and just get on with my life. I am going in there on Tues with an attitude. I am telling him like it is. Letting him know how painful my life has been since the last time I saw him. If he gives me the runaround again, I am getting my records from him too. Work today was unbearable on my back. I tried to sit and watch a movie with my husband and I just fidget the whole time trying to get comfy. I just pray that nothing is seriously wrong and I have been working every day for the last year and a half on a serious problem. Thanks for all the help guys. I'll keep you posted....iearnmom

Old 07-19-2005, 08:00 AM   #7
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Dawaditty HB User
Re: injured betty-shed some light

I hope you get this. I have all types of pains throughout my body. Some reasons for your pain does not show up in many tests. This might sound crazy but the type of doctor that helped me the most is an Auto Immune Specialist. There are several types of Auto Immune Deficiencies that causes so many types of symptoms, pain being the biggest. The one I am going to is involved in research and is on top of things. People don't realize that arthritis is an immune deficiency. I have several things wrong with me that has been confirmed by different types of doctors. On top of this one of my problems is a pain disorder, my pain is enhanced enormacely higher than most people. My nerves are also inflamed. The pain specialist I went to injected dye each time he did a spinal block to x-ray and see what the nerves were like. This showed up so much more than other tests. The Immune specialists understands pain and I am grateful that she will give me whatever I need to ease my pain. Hopefully they will have one in your area. If so it would be worth you checking into.
Hope this helps.
Good luck

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