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  • Stabbing nerve pain You?

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    Old 06-25-2005, 09:40 AM   #1
    ladybird988
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    Stabbing nerve pain You?

    Hi. Do any of you get the real bad level 10 stabbing knife like nerve pain in your leg or foot? I take neurontin which stops most of it, but sometimes I get breakthrough pain, and it is just unbearable. I take a percocet or two if it's real bad and lay down and scream and stick it out. but it leaves me exhausted and terrified afterwards.

    I get the stabbing knife pain, the deep aching and sometimes the electrical charge, always numbness, tingling, sometimes broken foot feeling and sometimes it feels like walking on glass or glass shards in the foot, or feels like a broken foot with glass in it at the same time, but luckily no burning pain. The neurontin is supposed to cover most of that and does, or at least keeps it mostly under control except when it breaks through and goes berserk.

    I asked the doctor if this is normal for it to get this bad during the healing process a year after surgery and he said yes. But he said it will ease up over time and to take the neurontin for pain control and to calm it down so the nerve heals.

    EAch day is an ordeal, some more than others. Some days are okay, as in less pain, others are horrific. Have any of you had this and gotten better? How long did it take? I can't believe pain like this could exist in the human body and a person could survive it. No one else knows what it's like and it scares them when I'm screaming.

    Mine came about due to a herniation at L4/L5 that resulted in foot drop. His prognosis is positive that the foot will recover in 3 years.

    I use ice packs and lay down. Taking vitamins. But really, I can find nothing else other than strong painkillers to ease this pain. Can you?

     
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    Old 06-25-2005, 12:40 PM   #2
    jdlfmc
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    Re: Stabbing nerve pain You?

    LB, I could have wrote the same post...
    I can only say if that pain would ever stay and not let up I couldn't survive it.
    I ave permanantdamage to the S1 nerve so I get it in both legs and feet, I recently had a SCS implant done and when it worked it was great but I had to many comlications and had to have it removed.
    I have been on several anti-seizure meds but they didn't help and I had so m any side-effects.
    Though however the dr is going to try switching meds again to see if I can get some relief since the removal of the stimualtor.I haven't had any spine surgeries as my conditions are not operable and I'm told from here on prayers not to get worse is the best I can do.
    I take several pain meds and use the ice and rest it is the only things that give me any relief.
    I hope that your pain gets better as you heal and wish you the best.
    Linda

     
    Old 06-25-2005, 04:37 PM   #3
    pooby
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    Re: Stabbing nerve pain You?

    Took me a full year to barely recover from fusion. I had excruciating unbearable pain for the first three months making walking impossible. So you are not alone. Nerves just don't settle down the same for everyone. All of us are individuals and our pain patterns are unique to each of us. Some people will state that they have a really high pain tolerance. They actually take pride in this. A high pain tolerance doesn't mean that a person is just stronger it simply means that because of their brain chemistry they simply do not feel the degree of pain that others do. The longer a person is in chronic pain the lower the natural morphine like chemicals in the brain. Hence you don't become more able to tolerate more pain on the contrary you are able to tolerate less. Another words your pain tolerance lowers. Neurotin has not been that benefical to me and I recently heard a pain specialist speaking who recommends 1800 to 2500 mg before there is a real notable effect on nerve pain. Of course we are pretty dozy on that....lol I am pretty dozy already. Hang in there it can get better but back surgery is not the panacea that some would have you believe. There is no 100% return to normal and you will always have a vunerable spine in the future. So take care and try to protect yourself from any further damage.

    Hugs,

    Last edited by pooby; 06-25-2005 at 04:38 PM.

     
    Old 06-25-2005, 07:33 PM   #4
    Rob61
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    Re: Stabbing nerve pain You?

    Hello ladybird988

    I don't post as much as i read here but, i have had a failed L4-L5 L-5 S-1 fusion rods bone dowle the works, with nerve damage. And i know what you mean by the deep pain. I also get the pain as if someone is smacking the bottom of my feet with a stick.

    I also am on neurontin my pain doc just up it a lil because my leggs are at time killing me, getting up is a lil slow walking standing wee i don't have to tell you lol.

     
    Old 06-26-2005, 06:10 AM   #5
    mkf
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    Re: Stabbing nerve pain You?

    Please tell me what surgeries you all have had. I could go back and research all the posts - but frankly, I guess I'm a bit lazy (LOL).

    I have this kind of pain after my hemilaminectomy and am now going back for another mri as soon as wc will approve. I have more pain now than I did two months ago and that doesn't seem right. Perhaps my mri will find nothing new and I'm just being paranoid, but if I'm told I need fusion later am I just facing more of the same pain? If what I'm dealing with now is what I have to look forward to - and I know, it's only been 3 1/2 mos - it could still improve quite a bit - I just get so frustrated. I can't imagine what some of the rest of you must be dealing with after fusion. It scares me to think about the possibiity of more surgery.

     
    Old 06-26-2005, 08:04 AM   #6
    bob c.
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    Re: Stabbing nerve pain You?

    Hi Ladybird,

    i also could have wrote your post almost word for word.i'm just over 10 months post-op 2 level lumbar fusion. i woke up in recovery with pain and numbness from my waist down on my right side and the nerve zingers soon followed. overall pain and numbness is much better and the nerve zingers are less frequent but still very painful. i've tried 3 or 4 meds but none seem to help me at all so i have not taken any in many months. when it gets real bad i use ice and heat switching off between the two until one seems to help usually heat works best for me.

    i do have an almost unbeilevable story about what happen one night with the heating pad. the zingers can happen to me anywhere from my toes up to about mid-calf. one night i was having them real bad just above my ankle. after a few hours of no sleep and lots of pain i decided to try heat again.( i use one of those microwaveable pads) i put the pad on over my pulled up sock and it work so well i quickly fell asleep. when i woke i had second degree burns on the outside of my leg. never felt any pain from it because of my leg numbness. now i have another nasty scar to go with my surgery incisions.

    anyway, i hope that for all of us that this all goes away someday and i will never give up on that hope. my back is doing very well, it seems i had surgery to trade back pain for leg pain. maybe someday i can prove that statement wrong but if so i can tell it will be a long while before i can say that.

    i guess i'm not alone with this nerve crap but it gives me no comfort to know others are suffering also. i really hope we can make a full recovery!!!

    good luck all,

    Bob C.

     
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