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    Old 07-06-2005, 03:12 PM   #46
    BettyJ
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    Re: Radicular Pain & Topamax?

    The femoral nerve damage I suffered was a paralysis at first....then slowly it got stronger over a period of about 6 wks....and then, the side of the knee stayned numb for the longest time...till about 3 1/2 yrs later....now there are times I forget all about it...I never had any pain at all with that problem.....just numbness and weakness in the leg....

    The other comment I wanted t make was what someone said earlier about an EMG being a definitive test.....I just had my third EMG in 5 years, and still do not know what my problem is.....if an EMG is being conducted on the S1 nerve root, good luck! This dr told me no more than I already knew......he claims the S1 is too complicated to weed out the nerves.....unbelievable I know that all dr's cannot come up with a standardized thought process about the EMG....but based on the fact I have had so many, I am not impressed with it at all....hope it works better for you...

     
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    Old 07-07-2005, 05:39 AM   #47
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    Re: Radicular Pain & Topamax?

    Be careful with the Topamax. My wife was taking it for migraine prevention and lost her eye sight for 3 weeks. It's not well known but a severe side effect is Acute Glaucoma & Myopia. It was a nightmare!!!

     
    Old 07-08-2005, 09:39 AM   #48
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    Re: Radicular Pain & Topamax?

    Thank You & Yes, I'll be careful. I don't think I am suppose to be on Topamax for long, it also causes Kidney Stones, and they run in my family really bad.
    StarDust

     
    Old 07-09-2005, 07:29 AM   #49
    BettyJ
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    Re: Radicular Pain & Topamax?

    I heard Neurontin does the same thing regarding kidney stones.....no one told me when they first gave it to me, in spite of the fact I had listed having a kidney stone in previous to my appt with the dr who gave it to me......and I can say with some certainty that if you have a kidney stone that starts to move.....you don't ever want to get another one...worst pain I ever felt, made child birth seem like a minor inconvenience......before my ordeal began in 1999, I thought the FDA was an extremely thorough organization, but since 99, I have come to believe that many drugs are not thought through enough before putting it on the market....whose fault this is, I don't know....but now, I am just not as trusting a person when it comes to meds, tests, etc...

     
    Old 07-09-2005, 09:40 AM   #50
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    Smile Re: Radicular Pain & Topamax?

    Well Betty what you said "made childbirth look like minor inconvenience" is why all of these experiences are so individual.

    I have actually blacked out from severe nerve pain so I would say it was somewhat bad. But childbirth for me was days of pain and pushing for hours of excruciating pain. I couldn't feel my arms or legs and blackness surrounded me. I hyperventilated after all my breathing practices went out the window. In fact a nurse said to me (43 yrs ago) in throes of labor "don't be afraid to cry out dear there are no medals for bravery here". On the other end of the spectrum other women experience menstrual like pain and give birth easilly.

    They aren't any braver and their pain tolerance is strong simply put because they don't feel it. They have higher levels of morphine like chemicals in their brain. So no medals for high pain tolerance and no judgements for less. Chemicals have a lot to do with it not some kind of superior endurance.

    Same thing applies to backs. If you haven't felt severe nerve pain you can't possibly know how devastating it can be. Pain is a highly individual thing. Judging the severity of your pain is another thing. A 10 for me is drooling at the mouth unable to speak. Screaming is out of the question you simply do not have the strength. You are deep in a black abyss. For others limping along with severe pain racing down their leg knifelike is a ten. To me that would be an 8. So interpetation of pain is highly individual.
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    Old 07-09-2005, 10:43 AM   #51
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    Re: Radicular Pain & Topamax?

    I have to say I had emergency c-sections and was put to sleep, However I do remember the severe back pain back 30 years ago when we didn't get much for relief.
    My youngest daughter let me watch my Grandson being born and I was surprised to see the Epidurial that kept her from feeling ANYTHING. They only turned it down long enough for him to be born ( a minute or 2), and she screamed 1 time, the Doc told her to shut up, close her mouth and use that energy to push with, then turned the Epidural back on.
    We had it ruff way back when. I remember getting shots for pain that never did do anything.
    So, other than waking up from the C-Section for the first time, My leg is running very close to the same pain, only nothing makes it go away.
    Stardust

     
    Old 07-09-2005, 10:45 AM   #52
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    Re: Radicular Pain & Topamax?

    Oh Yea,
    My Daughter was butt first and during the emergency's back then, they cut you from the navel all the way down, just to get the baby out.
    Stardust

     
    Old 07-09-2005, 04:18 PM   #53
    BettyJ
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    Re: Radicular Pain & Topamax?

    Well of course pain like many other things in life is an indiviual experience, goes without saying......and trust me, I know people who have had horrible experiences, but said it didn't hurt....whereas if it were me, I would have been begging for mercy....I am not sure if you are trying to make a point, but of course, some people have so much more pain tolerance....I wish I did....and then life would be good....

    For me, I had natural childbirth the second time around.....with no pain med or anything that diminished the pain....and I still say....my kidney stone experience was the worst thing I have experienced ... I was laying clenched in the middle and the dr's had to pry me apart to examine me.....unbelievable experience, one you never quite forget.....I am not sure why chronic pain knocked on my door, because it chose a real tender foot.....however, I will endure it till I can get it fixed

     
    Old 07-09-2005, 05:17 PM   #54
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    Smile Re: Radicular Pain & Topamax?

    The only point that I would make is that some people wear their pain tolerance like some kind of badge of honour and make others that are really suffering feel like cry babies. Others seem to be in some kind of contest as to who has the worse pain like it is some kind of competition. Unbearable pain is unbearable pain the source is really not that important once it gets unbearable it just is so.

    Who hasn't seen medical staff that were less than caring with a painridden patient. Doctors that don't even acknowledge their patients as if their pain is in their head or something to be ashamed of. They are all out there unfortunately. Back pain can be excruitiating and if it gets bad enough it will devastate the most stoic amongst us. If you read these posts you will read of flippant uncaring physicians and thank god they are in the minority. The most important thing is that the pain is treated as best as medical science allows. For many on this board in particular adequate pain management is the best they can hope for. Hopefully they will find some better nerve medicines down the road other than Neurotin or Topamax, ones that don't have the side effects.
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    Old 07-09-2005, 06:13 PM   #55
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    Re: Radicular Pain & Topamax?

    Betty,
    I know COMPLETELY what you mean about the Kidney Stones. I never want to go through that again either.
    I had a Doc who I saw recently and had to fill out the normal forms to see him (a first visit). When it asked if I ever had a Kidney Stone, I put yes.
    He informed me that Women DO NOT GET Kidney Stones, only Men do.
    Needless to say, I don't see him anymore.
    Sometimes I wonder if a few of these Doc's got through Med School on drugs or something .
    Stardust

     
    Old 07-10-2005, 03:42 PM   #56
    BettyJ
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    Re: Radicular Pain & Topamax?

    You know Stardust, I couldn't agree more......I had an EMG last week, and the doctor basically ignored the main issue, and started comparing me to a phone cable wire.....as if I wouldn't be intelligent enough to say....."a nerve from the S1 nerve root is not sending a signal in your hip and down back thigh"......he didn't say this at all, I had to deduce this from the paperwork he had in front of him.....

    because of my experience, I just don't have the same confidence I used to have in the medical profession......for instance, when I had a schwannoma tumor removed from my spine almost 2 yrs ago, I asked the nurse on the surgical floor if she could look on my records and tell me what type of tumor I had.....my dr was not due to come back that evening.....she went and come back and said, "I had to write it down, because I can't say it".....and then she said..."whatever it is"...."I have never heard of it before"....I was shocked.....I can understand needing pronunciation help, it is a weird looking word, and I am not even sure I am spelling it right here....however, one would think that at some point in nursing school, she would have covered the subject of tumors......likewise, with dr's, many of them were not familiar with it either......you were wise to choose another dr......unfortunately, at times, I haven't been as quick as you to see the red flag....and get out before it is too late.....I guess we women who get stones must be a fluke of nature huh?

     
    Old 07-12-2005, 02:20 PM   #57
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    Re: Radicular Pain & Topamax?

    Hey Guy's ,
    I just returned from my first visit with the new PM guy, His PA is so cool and understanding, she even has part of her hair striped pink! But I don't care if her hair was green as long as she knows what she's talking about. And trust me when I say I went in there armed with knowledge. I did my research first.

    Anyway, she is really cool, Then I saw him and he is great! So far so good.
    He said it is definatly the Sciatic Nerve (I already knew that-just testing him ), He told me not to take the Demerol from the family Doc cause it is highly addictive and wants to put me on Methodone, However since I have been on Xanax for 12 years, I think the 2 of them clash and it would mess up my Xanax, and cause severe Panic Attacks again, so I put in a call to my shrink to verify it before I try it. He said do not take the Topamax due to past Kidney Stones and the person who prescribed it must be stupid (he said that, not me). I didn't start taking them yet, Thank god!

    He IMMEDIATLY set me up for an EMG, MRI, Massage Therapy, Trigger Point, Accupunture, more massage, He can also do the next Selective Nerve Root Block, but I told him I would rather my Surgeon did this last one, etc. So he will begin all this Tuesday. With appts twice a week on Tuesdays & Thursdays.

    I told him how badly the Nerve Block Burned and how I was screaming, he said he doesn't know what the Surgeon did, but his is not painful. However he is not completely set up here yet with his Flouroscopy Machine, so I don't want him doing it, he said: No Problem. The very first thing he is going to do is make sure there is no pinched nerve anywhere.
    So Far, SO Good,
    StarDust

     
    Old 07-12-2005, 04:54 PM   #58
    BettyJ
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    Re: Radicular Pain & Topamax?

    Hey Stardust, I am pretty new to this board.....refresh me with what your situation is....you say that you have sciatic nerve pain....is it primarily in your hip or leg???

    I noticed that you mentioned massage therapy.....one thing I can assure you is that you need to find a massage therapist who is really good with stretching you out.....you will find that stretching is a big part of getting rid of sciatic pain......the last PT I went to told me that by law they were not allowed to do the stretching that I had gotten from a massage therapist......remembering back, when I had the good stretching, that was when I was feeling my best....however, I didn't continue that after the tumor was removed.......live and learn I guess......but I will not go to another therapist unless I find someone who is versed quite well in stretch therapy.....good luck with all those tests.....betty

     
    Old 07-12-2005, 07:09 PM   #59
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    Re: Radicular Pain & Topamax?

    Stardust, Sounds like you are heading in the right direction with a good leader.Keep us updated.
    Good Luck, Linda

     
    Old 07-12-2005, 10:01 PM   #60
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    Re: Radicular Pain & Topamax?

    Thank You Linda.

    Betty,
    For a recap, I had a Spinal Fusion on Feb 2nd this year on the S1 & L5. I did great with no problems, but as I walked farther & farther my left leg had gotten so painful that within a short time I could no longer walk on it. The Surgeon went back in, removed the hardware and found a small piece of bone stuck in the sciatic nerve (this was on May 4th this year). He removed the bone and replaced the hardware. Ever since then the Nerve has been P****d off.

    He never returned my phone call asking for an EMG to verify there is no pinched nerve. So I went to my Fam Doc, he gave me Demerol for the pain and just happened to allow a Doctor from the "Florida Spine Care Institute & Sports & Pain Center" to share his office here. He is from Orange Park.
    So My Fam Doc put in the request for me to get the EMG done and possibly stay with them for Pain Management. My new PM said yes, he would Love to have me as a new patient.

    As for the pain, My Back is doing wonderful, no more pain there. But on my left side, my upper hip they said is larger and swollen more than the right side since the surgery, it is also warmer with inflammation and when he touched both legs equally today, I could only feel the right side (I never noticed that before), he measured my leg near the knee and watched me walk.

    The pain goes from above the left Buttock down through the middle & outer side of the Buttock & down the left leg and radiates down to my foot. It never goes away and never gets better, even feels weak most of the time and is extremely painful getting in and out of my car or just sitting and watching TV , I can't turn over in bed without getting up on my elbows and almost sitting straight up to change positions (not that it helps, cause I can't sleep anyway).

    I am not able to even pick up an empty clothes basket. But the Surgeon wanted me to wait until November or December and see if it gets better, but there are so many horrible stories on here about permanent pain, I refuse to be one of them if I can help it, That's why I found another Doctor to order the EMG test.

    As for the Massage Therapy, She is one of his specialists who ONLY does the Massage for his patients. He said it is very important. I've never had it done before.

    And on a lighter side, never pass up something you see on the side of the road no matter how embarressing it might be. The reason I say this, is because on our way to our youngest daughters for dinner, there was a treadmil on the side of the road. Hubby said I was stupid and it probably didn't work, I said I could at least ask. The gentleman who answered the door was in his 80's and said a family member gave it too him and he refuses to use it and never plugged it in, I figure, if it doesn't work I can put out for the trash.

    He helped us get it into the van and since it folds up and locks we just had to grab the handle and tilt it and it was on wheels. We got it in the house, plugged it in and nothing, nada. So I checked it over and it said "on & off" but nothing was there. No button or anything.
    I got online and looked it up, it's a $599.00 Treadmil with a red button to place your thumb and it reads your heart rate, has a tray for something and also a cup holder and it inclines as well.

    I called the company and the only thing missing is a plastic key card to turn it on (this thing is brand new), so they are sending me the key for FREE!
    Same way I got my Excersize Bike.
    This find was worth any embarressment.

    Since I am flying to Montana for the Month of August, I want to get up to walking 3-5 miles a day. The Grandkids can't touch it, as it has safety features, and it locks up or down into place.
    Just wanted to mention this, since the only reason it was being thown out, was the guy had Heart Surgery and was too proud to use it. But I'm not.
    StarDust

     
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