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    Old 12-23-2005, 01:45 PM   #61
    jackrussel
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    Re: Thoracic Back pain

    Hello All
    Well i see i am not alone . I am 35 and i have broad based midline disk herniation at t5-6 as well as a leftparacentral disk herniation at t7-8 both with signifigant spinal cord compression . Disk height narrowing from t3-4 through t7-8 , disk dehydration and loss of height and consequential changes fron t3- t8 . Also disk degeneration and protrusion at c4-5 and c5-6 with straightening of the cervical lordotic curvature . Next year i go in for surgery to remove t5-6 & t7-8 and be fused . Well thats enough of medical mumbo jumbo . So thats what i have been dealing with for the last 2 years . Life can be sooooooo much fun at times . lol . It makes me feel better to have found this forum and i am not the only one . Well happy holidays to everyone .

     
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    Old 12-24-2005, 06:20 AM   #62
    nanna02
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    Thumbs up Re: Thoracic Back pain

    Hi Firefly and all !

    Reading this long post has taken me so long , I can't reply and say as much as I'd like to at present , but I need to let you know I am one woman who has had 3 thorasic Spinal operations , .. of the T8 T9 areas ,

    they had to be done over 3 years , 2000, 2001 and 2002 !..

    The outcome, after initially managing to walk on crutches or a walker due to spinal cord damge from the extreme operations , I am now permanently in a wheelchair , (3yrs ) have had 7 MRIs and 1 CTScan.

    I need to add , I was classed as " an exception !! " they all told me ...
    regarding what was wrong with my spinal cord was rare ,

    it was embedded and wrapped around like a telephone cord , massive concrete -like calcification had been growing for years in the verterbrae , compressing the spinal cord;
    affecting my body from undermidriff and all the way down, ..

    It had to be drilled out in 3 very dangerous operations , which could have paralysed me if the surgeon had slipped , etc.. it hasn't been fully sucessful ,
    but I never blamed him , he only did his best , .. .

    . I have some feeling , but my legs won't walk now ,
    I can transfer to toilet , bed etc, but live life very happily at most times .

    I am on medication for neuropathic pain , due to spinal nerve damage from the ops , which will never go away ,

    I'm on Epilim , which is normally used for Epilepsy , but it blocks messages to the brain , and takes away all bad pain of some sorts..

    Brufen slow Release also for pain , , and Diazepam for leg spasms also ;

    A secondary problem , is Multiple Sclerosis diagnosed 16 yrs ago , but this causes no problems at all to any great extent , ..

    I have a long story which if you wish to read it , look up my postings from 2002 , under Quicklinks , (subscribed threads ), as belle0050 ,

    and it may help you with Thorasic problems to see what I went through , help I got from Specialists and Neurosurgeon?..

    Firefly , I fully understand the frustration and almost desperation you are going through to get answers ,..

    my husband and I are still wanting some questions answered
    like " where to now ? ". but I am taking control and responsibility for my own health now , more than ever ; demanding answers and help . like never before ! ..

    So , don't give up looking and asking for the very best people to help you !!..

    Good Luck , Firefly and all others reading this !!.. hope to read more on here from you ?.. Belle
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    Old 12-29-2005, 02:50 PM   #63
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    Re: Thoracic Back pain

    Hi Belle, I have been reading some of your earlier posts and just wanted to ask you why you had calcification in your spine? Did you have fractures? I have a bad fracture at t9 and they tell me that it will calcify. Right now it isn't compressing my spine but I can't help but worry that it may some day.
    Tirzah

     
    Old 02-02-2006, 02:54 PM   #64
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    Re: Thoracic Back pain

    I stumbled upon this post-not sure if I "belong". I am sure most of you had read my posts, and sadly for me, no one seems able to offer a single word of thought or advice or something. (on this particular issue anyway). If you have read them you know I suffer from bad muscle spasms all over my upper back, shoulders and neck. I have a small herniation at C5-6, but was told that is not the problem, while at the same time, no one wants to figure it out. I started wondering if there was some thoracic problems, but I have yet to see any problems related to muscles.
    I have tried PT, didn't work. TENS, didn't work, Ibuprofen/Actometaphin, doesn't work. I tried ESI, heat/cold, BOTOX-and yet nada. I have some pain that might go down the outside of my left arm, and sometimes the side of my left forearm, but not all the time. If I look down, I get tingly across my upper back (base of neck, and traps area). I don't have fibro, been checked for that. I just really don't know. I am stuck in a city that has no good GOOD drs, and in Vegas I had so many at my disposal. Here, it seems to come down to ONE dr, who I saw for my initial injury in 1999. He misdiagnosed me for two years, ending in my first lumbar surgery, inwhich I am now a year out of my two level lumbar fusion. I have this sore spot, not far above my fusion, like it kinds pokes out, but muscular. Of course I get sciatic stuff a lot but I didn't for a while. I am so confused. I just don't know what to do now. part of me wants a total spine MRI, the other part just wants to try a discogram to see if the herniation IS the problem. I remember my first herniation was small yet it was a problem, so who can really REALLy say? Right? I just don't know. I really could use some advice here. I don't fall into any real category for my pain. Not fibro, not spondylosis, not nerve related, nothing. I could really use some direction here. I would so appreciate it.

     
    Old 02-02-2006, 03:46 PM   #65
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    Re: Thoracic Back pain

    Mel, I wish I could give you some advice butit sounds as if we are in the same boat, I have one dr tell me I need surgey ASAP then the next says he doesn't see a problem that could be causing my pain and symptoms and then the next has a completley different story if I could get two to say the same thing I'm be happy.
    I have been to so many drs I can't even count, only I know that my problem is serious and can't afford to quit looking until I find answers I can live with.
    I wish you the best of luck and maybe soon we will both get the help we need.
    Linda

     
    Old 02-02-2006, 05:03 PM   #66
    Janna Clair
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    Re: Thoracic Back pain

    [QUOTE=jdlfmc]HI Fireguy, I have problems through out my spine and permanant S1 nerve damage, you'll find that the thoracic spine is the hardest to treat and the rarest, all though it seems to me I see a lot more of it latley.
    My drs didn't believe me for a long time but when they finally did the mri my pm dr said I had to have surgery right away and he wouldn't see me again til I did I have bulging T-5-6 and cord comp. at the T7-8 I saw a couple of NS and sent my film and reports to a very famous NS and they all said it would be to dangerous to operate so here I am living with it.
    I also have the pain if I sit, stand or lay down to long but also if I lift anything heavier then a gal. of milk.
    So how does it go for you, what does your drs say?
    Linda[/QUOTE]

    Hello,

    Has anyone considered wearing a Back Brace, to help with the Pain? I don't mean the types you see employees wearing, at Stores. I mean the kind which is Custom-Fitted for you and yourself, alone, covered for by your Insurance.

    Unless you have Straight Medicare, or a Friendly Ins. CO. You must get a Referral from your Fam. Dr., or my hated term: "PCP," who'll then, if He/She is Competent, will refer you to a Prosthetics Fitting Company. The provide all types of Back Braces, and I'm pretty sure they'd also have one, which would help the Thoracic Area.

    It wouldn't hurt to try it! Would it?

    Janna

     
    Old 02-02-2006, 05:43 PM   #67
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    Re: Thoracic Back pain

    Thanks for the thought, though most days it hurts to even have my bra on, anything tight or confining increases the pain levels.
    It's the same way with my lumbar pain, I have quit wearing jeans even and I lived in them most of my life when I wasn't working not wearing jeans and giving up any shoes with heals have been hard for me, my wardrobe has changed dramitcally.
    Linda

     
    Old 02-03-2006, 08:02 AM   #68
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    Re: Thoracic Back pain

    I am so sorry to hear that even clothing causes a problem. I am not at that point, I love my jeans! I still wear heels and will as long as I can, yet I don't wear them for very long, just when we go out or to dinner. Anyway, that is something I may need to think about.
    I hope someone here gets help with this. It seems like such a problem. I wanted that thoracic spine MRI but at the same time, knowing that it isn't a popular surgical choice, I don't know if I really WANT to know. You get what I mean? If it can't be fixed....anyway. I wish you all the best, I really do.

     
    Old 02-03-2006, 11:04 AM   #69
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    Re: Thoracic Back pain

    To anyone even thinking about Thorasic surgery, DON"T DO IT!!! Unless you are losing control of normal bodily functions, this surgery will not help you. Read my previos posts. I am here now with additional herniations in my thorasic spine after the surgery which nearly killed me! A major nerve in my chest was severerd and now I 'm in pain management for the rest of my life. And you should know that there are only about twenty surgeons in this country willing or qualified to atempt it. It's dangerous and there is a low percentage of success. I certainly regret allowing tis surgery. Even though the pain before was bad, it could be controlled with pain meds. Now it can't. What was gained? I haven't seen any other postings by anyone wih this surgery. iF SO, i'D LIKE TO HEAR FROM YOU TOO. Monty

     
    Old 02-03-2006, 03:00 PM   #70
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    Re: Thoracic Back pain

    Mel, I'm so envios I always loved my heels, I remember the last time I wore them it caused a flare up that put me in the ER with uncontrolable pain, there is so much I miss, thought I don't allow myself to dwell on any of it or I'd go crazy..I can understand what your saying about not knowing but I was having so any symptoms going on that not knowing was putting me over the edge and I was hoping it was something that a non-invasive procedure would help, I wasn't that lucky..

    Monty, I have talked to a few people that have had thoracic surgery that have come out of it s okay as they could be but they were headed in to paralysis and uncontrolable body functions, but I have not spoke to anyone that really advices it.
    I'm so sorry that your suffering so much and I do how bad nerve pain is and how hard it is to treat, I wish you the best.
    Linda

     
    Old 02-03-2006, 08:17 PM   #71
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    Re: Thoracic Back pain

    monty-let me ask you a question. What if you knew you've had low back issues and that is okay. Then, you know you have a cervical problem but isn't that "big of a deal". So, at this point the only other place that could possibly be the problem is the thoracic spine. Would you ask for an MRI of it? My last mri was almost a year ago, well, in a month or so it will be a year. I am thinking about entire lumbar spine and cervical spine again, or just the entire thing. But, if the thoracic can't be helped, is it worth even knowing? Jeeze, maybe just an xray...I don't know. I feel like I am going crazy!
    My mom is buying me some professional birkenstocks today. Wearing regular shoes, even for an hour is a real problem these days. I think I am going to have to get rid of my two inchers and go for something smaller. They don't hurt SO MUCH when on, but the next day.....I wore some regular leather shoes today and man, my feet hurt so bad and they were on for a couple of hours. While, my tennis shoes with the inserts were okay. I get the shoes tomorrow. It is so sad. I just can't feel good these days. Wouldn't it just suck if it was all just stress related???????

     
    Old 02-04-2006, 12:05 PM   #72
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    Re: Thoracic Back pain

    Mel,I've had two MRI's of my thoasic spine since the surgery. Also countless x-rays flouroscopes and even a complete bone scan. The doctors at Georgetown and at Hopkins are monitoring that area as well as my other problem areas, even though there is no chance of an additional surgery for that area. I guess it's all part of Pain Management now. This way they can treat each area indivisually as well as my whole. I think you should know if you have herniations in your thorasic spine. Since the spine is one long organ, I think it's likely that someone with herniations in the cervical and lumbar regions might veery well have herniatins int he thorasic. I hope this helps. Monty

     
    Old 05-04-2006, 09:27 AM   #73
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    Re: Thoracic Back pain

    Chest pain is not uncommon with thoracic disc extrusions/protrusions. I have had numerous EKGs performed while having this severe chest pain and it has been determined that the pains from the disc T6-7. I also get very nauseous at times especially when sitting upright to long or in a smaller type of car. I also get lot of localized disc pain between sholder blades alond with a hot/cold sensation similar to the flu but much worse. I am always cold now (I've always been hot) yet still sweat like crazy, at time excessively.

    Good luck and God Bless,
    Brian

     
    Old 05-05-2006, 06:58 PM   #74
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    Re: Thoracic Back pain

    I am just curious if anyone is still following this long thread. I just started one tonight under "In trouble and don't know what to do next. " You guys have certainly put the fear of God in me. I didn't realize how hosed I was until I read your posts. Please take a look at my post and let me know what you think.


    John

     
    Old 05-05-2006, 07:07 PM   #75
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    Re: Thoracic Back pain

    hi there yes i have xrays and results were of my thoracicthat is, from t3 to t10 and c3-c5 and lower lumber L2 L4 L5 s1 and i do get a fair bit of pain so that it is uncomfortable doing anything Im in pain when i sit and lay down unless i have got pillows underneath me.
    I have spondlyiothesis and osteoarthritis and spinal stenosis, and advanced osteophytic changes Im 45 years old now.and had a fractured pubic bone and sacroilliac when i was 16 yrs old, had osteoarthritis by 28 yrs, i have a disc protrusion, my leg is numb at the moment and has been for awile now with the outside of my foot and my thigh and above ankle, and just farly recently as well my left hand fingers went numb but not completeyl just enough for me to not be able to play a piano properly anymore, if you can understand that is why im not able to do anthing until my numbness goes away, i cant work with a leg that wont work properly, and is numb . and am having lots of appointment at pain clinics etc.
    I have pain in my chest/back lots you arent the only one that experiences that pain in that area.

     
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