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    Old 08-25-2005, 07:54 AM   #1
    ladybug8372
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    Scoliosis...I need help NOW

    My daughter..who is 14 now, was diagnosed with mild scoliosis 2 years ago. I took her to an orthopedic dr...who stated "its not bad, so what we need to do is monitor it every 6 months and watch what does or doesnt happen. [B]If it [/B] [B]reaches a certain point[/B], [B]we may have to put her in a brace[/B]". I asked about chiropractic care...he said "waste of time and money"...so I didnt do it. So, I continued taking her for a check up every 6 months, for the last 2 years.

    Well.......I took her to the ortho yesterday for her 6 month appt....it has progressed....another 3 degrees...(which is her pattern)...she is now at 38 degrees. He told me......"well, since it is continuing to progress, we need to see her back in another 6 months.....if it gets to the low 40 degrees area, we may need to look at our options...AND a brace is NOT an option....but one of the options would be surgery!!".......


    Where did we lose out on a brace being an option...since I have kept EVERY appt????? What do I do now???? Please tell me that there is still hope that we can fix this....or at least prevent it from worsening.....I am looking into possibilities now of a second opinion, physical therapy, and/or chiropractic care....instead of "waiting" another 6 months!!!! What are your experiences with this?? Can someone help guide me???? I am truly scared and need someone with experience with this, to help me figure out what is best for my daughter.

     
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    Old 08-26-2005, 06:37 AM   #2
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    Re: Scoliosis...I need help NOW

    Hi ladybug8372,
    I was diagnosed with scoliosis also at age 14. I think when I first started I was at 38 degrees and he put me in a brace right away, I got down to a 35 degree. If I were you I would try to go see another doctor, a brace should always be an option before surgery, in my point of view, she should already be wearing the brace. My doctor that I went to was not an orthopedic doctor but just specialist in scoliosis, see if any one around you specialises in scoliosis only. Good Luck.
    -boarderchic

     
    Old 08-26-2005, 06:53 AM   #3
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    Re: Scoliosis...I need help NOW

    oh wow...i thought that orthopedics was the kind of dr to go to. the one she goes to deals with scoliosis, which i have found that very few orthopedic drs see patients for this. i will do some research and see if i can find a specialist like you are talking about. thank you so much! i will let you know what i find out.

     
    Old 08-26-2005, 08:27 PM   #4
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    Re: Scoliosis...I need help NOW

    the only kind of scoliosis specialists around here are in orthopedics. i do have her set up with another one for sept. 16th. his specialty is pediatric ortho...so i guess we will have to wait until then. i will keep you posted on what he thinks and advises.

     
    Old 08-26-2005, 09:30 PM   #5
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    Re: Scoliosis...I need help NOW

    My daughter has a slight curve from scoliosis along with her spondylolisthesis. The dr she goes to is a pediatric orthopaedic dr with a fellowship in scoliosis and peds. Check to see what the dr's fellowship is in. That last year is usually what their subspecialty is. Good luck. cas

     
    Old 10-04-2005, 11:52 AM   #6
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    Re: Scoliosis...I need help NOW

    Hi - I was diagnosed with scoliosis at the age of 10. I had a 52 degree lower curve. My parents took me to an orthopedist and I was placed in a milwaukee brace which I wore for almost 5 years. Needless to say, my life was pure hell during those 5 years. I had to wear it 23 hours out of the day, only to be out of it for 1 hour. I'm sure they have improved them with modern technology - but it was torture back in the late 70s when I wore it. The brace only kept the curve from getting any worse, it did not straighten up my spine. Later on in life, I went to a chiropractor for severe lower back pain. I have been seeing him now regularly and I wish my parents had taken me to a chiropractor when my scoliosis was first found - I have been doing regular exercises and undergoing regular chiropractic treatment now for several years. My curve has straightened up several degrees and my back pain is gone. I can do activities now without pain that I could not do before. People and a lot of doctors say that chiropractic treatment is a lot of hogwash, but I can sincerely say that there is something to that treatment and it has certainly worked for me. It is worth it. Besides, what do you have to lose? I hope this helps.

     
    Old 10-04-2005, 11:57 AM   #7
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    Re: Scoliosis...I need help NOW

    Also - I would not recommend the spinal fusion - insertion of the Harrington rods for scoliosis. I work for a doctor and we have had several patients to have had this procedure done and the rods are now "working out" from their positions and they are in a lot of pain.

     
    Old 10-04-2005, 05:14 PM   #8
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    Re: Scoliosis...I need help NOW

    I took my daughter to see another orthopedic dr. He said the same as the original dr....that its too late for a brace.....because she is 14 and they are "assuming" that she is done growing...because she has had her menses for more than 2 years....and most girls stop growing once they have had it for 2 years. However, given the fact that she is 5'7".....her father is 6'7" ...his father is 6'5", his sister is 5'10".....and my dad and I are the tallest on my side.....I am 5'4" my dad 6'2"........there is a chance that she could still grow.....but the dr feels that we need to wait it out and see if she grows anymore...of which she hasnt in the last year. As far as surgery, this dr said that surgery would only be warranted IF my daughter begins to feel uncomfortable with her looks....that it would be purely cosmetic....(and the other dr did NOT tell us this!!! he was leading us to think that it would be necessary) where she has her scoliosis is not life threatening...as it does not and will not affect any organs...so to have the surgery would be solely based on how she feels about herself and the way she looks. Right now, she is fine with herself....no one can tell that she has scoliosis through her clothes..unless you know that she has it and know what to look for.

    Now, the only thing that bothers me about this last dr is that he said he would feel comfortable seeing her once a year.....whereas the other dr wanted to see her every 6 months. But...that is not a major problem, cause her family dr said that we could go through them to get x-rays every 6 months.

    Another plus about this second dr.....my other daughter was with me...and he asked if she had ever been screened..and I said no....(she is 11) ...he volunteered to look at her back.....and told me that she needed screening. So, I took her for x-rays....sure enough, she has a 9 degree curve AND a 12 degree curve. I will definitely stay on top of this!!!! I feel better knowing that my first daughter's scoliosis is not life threatening. I take my other daughter on the 2nd of November....so dont know anything about her yet.

    As far as chiropractor---I dont know what to do about that. We have asked both doctors about it and about physical therapy....both said it would be a waste of time and money. So....I really dont know what to do.

     
    Old 10-19-2005, 01:06 AM   #9
    ukiahvalleymom
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    Re: Scoliosis...I need help NOW

    [QUOTE=ladybug8372]My daughter..who is 14 now, was diagnosed with mild scoliosis 2 years ago. I took her to an orthopedic dr...who stated "its not bad, so what we need to do is monitor it every 6 months and watch what does or doesnt happen. [B]If it [/B] [B]reaches a certain point[/B], [B]we may have to put her in a brace[/B]". I asked about chiropractic care...he said "waste of time and money"...so I didnt do it. So, I continued taking her for a check up every 6 months, for the last 2 years.

    Well.......I took her to the ortho yesterday for her 6 month appt....it has progressed....another 3 degrees...(which is her pattern)...she is now at 38 degrees. He told me......"well, since it is continuing to progress, we need to see her back in another 6 months.....if it gets to the low 40 degrees area, we may need to look at our options...AND a brace is NOT an option....but one of the options would be surgery!!".......

    Where did we lose out on a brace being an option...since I have kept EVERY appt????? What do I do now???? Please tell me that there is still hope that we can fix this....or at least prevent it from worsening.....I am looking into possibilities now of a second opinion, physical therapy, and/or chiropractic care....instead of "waiting" another 6 months!!!! What are your experiences with this?? Can someone help guide me???? I am truly scared and need someone with experience with this, to help me figure out what is best for my daughter.[/QUOTE]

    Hi, my own experience with wearing a brace when I was 13 years old was, I lost a year of sports and fun, I was embarassed going to school the first day, and most of the days after, even tho I had lots of friends! I still felt like a geek, no matter how much positive encouraging. I also was left with a about a 2-3in. scar, due to the cast which had a dent into the left shoulder blade (to push it forward), it rubbed raw, even with a tee-shirt, got infected...

    After that year experience back in 1973, due to my 45% curve in the upper back and 38% curve in the lower back surgery was recommended by the Ortho, my parents left it up to me to say yes or no. (I was petrified, back then the surgery was barbaric.) I passed in hopes of seeing better options and surgery technics in the future. After many years of pain, with little help in treatment I had the spinal fusion surgery in 1994, at UCSF (one of the best Orthopedic Depts. in the world), 14 levels from C7-L4, the surgery was successful. I was up and walking around in 4 weeks, didn't get upstairs for my first shower for around a month and a half. I believe it was a success, tho it took over 2 years to recover.

    I still experienced headaches, along with upper back and neck stiffness and pain including muscle spasms. Originally, I thought it was due to atrophy setting in. After months of physical therapy, I had some better days but it never really went away. I realized that I had some kind of muscle problem, had no idea that there was a name for it.

    Last year I found out that I have Chronic Myfascial Pain (CMP), it is a disease of the Myofascial lining that covers are muscles, tendons, it covers our structure from head to toe, it is what gives us are shape, it also goes around each of the organs. The best way to described it, is that it looks like the white thin lining seen on raw chicken.

    What I found out is that this disease can lead to Scoliosis, wow, that was very inlightening!! I always complained of growing pains early in life and the pain was always muscle pain, tho, I would pop my spine to alleviate it.

    The best news is there is treatment for CMP, one type is called Myofascial Release another is Trigger point Injections. There are doctors of Osteopathy who can be very beneficial along with massage therapists who specialize in myofascial release, muscle energy techniques, and lymphatic drainage therapy.

    I found no benefit from Chiropratic care. However, I have found a Massage Therapist who is awesome and able to help my muscles release. She has been the one therapist who has not put me to bed after treatment.

    I have always wondered if this dx would of made a difference, if treatment that is now available would have saved me from the surgery, the scar down my back and the over two year recovery it took.

    I hope that you can check this out, and maybe find treatment for your daughter that maybe a non surgical method.

    wish you both the best, uvm (been there and truly understand)

     
    Old 10-19-2005, 01:16 AM   #10
    ukiahvalleymom
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    Re: Scoliosis...I need help NOW

    Another thought, The Spinal Fusion is done very different now then back in the 70's, I have had no problem with the surgical steel rods or screws. I have more rotation in my neck and back now then ever before, physical therapy has helped along with muscle strengthening.

    However, I would try other treatment prior to surgery first. The same for your younger daughter. I have a son and daughter who have always complained of neck and back pain. I am watching then very closely, too.
    uvm

     
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