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Myelogram


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Old 10-19-2006, 08:00 PM   #1
Roy47
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Myelogram

Hello,

I am a new person to the site. I think this will be a very imformative.
I posted a message last night. I am in extreme pain. Here is my story:

About a year and a half ago I started have leg and foot pain, and I went to the doctor for it. They did an MRI and said that I had more degenerative disc diease from previousley in 2002. It had got worse according to the MRI.
One surgeon said Back fusion, but first lets try shots or injections. He said go get a second opinion. The next nuerologist said that lets go to a pain doctor / she looked at things and said lets try thepoary and then perhaps injections later. Theopary wasn't doing a lot for me. So we decided shots as the next step. This was good for three days and things went down hill fast. I went to theopary and she said lets try to lie on your back and see how the range of motion. I tried to bend my knee up to my chest and I was intense pain. And that was the end of theopary period. I am just trying to go on with daily stuff.

The pain doctor refered me back to the neurologist and he ordered the myelogram. I went and the procedure was " attempted" by the radiologist, it was not succesfull. The doctor that tried to do this tried to different locations and could not get any fluid out of my back... He said lets be patient on the second time and still no fluid, he told me that it happens some times, not to worry and left. He then told me that he would put the dye in but it was no guarantee that it would go where it was supposed to. We wnet and had the CT scan as well. The neurologist said that it did not gove him the information that he hoped for and has no idea what is going on.

Is this common at all? Has anyone ever had this problem?

The neurologist said that he had never heard this before, I asked him what was going on and he said that he would have to tall to other doctors in the field and try to come up with an answer and that he would get back to me. IT has been about 10 days now and no call from him. He told me that he did not think that this was a good thing at all.

My pain is getting worse all the time, I am just trying to deal with it.

I also have been diagnosed with a possible ANEURYSM. The left side is .05 and the right side is .08. The left side of my face ius usually numb most of the time and I also get sharp needle like pains all over my face at any time of the day and night. Sleep is from exuhastion as the time rolls on through out the week.

Can anyone help me with the lack of spinal fluid in my back. He was right where he needed to be and never got any fluid out...

Has any one else had this happen?

 
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Old 10-19-2006, 09:43 PM   #2
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Re: Myelogram

I can't speak to the lack of spinal fluid in your back. This could be an issue with you, or it could be the technician's error. He may have been right where he needed to be, but still, it could be human error on his part. Maybe you need to try and have this redone somewhere else perhaps, if they have no obvious reason for the stick being non-productive.

It's been 10 days and no hear, call them back. You have to totally be in charge of your well being. The doctors wont be proactive unless you make them be. The squeaky wheel gets the grease. Keep calling them until you get a proper response.

You hang in there.

 
Old 10-20-2006, 03:43 AM   #3
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Re: Myelogram

Lack of spinal fluid/myelogram has me completely stumped. I've never heard of this before. It's a new one on me. So sorry I can't be of any help in this situation.
I just had a myelogram myself on Oct. 18. My next doctors appt. is scheduled for Oct. 25 and I'm anxiuosly awaiting the results.
Please keep us posted on your situation. I'm very curious on this subject due to any further myelograms I may have or if anyone else has encounted this problem.
I'm here for you to offer any help or support you may need.
PhyllisS

 
Old 10-21-2006, 06:55 PM   #4
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Re: Myelogram

My neurologist called me yesterday, he told me that he recommends that I go see a 'Ortho - Spine Specalist", he would really not say any more than that and see what they can do for my puzzling situation.

He said that a second oponion is always good. This has me further concerned; the neurologist is the head of the Department at A Big Name Hospital in Omaha NE area.


So on to the next step in the process; I will have to find another doctor in the Omaha area. I will keep this sight posted and will continue to learn about the condition of my health. Good luck with your consultation.

 
Old 10-24-2006, 04:39 PM   #5
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Re: Myelogram

More news, I called a doctors office that is a Orthepedic surgeon.. Upon talking to the receptionist for a while he said that I really need to see a "Spine Specalist" I know have an appointment on the 7 th of November
to see what he has to say about the issue.


Thnx for your help and understanding...

This is not alot of fun and All who read this agree with me.
Talking to people with situations such as mine or worse are very helpful and bits and pieces of different problems gives me a better understanding of what is going on...

 
Old 10-24-2006, 10:12 PM   #6
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Re: Myelogram

Excellent news Roy! You need to be seeing a spine specialist. Hopefully he/she will be able to better assist you. You hang in there. No nothing fun about it at all I am afraid. But just know.. there are many of us that have been helped and have our pain rid of or at least controlled and lessened.

Post when you can and let us know how you are doing. Take care. Tammy
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Old 10-25-2006, 03:28 AM   #7
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Re: Myelogram

Just wanted to say lots of good luck with the second doctors opinion. I hope all goes well and you find some new information. Please keep it posted. And thank you for the vote of confidence about my appt. with my nuerosurgeon scheduled for today.
PhyllisS

 
Old 10-25-2006, 07:18 AM   #8
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Re: Myelogram

Hi there-I just caught up with all your posts. I am 3+ onths out from two level fusion by a Orthopedic spine specialist and I am doing great. I do have pain sometimes but NOTHING like before. I didn't get clear enough answers from the NS I saw first and my GP sent me to my Ortho. I did start PT earlier than most but I am more flexible now and really feel like because he only does spines he is more current on whats going on with advances in spine related injuries and post op proceedures. I am not just lucky-I went to PT twice a week and didn't try and skip steps in my recovery and healing and had a great doctor. Do NOT give that neuro amother thought and move on-maybe the problem was in the discs and a discogram will show that. You are going to get thru this and WE ARE HERE!!!! 24/7 please keep us posted. There is such a great support group here and we really understand your pain.
I am praying for a quick and accurate diagnosis for you!
Blessings,
Michelle

 
Old 10-26-2006, 05:59 AM   #9
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Re: Spine Specalist / Therapy

Michelle,

I truly understand about the recovery process and I absolutely agree. A few years ago I had rotor Culp surgery on my left shoulder twice.

It is not perfect, but it does not hurt much at all. I had to go to therapy 3 times a week for several months. The first visit after the surgery brought tears to my eyes. It hurt that much, but after each visit it got alot better.

I have no idea what lays ahead of me, the pain in my buttock area is really starting to hurt more each day it seems. I wnet to my regular doctor and he gave my some new medicine called Trazodine which seems to help some. He told me to hang in there and wait and see what happens at the Spine Doctor. I had to go see him for the referal because I am a retired service member of 21 years. He said that it would happen and wished me luck...


Yes, I truly belive in therapy...
Thnx for all your time and advice and thoughts,
Roy

 
Old 10-26-2006, 09:36 AM   #10
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Re: Myelogram

Roy, thank you for your service to our country. I wish you the best!

~Emily

 
Old 10-30-2006, 09:12 PM   #11
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Talking Re: myelogram

27 Oct 06: Friday night I could not go to the bathroom and pass urine. I drank more and more water and nothing would work as far as going to the bathroom. I finally got up and had my wife take me to the ER. The nurse and the doctors were very understanding and listened to all that was going on. The nurse said that he needed a urine sample. I said I cant that is one of the reasons that I am in such pain; his reply was the medical way with a cathater, I said please do. I never had one before and I figured it had to take the pressure of in my blatter. IT was not the most pleasant experience, but it was less painful than the myelogram that was attempted a little over a month ago or so.

The doctor did a prostrate check and all the blood work; and all was okay. The ER doctor she asked if I had a more recent MRI of my complete back. I told her no that I did not so based on what might be going on she ordered a full MRI of my back and said that things aren't perfect, but that It showed that I have some narrowing in areas, as well as some disc damage / which we already knew was the case. That was a relief / IT was a little scary for a while.

She asked if I had an appointment set up for a Spine Specalist and I her yes and when. She said that was a good and that the now very recent MRI should help him a great deal. She wished me luck and I thanked her for all of the experiences but that I was scarred and thought that things were very wrong. She assured me that I did the correct thing by coming in and getting things checked out...

I wish that I could remember what all the ER doctor said but I will be getting a copy of the reports from my family doctor soon. One thing the ER doctor did was perscribe percocete 5/325 at night before I go to sleep.


I went to my family doctor today and he had perscribed Trazodine last wednesday and he said perhaps maybe he should not have done that, but that was the only change that he made. He told me to stop taking the meds and to just use the percocet. I think that I feel a little better tonight, but that I think as well that it is going to take some time to get used to the new meds.

 
Old 10-30-2006, 10:43 PM   #12
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Re: Myelogram

[COLOR="DarkOrchid"]HI Roy,
I have been told by my spine specialist that if I ever can't go to the bathroom to go straight to the ER, you did the rite thing by going. If thenerves that control that bodily function are compressed too long it can cause permanent damage. So don't hesitate if it should happen again.

I'm so sorry your having to go thru this, it is a long rough road to travel and there are no good fast treatments for back troubles so hang in there.

God Bless & Good Luck

Carol[/COLOR]
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Old 11-06-2006, 05:54 AM   #13
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Re: Myelogram / Spine Specialist

I have the appt. tomorrow; Friday I spent some time getting all the MRI'S,
reports from the Therapy that I have been too as well as the results of the
2 EMG tests that I have had done in the last 18 months. All of this should help the Spine Specalist a great deal.


Here is my questions: will this give him the ability to make a true and honest assesment? Or will he have to do more tests of his own? I just want closure on this if possible... The quality of life for me in the future?; and is there the tools in modern day treatments to make most of it go away or at least lessen the pain that I am going through. As the time has rolled on I am able to do less and less. I am only 47 years young and should not have to go through this.

I thought that after I retired from the Army that life would be a box of chocolates; I am finding that it is more challenging than before it seems.
I do some things and pay for it later in the pain area. So I figure that use my brain and do little things and still pay for them.

 
Old 11-07-2006, 09:04 PM   #14
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Talking Re: Myelogram

The meeting is done and things have been decided on what is going on.

According to the Spine Specalist the radiologist missed his mark twice.
I have plenty of fluid to go around so to speak.


The S1-L1 disc are sitting on each other with a nerve caught in between them. L4 and L5 are sitting on top of each other as well. There is narrowing of the spine in the lower part of the spine as well.

It is just hard to believe that the nuerologist could not tell that the radiologist missed his mark. The Spine Doctor showed me and said that it is not an easy thing to do; to hit the correct area and then insert the dye as needed; they are the experts or so I thought. Why could not the both of them admit that a mistake was made. This upsets me just a little...

The nuerologist only told me that he had no idea why there was no fluid where there was supposed to be.

We went and had 5 new different sets of XRAYS done and he showed me what was going on with my back and answered all of the questions that I had. I borught all of the CT scans that I had from the VA Hospital and from the Medical Center that I went to. So one of the Spine Doctors talked to me and examined me and the other went through the information from the therapists and from the VA as well as the notes from the pain doctor that I was referred to as well through out the 18 months that I have been dealing with. I then meet another Spine Specalist and we talked about the surgery possibilites down the road. There was no pressure to do a surgry; it was mentioned and was not forced. Things were discussed I asked him my options and so on...


Down the road I am looking at Anterior Lumbar Fusion and Posterior Fusion
surgery. It will be a while by the time Insurance is all squared away and things are set when I can get in to one of the two hospitals that he does his surgerys' at. He said that to be patient and one of his people will call me. Who handles the insurance issues as well as his scheduling for the surgeries.

One is the Methodists hospital and another one that he seemed to want to go in my instance was a Orthopedic Hospital in Omaha, he said that the best equipped as far as the beginning thepary would be at the Orthopedics Hospital.



I am thinking perhaps Feburary; why ruin the holidays for the family and so on. It is going to take 6 to 8 weeks to figure out a date for the surgery.

He is very well accrediated and papered, I want to look at his results and see what all the groups that he belongs to has to say about him and the other surgeons in his office as well.

The first impression of the office is that it is well ran and all seemed very organized and neat. My first impression was very favorable of all the people that work for them. I was treated as a person at all times and not just another dollar sign that walked in the office so to speak.


The one question that I have for anyone is this: Is there a group that is independent and rates for Spine Surgeons?


Any and all comments are welcome

Roy47

 
Old 11-14-2006, 08:54 PM   #15
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Re: Myelogram

The lady that sets up the surgerys from the Spine Clinic called me the other day and the surgery is set for the 12 of Feb 07.

I am sure the time will go by fast and will be here before I know it. At least my immediate family and I will be able to do a few things and enjoy the holiday season some. I know the wife and our two girls will have a good time which is the main thing.

My present will be the surgery and the recovery and getting back to a normal life one day. Well near to normal life....


Thnx for all the advice,
Everyone here is the greatest of the great.
Roy

 
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