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Could this be a back problem after all this time?

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Old 03-19-2007, 04:23 PM   #1
Join Date: Sep 2006
Posts: 331
wonderingtoo HB User
Could this be a back problem after all this time?

I know this is long, but please read if you have time. I don't know what else to do.......

I've been to the doctor's office many times over the last 16 months. My symptoms started with lower right sided back, flank and abdominal pain. It's a burning pain, sometimes feels like there is pressure also, especially in abdominal area. Also felt in the pelvic area at times.

This lasted three months straight, in which time I saw three doctors, one told me I needed paxil (anti-depressant), one told me it was kidney stones, and one told me if I had kidney stones I would be in so much pain I couldn't talk. He ordered me an abdominal u/s, which was normal.

After three months the pain went away, and I thought I was done. But a month or so later the pain came back. This time I went to the OB-GYN who ordered a pelvic u/s. That came back normal.

Pain went away after a few weeks, but came back again. I went and saw a different doctor, all of these are connected by computer by the way, so he looked at my record, pushed around in my stomach, and told me I was fine. He said go home and play with my kids and enjoy my life. Hard thing to do when you are in pain all the time.

I tried the chiropractor. Thought he'd at least do back X-ray. He ignored what I told him about the hip pain and all the problems I have, and just adjusted my back. I didn't go back. Didn't see a point if he wasn't going to take the time to figure out what was actually CAUSING the problem.

My hip started hurting along with the other burning pain and pressure, and I went to a different OB-GYN. He told me I may have endometriosis, although he didn't really think so. He put me on the pill to see if that helped. I gained 5 pound in a week, felt like crap all the time, and went off.

When my pain got really bad in September, I went to the ER. They did a CTscan on my abdomen, which was normal.
My pain went away for 2 months, came back for a few days in which time I went to the doctors again. He diagnosed me with IBS.

It went away for a few weeks and is now back. It feels like a burning pain in my lower back and right side along with the lower abdomen.

I now also have a lot of hip pain in THE OTHER leg, and pain that actually goes all the way down my left leg into my foot. It's on the outside of my leg, not the back, so I don't think it's sciatica. It really hurts in my hip, and there is a spot on my rear that I can push that is really sore.
I had a hip X-ray last Monday, but don't have the results yet. Doctor told me to take 3 Advil - 2X a day for 2 weeks to see if it's bursitis (I guess) or a strain. I've been doing this a week and my hip is worse. WEird thing is it's not the same side as my back pain.

Please, if anyone can give me any idea as to what is causing these problems, I'm at my wits end. The doctors think I'm a hypochondriac I can tell, and don't spend much time on me. I've been diagnosed with IBS as my pain on my right side, back and abdomen, so I don't think they'll do anything else about that. I can see a bunch of different docs, but they all have my record on computer, so they look at all the trips I've made to the doctors and just brush me off. I'm switching insurance next January if they don't figure this out before then. But until then, I don't know what to do.

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Old 03-19-2007, 04:34 PM   #2
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Join Date: Dec 2006
Location: western us
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ms_west HB User
Re: Could this be a back problem after all this time?

Wow!! It sounds like you have been thru the wringer and back. I would try to get to a spinal surgeron or neurosurgeon and get a work up. It does sound like nerve pain to me.

Old 03-19-2007, 06:50 PM   #3
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clover60 HB User
Re: Could this be a back problem after all this time?

This sounds like my beginning It all started in my hip. The x-ray showed 3 leasions so I had a bone scan. This came back as normal type bone spurs. Then they said I had bursitis and gave me an injection with a huge needle.

This did not help. I was refered to a bone dr whom did a MRI and said it is my back and refered me to the neuro an Bingo. it was my back.

Keep searching for answers only you know how you feel. My pain was chronic and never went away.

Good Luck and keep us posted.

Old 03-19-2007, 06:59 PM   #4
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Join Date: Aug 2006
Posts: 241
cherish1 HB User
Re: Could this be a back problem after all this time?

What caught my attention was the "pain in your rear". I complained about what I called my "RBP - random butt pain" for over 3 months. It would come and go from slightly painful to killing me painful. My husband begged me to go to the doctor, but I was convinced by my chiropractor that it was piriformis syndrome (a tight muscle in the buttock) and was adjusted 3 times a week for all that time. I felt better after each adjustment, but it didn't last long.

It finally got so bad that my family doc sent to physical therapy for my "random butt pain" that she didn't know what the heck to do with. I wasn't at PT 5 minutes when they suggested I had a herniation at L5-S1. I was like "WHAT?? No way, never had back pain, can't be that".

Well, I had a blown out disc at L5-S1. Thanks to me waiting so long, I now have permanent nerve damage and had three surgeries in 12 months, from December 05 to December 06. I am still surprised because until the last few months, I NEVER had what I would call pain in my back.
1/09 Spinal Cord Stimulator, ANS/St. Jude Eon Mini
11/07 - acute & chronic S1 nerve root irritation
12/21/06 -360 PLIF L5-S1 w/inst.
3/21/06 - L5-S1 fusion w/o inst.
12/21/05 - Lam/Disc. L5-S1.

Old 03-19-2007, 10:18 PM   #5
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Join Date: May 2006
Location: Berryville, Virginia
Posts: 2,381
Justoneofus HB User
Re: Could this be a back problem after all this time?

Wow, lots of probing and no real clear answers for you to date. Has anyone ever mentioned fibromyalgia to you as a possibility?

You need to find a couple of really good docs that you trust. I am thinking at this point, your issues are not abdominal.

For the record.. I've had many kindey stones and I've worked clearn through passing them. But I felt pretty darn bad/sick at the time I was passing them. I had pain sure.. but I could function. I have had the back pain/hip pain/abdominal pain with all of mine. I had my kidneys scoped on the last one (like a colonoscopy only on the other side.. hehehe). They found no stones, but were somewhat able to conclude that I "had" stones and they left calling cards on their way out.. jagging at the lining, etc.

And you could be having spinal issues. You need more than an Xray. Xray is not going to show much of anything in diagnosing at this point.

You really need MRI's or CT Scan with contrast of your Spine, Kidneys, etc.

Do you have a central focal doctor to coordinate all this through? If not, that might not be a bad idea. You may need to see several doctors working through trying to figure out what is happening with you,and a MAIN doctor to coordinate all of that would be extremely beneficial to you.

keep us posted on your progress, etc. I do hope they discover your issues and treat it posthaste.
"believe in the beauty of your dreams"- E. Roosevelt

L5/S1 bulging @ 18, now 46; still there (but no pain)
Fusion at L4/L5 Apr -2006
Solidly Fused Nov-2006
A Success, but still improving!

Old 03-20-2007, 10:04 AM   #6
Join Date: Sep 2006
Posts: 331
wonderingtoo HB User
Re: Could this be a back problem after all this time?

Justoneofus -- yes, I have a primary care doctor, and he has to do my referrals to specialists. I just switched to him in January cause I gave up on my other one doing anything. Seems he's not much better. He did refer me to a GI doctor after I pushed him, but that was in January and I still don't have the apt. yet. However, I agree with you, I dont' think it's abdominal, and I probably won't see the GI doctor (if I ever even get an apt.).

I actually mentioned fibromyalgia to my primary doc. when I went to see him about my hip pain last week. I didn't even put all my problems in my original post. I've also had myofascial pain on both sides of my face (TMJ type pain) on and off since last June, and rib/underarm tenderness and pain. My doctor was surprised when I mentioned fibro, but did refer me to a rheumatologist. Who knows when that apt. will be. I'm just not sure if this hip thing could be fibro, or something else.

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