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    Old 05-28-2007, 12:43 PM   #1
    KonaKid
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    Pancreatitis..Any connection between surgery/meds

    Anyone find out they have Pancreatitis after years of back and neck surgeries and meds...what do you do? Not a drinker, nor have been one. No cancer,so I'm told. How do you live with not eating? How do you just drink fluids..still sick when I do.

     
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    Old 05-28-2007, 01:40 PM   #2
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    Re: Pancreatitis..Any connection between surgery/meds

    Did you have your gallbladder out? You might want to ask your doctor if the pain pump would also help with the pain of pancreatitis. I have asthma and the hard meds effect my breathing, so I have to stick with the really light drugs. It's strange, after fusion surgery everything started going bad. Hope you find something and your pain can be resolved real soon.

     
    Old 05-28-2007, 03:24 PM   #3
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    Re: Pancreatitis..Any connection between surgery/meds

    I wonder if all the meds can cause your condition? I am sure our internal organs are not happy from all the medications we are on due to our surgeries and back conditions...
    I hope you will feel better and find the reason who are your Pancr. are not well. Best wishes

     
    Old 05-29-2007, 08:31 AM   #4
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    Re: Pancreatitis..Any connection between surgery/meds

    Yeah, it is strange how after surgery (or should I say five surgeries) everything starts going down hill. Then again, Entropy is King and we are his subjects from the moment we are born. (Could just as well have Queen, but a Queen would never treat her naves wickedly.)

    There is the rub: One insurance company thinks the other insurance company should be responsible for the Pancreatitis. So no real treatment after five months. Just told not to eat.

    The weird thing is (keep in mind Pancreatitis is very dangerous) it is treated with strong pain meds (like Actiq/fentanyl which I went through rehad to be taken off of--just right back where I started--just worse).

    No have had gallbladder taken out. And I hear I shouldn't. I was told not to have back or neck surgery either...there comes a point where ya just can't take the pain...and what do ya do? Where is the miracle? It might be out there..just haven't found it yet. I heard a radio show by some guy named Dr. Marshall (his first name, well, I think it was Bill or Bob or Barbie)...he says he has a product that will clean out gallbladder. Now there is material for a proding question/inquery....Anyone every used whatever it is (I haven't look it up yet) that is being tauted as a gallbladder cleaner? All I read is that Pancreatitis can not being fixed/cured/last resort surgery...there is new procedure (is there two "e" in proceedure? procedure? Neither one look right to me) that supposedly restores the Pancereas' function. This Pancreatitis is brutal...and only five months in. I read where people have spent years with it...then, finally find relief with the grave.

     
    Old 05-29-2007, 10:37 AM   #5
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    Re: Pancreatitis..Any connection between surgery/meds

    *************WARNING: TRUE BUT HORRENDOUS STORY*******

    I want to mention what happened to my brother. I don't talk alot about him because he is a spiney nightmare as a result of a really bad surgeon. He has been on heavy, heavy narcotics every day for the past 25 years. He has been all over the world and basically told they can't do a thing for him. His sciatica nerve was nicked. For the remainder of his life, he will be on STRONG NARCOTICS and is house bound.

    To make a long story short, his gallbladder went bad and because he was on these heavy drugs -- they had no idea. It went gangrene. Terrible but true story. Fortunately, it was caught before he almost died. Please be careful as heavy medicines can sometimes mask symptoms and the proper diagnosis are not made timely.

    Last edited by ms_west; 05-29-2007 at 10:44 AM.

     
    Old 05-30-2007, 08:25 AM   #6
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    Re: Pancreatitis..Any connection between surgery/meds

    Oh my! How does he deal with the Pancreatitis? Is it true that once it's gone it's gone? What does he eat? I can't eat a thing without being sick. All around the world? My gosh. Has he ever heard of the Dr. Marshall gallbladder cleanser? I don't know about it yet, haven't had opportunity to check it out..heard about it though...I just don't know yet if Pancreatitis is the same thing as having gallbladder problems..I know they are related, but I found an article the other day that said this Pancreatitis deal is about dead tissue/etc..I can't remember now...I was just diagnosised...I knew something was wrong though long before...oi...There is a new procedure where an endoscope is pass through the stomach, hole made, pancreas then cleanned of bad/dead tissue...said it worked on one guy...I've heard stories like that before..."one guy" did so well after this procedure...anyway, I've grown cynical of those stories...25 years? I've only gone 10 years and I can't hold on any longer.

     
    Old 05-30-2007, 08:37 AM   #7
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    Re: Pancreatitis..Any connection between surgery/meds

    He doesn't have pancreatitis -- I don't know what would happen if he started having those types of problems. My point in posting was to merely recommend that if you are having any gall bladder symptoms to consider having them checked out. In my brother's case, the heavy narcotics covered the pain until it was almost to late. Very scary!!

    The only reason my brother has made it thru has been due to a very devoted wife and my parents living next door. They do everything for him. He is a walking drug induced zombie. Very sad and as selfish as it is I am glad I live in another state. I don't have to see it everyday. It is very discouraging especially when I have back issues too.

     
    Old 05-30-2007, 08:55 AM   #8
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    Re: Pancreatitis..Any connection between surgery/meds

    [QUOTE=123dietdrpepper;3013579]He doesn't have pancreatitis -- I don't know what would happen if he started having those types of problems. My point in posting was to merely recommend that if you are having any gall bladder symptoms to consider having them checked out. In my brother's case, the heavy narcotics covered the pain until it was almost to late. Very scary!!

    The only reason my brother has made it thru has been due to a very devoted wife and my parents living next door. They do everything for him. He is a walking drug induced zombie. Very sad and as selfish as it is I am glad I live in another state. I don't have to see it everyday. It is very discouraging especially when I have back issues too.[/QUOTE]


    I have gone years without talking to family due to all this insanity...now they understand...yet, it is true...a walking zombie...the thing is....I went through rehad...I can't take the pain....now being force to have pump...I fell ya...my parents now have come to my rescue...but they have grown old and tired...in fact, most of immediately family sick now..."yesterday/ all my troubles seem so far away/" I don't know yet the difference between gallbladder problems and Pancreatitis... I just know it just too much more pain....what is said is hearing about the folk, like yer brother, who have gone 25 years...I don't know how you hang on...we live in a Puritanical society that sees all "meds" as bad....yet the prices are sky high...you hear the arguements from the health folk how argue no more meds....I wish it were true in all cases....I just don't know...It's funny how after years of being called meds in my case...then term changed to "drugs"...whatever....what is the answer then folk (that is rhetorical)?

    Blood test say Pancreatitis...don't know if that means gallbladder/stone problem though...just know I can't eat...and when I do...what a nightmare...I hope he didn't have to have gallbladder removed. Did he?

     
    Old 05-30-2007, 09:07 AM   #9
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    Re: Pancreatitis..Any connection between surgery/meds

    Yes, the gallbladder and part of the liver. He was eaten by gangrene.

     
    Old 05-30-2007, 09:13 AM   #10
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    Re: Pancreatitis..Any connection between surgery/meds

    Pancreatitis can be very serious if not treated. Did they do blood work to check your white cells? If the white cells are increased, it means an infection due to your pancreatitis. It can also cause you to go septic.
    Be careful.

     
    Old 05-31-2007, 06:46 AM   #11
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    Re: Pancreatitis..Any connection between surgery/meds

    May I ask what are your symptoms and how you were diagoised? I have had stomach problems for 6 months. All tests negative. I have constant stomach pain on the right that rediates to the back on both sides. I have lost 14 LBS. I am concerned it is my pancreas the doctors don't think so!
    Thanks for any input and help.

     
    Old 05-31-2007, 09:59 AM   #12
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    Re: Pancreatitis..Any connection between surgery/meds

    [QUOTE=Sisty;3015636]May I ask what are your symptoms and how you were diagoised? I have had stomach problems for 6 months. All tests negative. I have constant stomach pain on the right that rediates to the back on both sides. I have lost 14 LBS. I am concerned it is my pancreas the doctors don't think so!
    Thanks for any input and help.[/QUOTE]

    After nine years of being on prescription meds (five surgeries since '98), place into hospital for rehad. Used was some kind of med whose name escapes me now (used in Europe for pain and for rehad--its not addictive..and it doesn't destroy your insides, so I am told. Its call "Sub..." something.) I was on fentanyl (anywhere from 24,000mcgs to 36,00mcgs a day) over the last couple of years. The first night of rehad withdrawl is induced (you have to be in that state before they give you the Sub...). So there I am out of my mind screaming and kicking (my legs flung and flayed--don't know if that is the right word--my fist pounded this and that) the bed and walls with full force. Something is all ready wrong with my legs(back surgery/nerve damage etc)--they kick out here and there--or tremble.

    By the next day I knew something was wrong. You're so out of it though so you don't know what to do except tell the nurse. I knew something was wrong with gut. Four months later (sharp pain in middle of rib cage--just thought I hurt my sternum while pounding the walls), and nothing has changed regarding bowel moments or the gut pain accompanying. I would eat, feel sick ( I could feel the food moving through me...it hurt(s) so bad..esp near where the pain in rib cage and lower intestines.) My belly is always disstended. It was a case of not going for days (even with fiber) then diarreha all day long--or days long: Then start all over again. 13 days passed by without a bowel movement--and yet I was eating food daily. I always feel sick--feel like I need to throw-up..yet, I don't.

    Other pains grew during this period (knees, hips, pins and needles in feet or sharp spike of electicity through middle of feet-top to bottom, etc)--Other pains and sickness. So I thought I had reinjuryed my back (still waiting to find that out) and thus my colon wasn't working right (which I though was all ready the case for years and years)--like bladder. I didn't know what the Pancreas did. Nor had I ever heard of Pancreatitis. May 10th, finally had to go to ER. Pancreatitis!

    Now it is a case of wondering, well, I have had colon pain for nine years--was it pancreatitis the whole time? I lost lots of weight within a very short period of time a few years ago because felt sick to my stomach/colon so wouldn't/couldn't eat. I'm losing weight quick because I can't eat and and told not to eat solids..yet, feel hurgry and sick at the same time--just like in rehad. Fentanyl allowed me to eat. And wouldn't ya know it--fentanyl is used to treat pancreatic pain--so I just learned. But, as someone mentioned here, that pain in the middle of rib cage is unmistakeable--and that I have only felt since rehad. Yet, I have also learned that you can have pancreatitis, but it grows slowly. I don't know much, yet. Still learning. Someone wrote somewhere that one should be on only fluids and IV antibiotics...well, haven't been put on IV antibiotics--my grandmother, a retired nurse, told my father she doesn't understand why hospital sent me away with pancreatitis. Now, nor do I. Because I'm so sick.

    I just learned via a doctor who order blood test, that they order wrong test to learn if I indeed had it (though I've had other blood test that say I do)--so, the thing is, the right blood test has to be taken.

    Over the years told had IBS (went away); I knew I had colon problems; I knew I suffered stomach pain and acid reflux with the use of narc pills. Yet, always constipated, never diarreha: Maybe the meds made it so didn't have diarreha. It is horrible pain. Always tired. I think you should feel mid back pain too. I feel lots of "bubbles" brewing inside of me when I eat or take meds of some kind. I have that right (and left) pain that radiates up. Didn't radiate up before rehad. Like I said, now that I know, now that I'm off the meds, it is pretty unmistakeable. Severe pain. Feel sick. Can't eat but want to. If ya do eat, bad news...well, until I learn if something can be done--maybe pain meds is it...I've read about enzyme treatment...I've read about tissue damage and irreversiable pancreatitis too. This has grown too long I think. Better stop. But, I'll tell ya, if you can find the way to get the test for Pancreatits--heck maybe even gallstones--I think you need more then blood test--you need ultrasound? or MRI or CT...don't know yet. About to go to docs right now and demand help. Been too long.

    Aloha and Good Forktune (yes, I wrote "forktune"--other spelling errors, well just errors not word play) to ya.

     
    Old 05-31-2007, 03:26 PM   #13
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    Re: Pancreatitis..Any connection between surgery/meds

    Sisty, that pain in your gut that radiates to your back can be gall bladder, blocked bile ducts or just plain acid and gas. Do you have GERD? Gerd causes awful pain too but usually not constant pain. It will come and go. Pancreatitis usually doesn't hurt your back. Just your gut. But horrible non stop pain. Once you have that pain, believe me you will never forget it.

    Konagold, I would definitely go back to the ER if you still think you have pancreatitis. You need antibiotics. High triglycerides also cause pancreatitis as does alcohol, stress and blocked ducts. Maybe it was from the meds. Please get checked again. Good Luck and keep in touch

     
    Old 06-01-2007, 09:48 AM   #14
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    Re: Pancreatitis..Any connection between surgery/meds

    I'm in terrible pain from it. Not suppose to eat solids. Don't drink alcohol--not because I have it, but because I just don't. Its very painful. I feel like I've been poisioned. So the deal is-- this is it, right? I mean, if you know. You don't get rid of pancreatitis. It just doesn't go away, and then back to eating carne asada again. Ya know, I was talking to friend last night about his high cholestoral...told him I once had it (it wasn't that high I was told), but fought it with bananas and oatmeal...told I'm not allowed to eat oatmeal now..no fiber or bran..no meal! I've been asked/told about going to ER/hospital...don't know why haven't gone back...if this is as serious as I read, then why am I sitting here writing instead of sitting and waiting. I don't know. The ER the first time around told me to go to this doctor for follow up. I did three days later. More blood taken. Told I would be called within two to three days if have it and need help...I called, dropped by--same story: will call ya. Never did. Two weeks later back at docs...yep, still have it...could have told em that without having blood test...not given much about what to do...only on Net have I learned about its seriousness...yesterday, stopped by again with letter in hand for docs (a week or so has passed again--no call.) Reminded doc how sick I was and that it has been five months now...so what do I do? Anyway, someone came back and said were going to write up referal for specialist...oi.

     
    Old 06-10-2007, 06:22 PM   #15
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    Re: Pancreatitis..Any connection between surgery/meds

    [QUOTE=Linda_in_NJ;3013649]Pancreatitis can be very serious if not treated. Did they do blood work to check your white cells? If the white cells are increased, it means an infection due to your pancreatitis. It can also cause you to go septic.
    Be careful.[/QUOTE]

    My brother just got out of hospital with pancreatitis.Doctors haven't done anything yet to treat it cause he also has 2 very large strangulated hyrenas,that ain't fixed yet either.He is 32 years old and weighs 100lbs.I always thought this was from excive weight.Anyhow he goes to see a cancer doctor next friday.Since they are taking there sweet time and doing nothing could it be cancer?I also just read that with panceras cancer you will only live for 4 months.

     
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