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feelbad 08-10-2007 07:45 AM

Re: Seeking Ideas on Burning Sensation; Chest/Upper Back Area
CH,just a quick question for ya.just what is the extent of you c spine issues?i am only asking as there is the sympathetic nervous system to be considered here as a possible reason for some of your symptoms,espescially the 'unknown' reason for your heart issues?the SNS runs all the way down both sides of our spinal columns,on the outside but there are areas where it crosses thru the chest and also the junction at the c 8 nerve level too,tho you do not actually have a c 8 vertbrae,you do have a c 8 nerve(it is your ulnar nerve in your arm?)this area is just a bit more heavily innervated than any other area of your spine.this was the area that became injured during my spinal cord surgery and actually caused my SNS damage,tho it can happen at the outter(from spine)area too(the actual stellate ganglion sits within the neck to the side of your larynx) and like i said,within the actual thorasic cavity itself too.what i awoke to right after my spinal cord surgery was done and in recovery was a bunch of yelling and orders being shouted because my previously perfect heart was running amuck,really unreal.i had never ever in my entire life ever had any heart problems of any kind but now,my heart rate and rhythem was all over the map.i found out later that this was the very first indicator of my SNS being damaged.this is just one possible reason for the "benign' cardiac issues you are suffering with now.just how are your "normal" BPs?hypotensive?have younotice any drooping at all in any way of either eyelid?either upper or lower?try looking up the sympathetic and see how this runs and most importantly check out just the huge amount of body system functions this actually regulates and then take a comparison with some of your more stranger runs alot of our basic functions and governs others.just a thought for you that could explain the seemingly unexplainable.just some thoughts here.good luck to you and i do hope they can find the main problem.marcia

sammyo1 08-10-2007 03:56 PM

Re: Seeking Ideas on Burning Sensation; Chest/Upper Back Area
[QUOTE=MKA290;3147533]We all have similar conditions. There has got to be a physiological explanation for our pain. We are not all nuts nor are we hypochondriacs. We have real similar pains that doctors cannot figure out because there are not a heckuva lot of specialists in this pain area.[/QUOTE]

MK, AMEN to that! Sammy

sammyo1 08-10-2007 04:13 PM

Re: Seeking Ideas on Burning Sensation; Chest/Upper Back Area
[QUOTE=CHKUEHN1;3147600]Sammy, I suppose it depends on the Radiologist reading the MRI. I think most will only mention the vertebrae with abnormalities. Then there is usually a general description like "no spinal canal stenosis, cord compression or abnormal enhancement following contrast."

I have found that anti-inflammatories do nothing for my pain. Vicoprofen will at least take the edge off.

I did not take the Neurontin or Lyrica last night and was awake almost all night. I seem to have alot of hot flashes when I dont take it for some odd reason. So I have that horrible anxious feeling this morning. Im going to try to go without it this weekend but if the symptoms get worse, I will restart it. At least then I would know that it is helping in some way.[/QUOTE]

Boy I hope I don't experiance that with Lyrica, We will have hot flashes soon enough. I am trying it cause I am at my wits end, I need to get back to work, three appointments next week and neuro should have the test results at least for blood, bone scan and EMG, next friday. Want to be back at work the following week, if I still have clients left. Bone scan today, Maybe something will show, any one else you know of have a bone scan, I go for ultra sound on my breast, after two mammagrams, thursday,everyone keeps asking if I am worried, no I need to get out of this pain, then maybe Ill worry about the ultrasound. I may have to lock the nuero in the room with me friday to get answers, almost feel desperate enough to do it. vicophren, that has a little anti inflammatory in it, does'nt it? part motrin is it not. I don't think much though. I start on 2 Lryrica next tues. 50 mg each, I was alittle tired driving today, when do you take your doses? Sammy

chablis3 08-10-2007 07:50 PM

Re: Seeking Ideas on Burning Sensation; Chest/Upper Back Area
Sammy, my heart does not race; just bounces around a bit! But, I have to wonder if your problem of the racing heart might just be anxiety and the stress of going through all the issues and pain your having. Just a thought, but I do know anxiety can cause a persons heart to race. I used to have panic attacks and back then I do remember my heart did race a little. I was told to take a deep breathe and hold it for a second, and that worked for me. I have to wonder if having the acid reflux could also do that to know, just dealing with all these things at once, and waking up feeling scared and nervous. I am kind of grabbing at ideas here, but seems like all things are connected somehow. You go to sleep, but I think the pain and problem is still there on your mind even while you sleep, and then you wake up nervous and stressed because your subconsciously thinking about your problems...and hoping the pain isn't there, but then it is...and thus the anxiety, etc.! I hope yo can follow what I mean.....I sometimes have a hard time explaining myself!!

sammyo1 08-11-2007 11:13 AM

Re: Seeking Ideas on Burning Sensation; Chest/Upper Back Area
Chab,I understand what you are trying to say, really can't say, I do know it happens so fast out of the blue at times, usually with the pain or muscle spasms. Doc say thinks bodies way of responding to pain, although I do know If I don't watch what I eat (bad @ night) It can really kick in, I know I am swollen in rib and Chest area always thought maybe has something to do with it. All I know I hope it stops, if I discover whats wrong & conrtolled that and the reflux and tachycardia went away I would be able to say it is directly linked. I am holding hope. Sammy

CHKUEHN1 08-11-2007 02:40 PM

Re: Seeking Ideas on Burning Sensation; Chest/Upper Back Area
I cant say that the trigger point injections that I had on Wed have helped. :(
Tried the muscle relaxers a few times but I dont think they helped either. I've had a very stressful week and I can tell it affects the back pain. Im really frustrated that there's no clear answers/solutions to my pain. Hopefully someone here will finally find a good Dr who can provide the correct treatment and we can all benefit.

sammyo1 08-11-2007 06:57 PM

Re: Seeking Ideas on Burning Sensation; Chest/Upper Back Area
I guess we can start a frustration club, I am in thats for sure, had to apologize to family today so moody, tired of pain with no explantion, & tired of meds, then spoke to my sister-law-law in florida who was diagnosed with cancer and felt I should aprreciate what I have, I do but hard. I hope I get some answers soon, new post in spinal cord forum, also pain in chest area I believe it said burning under breast ect....Don't quote me tired, if interested for you all take a look under "new on board" thread. We will all keep looking, right, don't have a choice. Sammy

babs17 08-11-2007 09:16 PM

Re: Seeking Ideas on Burning Sensation; Chest/Upper Back Area
Just an opinion...

sounds like a nerve problem

from a thoracic disc

thoracic goes to rib area, chest pain, and back area ...usually shoulder blades.

CHKUEHN1 08-12-2007 05:28 AM

Re: Seeking Ideas on Burning Sensation; Chest/Upper Back Area
[QUOTE=babs17;3150854]Just an opinion...

sounds like a nerve problem

from a thoracic disc

thoracic goes to rib area, chest pain, and back area ...usually shoulder blades.[/QUOTE]

I know my problem is [I]probably[/I] related to my ruptured disc at T6-7 but epidural of that area showed no improvement whatsoever. I have seen diagrams showing what part of your body will be affected by which nerves and it coincided with the location of my ruptured disc. The question seems to be how should it be treated. I am also wondering if the osteophytes all along my t-spine could be part of the source of pain for me.

feelbad 08-12-2007 07:39 AM

Re: Seeking Ideas on Burning Sensation; Chest/Upper Back Area
hey CH.bone spurs generally wont 'cause' pain in and of themselves,only when they are directly affecting a nerve or grow into the foramen and start causing stenosis within it,or of course if they are affecting the cord itself.they would have to be directly affecting one of the above for you to actually feel that they even exist.just how severe is your herniation.that alone could be the issue,espescially if it is covering the dermatome that correlates with it.i myself have had at least about one hundred TP injections(between 15-20 per visit) just over the past few years since my hell began back in 01/02,some worked some didn't.can you actually feel the TPs back there,little wads of tissue/muscle there?these are generally caused by the ongoing inflammation going on within the nerves at your herniation site.the nerves get inflammed and in turn start irritating the heck outta the muscles back there.that is what actually creates TPs.i,if i got any relief at all,would usually get it from the injections around day two or three.sometimes they work and sometimes they don't do kind of depends on if you actually have real TPs and if they were responsible for actually generating pain for you.a tennis ball placed between your back(inside a sock)and a nice solid wall so you can roll it around and into those TPs really works rather well to calm things down for me when it gets kind of ugly back there.its always worth a shot.its about the closest i could come to to replacing the hands of my therepist when my ins co said i was not making enough 'progress" to justify them continuing to pay,despite the fact it was working so well for my pain.i guess the pain relief part doesn't matter to the ins co.

what types of docs have you consulted so far?what have you been given as far as any realtreatment options?what is the extent of your herniation(what does it state in the MRI summary?)?depending on how severe the herniation actually is and just what is being affected would in turn kind of dictate the type of treatment options availiable to you.if you could actually post that info it would help alot.Marcia

sammyo1 08-14-2007 05:33 AM

Re: Seeking Ideas on Burning Sensation; Chest/Upper Back Area
Hi chablis3 & everyone, interesting news, went for EMG, very upfront & informative DR. Told him why I was there, right off the get go he said he could see I was in alot of pain, said it always shows in the eyes. DR. said EMG's did not always pick up nerve problems & he was pleased I went for bonescan, He started the test on the left arm, OMG, not a comfortable test when your in Pain to begin with. nothing showed in the arm, he was curious I believe because of my symptoms, so he had me roll over on my side and did the thoracic area, well he was alittle shocked because the EMG was picking up slight readings, which he said is very rare in that area. He said he would have bet it was in the neck area & believed it would have showed else where, said these symptoms can come from c6-7 area and/or thoracic area.
Needless to say he said I was a very confusing & complex case. I asked him if a slight reading was a good indicater of helping find out the problem & he replied absolutly. Before I left he said he was glad the bone scan was done & he would recommend having a myogram (I believe that is the test he said) done. So I am keeping my fingers crossed that this is a clue as to getting some help with this problem. Anyone else have A bone scan & EMG done (curious about EMG in thoracic area)? Funny thing arm does not hurt in the spots the EMG was done but boy my back so tender there & sore. Maybe we are getting a step closer, hope so cause sure in pain & getting tired from all the meds, fighting not to get depressed. Sammy PS. Almost forgot he also noted alot of inflammation, said steroids I was on should have helped that, Well still inflamed,bad. He said must be feeling alot of pain from that.

CHKUEHN1 08-14-2007 06:18 AM

Re: Seeking Ideas on Burning Sensation; Chest/Upper Back Area
Sammy, sounds encouraging that maybe its a step in the right direction.

Marcia, My muscles in my back always feel hard & tight. Of course its hard for me to tell if its actual trigger points. Because of all of the work we have been doing the past yr, my back muscles are in great shape. We built a large house and did all of the finishing work ourselves. I did almost all of the painting myself of the 4700 sf of living space including all of the caulking, etc. Back in the spring, we started on the landscaping. My husband & I laid about 20 pallets of sod. We are on the side of a mountain so that made it harder. More recently we are working on 2 retaining walls. (one in front & one in back) The landscaping blocks & caps weighed 40-60 lbs each. We are also building a 1500 sf paver patio in the back which was about 13 pallets of pavers. In one weekend we moved 30 tons of dirt to fill in behind the retaining wall and spread 15 tons of gravel. Just wanted to give you an example of how much work I have been putting my back through but I have to say, I think building those muscles helped to support my back better. For the past 2-3 wks I have not done any strenuous work like that and I have felt worse so Sunday I started helping my husband again with our project. I think it also gets my mind off of the pain.
My most recent MRI reads this way: Mild Left paracentral posterior disc herniation at T6-7 which does not cause significant stenosis or narrowing." The MRI I had in 2004 stated it was touching the cord but it is still surrounded by CSF. The only Drs I have been to so far is the Orthopedic in 2004 & the Pain Mgmt Dr 3 wks ago. I am going to try the Chiropractor & massage therapy to see if that helps. Not sure which way to go after that.

sammyo1 08-15-2007 06:00 AM

Re: Seeking Ideas on Burning Sensation; Chest/Upper Back Area
CHK, My house is a couple years old, when moving in I know I did something, really hurt, would come & go, same as you worked my butt off helping my husband with landscaping(he was recoving from surgery)he drove my crazy dictating how & what to do, he told me I dug a hole in the wrong spot (for a bush) fill it back in & move over an inch, everything I did according to him I had to redo, so I held the shovel up & said it is time for you to go in a rest NOW, HA!, funny I did everything in the old house and it was just fine. He was just frustrated & bored, he wanted to be able to do it & he could not.It was like in the 90's stiffling hot, you could imagine I was in no mood.(Got off track). The point I am trying to make is I did the same, kept right on going, the pain & symptoms scared me & I just wanted to pretend it was not there, & I loved working & keeping busy,After all I was superwomen did it all, In retrospect I know now I made things worse, so be careful, I kept going even after trip to hospital, everytime the pain & symptoms would ease or go away I was off & running on to the next big project, & was lifting alot at work, I am very small, & looking back I was really kind of dumb, no way should have been lifting like I was. I just know all that I did is why I am where I am at today, & it is not a fun place to be, now if I wanted to dig a hole it would have to be for a vegtable plant (thats all I am capable of).Watch your self & do not over do, don't want it to catch up with you some day. Be careful, Sammy

chablis3 08-19-2007 01:18 PM

Re: Seeking Ideas on Burning Sensation; Chest/Upper Back Area
Hi Everyone, Just dropping in to see how everyone is doing. I just finished reading everyone's posts. Boy, Sammy, you sure have done some really hard work with your new house, and I see that Chkuehn also has put some hard work in also. I used to be able to do things like that, but now I can't even cut the grass. I miss doing physical work; I always liked a bit of hard work. Now it takes me forever just to dust and vacuum! Sammy, I hope you get some good results and find out something from having the EMG and the bone scan. You sound like me, as to being a confusing case! I wish you luck, though, and I hope this doctor finds an answer for you. As for an update on me.....I am still searching for answers. Finally had my appointment with a new doctor at a Back and Pain Management Practice. Nice man, gave me a through check up, and said he think he can help me. Then...proceeds to tell me he is going on vacation for two weeks! I am so angry about that, and the fact that his office girl made me the appointment knowing I was a new patient, and surely knowing he was going on vacation. He had me go have an MRI of the back, but I can't find out anything until he comes back from vacation. I am calling the office tomorrow and demanding to speak to another doctor, as I really am in pain. Also called my neurologist to see if I could go in this week for a shot.....he is also on vacation next week. Makes me wanna cry!!!

But, has anyone experienced any pelvic pain? I had a slight yeast infection about three weeks ago; went to my gyno, took meds, and it went away. Then, came back last week and seems like all my tests at the gyno came back clear this time. But, I am still having pelvic pain and a slight burning feeling now and then. I am just wondering if the inflammation from my back could cause pelvic inflammation also? I am grasping at straws here, but wondering what you all think about this new developement? Any thoughts? Thanks and take care, everyone.


sammyo1 08-19-2007 02:04 PM

Re: Seeking Ideas on Burning Sensation; Chest/Upper Back Area
Chab, I am being sent to rehab. doc, autoammune DX also brought up so maybe rhuematologist in future, leaving it up to rehab doc. for now. Other doc changed meds around so all messed up again. Pain, Pain, Pain. Yep, I am a mystery docs know something wrong but yet to find it. Getting pretty fed up, back to work or I can kiss my job goodbye, husband starting radiation soon, can only get better. I hope the rehab. doc is not on vaction next week cause oddly enough the surgeon I just seen is, pretty weird huh, must be doctors national week off, don't know where you live, but weird. I would be so frustrated if I were you, I sure hope you can get a hold of someone, docs. should have someone on call for them don't you think? Good Luck & let me know what happens. Sammy PS,only pain not having today is pelvic pain, perhaps inflammtion from other area causing it, or infection still.

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