It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Back Problems Message Board

  • Sacroilitis

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 09-26-2007, 11:43 AM   #1
    WalksGINGERly
    Member
    (female)
     
    WalksGINGERly's Avatar
     
    Join Date: Oct 2006
    Location: Philadelphia Pa
    Posts: 69
    WalksGINGERly HB User
    Sacroilitis

    about 3 weeks ago I had a flareup/regresssion into 10+ pain. I was told i have si/joint dysfunction 2 years ago but have never gotten better. Just a slight movement forward at the waist resulted in an inabilty to move right leg, with the stabbing, sharp acute pain attacking at the right hip, right buttocks, right groin, right piriformis, even thigh and whole leg pain. All this resulted in right leg sciatica, numbness into arch of foot.If I tried to walk, I couldnt lift the right leg and if I forced the knee to bend say to put clothes on, walk up steps, it grabbed at the hip and butt and I hit the ceiling with pain.
    My new doctor I just started seeing used the term SACROILITIS and ordered a full body bone scan and referral to chronic pain management with si joint injections. This is a let down to me because I when I started seeing him, before this recent flareup of old symptoms, I thought he would have answers I havent gotten in 2years of this problem.
    Anyway, does anyone know if sacroilitis is the same thing as Si joint dysfunction and also, what causes the inflammation? Of course, he didnt explain anything to me, just asked if I had pain over the si joint. Once again, the chiro was the one who unlocked the hip flexor so I could bend the leg and walk, but I am still in so much pain. I am housebound and back to being unable to drive. Thanks GINGER

     
    Sponsors Lightbulb
       
    Old 09-28-2007, 08:00 PM   #2
    margsee
    Inactive
    (female)
     
    Join Date: Nov 2004
    Posts: 120
    margsee HB User
    Re: Sacroilitis

    My understanding is that SIJD is the mechanical disfunction whereby the pelvic bones don't stay in place, shifting and rotating in different ways depending on the individual, and, I'm learning, it's often combined with a out-of-place sacrum too. (I also had one twisted vertebrae or something like that). Sacrolilitis is the condition where the SI Joint is inflammed, I think because a person has been "uncorrected" for so long. I learned this stuff by reading up on the DonTigny methods.

    I think I have sacroilitis because my first PT was only partially correcting me for 6 mos (never identifying the shifted sacrum in addition to the rotated pelvic bone). I had one SI Joint injection 2.5 weeks ago and it worked great for 13 days. Now the pain and displacement is coming back a little each morning & I have scheduled a 2nd injection. I'm hoping the pain came back partially because of my menstrual cycle. My next injection will be earlier in the cycle, so we'll see. For certain, the decreased inflammation helped me stay "In". FYI, I've read that an intra-articular injection can keep the medicine in the joint (if there is no tear in it) and the medicine can't help the surrounding tissue, suggesting that a periarticular injection is better.

    The inflammation is from the joint working improperly for too long due to the subluxation - or "slight dislocation". Again, the slight dislocation depends on the person, and slight can be a little as a millimeter & still cause pain and inflammation in the joint and surrounding tissue. See if you can find a PT who specializes in pelvic floor disorders and women's issues. SI Joint Disorder & therefore Sacroilitis often results from pregnancy, so PTs who work with a lot of women are going to know more.

    Last edited by margsee; 09-28-2007 at 08:07 PM.

     
    Old 09-28-2007, 08:18 PM   #3
    Jack24
    Inactive
    (male)
     
    Join Date: Feb 2007
    Location: NC,USA
    Posts: 243
    Jack24 HB User
    Re: Sacroilitis

    Thankfully I don't have this or at least not yet. Anyway, in medical terminology, 'itis' means inflammation of. The word means inflammation pertaining to the sacrum and the ilium.

    The sacral part of the spine is fused by nature. The sacro-iliac joint is just barely a joint as it moves less than 5*. Sure seems to cause a lot of trouble for what little it contributes to flexibility.

     
    Old 09-29-2007, 09:48 AM   #4
    kkmom
    Senior Veteran
    (female)
     
    kkmom's Avatar
     
    Join Date: Jan 2007
    Location: Hawthorne, California, USA
    Posts: 1,109
    kkmom HB User
    Re: Sacroilitis

    Your symptoms sound similar to mine, I wonder if thats what I am dealing with. At least your doc ordered a full body scan, mine they are playing guess what is going on. I pray that the pain will decrease for you, take care ok.

     
    Old 09-30-2007, 10:51 AM   #5
    WalksGINGERly
    Member
    (female)
     
    WalksGINGERly's Avatar
     
    Join Date: Oct 2006
    Location: Philadelphia Pa
    Posts: 69
    WalksGINGERly HB User
    Re: Sacroilitis

    Hi all,
    Thanks for your responses. It is so helpful for me to discuss this with people who are in the same boat. Alot of knowledge here, LL and Graceful and KK..... LL, I was premenstrual in this latest flareup and before my initial injury to the area. Keep me informed of your findings in this area.
    I spent last week calling different PT's in the Philly Pa area. No luck finding one who studied at Michigan State. I even put an ad out on a Philly website. I am about to put an ad in the Philly newspaper!!! If I learned anything from this site is to keep fighting and never give up!!!!! I literally spend my days in bed since 2 months ago. My mental state is a mess.....and that new 10+ pain really triggered a major depressive episode, thanks all for listening to me.

    I did find a woman pt who specializes in pelvic floor disorders but she said SI joint is not the same thing. She said she does manual PT and their specialty is SI joint.

    > I spoke with a male PT and explained how I have had this for 2 years and have had PT and only gotten worse. He said he studied in Canada and he does manual PT and active release and his training is better than those who study in US. Not sure who I beleive right now. What burns me up is that the physical med doctor gave me script for pt but did't refer me to a PT. I am at Rothman who states they are tops in spine care. What a crock!!!!

    Anyway, I know my si problem is affecting the gluteus max, gluteus min, piriformis, ITB band. That area is always in pain, tender to the touch. The pain in the groin is now wrapping around the whole leg, under the butt cheeks. My whole leg aches as I walk, something new since this flare up.

    This week I got out and drove the car. I am walking in the pool at my gym. I can go out for about an hour. When I go in the hottub, it aggarvates the pain, isn't that weird? When I touch in the groin area it radiates to the si bone area and hip. So I know I still have a lot of inflammation. I heard scar tissue can interfere with recovery from this si joint thing. Some thought to ponder, huh?

    I would still be in bed if it wasn't for the chiro unlocking my hip flexor. The tens unit he gave me (it's portable)to use had helped with excessive pain and spasms. I recommend this to anyone. Get one!!!! It's all I have until the end of October til I see a pain mgt doc. Have a good one.......Ginger

     
    Old 09-30-2007, 08:06 PM   #6
    CaliGirl
    Senior Member
    (female)
     
    Join Date: Sep 2007
    Location: Maryland
    Posts: 230
    CaliGirl HB UserCaliGirl HB UserCaliGirl HB UserCaliGirl HB UserCaliGirl HB User
    Re: Sacroilitis

    I have suffered with this condition for two years now and in April of this year I had the nerves in the right side of the joint ablated via a radio-frequency lesioning treatment at Johns Hopkins Hospital as I live in Maryland. This has helped considerably with the 8-9 level pain I was in on a daily basis and has brought it down to a 3-5. Unlike the SI injections, this treatment lasts for 6-18 months and then has to be repeated one additional time. This is a treatment which is designed to reduce the pain without really getting at the cause of the dysfunction. I am also in PT and my therapist sometimes has to realign the joint. This seems to help especially with that nasty groin pain. I also take 300 mg of Lyrica daily, 150 mg of Topamax, both for nerve pain, and Percocet if I have any throbbing in the joint. I would love to find a PT who is an expert in SI joint dysfunction, however, I live in a rural part of the state and have to take what we have available. But geez, what a rotten way to have to live. My heart goes out to all of us with SI joint dysfunction.

     
    Old 10-04-2007, 01:46 PM   #7
    Rachelle49
    Newbie
    (female)
     
    Rachelle49's Avatar
     
    Join Date: Oct 2004
    Posts: 5
    Rachelle49 HB User
    Re: Sacroilitis

    You stated that your PT is making a big difference. Would you please share some of the things you are doing in PT. I am currently in PT, also. for the same thing and would like to share what's working for you with my PT. Thank you.

     
    Old 10-04-2007, 07:51 PM   #8
    kkmom
    Senior Veteran
    (female)
     
    kkmom's Avatar
     
    Join Date: Jan 2007
    Location: Hawthorne, California, USA
    Posts: 1,109
    kkmom HB User
    Re: Sacroilitis

    See when I told my doc I was having groin pain she looked at me like I was crazy and asked was i having sex. What kinda crap is this. But gosh my symptoms are so silmilar, so there is nothing that can be done for this?

     
    Old 10-04-2007, 08:10 PM   #9
    CaliGirl
    Senior Member
    (female)
     
    Join Date: Sep 2007
    Location: Maryland
    Posts: 230
    CaliGirl HB UserCaliGirl HB UserCaliGirl HB UserCaliGirl HB UserCaliGirl HB User
    Re: Sacroilitis

    KKmom- with regard to your groin pain- This may very well be coming from SI joint dysfunction. My pain-management specialist told me that it is called referred pain and it is nerve pain and tough to treat. I do treat this pain with nerve pain meds, however, your doctor obviously knows nothing too complex about SI joint dysfunction and the comment about sex was just plain nutty. Sorry you had to endure it. To give you a sense as to just how severe the groin pain can be, I will tell you a tragic story. Before I had a correct diagnosis of SI joint dysfunction, I talked an Ob-gyn into taking out my right ovary because my groin hurt so badly on that side. It was all he could think to do. Who would have thought the pain was coming from my BACK? Obviously not a GYN.

    Lisa

     
    Old 10-04-2007, 08:16 PM   #10
    WalksGINGERly
    Member
    (female)
     
    WalksGINGERly's Avatar
     
    Join Date: Oct 2006
    Location: Philadelphia Pa
    Posts: 69
    WalksGINGERly HB User
    Re: Sacroilitis

    Rachael

    I am not sure if you are talking to me about PT, But I was injured 2 years ago initially, onset when I bent over forward to lift and had immediate stabbing pain in the right butt, and sciatic pain. I did have pt from day one when I couldn't walk or sit at all, couldnt abduct at the hip or bend forward. Alls they did was use tens units, heat and ice for 3 months as my pain was 10+ and couldnt do anything else. That was a comp pt. How they denied me comp I will never know!!!!

    Then I got my own pt 4 months later and they did lumbar strengthening and stretches, and had that 6 weeks with even more pain, and no help at all. They overstretched me at the piriformis stretches and thats when my hip and groin pain started.They just sent me home with home exercise program.

    I never got better, had si joint injection, did nothing.

    I year after the injury , I got a chiro who lessened the pain to 3-5, but i am still not cured. My hip flexors lock up and he does active release to enable me to use the leg. But I have still have pain in the groin, thigh, gluteus max, gluteus min, piriformis, psoas,itb, and have had an ultrasound this summer that revealed tendonitis of the hip and butt muscles.

    The PT help I am now seeking is knowledge I gained from this board, it is something to hold on for now, Richard Don Tigney website gives a website of information and I am researching The Hersch Method, designed by a PT who studied under RDonTigney and has come up with a new technique different from traditional SI joint physical therapy. He is in Nevado and am planning a trip to see him to be evaluated. But I imagine now my condition is permanent and beyond repair. He told me in a phone conversation that he doesnt think I have a anterior rotated pelvic bones, but a downslip of the ileum bone. By lifting it up , it puts the joint in place.

    My recent flare 4 weeks ago put me back 2 years, back in a laying flat in bed position for 2 weeks with the inabilty to walk or drive and 10+ pain. my pain is down to 7 now, but the joint burns, and oh how the groin and leg pain kills!!!!My conclusion is there is no cure, it is a rotten way to live in so much pain and decreased activity.......... Ginger

    Last edited by WalksGINGERly; 10-04-2007 at 08:29 PM.

     
    Old 10-04-2007, 08:24 PM   #11
    WalksGINGERly
    Member
    (female)
     
    WalksGINGERly's Avatar
     
    Join Date: Oct 2006
    Location: Philadelphia Pa
    Posts: 69
    WalksGINGERly HB User
    Re: Sacroilitis

    Cali girl

    I am scheduled to see a Pain Management doc in October, as they are now calling me chronic. (2 Years now) This is for injections once again(New docs now, starting the old process once again.)

    Anyway I am going to ask about burning the nerves also. I didnt know that was an option for this condition. Thats what happens when you are left to deal with this with incompetent docs!!! It's like pulling tweeth to get help and answers and it takes so long waiting for appointments.

    Ginger

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Do you think surgery is warranted? (m).. greenacres Spinal Cord Disorders 6 03-21-2009 04:32 AM
    Opinions please (back surgery, diagnoses) etc. (m).. greenacres Back Problems 1 09-08-2005 06:41 PM
    got back from the pain clinic didnt go too good kim32 Pain Management 14 06-20-2003 03:49 PM
    long complicated story twisten TMJ Disorder -TemporoMandibular Joint 3 04-21-2003 06:19 PM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is Off
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 12:01 AM.





    © 2022 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!