It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Back Problems Message Board

  • Pain 4 years after scoliosis surgery?

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 06-30-2008, 10:13 AM   #1
    moetwins
    Senior Member
    (female)
     
    Join Date: Mar 2008
    Location: Buffalo, NY, USA
    Posts: 161
    moetwins HB User
    Pain 4 years after scoliosis surgery?

    Hi everybody, my name is Kelly and I am 24 years old. In 1999 I had surgery to correct scoliosis, the surgery went fine but in 2004 I started having terrible back pain. As the years passed I also developed widespread body pain, migraines, TMJ, major fatigue, anxiety, depression and brain fog. I have went to many doctors and have been told everything from you have fibormyalgia to the pain is coming from your muscles trying to form around the rods in your back. I have also tried many different medication, physical therapy and message therapy and nothing seems to work. I was wondering if anyone has had this surgery and has felt this way? Thanks for your help!

     
    Sponsors Lightbulb
       
    Old 06-30-2008, 02:14 PM   #2
    BlueAtlas
    Senior Veteran
    (female)
     
    Join Date: Aug 2006
    Location: Virginia
    Posts: 3,304
    BlueAtlas HB UserBlueAtlas HB UserBlueAtlas HB UserBlueAtlas HB UserBlueAtlas HB UserBlueAtlas HB UserBlueAtlas HB User
    Re: Pain 4 years after scoliosis surgery?

    Hi Kelly
    I've had this surgery, but didn't have the problem you're having. I wonder if removing the rods would help. I had my rods out two years after the fusion.

    I would continue to pursue answers. Don't give up! You're so young, you need to have a solution to this! Do you have a major university near you with a hospital? They see the most unusual cases and are up on the latest techniques.

    Please let us know what you find out. I hope you get the answers and help that you need.

    Take care,
    Emily

     
    Old 06-30-2008, 03:33 PM   #3
    moetwins
    Senior Member
    (female)
     
    Join Date: Mar 2008
    Location: Buffalo, NY, USA
    Posts: 161
    moetwins HB User
    Re: Pain 4 years after scoliosis surgery?

    Hi Emily, thanks for your help . I have thought about getting my rods removed but when I asked my doctor about it he said that most people don't have them removed but he didn't give an answer why. The doctor who did my surgery moved to the Cleveland Clinic and I liked him so I thought of maybe even driving three hours to make an appointment with him. Did you have your rods out for a certain reason and was the removal of the rods as big of surgery as putting them in? I live in Buffalo so we do have UB here, maybe I will look up and see if they could help me out. Thanks again for your help!

    Last edited by moetwins; 06-30-2008 at 05:23 PM.

     
    Old 07-01-2008, 07:23 AM   #4
    BlueAtlas
    Senior Veteran
    (female)
     
    Join Date: Aug 2006
    Location: Virginia
    Posts: 3,304
    BlueAtlas HB UserBlueAtlas HB UserBlueAtlas HB UserBlueAtlas HB UserBlueAtlas HB UserBlueAtlas HB UserBlueAtlas HB User
    Re: Pain 4 years after scoliosis surgery?

    I had complained of continued pain after my surgery, but since my curve was barely corrected, just stabilized so it wouldn't get worse (long story), it was only natural that I would still have pain. It was way less than before the surgery, but I was naive and didn't really understand all the ramifications of the surgery or the effects of that curve on the rest of my body. My doctor said it would be best to remove the rods because if I were ever in an accident, it would be harder on me with all the metal in my back. This was over 30 years ago, though. I think that thinking has changed. Nowadays, they tend to leave the hardware unless it's causing problems. My doctors now have told me that I would have been better off if they hadn't removed the rods, as my severe curve and that huge fusion finally caused the rest of my lumbar segments to break down and I had to have another fusion, fusing all the rest of the way down. I'm now fused from T4 to sacrum.

    My case is unusual. If they corrected your curve, it shouldn't be a bad thing to remove the rods. Recovery from hardware removal is anywhere from a couple of weeks to 2-3 months, depending on whether the hardware is imbedded or can just be "unscrewed."

    If you thought highly of your doctor, it might be worth the drive to go see him.

    I wish you the best!
    Emily

     
    Old 07-01-2008, 09:06 AM   #5
    moetwins
    Senior Member
    (female)
     
    Join Date: Mar 2008
    Location: Buffalo, NY, USA
    Posts: 161
    moetwins HB User
    Re: Pain 4 years after scoliosis surgery?

    Thanks again for your help! I think they corrected my curve as best as they could, I was only 15 when I had the surgery so when the doctor would talk to me I usually didn't understand him, now I wish I would have listened better. I know it's not totally straight because in the x-rays there is still a slight s curve but it looks a whole lot better than it did.

     
    Old 07-05-2008, 05:19 PM   #6
    karrie77
    Junior Member
    (female)
     
    Join Date: Dec 2007
    Posts: 18
    karrie77 HB User
    Re: Pain 4 years after scoliosis surgery?

    I agree with your doctor in regards to removing the rods because of the possibility of getting in an accident later on, as it happened to me. Back in June 2005 someone in a truck hit my car from behind. At first I didn't realize there was anything wrong, as I was more concerned about my daughters that were in the car with me. Then when the shock wore off, I realized I was in alot of pain. Because my previous spine surgeon would not look at my xrays to see if there was a problem going on (because he did severe damage to me prior) I had to search out another doctor. Finally I found one and the tests showed the top of my rods and hooks (around T5) were shoved into my spinal cord (spinal cord damage/myelopathy). By then I was losing feeling in my lower torso and leg, bladder incontinence, severe pain in spine, etc. I was told the rods needed to be removed or I would be paralyzed. Because the surgery was not performed until Nov 2005, my damage was permanent, in fact it got worse. Had I not had the hardware left, I would not have these problems. My previous doctor had refused to remove them. This was my 3rd set. Now I do not have any of the rods/hooks/screws, etc, except for 8 titanium mesh cages in my lumbar spine. The curve getting worse is/was the least of my worries, because of a combination of my previous surgeries and the spinal cord damage, I have worse issues to deal with, including now needing surgery in my cervical spine (severe stenosis) because of damage done from a previous surgery that left me deformed and my lumbar spine has a severe stenosis because of all the prior surgeries and damage from those surgeries, including where the cages are still located. I am now told once more that I will need more surgeries or I will be paralyzed. I have been dealing with these problems now for 28 yrs. Whether hardware is removed or not, once we have had these surgeries, we will always have problems and need more surgeries. I have met SEVERAL people over the years that have left their hardware and have the same problems of unfused areas now needing to be fused. In fact more people have more problems by leaving them in. All the stress is now being put on the remaining levels, whether removed or not. Not only that, but the rods serve NO purpose after 1-2 yrs anyways.

    Last edited by Administrator; 02-24-2015 at 02:29 PM.

     
    Old 07-07-2008, 03:59 PM   #7
    moetwins
    Senior Member
    (female)
     
    Join Date: Mar 2008
    Location: Buffalo, NY, USA
    Posts: 161
    moetwins HB User
    Re: Pain 4 years after scoliosis surgery?

    I'm sorry that you had to go through all of that. I wish I could find a doctor that would help, I have been in so much more pain since the surgery but the doctors that I have seen don't act like it's a problem. I hope you're having a pain free day, thanks for your reply.

    Last edited by Administrator; 02-24-2015 at 02:29 PM.

     
    Old 07-12-2008, 01:02 AM   #8
    karrie77
    Junior Member
    (female)
     
    Join Date: Dec 2007
    Posts: 18
    karrie77 HB User
    Re: Pain 4 years after scoliosis surgery?

    Thanks moetwins. Sorry to go on and on like that. I'm sorry you are having to go through so much pain and that the doctors are not understanding or listening. I can totally relate. I do think you should think about driving the 3 hrs to see your previous doctor. Have you thought about visiting a neurologist regarding this or a neurosurgeon that removes the hardware? They seem to be the one's that tend to listen a little better I have found versus the ortho spine doctors. I know I will never go back to an ortho doctor again.

    Good luck to you and keep us posted,

    Last edited by Administrator; 02-24-2015 at 02:29 PM.

     
    Old 07-28-2008, 06:24 PM   #9
    moetwins
    Senior Member
    (female)
     
    Join Date: Mar 2008
    Location: Buffalo, NY, USA
    Posts: 161
    moetwins HB User
    Re: Pain 4 years after scoliosis surgery?

    Hi, sorry I didn't get back to you I must have missed your post for some reason. I have started seeing a neurologist but he has never said anything about having my hard wear removed. I am going back to see an orthopedic doctor on the 20th but I don't know if he will be able to help me or not. Thanks so much for your help.

    Last edited by Administrator; 02-24-2015 at 02:29 PM.

     
    Old 01-10-2010, 02:18 PM   #10
    bugmail
    Newbie
    (female)
     
    Join Date: Jan 2010
    Location: elizabeth co
    Posts: 2
    bugmail HB User
    Re: Pain 4 years after scoliosis surgery?

    I had my first scoliosis corrective surgery in 1999 as well I started having pain in 2005. My doctor decided to take the rods out. Things got better till 2007. I complained to the doc he sent me to a pain managment clinic but that was just a waste of a lot of money and time. I started tsking pain meds and recieving 20-30 shots a week but there was no real relief. I went to the hospital one day thinking I had broken my rib come to find out my fussions were not healed and my spine was actually curved worse than in 1999. I went to a new highly regarded doctor who then informed me the fusions had not healed from the first surgery, which was more than likely the cause of the pain, removing the rods allowed it to freely curve again. I then had to go back in have the old fusion broken off my spine realligned, fused and more rods and screws put back in. The fusion is now longer and I am still in need of another surgery soon. I have been recovery since 07/21/2008 I am in pain constantly. I am able to work but by the end of the day my legs and feet are numb. I am not doing any type of pain managment but am looking into it because I can't function normally anymore and am only 23. Have you found any relief?

     
    Old 01-08-2011, 04:22 PM   #11
    Roy 905
    Newbie
    (male)
     
    Join Date: Jan 2011
    Location: CO, USA
    Posts: 8
    Roy 905 HB User
    Re: Pain 4 years after scoliosis surgery?

    My recent surgery (November 19th) was for a lumbar fusion and a scoliosis problem which they straightened. I think the rods cause a lot of pain as the muscles have to work around them. I figure it might take years for full adjustment to them or maybe never. Also, this was a revision of an earlier surgery and to get it done I had to go to a specialist out of town, seems local surgeons don't want to work on patients of MDs they know. But all in all this is my second major surgery and pain seems to be part of the deal. So go see an orthopedic MD who can give a fresh opinion and what possible solutions are available. I was told by my surgeon that these bolts, rods and nuts can work themselves loose and on some occasions a revision is necessary. Don't give up.

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    How to live with chronic pain from C-spine herniations-help,tips? dawnmn Hernia 6 02-09-2009 09:58 PM
    ZFennel's Pain History zfennel Share Your Pain Management Story 0 08-20-2008 11:38 AM
    PAIN PAIN from scoliosis, please help jruhl673 Back Problems 1 12-30-2004 07:00 AM
    Natural remedy for pain and inflamation? ajfinsand Arthritis 0 07-22-2003 12:12 AM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is Off
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 01:41 PM.





    2019 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!