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need advice on asking about SSD- back pain and also fibro

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Old 03-04-2012, 08:05 AM   #1
Join Date: Mar 2012
Location: Alecandria, va
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vabacknfibro HB User
Exclamation need advice on asking about SSD- back pain and also fibro

I have used Healthboards to read about others problems and now is my turn for help... I need feedback on if I should ask my work about SSD for my back and fibro problems.

history of problems- I was in a BAD car accident when i was 16 (43 now) and have always had back problems. In my younger days I was very active with hiking, camping and even had an antique furniture business at one point. Now I can barely move!

in the past year I have exponetionally gone downhill and was diagnosed with fibro and back issues. my PCP retired and he gave me vicodin 5/500 for years to help with pain but then the practice suggested I see someone for pain management. I went to a neurologist who was more concerned with me doing a sleep study (which I had previously done) b/c he had just started one. He was not concerned about my back and suggested after I asked him about long acting meds to see a pain management center.

Im not stupid and understand that 6-8 vicodin a day is bad for me but that is all i knew and was desperate for help so I went to a pain center. like most on here the 1st appt was horrible and they made me feel like a criminal. I left crying and ended up writing a letter dismissing myself from care along with the rx's they gave me. (vicodin 1 every 6-8 hrs, lyrica 1 day) I swore I could do it on my own! well 4 days without pain medicine and trying the free 7day trial of lyrica (horrible drug) I caved and asked the pain dr to help.

I started a daily diary and my second appt with her was much better. she had ordered xrays of low back and knees which showed hypertrophic spurring in the lower thoracic and L1-L2 with disc narrowing. on the second appt she did an exam and actually said "oh wow" while palpating my back. we talked about long acting meds and I decided to try Nucynta ER 100mg 2x day with vicodin if needed and zanaflex 4mg 3xday.

I have been on the Nucynta ER for the 10 day trial and have had no relief. so i am tapering my self off of that but I don't see the dr again for a couple of weeks.

I had xrays of my cervical spine and SI and hips taken last week- I can see from the CD they gave me how messed up my spine is!

I have routinely missed work b/c of headaches and this past week b/c of severe back pain. I tried to go in Friday but was crying in pain by Noon and came home. I cant go with out pay and have no sicktime to use. It seems I have a dr appointment or procedure or sick day every week to ask off for and I know they are getting sick of me asking.

since I began working my job in 2009 I have had cervical cancer, diagnosed with fibro and now debilitating back problems. what should I do? I was thinking that using SSD would help me get on track and i could deal with all my medical issues without stressing on the pay. My husband is supportive of anything I decided but worries about money.

I have DDD whole spine, bulging discs, narrowing, spurs, lordosis, spondylosis, sciatica, arthritis in knees, bursitis in hip, and a miriage of Fibro problems.

this was the condensed version- thanks for reading!

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Old 03-04-2012, 03:46 PM   #2
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Re: need advice on asking about SSD- back pain and also fibro

Sounds like you have quite a bit going on. I would first talk to your HR Department about the options available to you, as far as temporary disability, for example, which may be available to you through your employer or your state. A temporary disability option may enable you to have a short-term income stream while you take some time off from work to improve your health. Since it sounds like your primary goal is to leave work only temporarily, this type of benefit seems bestl-suited to your situation. The HR department should also give you information on leave. Be sure to ask if you qualify for FMLA.

As far as social security disability, which I think your post concerns, your employer does not make the decision as to whether you would receive a benefit. This determination is made by the Social Security Adminstration. Without knowing all of your particulars (current income, projected disability income, income needs, etc., none of which should be posted on the internet), it is difficult to know whether you should apply for SSD. However, if you go to the social security website, you should be able to get more information. Also, if you contact an attorney who specializes in social security applications, they should not bill you directly. Much like worker's comp attorneys, they are paid by the administrative system, rather than by the individual applicants. The social security website should have some information as to how to find an attorney, but if not, you can call the state bar for your state to receive a referral.

Old 03-05-2012, 02:36 PM   #3
Join Date: Jan 2012
Location: binghamton ny
Posts: 1
joannepayne40 HB User
Re: need advice on asking about SSD- back pain and also fibro

have been battiling ssd for 8 years with the same illnesses and they ok me for ssi since i now hit 50 acheap way out of disablility the amount went from 1600. a month to 697.ssi. be prepared for abattle i started all of this on my 42 birthday and had to move from houston to ny to stay with family because i can not support myself had a 90000. yr job. but it has been longer than 5yrs since i worked. it is a very difficult task receiving ssd good luck

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