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Old 07-20-2012, 10:08 PM   #1
FLDawn
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Red face Freaking out.

Went to my first pain management appt. today. Don't know why they have to make you wait so long in waiting room. I swear those chairs are the worst!!! I had to take all kinds of pills when I came home. Well I did hear some new things. Just wish I wrote down some questions before I went. I forget everything after being there for awhile. My minds goes blank just trying to get rid of the pain. Same thing happened a few weeks ago when I saw the neurosurgeon. Anyways, they are going to be doing the epidural shots in my thoracic spine first. Said one shot 3 times, new shot every other week, start with the first shot on Wed. I think they are going to be doing that for each disc. Not really sure??????? Pain management dr was surprised that the neurosurgeon wanted to work on the thoracic part first. Said that my lumbar area was pretty messed up and wanted to do that first. However they did not get a copy of my MRI of my thoracic area so other office is going to send it. I think once he sees that he will understand more of what the neurodr is talking about. Going to get the first shot this Wed, they did not say anything about knocking me out or twightlight so guess they are going to just numb and then give me the shot. Did not say anything about resting the next day. Freaking out about that. But hey if it gets rid of this pain I will do anything. Dr was having me move my leg while he was pressing against it. I did not know that would send me thru the roof. Was the first time I wanted to hit a dr because of pain. I know I made a fist and it took evreything I had to not just knock him out. He said we had a 50% of shots working, oh lord I hope they work. Dr was wondering why they have not talked about surgery yet, now that started to freak me out even more. I came home and cryed. That is something I don't even want to think about. So I called my mom and talked to her. She tried to calm me down. I guess I have knowen for a few weeks now that my back is messed up I just did not want to come to the relization that it might be giving me problems the rest of my life. I think it's starting to sink in. I don't like it one bit. I think I am becoming more depressed than before. I have always been the one to look at the brightside of things. I have had some crazy things throwen at me in my life and have made it thru, why am I having such a hard time with this????? Guess I need to quit having the pitty party for myself and just suck it up. What do I do now???????

 
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Old 07-21-2012, 01:54 AM   #2
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Re: Freaking out.

Can I join your pity party? I cried to my mom last week too. I'm supposed to get one of those shots on Tuesday in my neck. I have no idea if its supposed to hurt or what drugs they inject exactly or if there will be a recovery time. I have been prescribed vicoden and not even that kills the pain. What if the shots don't work? I have six herniated discs and five are in my upper thoracic spine which are supposedly super hard to operate on and risky. Will I be stuck in this constant state of pain forever? I'm only 24, what will happen if I ever want to have kids? I can barely lift anything as it is.

 
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Old 07-21-2012, 07:54 AM   #3
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Re: Freaking out.

Hey, if it's a party I'll come too. But, it's not sounding too fun. I've been having a lot of problems the last couple weeks and trying to figure out what is causing my headaches, neck and shoulder pain. I thought it was a migraine at first, but now I'm leaning toward more neck issues. I've been lying down for the better part of two weeks, except for one wonderful day where I went to a friend's house and pretty much forgot about how miserable I felt.

I've also been through a lot and can usually be pretty strong, but my neck and lumbar problems have been difficult to deal with. I have no answers, but having a support system of family and friends who understand is great. My daughter and granddaughter are very good to me, as well as three friends who are living with neck and back problems as well. Leaning on others is about the only way I've found to cope.

 
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Old 07-21-2012, 12:56 PM   #4
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Re: Freaking out.

Kelly & Duner, you guys can always join my party......lol I need to find ways of getting out...lol of the house without leaving the couch to much. I need to start walking more cause if I dont I get really hmmmmm frozen is that the right word. Oh well thats another story but my party will be the best!!!!

It's nice to know that I am not the only one that is going thru this. Seems like alot of people around me at work just don't understand. I got tired of people asking me how I am feeling and I can't say I am feeling better,. I feel like since they don't see a back brace or body cast ect.... they just can't get the just of how I am feeling so now I just tell them I am peachy....lol. If only they knew. However it feels great to know that you guys know what I am going thru. Some days I just need so encouagement to get me thru. Help and kind words. I wish everyone who reads this that they have less to no pain at all with whatever they are going thru. So lets have a party....lol I will bring the vodka and cards! Music, Classic Rock good with everyone???? Bad to the Bone???? lol

 
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Old 07-21-2012, 02:00 PM   #5
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Re: Freaking out.

Those chair's are really the worst! I thought I was the only one who was complaining about it lol. Definitely write down your questions because you will go blank when you're talking to the doctor. Every time I leave the office and I get to my car, I get that "Oh damn - I forgot to ask ..."

The following Friday I go for my 2nd lumbar injection, they spread it out 3 weeks apart. I asked to have one done in my Cervical and they wanted to push it off until I get the results of my 2nd lumbar shot. WHY? I don't know, but I would love to relieve the heaviness in my arm. I had doctors tell me that, "I'm walking like I have nerve damage the way I'm positioning my hand/arm." Doctors have brought up surgery as an option if the conservative treatment doesn't work and I hope it doesn't resort to that. I don't think I'd ever agree to that surgery to be honest unless I'm at rock rock bottom.

I have not went to a neurosurgeon yet, however I think I should make an appointment this week to see his review. My primary care is my Physiatrist, with second opinions from the Orthopedic, who just agree with the treatments my Physiatrist is telling me. I was hoping things were going to start looking up, not the way I planned it.

I've been getting into so many fights with my brother because of this accident. Keeps putting me down, I'm not working, I'm not doing this, I'm not doing that. I mean please, enlighten me, what exactly would you like me to do when I have 4 doctors telling me DO NOT WORK or LIFT ANYTHING HEAVY or BEND/TWIST. Yet, I have not missed one payment or anything so his arguments are nothing but useless fights. Wish the shoe was on the other foot, he'd be doing nothing but complaining and asking me to do **** for him.

I get it, I've been through so much and with this I feel hopeless. I dislike talking to my mother about my problems because I do not want to worry her. I'm too young for these problems, just like you Kelly. I'm waiting for the day to wake up pain free! Until than, I wish everyone a painless weekend!

 
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Old 07-21-2012, 02:40 PM   #6
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Re: Freaking out.

I am there with all of you. Back, neck and knee problems took my life away over the past 5 years or so. I am allergic to opiates so no pain meds help. I had sots, temporary releif at best, but everyone is diffferent.

Prayers for you.

 
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Old 07-21-2012, 02:53 PM   #7
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Re: Freaking out.

Hi; The chairs really do @#$#@^ n stuff don't they LOL, But to your post now the injections aren't really that bad , The 2 Hrs after are the best until you're not numb anymore, But my anesthesiologist says ice and you will be fine... HAHAHA lil does he know if it wasn't for my meds I wouldn't have had another, as my neck gets painful like a screwdriver he forgot to pull out for a few days then it's ok, They certainly helped my neck, got me off a walker and is just the cane intermittently now and just on bad bad days. To tell you the truth I really can't everybody is different and has all types of problems, but it puts the steroids right at c-6 where I need it so I'm happy with it, The Doc should do the procedure under florascop x-ray to guide the placement of the stuff, and can watch the needle... freaks me out He's looking the other way at the screen and poking me in the neck LOL. You will most likely get a local, just to numb it and I have had bee stings that felt worst. and after say 7-10 days it should calm down the issue that inflamed the area, he wants to work on. I have had several shots in the last few years and they just don't seem to work as well anymore. But I am happy I got the relief I did,as they don't work for everyone.
I could talk for days, but that gives you another point of view and maybe reassurance as I know it was the last thing I wanted was a NEEDLE MM FROM MY SPINAL CHORD!!!!
I made it through it LOL, I hope you get some relief from the issues you are having take care and goodluck

 
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Old 07-21-2012, 11:39 PM   #8
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Re: Freaking out.

I'm so sorry this info and pain made you cry but I remember going to pain management for the very first time. After I heard everything the doc said( he said what you have is like cancer except it won't kill you)! He said you will be in chronic pain for the rest of your life and should have had surgery ( 2 years after physical therapy and steroid Epidurals that lasted for two weeks)! I came home and cried! I was really depressed after hearing that I would suffer for the rest of my life. I finally had surgery two weeks ago and I feel better already! I pray that you find what med combo, procedure or therapy that gives you relief soon! Hugs!

 
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Old 07-22-2012, 06:44 AM   #9
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Re: Freaking out.

Thank you very much everyone for the great information and support. It means alot to know that there are people who are out there who know where I am coming from. I so wish that we did not have to meet like this and it was under much different circumstance. However you all have helped me quite a bit thru this.

I have a question to ask everyone. My Dr's ask when I get a new one when my pain is the worse and where it's at. I feel crazy that I can't give them a straight answer. I keep telling them it depends on what I am doing and what time of the day. My lower back and upper back and neck bother me more at different times of the day. However when one area gets feeling really bad it seems to make the rest of the other areas hurt more. I hate that when I get up in the morning that as soon as I open my eyes before I even roll out of bed I already feel everything hurting. When I get home from work all I want to do is come home and lay against my heating pad, because my upper back is killing me. Then later in the day I can hardly even walk any more. Can't even step up the 2 little steps from the porch to the kitchen. So my question to everyone is when is their pain the worst????

The ciroprator told me the other day that in the report from the neurosurgeon it said I was not a good canadate for surgery because I am a diabetic, have high blood presure, and the history of family members with heart problems. Not that I want surgery however does bug me that I have all those medical problems that would make it harder. I have notice alot lately that every time I go to the dr's office that when they take my blood pressure that it has been running a bit to high. I had it under control before the car accident however now it's been running 145-160 on the top number and then 95-100 on the bottom number. It's the bottom number that has me worried. I am thinking I may have to get ahold of my GP and have him up my dose of meds. The sugar has been running high to. Guess its because of everything I am going thru. I know that I have read that some people have had problems with blood presure and with sugar going higher after the epudural shot. Should this be something I should be worried about and check after I get home?

Hope everyone enjoys their Sunday and has a pain free day! Once again thank you all for your posts!!!!

 
Old 07-22-2012, 12:15 PM   #10
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Re: Freaking out.

Be sure the doctor doing the steroid injections knows you are diabetic beforehand. Hopefully someone in the same situation will respond to you. I recall reading posts on this topic previously, but since I am not affected, I have not retained the information.

The steroids do cause changes for a few days in people who are not diabetic. For example, I am always "wired" afterwards and am wide awake for the first 24 hours. After the first couple times when I finally figured this out, I stopped even trying to go to bed that first night.

Also, I crave sweets. I bet I came home a baked a pan of brownies every time.

Sometimes people are extremely hot and their temperature control system is out of whack for about a week or so. Some people have emotional changes. Steroids affect the whole hormonal system.

 
Old 07-22-2012, 05:08 PM   #11
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Re: Freaking out.

Dawn I have the same problem, addressing my issues to my doctors. I come off so vague because I have no idea where to start - what causes it - what affects it - etc... I do know, at night my pain is much worse than the day. I know what you mean by when one area starts to act up it's a domino effect on the rest of the areas.

I'm surprised you are working to be honest. My job consist of being on my feet for a minimum of 5 hours, lifting boxes, a lot of bending and twisting that my doctor tells me do not go to work. Money has been getting tight as of late, going into my savings and relying on my parents now (bummer). Today I was having a conversation with my friends mom who has 2 cracked vertebra's and 3 herniated disc. Shes 52 now, had her first herniated disc at 28, and told me she's been in pain ever since and never took care of it so it became a lot worse. She referred me to a back specialist who I will be calling tomorrow for another opinion.

My leg pain that goes below my thigh is very random, but very severe when it happens. Every time that it has flared up, I was doing completely different things so I'm baffled to what causes it. Been feeling very depressed these past few days, trying to level myself out but... tomorrow's another day. Don't know what I have done to deserve this, but I feel punished enough and pray that it just goes away!!

 
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Old 07-22-2012, 06:41 PM   #12
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Re: Freaking out.

It is difficult to pinpoint how/when/what makes my symptoms worse, but perhaps keeping a journal would help. It's also helpful to take a family member or friend to your doctor appointments with you. I have blood pressure problems and it's important to keep track of your b/p as well as other health issues you have.

It seems I have new symptoms pop up as well as old one returning at different times. I'm amaze how many different types of pains I have!

 
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Old 07-22-2012, 08:56 PM   #13
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Re: Freaking out.

Pubbles, im sorry you cant work that must be terrible i have a hard time getting through the day especially when I get blinding headaches but at least I sit at a desk and it's not super stressful. I saw a psychologist for awhile because my doctor insisted my back pain was psychosomatic. Did some pain hypnotherapy. Helps about as much as taking advil. It really didn't make the pain any better but it did help me deal with it better. If you let the pain upset you too much it only makes it worse unfortunately. So yes vodka, cards, and rock and roll it is!!!

 
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Old 07-23-2012, 12:42 AM   #14
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Re: Freaking out.

Not working is depressing. I've been looking for a desk job, phone job, something that I can sit/stand while still working when I need too. Hard too though. Hopefully my Uncle comes through, he's trying to get me some manager position which would be awesome! Better job, easier on me!

I really had my heart set out on being in sanitation but in 2 years from now I guess I'll know, might make it in time... I HOPE! I do not believe how one can think your pain is psychological... that's beyond me. After my accident, the first few weeks I wasn't getting any better I was thinking it was psychological lol... After I researched and realized I actually had a semi-serious problem, I didn't want to believe my doctors, straight denial. Now I rely on them, sadly to say, and that makes me so angry that it's like that! I try not to let this get to me, although the thought of it is much easier than doing so.

Looking forward to tomorrow, not sure why but anxious to see where it leads me! Hope everyone has a nice painless week! In my prayers tonight.

 
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Old 07-23-2012, 04:34 PM   #15
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Re: Freaking out.

So a party it is Kelly!!! Pubbies sorry you are having a hard time of this. I know it's not easy. I have a sit down job and believe me when I say its not as easy as you would like to think. If I sit to long my mid back kills me, along with the lower back cause once the upper goes the lower goes. If I stand to long the lower back gets really bad and then the upper goes, oh and don't forget to throw that neck in there too. It's a lose lose situation. I had a really bad weekend. Woke up Saturday and was hurting so bad so I just rested on the heating pad to see if it would help. Well then Sunday came around and felt even worse so I thought that sitting to much Saturday made it worse so yesturday I decided I would walk more well guess what.... lol that did not work and I was in even more pain today and had to go to work. Went to therapy today and they said I was all knoted up and they could not understand how I even walked into the office today. Legs hurt so bad that I can't even tell you were they hurt anymore, it's all over.

I do surprise my self that I am even still working too. However I can't quit working even for awhile. Bills would not get paid and I don't want to lose my house because some idiot could not pay attention to the road. Oh and can't forget that we have a new truck payment we have to make now. We had just paid the other one off when it got totaled. I just want Wednesday to get here and pray that the shots work. I am at my ropes end.

 
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