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    Old 09-02-2012, 12:21 PM   #1
    lullabydream18
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    spinal fusion

    So, about 5 years ago, I got spinal fusion surgery on my back for scoliosis. I was 15 at the time so of course I wasn't thinking about sex at the time. But my surgery has me only able to move my neck, the 4 top vertebrae in my upper back and the same in my lower back. Sex is really hard for me and I'm having issues with being able to do anything, none the less, if I do try, I am left in so much pain it is unimaginable. Is there any help anyone with the same issue could give me? I know there aren't many of us out there with fused spines but even people without them, if you have any suggestions, that concern it, I would be most grateful. I am currently taking yoga in hopes that maybe it will help me with flexibility in the vertebrae I do have. But sometimes even yoga leaves me in pain, other days, it helps my pain go away. Another question I have is will my ribs always be this brittle? the doctor used pieces of my ribs to fuse my spine as well as steel screws. Now my ribs bruise easily and they break easily. will I always be dealing with this? and another, I am in constant pain, the first time in 5 years (since I got the surgery) that I hadn't been in pain was when I started yoga.

     
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    Old 09-03-2012, 12:21 PM   #2
    Moldova
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    Re: spinal fusion

    Hi young lady, I hear you!

    Yoga and any even mild exercise will leave you in pain even it pain doesn't come from bone/ joints. Usually people with spinal fusions can't move or do hard work/exercise anymore, so our muscle kind of weak. After even walking a little, it hurts a lot. Doing yoga, is the best thing you can do for yourself. Don't do exercise you are not allowed. Some yoga poses I am not allowed to do after spinal fusion as well. My yoga teacher is very knowledgeable, she learned yoga for many years being in Hawaii. So she tells the group what we are doing and tells my name: you are not doing that, just stretch. Even though before spinal damages, I was in advanced Yoga classes. Keep doing it.
    Regarding your question... people who had their spinal surgeries done at NSS in NYC had classes prior surgery where they taught us how too... after surgery.
    In book they gave us, they show poses we can't do ever and what we can choose from. They talked about help of small pillows, etc.
    Try to find the way where you comfortable and not in pain; what good does it do if you crying right after? I can understand you perfectly fine, but you definitely can search on Google this matter.

    Life goes on and you have to be happy!

    Wishing you well
    Moldova

     
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    Old 09-03-2012, 01:51 PM   #3
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    Re: spinal fusion

    Welcome to the board. I don't have any specific recommendations to offer regarding your situation, but I wanted to suggest that it might be worthwhile having a spine specialist evaluate your situation. It may be that now that you are older, some of the hardware could come out, or that there might be something new that they could try.

    You have to be a little careful trying to do anything to limber up the areas that are not fused, as they are already feeling the stress of being the only area of the spine that has any movement. It puts particular pressure on the segments adjacent to the first fused area.

    You may just need to find a sympathetic partner who understands your limitations.

     
    Old 09-04-2012, 12:35 AM   #4
    lullabydream18
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    Re: spinal fusion

    Moldova, thank you so much for the reply. Do you have any idea what the name of the book was? I resulted to google to try and fine a solution but everything I found on google was all about physical problems with the hardware in your back after the surgery. I'd like to know about the book though, maybe even if it wasn't just about that specifically, I could try different positions and see which works best for me.

    terteri66, How do I find a spine specialist, I would absolutely love to find one specifically so I can get more information on the matter, I thought about filing for disability because being in this condition has left me unable to work several different occasions and I can't just not go without money. you know? The guy I am with currently is very understanding of my condition and is very willing to try and help me out with it and is sympathetic when I do happen to fall into tears from crying. So, that's a plus, but I am so concerned with him that all I want to do is please him but I can't. pleasing is all that it's about with me. you know?

     
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    Old 09-04-2012, 08:17 AM   #5
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    Re: spinal fusion

    A spine specialist is one of two specialties, a fellowship-trained orthopedic SPINE surgeon (not a regular orthopedic doctor who sets bones or replaces joints) or a neurosurgeon. They key is to find one whose practice is limited to the neck and back only. In your case, with the history of scoliosis, I would look for an orthopedic spine surgeon.

    You can look online for an orthopedic spine surgeon in your area or look at the website for a hospital or medical practice in your area, find orthopedics, and then look for spine. If you are in Lake Forest, IL I can recommend someone to you that is affiliated with the North Shore Health system...
    Dean G. Karahalios. If he isn't the right guy, he will refer you to someone else who can help you. (He is a neurosurgeon, but specializes in complex reconstructions and would understand your issues.)

    Another option would be the Illinois Spine Institute which is located in Schaumburg and may have other locations. You can take a look at their website and see what you think.

    But if you aren't in any pain other than when having sex, it wouldn't be worthwhile seeing a spine specialist. I would think a physical therapist could help you with positions and what you can and cannot do.

    Be very careful with yoga. If the instructor is not familiar with your specific limitations, you could end up doing much more harm than good....maybe not immediately, but as you age.

     
    Old 09-04-2012, 10:37 AM   #6
    lullabydream18
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    Re: spinal fusion

    I am not in lake forest illinois, I'm in california. but your answer did help. thank you. I am in pain all the time. not just when I have sex. sex just increases the pain sometimes. I keep going back to the doctor who performed the surgery and he keeps saying there is nothing wrong with me. but if there was really nothing wrong with me, I wouldn't be in pain all the time. It is to my understanding that pain is your body's cry for help, letting you know that something is wrong. Am I correct?

     
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    Old 09-04-2012, 11:33 AM   #7
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    Re: spinal fusion

    Do you live anywhere near Whittier?

     
    Old 09-06-2012, 11:09 AM   #8
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    Re: spinal fusion

    [QUOTE=lullabydream18;5050282]Moldova, thank you so much for the reply. Do you have any idea what the name of the book was? I resulted to google to try and fine a solution but everything I found on google was all about physical problems with the hardware in your back after the surgery. I'd like to know about the book though, maybe even if it wasn't just about that specifically, I could try different positions and see which works best for me.

    terteri66, How do I find a spine specialist, I would absolutely love to find one specifically so I can get more information on the matter, I thought about filing for disability because being in this condition has left me unable to work several different occasions and I can't just not go without money. you know? The guy I am with currently is very understanding of my condition and is very willing to try and help me out with it and is sympathetic when I do happen to fall into tears from crying. So, that's a plus, but I am so concerned with him that all I want to do is please him but I can't. pleasing is all that it's about with me. you know?[/QUOTE]

    Lulla,
    The book I am talking about was given to each of the spinal fusion patient when we went for classes before surgery. This book with instructions what patients must do before the surgery but mostly about life after fusion surgery. With pictures, suggestions, examples, etc. You can't buy this book; it given only to patients who are having their spinal fusion surgeries at *** in NYC.
    They explain in this book how some poses may hurt a patient during intimacy, how some poses may benefit, again use of the pillows.
    One important line: do not do if you experiencing pain in surgical area.

    Depends on damages, pain also may be in a stomach area, feel like you got bladder/bowel issues. I have nerve damage in these areas, so pain is always there. After surgery I would have so much pain inside, felt like stomach pain, but after all it also belongs to spinal problems, nerve damages.

    Problems you experiencing, according to you, come from your surgical site, therefore you have to discuss this with your either Pain mgmt DR or Spinal Ortho. You can't expect to get help from your GP; doesn't matter how good they are, they are not specialists and cant help you with your issues.
    Neurologists, good ones of course, may have a suggestion or two for you.
    These are team of DRs you need to see and be under their care. Best results come when all your doctors work together on your case in order to help you.

    Hugs and best wishes
    Moldova

     
    Old 09-11-2012, 06:47 AM   #9
    equinelady12000
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    Re: spinal fusion

    I had a tri level fusion from L3-S1 four months ago I am 55 a lot older than you I had a neuro surgeon do my.fusion plif /alif front and back. I am still recovering. And doing PT the pt helps but I am I. Psi. All the time. This was my second back surgery is horrible I ca. So understand your.life. I live on pain.meds for 7 yrs so I know what you are dealing with yoga is not for me at this point. Best of luck sweetie. I would at least get a new mri and research the. Spine surgeon. I went to the Virginia Spine Institute. In Reston Virginia I had a neuro surgeon. And he will also be doing my.4.level fusion on.my cervical spine I. The next few months!

     
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