It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Back Problems Message Board

  • Tumors on Spine... What?

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 11-29-2013, 10:34 AM   #16
    teteri66
    Senior Veteran
    (female)
     
    Join Date: Nov 2010
    Location: USA
    Posts: 9,238
    teteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB User
    Re: Tumors on Spine... What?

    Since you had such a devastating experience with one specialist, I'm sure it will be impossible to fully trust another...but my guess is that he is right about the hemagiomas...which would be some good news.

    Unfortunately not every issue has a surgical resolution. With arthritis it is often a matter of managing the pain. Hopefully yours will not progress, but until you have more nerve compression, a surgeon will not be recommending a surgical procedure.

    Do you have a pain management clinic near your house? You won't want to have to drive two hours each way for appointments.

     
    Sponsors Lightbulb
       
    Old 11-29-2013, 05:44 PM   #17
    WhistleDixie
    Inactive
    (female)
     
    Join Date: Sep 2013
    Posts: 833
    WhistleDixie HB UserWhistleDixie HB UserWhistleDixie HB UserWhistleDixie HB UserWhistleDixie HB UserWhistleDixie HB UserWhistleDixie HB UserWhistleDixie HB UserWhistleDixie HB UserWhistleDixie HB UserWhistleDixie HB User
    Re: Tumors on Spine... What?

    I have experienced a lifetime (at least since high school) of devastating experiences with disease and/or injuries...Believe me when I say I did not want ANY type of surgery. I made that decision a long time ago...after my "last" female surgery. I "tucked my tail" and retreated into the fox hole, so to speak...just tried to grind my teeth and survive with a minimum of medication.

    My ortho had specifically said to me in early October..."We're going to do the Synvisc in both knees again...however I recommend knee replacement because I'm a surgeon. It's your body and your decision as I cannot force your to have surgery. Let's get a complete blood work up and full body bone scan with contrast to make sure you don't have bone cancer" (WOW...what?) It took 3+ weeks to get results as I AGONIZED with worry (all because she doesn't give results over the phone). IMO that was cruel and unnecessary stress for any patient, but especially one who has a history of emotional "breakdowns" requiring hospitalization. Thankfully no cancer, so she says "Let's get an MRI and get your referred to pain management. The MRI was done on 10/18. The tech said results would be ready in 24 hrs. She made me wait until my return appointment on 11/19 to discuss the results with me. Meanwhile she had her nurse call me to tell ME to schedule an appointment w/neurosurgeon because she saw "something" of concern that could require surgery. (WOW...what?) I made the appointment and did all the leg work of getting my records to them even though in my heart I KNEW it was an exercise in futility. Again...EARLY OCTOBER she recommended PM clinic 30 minutes away, and it's now almost December...still no referral.

    I called the PM clinic today and BEGGED them to take me. I had radiology fax all test results to him. My husband picked up a copy of my entire file from ortho's office and I have faxed that to the PM clinic as well as the disc of MRI/SCAN mailed today. I asked the girl if she had referral from Dr. D? She said "no, but she would start a file for me and place all info into it". Procedure requires that I have the doctor's referral before PM physician will review my records. Even then it will be his decision/discretion as to whether he takes me as a patient. His receptionist said he's booked until February. (WHAT?) 8 weeks were wasted because my ortho dropped the ball IMO.

    I called her office on Wednesday after faxing a letter practically begging her to intervene...DO SOMETHING to help me...if only until Monday. Her nurse was unnecessarily rude to me. She told me that she had NO record of Dr. D suggesting PM...they don't do that! ARE YOU smoking crack? Immediately upon receiving copies of my file, I was able to point out where Dr. D has "suggested" PM as far back as 2008. I KNOW this. I am very detail oriented and a "no excuses" prove it kind of person. I want to shove that where the sun doesn't shine. But I know if I go BAT @#$% crazy...I'll never get help.

    DOES ANYBODY UNDERSTAND my frustration due to prolonged suffering due to a doctor and staff who spend their time eating homemade pie from their "patient" and discussing their love of crust vs. filling. All the while they have "overlooked" me because I had been left waiting from 1:55 until 4:58 to see her?

    I am sorry for the rant. There's no point in any of this. I KNOW so many of you suffer your own burdens, emotionally and physically. But it seems that even though you've faced hills and valleys with doctors, you have at least found a solution. I have not. In fact, I'm worse now than I was when I started my search 3 months ago. I should have just continued to grind my teeth and push through the pain. The trouble with that is I am ruining my porcelain crowns by "grinding" and my significant loss of bone density is leading to the loss of my dental health as well=(

    I'm just a crazy mixed up mess.

    Last edited by WhistleDixie; 11-29-2013 at 05:47 PM.

     
    Old 11-30-2013, 01:07 PM   #18
    teteri66
    Senior Veteran
    (female)
     
    Join Date: Nov 2010
    Location: USA
    Posts: 9,238
    teteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB User
    Re: Tumors on Spine... What?

    I have a feeling in the coming years more of us will have stories like years. I'm afraid health care is not going to get better. So far I have been fortunate to live in an area where waits are not long and doctors are responsive. If they weren't, they couldn't make a living.

    I always assumed my care was what was typical all over the US, but I now know that isn't true. My 89 year old aunt had a stroke a couple years ago and I spent the better part of the year with her, while she was in-patient rehab for many months, and then once she returned home, I drove her to therapy, appointments, and made it possible for her to stay in her home. I soon learned that all medical care is not similar to what I am used to...and it was a real eye-opener for me.

    I'm sorry I cannot be of more help to you. Have you seen the pain management board on Healthboards? The people who post there tend to be those who have dealt with pain for a long time and have had a variety of experiences dealing with chronic pain.

    To me, it is inexcusable to keep a patient waiting for so long before learning results of tests. Do you have any other choices among orthopedic doctors?

    As you mentioned before, the neurosurgeons have not felt your lumbar issues would be helped by surgery. If the nerve compression gets worse, you may change your feelings about having what should be a relatively straight-forward back surgery to create more space for the nerves....

     
    Old 11-30-2013, 01:25 PM   #19
    gmak
    Senior Veteran
    (female)
     
    Join Date: Oct 2012
    Location: USA
    Posts: 2,649
    gmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB User
    Re: Tumors on Spine... What?

    Hi dixie, Of course i understand your frustration, probably most of us here do but there is one thing that may be the difference. We are just further down the road into real pain management with a pain mgmt dr. You mentioned a PM&R referral & thats the kind of dr that treats my pain & even though you have been through so much, for me the pain made it impossible to not go to the next dr, i had to & it would be so very sad if the next step, pain mgmt or a PM&R evaluation, is the place where you find real help & you didnt go. Its scary, its hard but the impossible pain has to be controlled because it can cause heart attack, stroke, hormonal imbalances that make osteoporosis worse because of high cortisol levels. In the meantime before the pm dr appt or the PM&R dr appt is your ortho still going to give you the short acting narcotics? If so, do you think you can wait until february? Do they work at all?If not, when is the PM&R appt?

    Last edited by gmak; 11-30-2013 at 03:54 PM.

     
    Old 11-30-2013, 06:46 PM   #20
    WhistleDixie
    Inactive
    (female)
     
    Join Date: Sep 2013
    Posts: 833
    WhistleDixie HB UserWhistleDixie HB UserWhistleDixie HB UserWhistleDixie HB UserWhistleDixie HB UserWhistleDixie HB UserWhistleDixie HB UserWhistleDixie HB UserWhistleDixie HB UserWhistleDixie HB UserWhistleDixie HB User
    Re: Tumors on Spine... What?

    Thank you, Teteri...Yes, if you have a physician that actually CARES about not only your health, but your well being, you are blessed. I appreciate your input. Yes, I know that I need both knees replaced and my left hip. I also know that this is as good as it gets for my body. My diseases are progressive and eventually crippling. I went on to the neurologist because I thought "ok, what IF the compression is getting worse and I'm risking paralysis?" My neighbor "put off" surgery for years for his spinal stenosis because he was career MHP and thought "it cold wait". Well, he suffered what he calls a "rubber leg" that he cannot stand or walk on. His arm is useless as well. It's sad to see such a strong and powerful man of honor be reduced to his present state. His biggest regret is waiting too long. So, yes I know that I may one day have NO choice.

    Thank you g=) Yes, my cortisol level has not dropped below 19 in 8 years. I am a ticking time bomb physically and emotionally. As for my ortho, just read my previous post to see how they're treating me (or refusing to treat me). She's "out of the office" until 12/5. I'm @#$% outta luck, it seems.

    I will resume the QUEST on Monday. I now understand why people turn to alcohol and "recreational" drugs. One can only suffer for so long. I'm not now, or have I ever asked for special treatment. But gmak, you know how HARD I've been at this for months now. There is NO EXCUSE for my not even being scheduled for pain management yet. How is PM&R different from PM? I don't need "stretching techniques" or neck exercises...It's an exercise just to reach a cup from the kitchen cabinet. What a HOOT=)

     
    Old 11-30-2013, 08:09 PM   #21
    gmak
    Senior Veteran
    (female)
     
    Join Date: Oct 2012
    Location: USA
    Posts: 2,649
    gmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB Usergmak HB User
    Re: Tumors on Spine... What?

    Dixie, My dr like most PM&R drs has 50% of his practice treating acute & chronic pain & 50% rehabilitation for joint replacements, strokes, people that have been sick for a long time. I was told to go to him after a hospital workup on my back by 6 drs because im not a surgical candidate but had/have severe pain from adhesive arachnoiditis & he was the dr who prescribed long acting timed released narcotics for me & his main goal is to help increase functioning to the optimum level for each person. Because my situ is severe he has never sent me to PT or for epidural
    injections but does trigger points on me, is very very knowledgeable & has fixed things like tennis elbow, trapped ulnar nerve, achilles tendonitis, trigger finger without surgery over the years. I read all about your ortho but didnt understand if she actually stopped prescribing the hydrocodone, did she? Does your insurance require a referral because last fall i made an appt without one for a pm/anes with my mri records only. I am hoping that you can just make an appt for pain mgmt with your films & medical records or the PM&R dr will be helpful to you.

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Cervical spine issues - confused Lionor Spinal Cord Disorders 23 09-23-2013 06:09 PM
    Understanding my MRI of Cervical Spine Navarresmom Spinal Cord Disorders 5 09-30-2012 01:49 PM
    Laminectomy Surgical & Postop, MRI,CT Report Help Requestd Chitown2012 Spinal Cord Disorders 14 03-02-2012 09:42 PM
    just a simple quick question twinsmomma23 Pain Management 26 01-15-2012 10:46 AM
    Confused with EMG results - What now? devkar35 Spinal Cord Disorders 8 12-05-2011 09:11 AM

    Tags
    bone, endometriosis, pain management



    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is Off
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 07:00 AM.





    © 2022 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!