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Melneedshelp 08-04-2007 08:45 AM

Something most certainly wrong.
We've been treating it like the flu, but it's not going away had it for a week now. When I wake up in the morning I'm plagued with Shivers starting in my stomach area like a vibration and spreading out to my limbs and making my teeth chatter like I'm freezing, nausea accompanies this, my stomach and intestines are rumbling and grumbling, I'm belching a lot, dull centered headache, light-headedness. I'm sweating a lot at night. Almost fever like symptoms as well though we have no thermometer to check.

The shivers slowly go away as the day progresses slowly as does the nausea, however if I try and eat something the nausea returns for awhile. By late day I usually feel halfway decent, then the whole process starts over the next day. I'm getting scared.

I'm drinking lots of water and trying to eat something now an then as when the nausea goes away I do get hungry but as I said after I eat the nausea returns.

I have no medical insurance and I work only as a part time work study at my college, I don't have money to be going to doctor, so unless it's something very bad I can't be going there on a whim. Can anyone help me figure out what this is.

ticker 08-04-2007 01:33 PM

Re: Something most certainly wrong.
Hi Melneedshelp. Flu-like symptoms in the summer should be suspect of Lyme disease. Lyme disease is a mutli-system bacterial infection caused from the bite of an infected tick.

Below is a Lyme symptom list. You can have any combination of symptoms.

Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol

When Lyme disease is a possibility, it is very important to see a knowledgeable doctor. Many doctors do not understand Lyme and treat with outdated protocols. No test is completely reliable, and results can vary by lab.

Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. It is estimated that 60% of people who have Lyme are co-infected. It may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA.

The co-infection Babesiosis can cause many of the symptoms you describe. Night sweats are one of the hallmark symptoms of Babesiosis.

If you think this may be a possibility and would like a doctor recommendation, let me know.

I hope you feel better soon.

babyluv45 08-04-2007 03:21 PM

Re: Something most certainly wrong.
does the college have a health center you can go to? my college gives free help to anyone even if they are only part time. i really think you need to see a doctor. i dont really have any ideas as to what you would have. i would go out and buy a thermometer and if you have a temperature go to the ER or Urgent Care at a cilinic. they cannot refuse to treat you and can work out payment plans. i sincerely hope you feel better.

adamace1 08-04-2007 04:09 PM

Re: Something most certainly wrong.
It is most likly a stomach flu or virus. But it could be something major, but i would bet money if you did see a doctor they would tell you to rest take it easy and drink alot of water, i would consult a ID doctor if this persits longer than two weeks, or if your fever goes above 103 or if you jusrt feel like something is really wrong or feel like passing out, You have night sweets and i'm 90% sure your infected with something. Antibiotics may even be a big help.

Please get a thermometer to check your temp and you can use Tylonal to lower your temp, but if it gets twio high witch could be 103 for you, you can damage your heart valves and heart it's self and many other organs. It's not worth doing that just to save some money,

Melneedshelp 08-08-2007 11:16 AM

Re: Something most certainly wrong.
I broke down finally after having it too long and went ahead with my pay check and made an appointment with the doctor.

He believes that the problem is some severe acid reflux disorder. He says all my symptoms can be caused by it and I have a history of acid reflux issues (I've been plagued with it for a couple years now, in the past it's been so bad I've woken up in the night suffocating on acid reflux) he gave me 30 days of free samples of a prescription drug Prontonix (since I don't have insurance) and I had to go buy some stuff called Carafate which I have to take before every meal and before I go to bed. I'm hoping he is right in this regard and this is the problem. I have a follow up visit in 3 weeks to see how I'm doing. I only started taking the pill last night, so it's probably not in effect too much yet but I was able to eat without getting nausea thanks to the carafate yesterday before meals. This morning I still have the shivers though that are slowly subsiding as usual, but no real nausea with them and more proof to his claim I belched this morning and it brought up some acid to my throat (felt it burn).

Just thought I'd let anyone reading know and the chance someone else with a similar symptoms reads this.

tiff-cher 08-09-2007 01:48 PM

Re: Something most certainly wrong.
I have most of the symptoms that you mentioned for lyme disease!!! I have been diagnosed with IBS, Gerd, Fibromyalgia, and a collagen disorder. I Also have CDD and LDD, I could go on and on~but sounds like lyme could be something else to check into...thanks t-c:confused:

tiff-cher 08-09-2007 01:49 PM

Re: Something most certainly wrong.
Good Luck to you I know what is is like to wake up feeling like you are going to drown!!! tiff-cher

ticker 08-09-2007 06:35 PM

Re: Something most certainly wrong.
HI tiff-cher. It does sound like you should check into Lyme disease. Some people who have Lyme were first diagnosed with other diseases including CFS, Fibromyalgia, MS, and ALS.

As I stated in the post, it is very important to see a knowledgeable doctor. The closest one to you that I know of is in Springfield, MO. Would you like his name?

You may want to check out the Lyme board on this site. There is a lot of good information.

I hope you can get some answers soon.

tiff-cher 08-10-2007 08:39 AM

Re: Something most certainly wrong.

ticker 08-10-2007 07:00 PM

Re: Something most certainly wrong.
Hi tiff-cher. Many people have Lyme for years before getting diagnosed.

bethsheba 08-11-2007 12:36 PM

Re: Something most certainly wrong.
If it is acid reflux, it may be a symptom of another problem....I was treated for acid reflux for years only to have it disappear when I sought treatment for sleep apnea....I could have avoided YEARS of medication if my apnea had been identified as a child.

You might want to check out the sleep disorders board for more info...and you might want to look for research studies about sleep apnea and acid reflux...I didn't know of the correlation, but when I met with a sleep specialist for the first time, he said that acid reflux is often a symptom of sleep apnea, and that if the apnea is treated (often without drugs or surgery), the reflux will diminish or disappear.

After being on acid reflux meds for over 20 years, I am acid reflux med free---and I eat when, what, and whenever I want.


But you know, after rereading your symptoms I would look further---perhaps explore tickers suggestions. You might also check out the aacid reflux board to see if anyone there has your symptoms...the sleep disorders board may also have helpful info...but definitely check out Tickers suggestions. Too many physicians spend 15 minutes in front of the exam room door and totally miss the diagnosis.

bethsheba 08-11-2007 12:48 PM

Re: Something most certainly wrong.

I'm glad you're bringing some attention to this condition!

I would like to add that people may think that because Lyme Disease is caused by a tick they won't get it because they don't have dogs, don't hunt, dont' walk in the woods, whatever...this is a myth!

I knew of 3 people who worked in one department in a medical setting who had various stages of lyme disease---they all lived on wooded city lots.

Hope this helps.


ticker 08-11-2007 04:43 PM

Re: Something most certainly wrong.
Hi bethsheba, thank you for posting this!

You are right that many people believe you need to be in the woods to be bitten. Ticks are everywhere. I read one estimate that 75% of people who get Lyme disease are bitten on residential property.

I was bitten when walking into a business (not in the country). The tick that bit me was attached for three hours at most and it transmitted five diseases! There is a lot of information that states it has to be attached for at least 24 hours to trasmit disease. Not true! Misinformation like this can be dangerous.

Lyme disease is the second fastest growing infectious disease in the US after AIDS and the number one vector borne disease in the US (not West Nile).

bethsheba 08-11-2007 05:17 PM

Re: Something most certainly wrong.

I really appreciate your post as it was full of info that I was not aware of (and I live in a high risk state!). One of the 3 women I knew had to retire because of arthritis because her Lyme disease wasn't diagnosed until it was in the advanced stages. I don't know if it was a coincidence that her 2 other collegues later developed the disease but I suspect she was instrumental in educating them about the symptoms. As you well explained, not all physicians are on top of this.

Hope you are doing well...will read some more of your posts as I need to update my knowledge.


golfhat 08-11-2007 06:24 PM

Re: Something most certainly wrong.
3 years ago I had something so similar---it must be the same thing. we were at the beach in Florida... After 3 days I started feeling like I had a heat stroke.
I had low grade to very high fever along with bone shattering chills and my teeth racking together...My muscles and bones hurt so bad i could not walk and did not want to frankly. I don't recall nausea ( but maybe I did)
but I had fever from 100 -103.5 for over 2 months. Mine would come on me very punctually...10-11 in the morning and not subside til evening after i had taken motrin. then I would be able to sleep during the night then next day it would start again. The bed would literally shake from the chills.
I was losing weight and getting weak. Sounds like malaria, right?

I finally was sent to an infectious disease specialist by my doc. This guy tested me for everything from tuberculosis to malaria, west nile virus, yellow fever etc, everything he could think of. they sent samples to the state of Texas to rule out more than 20 different things.

No poisons, no tropical diseases, no cancers, no auto immune diseases, etc.
Nothing showed up. I was told the next step was an MRI to find a tumor. Yep that is what they said. My intuition told me it was not that. After two months I started to get better. But not until I had lost 15 lbs and looked pretty bad.

Then it dawned on me--- ---12 years ago I was in the woods and a tick did get on my back and I had the usual bulls-eye rash. So i took tetracycline for two weeks back then. But now I am hearing that two weeks of it was not enough. so what to do now after all this time. I pray this does not happen again.

I feel for you if you have what I had. I would say acid reflux is NOT what is wrong. acid reflux can make you uncomfortable and not sleep at night, but fever, chills so bad you shake the bed??/ No that doc is just putting you off because he does not know what is wrong. check for LYME.
They say that fever that lasts for weeks means something usually is wrong.
But in my case, it must have burned up whatever was wrong with me. I just remember that my doctors and the nurses were very nervous.......

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